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Anbody starting chemo in September?

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Jobey68
Member

Re: Anbody starting chemo in September?

You must have all but put it behind you now, what a b@$#%@d! are you having chemo this time as you cant have rads again? Xx
Juliepat
Member

Re: Anbody starting chemo in September?

Hi jo

My first diagnosis was in Sep 2012. I had lumpectomy in October. 6mm clear margins. 5 weeks of rads and then Tamoxifen.
Jobey68
Member

Re: Anbody starting chemo in September?

Hi Julie, I'm sorry to hear you have had a reacurrance, something none of us want and like you I have a great prognosis and would feel exactly the same if mine came back but sadly they can't give us a 100% guarantee, I would be pushing for a double mastectomy if it was me, may seem drastic to others but not to those of us living with the fear of reacurrance constantly, can I ask how long ago was your original diagnosis? Xx Jo 

Juliepat
Member

Re: Anbody starting chemo in September?

Hi just been diagnosed with recurrence at site of original tumor This time 17mm, previously 14mm. In shock. Did everything right. Took my Tamoxifen religiously. Was ILC, clear margins, no nodes. Great prognosis. Now i face Mastectomy, Chemo and more hormone therapy. Which is fine but i why? I want a bilateral.but consultant said to think carefully as not particularly necessary. Any advice would be greatly appreciated. Only diagnosed today. In shock cant believe I am here :-((
lollol01
Member

Re: Anbody starting chemo in September?

The really sad news about Margaret has shcocked me to the core. I always looked out for her posts as she seemed to
have so much wisdom and advice for everyone. Her family should be so proud of all the support she gave to everyone on these forums. I agree that Margaret would approve of donations to BCC.
Lol
spookymoo
Member

Re: Anbody starting chemo in September?

I am sorry I don't know why this has posted so many times. Can the mods delete some? Sorry. x
spookymoo
Member

Re: Anbody starting chemo in September?

Hello everyone. I have just receieved this message from Ella, Margaret's daughter.
"We would prefer a donation to a charity and would be grateful if we could be let know which although we don't mind which anyone chooses. Flower are still welcome though. Friday after next at 9AM (Friday the 24th on May) we have arranged to have the funeral. It is not going to be a religious one - we are going for a Humanist one. Mum is going to be cremated. It will be at Barnstaple crematorium and we have tried to arrange things in a manner than mum would approve of. We are yet to decide on a venue for the wake. We have decided that clothing is going to be whatever anyone feels comfortable in but if anyone can't decide then something bright would be good (a nice splash of colour). Thanks xx"
I am happy to help co-ordinate this but understand if you would like to send a donation and flowers individually. It would be nice if we could send some from "The September Sapphires" and if we could get some bright ones / sapphire coloured I think that wold be appropriate. Also I think we should nominatge Breast Cancer Care as the charity. All of us benefit from their help and Margaret was such a prolific poster on the forum it seems appropriate to me. If you would like to add comments or have any ideas etc please PM me. I am sure I have Margaret's address so can pass this on for those who would like to send cards etc directly - please PM me for this.
I will post in the In Memory section that if people want to contirbute etc to PM me directly so that I can co-ordinate responses etc. Hope this is ok Em x
amd66
Member

Re: Anbody starting chemo in September?

Spooky how sad, i sent her several posts and messages too. poxy cancer xxx
JEW
Member

Re: Anbody starting chemo in September?

It's the first time in ages that I've been on here and I can't believe the news. Shocked and upset doesn't even cover it. I'd like to send a card at least. Go to the funeral but not sure what we can do here!!!
Emma what can we do?
Joan
June22
Member

Re: Anbody starting chemo in September?

I'll let the ladies on the Facebook September Sapphires know too, if that is okay.

June
June22
Member

Re: Anbody starting chemo in September?

Spookymoo - this is terribly sad news.
Margaret has been a good friend to me through Facegroup - offering me support and hugs through my own problems, and I tried my best to cheer her along too. I hadn't realised she was unwell enough to be admitted to hospital. I know all along she didn't feel her cancer was responding as it should to treatments, and diagnosis seemed to vary.
I hope she was spared the worry of knowing it had moved to her brain, and didn't suffer a long drawn-out deterioration. I will always remember her kindness to me.


