69.3K members
1.2M posts
cancel
Showing results for 
Search instead for 
Did you mean: 

Another newly devastated of Bury St Edmunds

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

angela
so sorry you have had to join us. your breast cancer nurse should be available to you whenever you have any question or just need some reassurance. however if you are having trouble being able to contact her through the phoneline that does make things harder. if the next time you are talking to her you mention this maybe she could suggest some way round it. if you are having problems with money you could ask her to get you a form from the macmillan trust as they have a grant and it is a pretty quick process as they decide as soon as they get the form and you get the grant within three days. being able to have contact with the BC nurse is very important.

you dont normally know what type of cancer you have until after the surgery as Gennie said as it has to be sent away to be investigated. at the end of the day it is your body and i think that you should ask them if you have any other options just so you know that you are involved with the decision.

please use this site cos we are all in the same situation and we give each other support, i have been on here for about 2 weeks and i think it is great. there is always someone who can give you some help and advice. keep in contact.
martina

Gennie
Member

Re: Another newly devastated of Bury St Edmunds

Angela, I'm really sorry you've had this news, you sound in such a confused tizz and I don't blame you! I think healthcare professionals sometimes forget that the jargon they use means nothing to we mere mortals and you can just end up feeling more bamboozled than when you started.

For more detailed information you can order all sorts of publications from this website (I have - and it arrives fairly quickly), but it does sound as if you really need to sit down and talk through your options again with your breast care nurse, or phone the helpline on this website.

For what it's worth, I didn't know what type of cancer I had until it had been removed and tested in the path lab so I don't think it's unusual to just be told you have cancer at the outset and be in a bit in the dark for a while - which isn't a pleasant situation to be in, I know.

I'm sure you'll get some great advice from this lovely site anyway, - you now have a whole bunch of new friends who are going to hold your hand and go through this with you.

Gennie xx

Angela20
Member

Re: Another newly devastated of Bury St Edmunds

Apart from an inverted nipple which was a bit tender and actually thinking I was wasting
Her time, I went to see the practice nurse who promptly sent me to the local breast clinic.
Then almost unbelievably within the last fortnight I have not only found out I have breast
Cancer from one specialist [no 1] the first week, But also, because specialist [no 1 ] was
Unavailable, yesterday specialist no 2 booked me in for a mastectomy in three weeks
Time. I know the doctors know what they are talking about, but I don’t! And I know they
Ask if you have any questions but how do you asks questions when you are both pole axed
And feel so ignorant you know what to ask? Even when the breast care nurse spoke to me
I honestly didn't know what to say.
She did however give me a booklet called 'treating breast cancer;' which is basically why I
Am here today. While it has scared the living S***t out of me I wish now I has been given it
And some of the other information to go with it last week. Because now as usual .I have a
Million and one questions I would have asked. I don’t even really understand which type
Of cancer I have!! Or if there is a risk of it spreading or even if it is too late now that the
Theatre is booked to ask about other options. I know the breast cancer nurse said she
Would answer any questions but, as usual not having enough money on my mobile and no
Local telephone box how can I?
As I know others will have probably gone through his, can anyone please take the time to
help me ?

Thanks for reading From Angela.

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

brilliant news Blackjack, I bet thats taken the edge off slightly. Way to go.

xx

kittenkat
Member

Re: Another newly devastated of Bury St Edmunds

martina - so chuffed for you re your news....mary x

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

thankyou gennie and carole for sharing in my good news. i just had to share. dont care what treatment they throw at me i'll ride right through those storms one by one and they wont know whats hit them
martina aka BlackJack
take care

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

Oh, forgot about the Manuka. I'll pick some up on my way to the heart scan tomorrow. To be honest, Onc just said he didn't see a problem with the echinacea, but there have been no studies on it to prove it one way or the other. He just reckons it's an over the counter mild herbal, so go with it. He did say if I went to a homeopathic person and got prescribed loads of stuff he would be more cautious about that. But that's not me. I'll stick with my multivits and Echi.

I have now locked H at the other end of the house, disinfected all door handles, and am maintaining at least a 6 foot perimeter around self at all times! And what else are spare bedrooms for I ask? That should do it. 🙂

Gennie
Member

Re: Another newly devastated of Bury St Edmunds

As ever you are quite right. Riviera does not allow dust to sully this fabby footwear!

