i am almost 70 and due for another 7 years of medication
I used to take Anastrozole only I developed severe tendon problems, and it was changed to Exemestane which has been more better for me. I had relative small, oestrogen receptive +vet lobular carcinoma. I had surgery and radiotherapy. Mine was highly oestrogen receptor +ve, 8/8 therefore and it's always been made very clear to me that I must it for 10 years. I've never had bone pain. I have DEXA scans every couple of years to check my bone density.
I had my surgery done at one hospital and radiotherapy in another county because of severe delays at original hospital
letrozole is anotherAI, which might suit you better. Probably a good idea to talk to your oncologist.
I have been taking anastrazole for about 5 months now and have aches at my lower back and in the hips. Today I decided to not take it for a week or do to see if the aches clear as they are very depressing and particularly bad first thing in the morning. Having had a very small cancer, a lumpectomy and 15 sessions of radiotherapy and being 70 I need to know if this drug is really necessary.
Stay positive Mouse.
You'll get there, a warning to us all though
hugs B x
Hi mini mouse
I was wonering how you were getting on.
Just take it easy, heart pains are so worrying. I'm sorry I forgot you hadn't been able to have your op.
I really wish you well, keep posting pplease.
Magical Moon my DEXA scan was part of the BC 'package' - I was too ill for my first appointment so phoned BCN and she both cancelled that one and got me another one- and it was all done while I was waiting for op way back in Jan. 14 weeks does seem like a long wait.
Thanks I may ask to try another brand
If I ask on here about side effects I will get a lot of different answers for every brand, we all seem to react differently.
Thanks Magical Moon, very informative.
I am about to order another lot of Anastrozole, I have had Accord brand and am currently on Teva brand which suits me better. Is there another brand I could try to see if I have an improvement?
Hi M - Thank you so much for your informative reply and for pointing out not only the pros but also the cons. I must admit that when you read the word irreversible it is pretty scary but then weighing up against the other alternatives maybe not!!
Thank you once again - big hugs
Hi Mini Mouse and Magical Moon. I hope you dont mind me muscling in on your conversation but having read you posts and was wondering if you could give me some more information that you have found with regards to Exemastane. I have just finished chemo and have been given a prescription for Exemastane to start in a couple of weeks time, I have looked up the side effects and did notice that it was steriodal, excuse my ignorance (dont really understand what the difference is between steriodal or not!!) but couldnt seem to find any in depth info. I did take Anastrazole for 2 years but it didnt work for me so I guess I am running out of alternatives! My oncologist didnt mention any non reversible side effects. Any info you can give me would be greatly appreciated.
Wishing you all the very best.
Many thanks Jane x
Sorry to hear about your op but it does show they are looking at the whole picture. Your surgeon sounds OK
I hoope you don't have to wait too long for a new date and to see the specialist drug person.
I wish you well
Thing is we all have to weigh up drugs v cancer v side effects.
Oh and Moon thanks for that info about which is steridal and which isn't. I agree with you about having a normal return after we have fifnished
LOL but as we are all changing after this Beast what is norml???
So pleased you went to docs, even if it did become a bit of an adventure LOL
I take my Anastrozole between 9 and 10 at night then it means i sleep through most hot flushes (not all).
I have started taking Evening Primrose Oil and that seems to help as well, do notice if I forget a capsule - 1000mg in morniing and mid afternoon, You can take it 3 times a day.
Did check with consultant before I started it though
Having lower back pain at the moment not sure if that is Anastrozole or arthritis flare up - should go to GP but..............
Hi ladies, I have just started taking anastrozole, tonight and after reading your comments wondered if you are still experiencing the heart probs. I have suffered with palpitations some time back now and hated that fluttering sensation. This was due to anxiety, wow and that was way before I had this lot to go through. I am taking mine at night but is there really any right time. Appreciate any tips related to this drug, waiting now for rads planning. Hope you are all good. Lol xxxxx
I think heart mis-bahaving needs to be checked, especially with the medical history we all have.
Please do get it checked and don't assume anything
Never asked, Am having a lot of healing problems so have been seeing consultant (said side effects) and BCN who told me to check the brand as i said before.
I've only just started on this brand - no heart racing, less severe flushes, only wrist and ankle aches. Once I had been taking it for a few days everything was more comfortable.
though as I posted still stiff but I have arthritis anyway.
I haven't tried getting a repeat prescription and saying the actual brand, won't need to for another month so will see how it goes.
I also think that everyone seems to react in a slightly different way to the same drug.
Think it may be trial and error but feel you should talk to your BCN/GP as the heart racing may need checking
I talked to my BCN about this and she told me to request the brand that suits me best on the repeat prescription.
I used to get painful heart beats as well but don't now
Think we are all mourning for old life. I'm still healing from op and wish I could feel my boobs like I used to -and look how I used to BUT now I haven't cancer so............
Ps couldn't sit up in bed this morning, OH had to pull and push me but was OK once I got going