Like you... I was hoping one day to meet up with her. We planned to do so when all our treatments were settled and the sun was shining... but no set plans had been made. I wish I had indeed met her in person to give her a hug.
Please do keep us informed of any commemorative plans.
Thanks for letting us know.

June 22
spookymoo
Member

Re: Anbody starting chemo in September?

Hello September Ladies. It is with extremely great sadness that I post that we have lost a member today. SDFMEG - Margaret Pt passed away peacefully this morning at 4am. Her daughter Ella had the awful job of relaying the news to me. I am absolutely devestated. I had been speaking to her online only about 10 days ago, just before I went in for my DIEP on Monday, and I received a card from her Friday wishing me a speedy recovery. I only got out of hospital yesterday and had intended to call her this afternoon. Margaret went into hospital Sunday evening and deteoriated very rapidly. A brain scan confirmed it had spread to her brain and doctors advised that it was very aggressive and a matter of minutes. She passed away peacefully this morning with her family at her side. I am totally shocked and so, so upset. This is just awful awful news. I am not sure yet what the funeral arrangements are - the family may want to keep it private. I had hoped to meet up with her later on in the summer when we had finished all our treatment and enjoy some time with her in Devon. I have posted in the In Memory section. Devastated. Words cannot express the grief and sorrow I feel. Emma x .
sdfmeg
Member

Re: Anbody starting chemo in September?

Not handling hot flushes and sweats! I have my prescription, but my armpit and arm are so sore I just can't face the thought of all that. At the moment, I am as sore as I can cope with. And less than 50% of the tumour was mildly Er+, so I don't really I understand why I need to.

I am going to buy one of those very expensive mascaras where you paint your tiny lashes with white paste and then mascara over the top, and voila - you have lovely long lashes. At least that is what I am hoping for. 😉

Yibby
Member

Re: Anbody starting chemo in September?

Hi Margaret!

I was walking around with grey hairs poking out of my head..OMG I was like come on now give me a break..at times I saw the funny side to it then there were times I didn't wan to look in the mirror. I've a bit of brows hardly any lashes though...my God mother said I should get some fake ones..yeah right LOL
I'm wondering what my hair would look like when it grows back...I'm so counting down to November to finish the herceptin treatment ...am so tired and my body is so stiff!!!!
How have you been handling the hot flushes and sweats?

Yibby
sdfmeg
Member

Re: Anbody starting chemo in September?

Hi Yibby,

I'm from the August thread. My theory is you get the white chemo hairs first, then the dark chemo ones. That makes your hair look grey. Then, eventually, your own hair comes back. My hair looks grey too. It should be light gingery brown. Still waiting for brows and lashes, although they have started to come back. Can't see them, but I can feel my lashes.

Margaret

Yibby
Member

Re: Anbody starting chemo in September?

Hey Ladies,
It's a good while since I posted anything am still rolling with the punches...I've completed radiotherapy now and gosh that was like a walk in the park compared to chemotherapy!!! Herceptin till November started tamoxfen. Well between the herceptin, tamoxfen, joint aches, hot flushes and night sweats I don't know if I'm coming or going LOL
My hair has decided to grow back which is 'great' but I just want to know why I've got more 'greys' than before the treatment.... mmmmm!
As I'm sitting here typing away I've had about 2 hot flushes followed by a sweating nightmare. I promised myself that I wasn't going to moan and whine because I was in so much pain feel like 80 now...Hope you lovie ladies are hanging in there and taking what is happening to us in your stride..
Take care Yibby xx
amd66
Member

Re: Anbody starting chemo in September?

Em, never selfish, this is the one place we can do that, and i have done my fair share!!- as you well know and have been so great at helping.
We had a lot of sun today and it should have made me cheery, but i decided to be grumpy instead, cant tell you why, just a feeling i couldnt shake off, hope you got out if you were able to and enjoyed it. i did go down the seafront to walk out my mood so feel better that i didnt just linger indoors and annoy the oh.
peg i am the same with my hair, fluffy on top, not much on the sides, i did go without hat for a while out at the beach, and tend to remove it once i am in a shop.
big love to the sparklers
anne xxx
spookymoo
Member

Re: Anbody starting chemo in September?