I hope you manage to stave off hubby's cold. Interesting to know echinacea is ok - I forgot to ask my oncologist and the onco nurse, who I did remember to ask, didn't know for sure but thought it was. She also sang the praises of manuka honey so I've got me some of that too.

I must admit I'm quite glad my chemo has been delayed a little because each of my children this week has been off school in turn with fevers/sore throats/puking etc. I'm hoping that by the time I start the school will have got through it's annual cycle of bugs being passed around and they'll be reasonably well and less likely to pass stuff on to me.

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

Way to go BlackJack! That's kicking @ss!!! No, not kicking Mule! No, stop, bad idea!! 😄 Obviously you have been keeping the sneeky blighter in check with some excellent horsemanship, circling the target and taking it down with a well thrown lasso. Corral that son of a belly-less snake! Yup, as Riviera says, check those saddle straps, we're all heading into Determination as soon as Mule gets back.

Feeling not bad today. Still no sickness, but I got really tired this afternoon. Had two naps and I'm still ready for bed right now. I guess this is the delayed reaction. All I need is not to feel sick. I can do tired, I love naps! I think Steel will have a penchant for napping whenever there's a chance. Oh, I picked up some Bottle Green cordial in Tesco. Got the Elderflower and the Lemongrass & Ginger. My mouth and throat are really dry and tea doesn't really work, not even my adored Chamomile. But either of these, just enough to flavour hot water without making it too sweet, and they really help. The L&G one also feels like it's settling my stomach even though I'm not nauseous. I've also swapped my afternoon t-bags for more chamomile. I feel pretty good staying well hydrated. Bummer though, husband has just come down with a cold. Doc said Echinacea was fine, so that's now going into me.

Not sure about this dust kicking thing though Riviera. You have a look to maintain. Those boots are imports you know! 🙂 I'll storm through the doors, and you wait on the outside and stick a silver toe-capped boot out to trip up the bad guy I send running! Now he's sprawled in the dust and you are immaculate. Much better!

Gennie
Member

Re: Another newly devastated of Bury St Edmunds

Wooo hooo!!!! Go Blackjack!!

I know what an immense relief it is to hear those words. Sweetest I've ever heard in my life. Saddle up then, girl, it's time to get riding on into town for the showdown! 😄

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

hi everyone got some good news today bc nurse told me that my lymph nodes are clear. see consultant on tuesday for the rest of the results but that is the most important one. good news at last.
martina aka blackjack

Gennie
Member

Re: Another newly devastated of Bury St Edmunds

That's made me fancy some Ready Brek now, not had that for years!

I'm with you on the absence of logic in what the Onc said, it's very odd.

How are you doing today Carole? I had my second lot of silver nitrate today - apparently it's doing the job, and if the stuff that was all over the dressing is anything to go by I'd say the nurse is right, but I daren't look! She told me I'd been very unlucky to have had the problems I've had with this. Don't think I'll be booking myself in for reconstruction in a hurry!!

Oh and good luck for the heart thing tomorrow - let me know what it's like. Yet again you get to be the one to fling yourself through the saloon doors without knowing quite what waits on the other side whilst I loiter in Main Street kicking at the dust! 😄

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

Love it! Can I get the malted stuff? I'm seeing us all sitting on the boardwalk, swung back on the chair legs, boots on the hitching rail, gazing out over Determination main street while supping up our Reddy Brek!

Oh and I got the incurable bit too. I'm not getting the logic. If you get it in the other boob, you cut it off. If you get it in a kidney say, lose the kidney. And if it's only just a tiny tumour, why can't it get dissolved with chemo like they do for this? Overall, you've said it, blink hard and skip over the comment. As Sal has nominated the Sheriff as the med team we see, I reckon we need to sit down in his office and get something straight. We're here till we get what we came for, and we're mighty amenable to helping him along with rousting the bad gang, but he needs to send his deputies on a refresher course on interpersonal communication. Otherwise we'll do it for him, and we won't be all gentle like with one of them new fangled white board and marker sets. Jus' so he understands. 😄

Gennie
Member

Re: Another newly devastated of Bury St Edmunds

It's MUGA. Often used during chemo with certain drugs to see how the heart is holding up. We'll be radioactive!! Next week we'll be the riders with that Ready Brek glow!! 😄

Gennie
Member

Re: Another newly devastated of Bury St Edmunds

Oh, and yes - when Sal gets back from her pampering I reckon we move ourselves alongaways ;o)

Gennie
Member

Re: Another newly devastated of Bury St Edmunds

What's the scan called then? It's not Mugger is it? Sounded like that on the phone! 😄 I'll see what google has got to say on the subject. Yes, I had the talk about only being allowed to have so much of that chemo in your life. Also some lovely, reassuring words about how if it does come back elsewhere it's incurable, but my mind just skidded over that bit and blocked it out. Sometimes these people don't think before they speak do they?!