Hi Anne thanks for your post it lifted my spirits. I have a very weird vision of blue hands groping boobs. Surreal! Think I am going slightly crazy. I am off the Tamoxifen at the moment. I wish I could say the rumours about se's are unfounded but I didn't have a great time on the Tamoxifen. As if any of us are rocking the cancer trip at the moment which totally sucks! I had terrible night sweats and mood swings - kinda like a hot. Sweaty, jack Nicholson character from The shining, running around with a headscarf. With a mad joker like smile because my makeup melting from the sweaty side effects. And a random cucumber being waved! Thanks peg - you are right cucumbers are not always all they are cracked up to be. God,I need a life. I have lost the plot! Now I have had time to gather my thoughts things are too not too and could be a lot worse. Just another small op. No biggie. So all good. I am now officially manning up.
I will get my mojo back. And sorry for being so selfish and maudlin. Hope all you sparkling ladies are doing well and kicking the you-know-what the you-know-where. As Anne said glad we are posting again. Hugs to you all. Emx
amd66
Member

Re: Anbody starting chemo in September?

Hey Em, good to read you, but gutted on the info and another op. but dci, is better news though, its not gone outside your boob. the node results are good though arent they, cant comment on the other stuff because i dont understand it! and as for cucumbers, mine cost 99p today so i am very jealous!
keep your chin up mate, you can do this, you will find your strength again and just write whatever you need to on here, thats what we are here for.
lots of love mate, wish i could send something more uplifting.
as for me have done first week of rads, all fairly easy but cold hands getting on your boobs isnt nice, its quick though. fed up of reading bad effects of tamoxifen so am going with positivity that it wont affect me.
love to everyone else, glad we have been posting again
Anne xxx
Pegglass
Member

Re: Anbody starting chemo in September?

Spookymoo - sometimes a girl needs more than a cucumber to keep her happy!

I hope your next op puts paid to the bugger.
spookymoo
Member

Re: Anbody starting chemo in September?

Hi everyone well the joy of seromas continues! No 2 has been drained and no 3 is starting to inflate. Even my lovely surgeon can't fix that! And path results back. 5/19 nodes involved but no vascular involvement (is that good?) er +7/8 pr+7/8 proliferation 2 (I think)? But didn't get clear margin, found some DCIs and a small tumour near original tumour so am going back in in March to have a pizza slice taken out. Not been a good day. And man, Oscar pistorius news as well.pants x not so positive today. But my oh has just informed me all cucumbers are 39p at lidl. Still doesn't cheer me up. hope you guys are having a better day x
Pegglass
Member

Re: Anbody starting chemo in September?

I've not been posting much 'cos I don't have much to report - which is a good thing!

My relatively uneventful chemo was followed by uneventful surgery, and that was followed by an uneventful histology report (good margins, no lympho-vascular involvement, very low proliferation, high ER/PR scores) and now all I have to do is get through rads in a similarly uneventful way!

I have the CT and prep appointment tomorrow, then 25 rad doses starting Feb 27. I'm spreading the rads over 25 instead of 15 doses to minimise side effects. I'll go on Tamoxifen a week or two after rads are finished.

My new hair is fluffy and soft, and I go out now with no hat or scarf (weather permitting), and no-one seems to mind. They may think I'm a skin-head and are afraid I'll beat them up! Eyelashes are making an appearance, as are brows - though I think I'll carry on with the Browzings. I'm about 10lb up on Day 1, so am now making a bit of an effort to get healthy before Tamoxifen buggers everything up again!

All the best to all Sapphires!
Peg
lollol01
Member

Re: Anbody starting chemo in September?

Hi Sapphires
We have gone really quiet on this thread - how is everyone doing? Hopefully you are all recovering well and moving on from chemo to rads etc. I have finished rads with no real se's just tired but that seems to be the norm for me now. Still feeling the effects of my shingles but it is definately getting better. Will be starting the next phase on Wednesday-18 sessions of herceptin (not all in one go I hope). I have been told that after chemo & rads this should be a walk in the park but when you feel constantly shattered that doesn't seem comforting!! The tamoxifen effect seems a bit more manageable at the moment with the help of my chillow and the cold weather it's not too bad.
Keep well Sapphires
Lol
story_so_far
Member

Re: Anbody starting chemo in September?