I'm glad it's not just me being scanned anyway. Jez reckons I'm getting paranoid.

*twitches and suddenly turns round to glare at nothing*

Silver - do you know, that didn't occur to me but I like your thinking......

maybe my silver breast pocket styling could be the breast cancer awareness loopy logo thing.

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

Lol! Must remember to add that to your profile Riveria, dance master!

Yep, I'll have a shot at basic profiles, but I need all your inputs too. I mean, while the characters are our visualisations of our strength, they're each one of us too, and you've all got to feel it's you there (without obviously giving away your deepest, innermost secrets - unless you want to, I mean it's only between us and about 5000 other forum users worldwide. 😄 ) I was also thinking about the story. Obviously we need to hit Determination town edge now. I'll have a shot at the main story, but it'll evolve as we all find out exactly what we're getting and get started. I was thinking, if we each have something we want to deal with in the story, you could send me a few notes and I could work it up. Sometimes I'll post a section that's set mainly round whichever one of us needs something in particular. I also thought, anybody else following this thread who wants to show up in Determination but doesn't fancy being a gunslinger could turn up as a trader, a settler, a travelling entertainer, somebody wanting to set up in Determination for a while, or whatever. It all sounds like it's getting complicated, but, we started it! Most important thing to remember is, I'm not a writer! We'll do it the way we've been doing it. Post away on the thread, use our analogies, and every so often for fun, I'll whack up a wee story section.

What do you reckon, when Sal gets back, we think about moving this over to the Treatment section, call it a Town Called Determination, leave a note here for anybody wanting to follow us, and stride into town?

I get that scan thing on Friday. Same as you, to see how the heart's doing. My onc said that you are allowed a certain amount of this drug in your life and that we're only getting a standard dose in E-CMF (about 40% of the budget), and if you are otherwise fit and healthy it won't do any damage, that's why the scan, to make sure. Strikes me they could've scanned me before they started, but what they heck. Steel can take it, although she'll feel like a pin cushion by the time this is all over with!

And how did they know!? They've just adorned you in silver in keeping with your character! How psychic is that? Actually it's just given me a though for a silver ornamentation on the breast pocket of your shirt or waistcoat.

Gennie
Member

Re: Another newly devastated of Bury St Edmunds

Loving the synopsis. Are you putting these together Steel, it's going to make a great story at the end! I'm also really encouraged to see you posting here at all. You're one tough cookie, lady!! And yes, I will be hanging on your coat tails while you stride forward to test everything out for me first. Nice of you, I must say 😄

Jane - no shame in taking happy pills. I've had cause to use them myself in the past for post natal depression and they were a Godsend. Do whatever you need to do to get through the other side of Determination girl, and if it does mean chemo too then we're all here going through it with you.

Martina - sorry to hear you've got an infection now. I have no experience of that but I have had lots of problems with the wound in my boob, it's an ongoing saga. Mine is on the underside of my breast, so the weight of my (let's face it, most impressive) Jordans was putting pressure on the scar. I haven't been given any advice really other than you've got to just ride it out and eventually it will heal. It might mean the contours of your boob are less than great at the end though, mine is a bit of a mess really but it's the least of my worries. Pain in the bum while we wait for it to heal, though - to use Steel's analogy, the storm keeps trying to blow us backwards while we're trying to fight our way onwards!!

I've just been back to the hospital again because the scar tissue under the skin has partly over-healed through the incision leaving a raised lump and preventing the skin from healing over it. Hence it is still leaking a bit too. I had silver nitrate painted on it (looked like long matches with silver stuff on the end) and have to have that for the next 3 - 5 days to burn the excess tissue back. Practice nurse job at the GP's, although quite frankly it didn't look exactly challenging to put a bit of silver stuff on an obvious area of skin! Thankfully it didn't hurt anyway!! If this doesn't work then I'll have to have it trimmed back and re-stitched. Deep joy!

I also had a surprise phone call from the hospital this morning to say my oncologist has ordered what sounded like a "Mugger Scan" for me. This will take up most of Monday morning so will prevent me going back to work as planned. It's a test to see how efficiently my heart is pumping before we do the chemo (as Epirubicin can apparently cause heart damage, which is always nice to hear!). I have to have an injection. Go away for half an hour. Have another injection then have a 45 minute ECG. Sounds like a lovely way to spend a Monday morning doesn't it?!!!

Had my hair cut today after yet more nagging from the Oncologist on Monday. Not short, short, but it's now in a bob mid-way between chin and shoulder whereas before it was half way down my back. My boys walked in from school and just stood and gaped at me. Joe asked me if I'd taken my medicine lol. Then they said they liked it. I rather like it myself actually - shame I'll only have it for a few weeks really.

I'm still waiting to hear back from the private insurers. Chased them again today, but apparently I have to speak to an oncology nurse called Helen but my first call on Monday wasn't passed on to her and she was out today. She'll phone me tomorrow, apparently - lucky it wasn't urgent! Nice to know my premiums enable them to maintain the same efficiency standards as the NHS innit?!! 😄

So - another long update from me. Never let it be said that the Riviera Kid is narcissistic and self-obsessed!!

*drums feet in flamenco style and leaves with a swish of coat tails* 😄

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

Is that your GP or through the hospital? If it's your GP it won't hurt to call your BC Nurse. They, and maybe your surgeon, will probably want to look at it. I was advised always to contact my BC nurse as a matter of course, even if my GP thought she could deal with it.

Like the profile. I was thinking we should start working up a visual and traits profile for the five gunslingers to date. I'll have a shot for each of them and then we can all amend, add, delete, etc as necessary. Just a basic profile just now. The story can reveal more wee bits and pieces about character etc as it develops.

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

YO as you can see from my photo i've rounded up my horse and i'm ready to go. my horse has a question mark on his forehead cos i'm a mystery rider. no-one knows where i come from or where i'm going. all they know is that they can always rely on me when they need me. i am a good friend but a dangerous enemy.

back to reality, i have an infection in my wound got antibiotics off my doctor do you think i need to do anything else. its quite red and sore around it. dont want to be going backwards. anyone got any info.

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

Hey Casey! We're riding right up close to you. If you wobble in the saddle we'll catch you. Don't wobble too much though or we'll be force to hog tie you over it to keep you on! 😄 Not the most dignified ride into Determination!

Totally understand how you're feeling about waiting for your onc appointment. You just want to get on with it. That doesn't stop. Now that I've started chemo I just wish my hair would get on with dropping out so I can deal with that. Am I never satisfied! lol. Must work harder on my steely glint and resolve. Steel deals with the situation at hand, perhaps a little ruthless, perhaps a touch lacking in forethought, but definitely not wishing more trouble before it hits. Steel, glint, resolve, focus.......

Pull that steam cord Casey and give yourself a steam whooping WHEEEEEEEP! You've come a long way and Determination Station is just ahead.

Just realised. We've got you on horse and in a steam engine at the same time. Hmmmmm, this one requires some thought. 🙂

Steel

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

Well i get holed up in a dark corner and everyone moves house. Anyway found you now..... Apologise if Im not quite able to make sence, somthing to do with the happy pills gp gave me. All of a sudden this bloody thing has caught up with me but hey with each of us riding by our sides, I should come up for air soo.

Still no appoint with onc for me. That seems to be bothering me a lot but spoke to bc nurse mon and she said she would try and let me know by fri, when it is. She also mentioned chemo, so now i think i am having it. I just wish someone would let me know and get on with it. Its good you have a date to start Gen. And glad your going back into work. That shoul take the edge off things for you.a nd must be settling to know you can get your treatment at home. ONe less thing to worry about.

Carole so glad your feel alright after your firs does. Love your plug, keep the story going. It doesn't half lift my spirits.

Storm riders gets my vote too

Casey xx

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

BlackJack it is! 🙂

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

found you at last

storm riders gets my vote too. i wanna be BlackJack.

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

Aaah, and you haven't even read my plug yet. What faith! I feel all warm and fuzzy. :0) Check out the end of the post for said plug.