Hi everyone,
Today I don't seem to feel quite so bad. Chemo went not too badly, even though still wanted to get up and run away, as I was busy playing " Battleships" on the Ipad with my husband, who has been wonderful all the way through all, this bit of a do!
Actually this last chemo has been better with SE's, touch wood so far, don't know if its because I am drinking so so much more water as I just can't stop drinking the tap empty.
Thanks Anne for details re rads feel better about it now,
also thanks to all others who have given me good information and vibes this week. I really have needed it.
amd66
Member

Re: Anbody starting chemo in September?

Well done Pegglass, good to hear from you xxxxx keep well and be gentle
Pegglass
Member

Re: Anbody starting chemo in September?

Hi all - my surgery seems to have gone well. I was home the next day, and now have a swollen boob that I hope will uninflate soon!
I get the histology report next Friday, so till then it's fingers and toes crossed.

xx
amd66
Member

Re: Anbody starting chemo in September?

Sorry Joan, cant help you with that. - have you asked the helpline?
After yesterday and today i cant help but feel pretty low and flat, cant even tell you why, I wonder whether it is coming down from the 6th chemo, have seen friends and tried to keep myself busy. I must tell myself it will pass.
anyone else the same??
much love
Anne xxx
JEW
Member

Re: Anbody starting chemo in September?

Hi Sappires,
Just wondering if any of you have breast lymphodema and have you been referred to The Lymphodema specialist or been given any advice?
Joan
lollol01
Member

Re: Anbody starting chemo in September?

Hi fellow Sapphires
Hope your all doing ok and getting through this nightmare. I have now had 22 rads so only another 3 to go and just as I thought I was getting off lightly with no side effects I developed an itchy rash on my back. Have been informed that it is Shingles!! apparently a common occurance with people who have had chemo. Thought my rads were going to be cancelled but they will carry on as they see this regularly but have to be very cautious as its very contagious so looks like i'm in quarantine for a while except my trips to rads appointments. Never mind I will just have to watch more day time tv and maybe do some online shopping as I will not be able take part in my local retail therapy sessions (bank balance will be sighing with releif!).
Have a fun day Sapphires and take good care of yourselves
Lol
amd66
Member

Re: Anbody starting chemo in September?

Sam, lovely to get your update, remember the scar will look so different in a few months, and you are doing so well, and whilst the path report is a worry you know you had clear margins.
story so far, rads planning is a doddle, you get moved around a bit before going in the polo, but not painful, little stratch as they pinpoint your little tattoos,
Sukie, good luck for your reports and results, the drain sound yuck but hey you are at home.i hope it comes out soon.
Thanks Em for such a long and great post, especially as you have lots of think about. i wish you well for friday, its come round quick.thanks for the fairy dust, i went to the log cabin again and was a bit shaky. the others are much older than me and a long way on the recovery path. have been going to meetings for months, one lady has had worry of recurrance having found something on other boob. its a scary time, but good to share in nice surroundings. makes me stop and consider others.
as i talked about fear, there was a quote from someone -
Scarred, Scared, Sacred - to consider our journeys.
and also it the candlemass celebration on saturday which is the Awakening of bringing new light, cant remember all the background but you can imagine whatever light you need, inner spiritual, sunlight, healing light,moonlight, etc. i will add that to Em's fairy dust and hold it tight for courage. I couldnt visualize the light i would need but perhaps a lightness in our hearts when things have been hard. we have all had our hard days, after leaving there i find that fear or loneliness comes back and as i sat on the sofa, i took comfort in the sunlight through the window.
the group operates around the seasons and the nature calendar, im probably not selling it very well!!! hope you get the gist. i probably sound like a wierdo/hippy. i am interested in spiritual stuff tho.
might sound a bit out there but im just sharing my day!!!
big love to you all
Anne
spookymoo
Member

Re: Anbody starting chemo in September?