Let's take "burn" as that good burn we used to have to go for in the 80s to trim our tushes. Just don't think brush fire! And I am so envious of your private care at home! Wow. That sounds just too easy. Really ought to have taken out the insurance a couple of years ago. Ah well, at least I get to drink hospital tea. It's Yummy! Glad you're feeling well enough to go back to work for a couple of weeks anyway. I'm sure it will help, y'know, shift the focus for a wee bit.

I get my next dose on 17 Feb, so we'll be about 1 dose apart. You'll be working on deja vu! I'll tell you what happens, then it'll happen, then I'll tell you, etc. I suppose that means I get to check round all the corners first in Determination! Ah, but no, as I remember, Sal is getting pushed ahead 'cos she's just on rad. Heh heh, we get to sit in the saloon till we hear Mule kicking in doors!

Still no adverse signs from today. I've just popped my bedtime dose of anti sickness, so I'm about to head off to dreamtime. I feel tired, but I think that is entirely down to the 5 hour hanging around stressing till I got jabbed. Don't worry about the Epi. It was easy. You feel it going in, sort of like a tingling in your arm, and your arm gets cold to touch, then I felt it in my face, then there's a really, really, really weird tingly itchy thing goes on round the crotch region. Very weird, and all totally normal says Nurse. It goes away in about a minute. Then you just chat to the nurse while she feeds it all in, it's done, cannula out, sit for a minute as she goes over your meds, then pop off to the shops. Hubby drove me there and back today in case of adverse reactions, but I'll be driving myself in future. It's that easy. And, Nurse said, once I get on the CMF part, the hair starts to grow back! I thought we had to wait right till the end of the chemo, but no. I doubt we're talking thick head of hair here, but that's 3 months head start on what I thought, if you pardon the pun. 😄

Anyway, bed calls. Here's my plug. Analogy is that the storm is everything to do with cancer. It's just a scene, kind of seperate from the Determination story. Speak tomorrow.

Picture the scene:

Camera pans round to a darkening horizon. Obviously there’s a storm a comin’. The sky is grey, dark clouds rolling above, seeming to crash into each other as they draw nearer. The storm takes over the sky in every direction and as it draws closer the rain is visible lashing across the sky, wind driven till it spears the ground, lifting splashes of dust, soon turning to mud. Then the camera seems to be enveloped into the darkness, the sound of the rain smashing down in every direction, the murkiness ahead lit by occasional flashes of lightning skewering the desert some way ahead.

Eyes squinting through the rain, collar up trying to keep the wind out, there’s a drumming sound heard in the distance, pounding, regular, getting closer and closer. Lightning shafts down and illuminates horses, no, horses with riders, galloping in the middle of the storm. Shadowy figures, rain streaked, becoming clearer through the murk. Camera pulls sharply up and round looking down on and across these riders. All wearing long riding coats whipping in the wind, hats blown back, caught at the throat. All are drenched, their horses too, water flying off them as they gallop through the storm. One urges a horse ahead. The animal looks wild, alive, almost as if it’s laughing. The rider’s head lifts, then unbelievably, she, no mistaking that, sits up in the saddle, throws both arms back, and holding onto her horse with her knees, lifts her face and yells to the storm sky. Two other riders veer away from the group, racing ahead of the lead horse. The riders pull the horses up, whirling them round, throwing arcs of water and mud out over the saturated desert floor. One reaches forward and pats the side of her horse’s neck, then both push the horses forward, back towards the lead rider. They are moving fast, the wind pushing them from behind. In a flash, they’re past the lead rider, raising a hand each, and slapping her outstretched palms, past the other two riders, coming again to a sliding stop before turning to head back. One of the horses rears up, whinnying and pawing the air, its rider holding on, flashes of silver on legs as her coat falls back, and without any urging the horse drops down and takes off again at a gallop to catch up with the rest. Lighting crashes down, and the riders race on, disappearing as the visibility worsens, just the sound of whoops and yells carried back by the wind.

This is a storm to break the best, no-one rides a storm like this. But these women and their horses do, they are. They ride through it, over it, under it, at the edge of it. They’re not out running it, they’re not hiding from it, they stay with the storm, waiting for it to break… because they can.

They are Storm Riders.

Gennie
Member

Re: Another newly devastated of Bury St Edmunds

I don't know, I slink off to lick my wounds for a couple of days and the whole place goes awol!!

I was thinking of you today Carole, glad it's going ok so far. I saw my Oncologist yesterday - because my wound is still iffy (now it's over-granulated apparently so I've got to go back tomorrow to have something done to it involving the word "burn", which is a tad worrying) I'm not starting chemo until the week after school half term (i.e. week commencing 23rd Feb). Also doing E-CMF but looks like you'll be a couple of doses ahead of me, Steel - which means you get to try it first while I lurk in the shadows and reap the benefit of your experience and wisdom (hee hee).

But then you are doing 6 weeks rads if I remember rightly and I'm doing 3 so we should be done roughly the same time in the end. Yee haa.

I'm having a portacath put in on 18th Feb because my veins are a bit rubbish - a bit of an alarming idea, but it will mean no faffing about trying to get a canula in my hand every time etc. Having discussed it with the Oncologist, I think I am going to go with the private health insurance. I'll have the same Oncologist, care will all be based at West Suffolk Hospital but chemo is done in the comfort of my own home on the sofa with a cuppa and Loose Women on the box. Maybe coffee and Cash in the Attic, depends on timings. 😄

Well - that's the plan if the insurers agree, waiting for them to get back to me. It would be SO much easier with having the littlies around, not having to worry about somebody being available to get them from school etc, Jez won't have to take time off work to take me to hospital (which had the potential to brew up into a HUGE issue) - I can just make sure my mum is here on those days and if I'm rough I can go to bed and she can see to the kiddiwinks until he gets home. Funnily enough the hospital is running a trial which entails the same thing and the Oncologist was going to offer it to me (no guarantees I'd get on it though as it's a computer generated selection process). Sounds far more civilised than hanging about in germy hospitals for hours, which I guess is why they are doing trials to see if it reduces infections etc, so fingers crossed my insurers will agree!

Meanwhile, since nothing much is doing for the next couple of weeks, I'm going back to work on Monday. I'll have been off for nearly 7 weeks by then as I haven't been back since I was diagnosed on 17th Dec - hope I can get my brain back into gear!

So that's me. And Storm Riders gets my vote - I hate to see a grown woman cry. 😄

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

Yippeekiyay! First chemo in the bod of this here gunslinger. So far, so good. 5 hours hanging around waiting for the sheriff, but we got there in the end. Have my little chemo diary to fill in, hours of endless fun to be had there, although sadly no reusable dinosaur stickers. Boo hiss! Also been playing with my new ear guage thermometer (no you don't get that on the NHS, but as I've never been able to read a normal thermometer quick enough to get the measurement, I thought I'd better splash out). I now have to go get more little sensor caps for it - got a bit carried away, what with having too ears and very little brain in between them! Well that's me officially riding the storm now, which coincidentally and neatly brings me to the name I thought of for the posse. Storm Riders. Here's the plug, but remember, this is a democracy. If it doesn't get voted in I shall go sulk in a corner for a while, eat worms and such, then willingly go with the popular choice. Really, really. 😄

Actually, I just need to go off line to write this up rather than run out of time for the live posting. Back in the scoot of a sand viper!

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

Ok anyone interested in supplying their stories just keep notes (perhaps in diary form)if you aren't "writers" I will work on my editor to see if she will do the editing. Everyone who knows my condition are always asking what they can do to help.So I will inform her tomorrow that I have BC & see if she will help compile it & what we will have to do. Might has well use our condtion to help future sufferers. I can just see the front cover completely pink with the cancer ribbon embossed, titled READ FOR LIFE, preferable to running!!! Well for me anyway!!!

Night everyone wishing all a better day xx

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

Hi Magel

Great idea about the book. I have already had one (short) account of my breast cancer published in a book called "Living with..." which consisted of personal accounts by people with a number of different conditions. That was a couple of years ago and I would be interested in doing some more writing, given the opportunity.

Best wishes

Gwyn

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

magel i think that is a brilliant idea, i was actually thinking about wot i could do to be useful and then i read your post. for what its worth i would love to contribute. if my poem was good enough i would love it to be included. the poem doesnt mention cancer but i was jus saying that life is precious and that we are all treasured. what good friends you have magel. i hope you enjoyed your day and that there are many more coming your way.

caroled i wait with baited breath, i am sure it will be good whatever it is. havent picked a name yet. but am thinking on it.

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

How I envy you your gorgeous young doctor! I'm holding out hope, but I think I've met my team, and I don't think it's going either the Clooney or the House way, sad to say. Oops, sorry Sal, just nabbed your George again there! :0) Darn, just can't keep my hands to myself. 😄

I'd contribute to the book if you wanted. I'm not a writer either, and have no exciting story to tell, but what they heck, that's what editors are for.