Hi lovely ladies. I am in between hospital visits at the minute - radioactive dye in with great difficulty - 4 attempts! In the end it had to be put in the main vein in my wrist and its hurting like buggery - not fun!!!! This will be the remnanants of the poxy chemo. Thank you chemo I knew I could rely on you to give the gift of giving so many weeks on! Have to go back in an hour for the scan so thought I would post quickly! Tomorrow I am packing my bag for my spa break (!)) and also meeting up with friends for lunch - nice to do something non-cancer related for a change. And then its D-day - looking forward to saying goodbye to the sucker! Sorry I ramble.
I just wanted to say, pegglass, you did make me laugh too with your "wispy lady garden!" Who knew we could have so much fun on chemo?
Good luck Story sofar for your last chemo tomorrow! I hope all goes well. I found the last one very quick and I couldn't wait to get the hell out of there! So hoping all goes well for you and you start to feel better soon. And good luck for the appt for Rads on 4th Feb. I have ages to wait for that "adventure" so please let us know how you get on. And the tiredness does eventually ease off a bit - just rest when you can because your body needs to heal itself.
Dear Sam. glad to hear you have got rid of your drains (dreading them!) It must be a bit grim with the scar - I hope it fades down for you and the pain eases. I am thinking of you today regarding your path report. You have had full node clearance (?) so they have got all the buggers in your nodes. And they got clear margins which is good! And your ct scan clear. I know its hard but you have to try and stay focussed - being positive is difficult, being cantakerous and angry with the sucker may be better. Its what's working for me at the moment! sending you hugs all will be good - fingers, toes, everything crossed for you. Good luck for your new chemo regime (it is a regime! Clue in the name! Gruelling - that's a good word for it!) next week. I know you can't be looking forward to it - but you are right - you have got to kick that cancer's butt!
Sukie - I shall have to refer to you as "one Drain Sue" from now on! Good luck for tomorrow for your "unveiling" and also for your path report. Everything crossed for clear margins. And I hope you eventually get the damned drain out.
And Anne hope you enjoy your time next week back in the real world, Not CANCERLAND - which is populated by fairies and angels (us), mythical heros on white steeds with great big guns (doctors) fighting nasty trolls and orcs (and we know who they are!). If anyone had explained to me where this ticket would take me I would have asked for a refund!
Well girls, we are nearly there. Not quite out of the woods yet though. My bottle of bubbly will have to stay chillin for a bit longer. Just wanted to send all of you some magic fairy dust - think we could all do with some! Take care all you lovely ladies.
Em x
sukiem
Member

Re: Anbody starting chemo in September?

Em-I hope your op goes well on Friday. As Sam very rightly says enjoy the morphine-its wonderful. I was bugging the nurses every 2 hours for mine (in fact all the women on the ward did-they give it to you orally in big syringes). Also make sure you get decent pain relief when you get out. Although despite my op I've not had much pain-the bruising is quite impressive though.

Anne-you made me laugh mentioning your 'wispy lady garden'. What can I say but I really do know what you mean.

Storyso far-well done for getting to your last tax. Strangely my final chemo was the 'best' in terms of s/es (relatively speaking).

Sam, I've still got one drain in.I can't believe in the 21st century that the drain bottles have to be huge!
I've got my unbandaging appt tomorrow and also my path report. I'm not looking forward to it either as I know my tumour was 'sitting' on my muscle and I'm praying for clear margins.
I'm pleased that they got clear margins with you and best of luck with your chemo and rads.

Hi to all the other Sapphires too xx
InShock
Member

Re: Anbody starting chemo in September?