Have just come up with a Gunslinger name option. I need to write up the plug for it so you are all swept away and decide that's the one we're going for, but I have to finish the hoovering first. Will pop up my plug tonight.

Casey, Riviera - you doing ok? Getting concerned about you gunslingers. Hands are hovering round my holsters ready to leap into action. Just holler!

brightlight28
Member

Re: Another newly devastated of Bury St Edmunds

Hello Magel,

Just saw you message about writing on the hair loss strand which is the one I belong to, and would be interested in contributing to the book. Strangely we'd been having a similar discussion in our strand. Are you going to think about the planning side, and possible loose proforma for personal experiences...? May help with the flow. I am not a journalist or professional writer though I am used to writing within my field in research based policy making environment, and have had a few articles published.

Bright x

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

To Everyone.

Went to bed last night trying to think of anything but you know what.
2 of my very good friends took me out for the day We went to a beautiful spa, every kind of water treatment you could think of, they both wanted to feel my lump!!! because they don't want me to feel embarrassed about having cancer. We then went off to an indian restaurant nearer the coast,which is something of a treat as living in the mountains of Spain we don't have them. Then they presented me with flowers & really encouraged me to talk about everything, it was really lovely because the both of them are young enough to be my daughters but we have a really good friendship
Any how I digress--- laying there in bed I was trying not to think about !!!!!! but it kept coming back. I have always been a very positive person (some would say controlling!!!) but I have always tried to find a positive in anything that happens (the young doctor at my medical centre who first examined my boobs was extremely goodlooking) now I didn't expect that at my age!!!!
I have been reading a book lent to me by Sussanna from this forum, she lives in Spain & we met up on Friday she has been through everything it could throw at her & she is now ( 1 yr later) about to go back to work. it was soooo good to talk to her as living in a foreign country is a bit frightening when you have BC.The book is called My mummy wears a wig does yours by Michelle Williams- Huw, it is a good funny account of her life in BC land.
As I am a writer myself and I know a few of you like to write (it is a panacea for the mind) I thought why don't we all get together & put together each of our stories, I have a really good editor who I am sure will help with the editing. it can include stories, poems, recipes etc. We could then market it & sell for Cancer Care (like run for life) instead it can be read for life. I am not very good with the phyical activities, I would rather get a taxi than run anywhere.So it would be good to think we can raise some money to help with this awful thing that seems to be coming so prevalent. I hate not being proactive and I have to leave the running of my restaurant to my daughter as I don't know what will be happening.
Anyone interested please let me know.

Hope today is a good day for us all. xx

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

What about the name the tumourdors (as in troubadors!!!!) seeing as we've all either got one or had one.

Hope all are well as can be x

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

Radicals ain't bad at all, Mule. Playing around with that, Radic Sisters, as in "Them there are called the Radic Sisters. They ain't sisters, but they came into town together a while back and they sure are tight as family. Same look in the eyes. You don't want to get the wrong side of the one called Mule, no sirreee you don't." Not sure about that really.

No decisions will be taken till you get back stress free and gorgeous from Cornwall!

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

Sal, Whooooooop, Whoop, Whoop! Cue cactii jumping up and down, tumbleweed doing hoops, Yosemite Sam shooting himself vertically into the air, Bugs Bunny leaning on the wagon, carrots on hips, hat shoved back, "Nyyyyyeeeeeh, way to go, Doc!". That is such excellent news! You relax next week, hear. You deserve it! And we'll have none of that guilt, Gunslinger! No-one carries that kind of burden in this here posse. We just shove you ahead of us every time it's getting quiet, too quiet..... 😄

Casey - remind me - are you up on Monday to find out if you're doing chemo or not, or are am I getting confused? Riviera, you're on the 26th is it to get another check up and your chemo chat?

Martina - really glad it's gone easy on you so far! Sit down under the creek tree and rest up for a while there. You need your strength, and the desert takes it out of you. Determination town sign is just ahead. We'll keep a stool for you at the saloon, but meanwhile see to healing your wounds. You'll swing into town and catch up with us soon enough. :0) Seriously, take it really easy for the next few days. It's too easy to think you're doing better than you are, then you go and over strain the wound. I know. While you're resting your boots, start thinking of a name and how you might look. What about Hoss? Keeps the horse connection going for you, and you could be the riding specialist. 🙂

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

Just thought I'd post again now, as I'll probably be packing tomorrow evening after work and we're leaving for Cornwall first thing Sunday.