hi ladies, I hope you are all well and for those of you recovering from surgery hope you're not feeling too sore.
surgery-wise all seems fine - my drains went last week - glad to see the back of them as they were a real pain and i lived in fear of catching them on a cupboard door and yanking the tube clean out of my side! they have taken my bandages off now too - think i preferred them on as my massive scar does not look pretty and it's also really sore wearing a bra/prosthesis. going bra-free is not really a viable option though given my 'new' boob now lives inside my bra!
am getting the full path report today although have already found out that the cancer was in 13 out of 16 lymph nodes which is very much not the news i was hoping to get. i can only hope the next bout of chemo plus the rads will help on that front. am trying to focus on the positives - they got clear margins and my ct scan was clear. and as much as i don't relish the thought of any more chemo i'd rather be given the chance to kick some cancer butt especially as I'm TN and there are no targeted meds for me.
so i am now going to start six cycles of chemo (gemcarbo) next week probably followed by 25 rads. which by my reckoning takes me all the way to july 😞
on the bright side at least my hair should grow during gemcarbo - yippee - i will be so happy to see the back of my headscarves and hat... at the moment it's just very short fuzz. has anyone else managed to ditch the hats for an 'elfin cut' yet?
spooky moo best of luck with both your bone scan and the op - make sure you enjoy the meds - i know the morphine made me feel lovely and spaced when i came round from my mx 🙂
samx
story_so_far
Member

Re: Anbody starting chemo in September?

Hi, I know that its very late, but had steroids again and not tired as usual.
Thanks Spookymoo for kind thoughts, I am having last chemo tax, tomorrow and hoping that it will not be any worse than the last one. Then on 4th feb off to have ct sim scan for rads etc, is it very bad or ok Anne? Mine start on 20th feb so not much rest from chemo really.
I wish that I could not feel so tired, keep nodding off when I don't expect to and find that my TV programme has finished, then rewind it then go off again!
Well suppose I should go to bed now as otherwise won't be able to get up to get my daughter on her taxi in the morning.
story_so_far
Member

Re: Anbody starting chemo in September?

Also good luck for your surgery Em, hope all is ok for you
amd66
Member

Re: Anbody starting chemo in September?

Em, just tufty bits on top of my head, just a hint and eyebrows left and I have hung onto a few eyelashes, but its still week 2 of the last chemo. hate looking at wispy lady garden, im not one for the bare look!!! xxx
spookymoo
Member

Re: Anbody starting chemo in September?

Dear Sparkly ladies Hope you are all well and fighting fit! Well done Anne for getting back into work, I am sure you should be safe now post chemo and it will definitely help to feel normal again - the bloody cancer takes everything "normal" away so to get something back is brilliant! Dear Pegglass I hope all went well with your op and you are on the road to recovery. I hope storysofar and sukie you are doing good too. We have been on a long old dodgy road, I hope we are all starting to get off this road and can amble down a nice county lane and back to our old lives again!
I have another bone scan tomorrow. Dodgy hip is still dodgy so they are going to check it out. This can mean only one thing - a green/blue/purple arm again! I shall have to ensure I accessorise my outfit to match. Surgery awaits Friday - Wireguided WLE as per pegglass. Will be glad to get the whatsit out of me. Not looking forward to the full node clearance though. I shall try and post next week, post op and update you! in the interim hair is growing but is grey and white - gggrrrrr! No eyebrows or eyelashes though and I still have my Brazilian! But its back on my legs. How is everyone else doing?
Take care all your brave warriors . Hugs to all x Em x
amd66
Member

Re: Anbody starting chemo in September?

pegglass, hope you got on okay.
have had the rads planning and 3 little dot tattoos. journey took just over an hour and was pretty easy to find. have summoned up the courage to go into school today to relieve time at home. it all felt so natural, kept away from the children for this week but hope to join in next week. probably still a bit dodgy from the chemo aspect but i needed the company. the boss was pleased, because i got some jobs done for her and she has been so lovely.
Good luck Em for your surgery dont know what the date was. but lots of love,
lollol01
Member

Re: Anbody starting chemo in September?

Hi all
Just a quickie to all you people who are recovering from surgery - hope your all on the mend and taking care of yourselves.
At last the snow has gone from here and the sun is shining so hope its a good sign of things to come.
Take care all you Sapphires and enjoy the rest of the weekend.
Lol
story_so_far
Member

Re: Anbody starting chemo in September?

I do alot of what if's too. I got told off keep doing so but you don't stop do you, I really wish all this would end as quickly as it started.Now I am going to worry about the rads though my onco said it would be a breeze compared to chemo. Roll on summer!
sukiem
Member

Re: Anbody starting chemo in September?

Hi Pegglass-add ear plugs to that list too!! Good luck tomorrow
Pegglass
Member

Re: Anbody starting chemo in September?

Hi there Sparkly Sapphires!
I'm off to be dissected tomorrow - just a WLE, possibly wire guided - they'll decide in the morning. The op was postponed from last weekend 'cos they couldn't get an anaesthetist - just as well as I'd have had trouble getting there in the snow.

I guess it's time to pack a bag - hopefully I'll just be in one night. Let me see... book, toothbrush, bottle of gin....
sukiem
Member

Re: Anbody starting chemo in September?

I'm not good at it either Anne! Its so hard having no control but really we have to roll with the punches with this illness sometimes.

Hope your rads planning goes well xx
amd66
Member

Re: Anbody starting chemo in September?

Last chemo done and cut out a lot of the steroids so very grateful that havent had the awful anxiety again. rads meeting next week and start mid feb.
HAvent much else to tell you, but met a lady at a log cabin support event who gave me this -
dont say what if, say what is, and deal with today. this would be a great lesson for me, because i cant do it very well,
!!
Ax
sukiem
Member

Re: Anbody starting chemo in September?

Ah thanks Anne and I hope you are doing well too xx Where are you up to now in your treatment?
amd66
Member

Re: Anbody starting chemo in September?

lovely to hear from Sukie and good thinking on the shoulder bag.,bless you. you sound pretty good considering.
it seems weird to be on the other side of you, as we have done the chemo journey together.
cannot think of anything to write, but love to you all . and Em huge hugs for next week.
Anne xxxxxxxxxx
sukiem
Member

Re: Anbody starting chemo in September?

I'm not sure if I had a node clearance-my SNB was clear in September but my surgeon said she was double checking anyway-I guess as theoretically the tumour could have affected nodes during chemo or could have been missed first time around.
My surgeon is ultra cautious in every way which I guess is a good thing!

I have 2 drains and apparently they have to drain under 30mls over 24 hours before they can be removed. They are a pain in the butt as you have to cart them around-I have them in a shoulder bag. The docs have been ringing daily and I give them the reading on the bottle.

I'm not feeling too bad and am bandaged up so can't see much. The biggest thing for me has been fatigue however I'm v chilled out from painkillers so not suffering too much (make sure you get morphine on the ward-v effective indeed)!!

Take care and heres to clear margins!! xx
spookymoo
Member

Re: Anbody starting chemo in September?

Yep, its a wire guided WLE with full node clearance. Fingers crossed for clear margins or I am back in for the whole thing off! Staying in overnight - I will be offered a continental breakfast in the morning - aren't I lucky! I have been told I will have drains in for about a week but they wil discharge me with the drains in and I have to "monitor" them and report via telephone every day. All sounds like great fun (Not!). Hoping will not be as bad as I expect! Thanks for the good wishes. I hope you are feeling ok and not too bruised and battered? Did you have node clearance too?
Sending hugs x x
sukiem
Member

Re: Anbody starting chemo in September?

Hi Em,
Are you having a WLE? I was out the next day (although should have been in 2 days) with drains. Its not been too painful but my BCN advised to take the painkillers anyway as apparently the bruising makes the discomfort worse after about 3 days.

Let us know how you get on and lots of xx
spookymoo
Member

Re: Anbody starting chemo in September?

Hi Sam Good to hear you are bearing up well post op. Glad you have some help too around the house. When will you get path results? Hope you continue to rest and heal well.
Hi Sukiem Good to hear you are bearing up too after your surgery. I hope you are not in too much pain.
Dear Anne hope you are feeling better now and hope your last chemo went ok and wasn't snowed off.
Still have my dodgy aching hip (gggrrrr!!!) bone scan had to be cancelled due to the flipping snow last week so booked in again for next week just before op. I have had my "Page 3 Topless Modelling " photos done. I don't think I will be published across a centrefold somehow! Not a pretty sight! And all pre-op checks done and clear so looks like I am going to have the darn thing out next week. Will be glad to see the back of the blighter!
Wishing all Sapphires warmer weather, good path/scan reesults, end of chemo and drugs and easy ride on the rads front. Take care all you lovely ladies. Em x