Yes, Gen, it looks like I'll get away without chemo. The sheriff is going to take a couple of nodes for sampling, but reckons the chance of it having spread there is about 5%. So I'm feeling really lucky. Also feeling sort of guilty about having got off so lightly (I hope) when some of you are really going through the mill.

Best of luck all for next week, and Carole, hope the chemo goes ok.

Hugs
Sal xx

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

thanks for the good wishes ladies. is there anyone around here from northern ireland

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

Brilliant!!!!!!! Really pleased for you Sal. You must be so relieved. have a great week in cornwall and make full use of the pampering 🙂

Take it easy Martina, you'll soon be back on form.

xx

Gennie
Member

Re: Another newly devastated of Bury St Edmunds

Good to see you back too Martina, enjoy being a lady of leisure and let your family pamper you for a while. xx

Gennie
Member

Re: Another newly devastated of Bury St Edmunds

Whooop whooop Sal!!!! Excellent news!! And you escape chemo too you lucky duck?! You and Jane will be out the other side of Determination and sipping cocktails by the pool way before me. Start clearing the way!! 🙂

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

Wa hey, yippee, wooo wooo wooo. Second area is benign calcification, so it's just a lumpectomy, followed by rads. It's taken since 5 November and a trip to the mobile screening unit, four trips to the breast clinic, two biopsies and an MRI, but they finally got to the bottom of it. I'm just glad I did all the waiting now, as to have had a mx unnecessarily would have been awful. Huge sigh of relief. The sheriff (the doc) offered to operate next Tuesday, as I'd been waiting so long, but we're going away and if we cancel that, goodness knows when we'd get away, so I declined. So op will be on 12 Feb and so I'll miss Valentine's Day - hoorah 🙂 🙂

Martine, so glad it all went well and you are very welcome to join the posse - the more the merrier. I've been trying to think of a collective name for us. The first thought was (having had the Riviera Kid in mind) The Gucci Gunslingers, but I'm thinking that could be a bit high maintenance and I'm not sure I'm up to being glam all the time (even at the best of times). Then I thought we could be The Pimpernel Posse, because the Scarlett Pimpernell was elusive and ethereal, just like us. But then I thought it sounded a bit wussy and not hard enough for us lot, so maybe not. What about The Radicals? Short and sweet, I thought,a bit subversive, and a play on the word rads that we'll all end up having. What do you all think?

Glad you had a good relaxing day Gen. I'm definitely signing up for some pampering next week in Cornwall.

Nikki. Where on earth did you find him? I'm in love with your hubby already. I'm ready to bid for him to clean my oven any day 🙂

Love and peace to all, I'm feeling very mellow this afternoon. Nothing to do with the pint I've just had in the pub at lunchime of course.

Sal xx

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

ok im back, operation went well yesterday and home this morning, just a little sore and tired but fine apart from that. have to have my drain emptied everyday at the hosp but thats ok. now begins the countdown to results day. my surgeon is lovely he is really particular about everything which gives me great faith in him all he needs is a better sense of humour, is very serious but i suppose what he does is very serous. couldnt wait to get home to get talkin to you all again. dont forget caroled i wanna be in the posse. lol

Gennie
Member

Re: Another newly devastated of Bury St Edmunds

*dashes back in*

good luck for tomorrow Sal! 🙂 xx

Gennie
Member

Re: Another newly devastated of Bury St Edmunds

Sal - I was born in Walsall. Grew up in a village near Stafford from when I was about 6 though.

I'm just bobbing in before bed. Been to a pamper spa day at the local Centerparcs at Elvedon Forest with a group of girls. Booked months ago, but I was determined to still go. Had a lovely day. Had a facial (omitting decollete massage for obvious reasons), a lovely lunch and dinner, just chilled on a lounger all day reading my book and chatting, the odd steam room (they have about 10 different ones of different heats/humidities/aromas). Eeeeh it were grand and I do feel more relaxed. Highly recommended.

The Northern Lights trip sounds like one not to be missed. I'm up for that when we're all fit, well and looking back on this time as an unpleasant interlude! What a celebration that will be eh?

My first thought for the posse was The Magnificent Seven, but I don't think we should limit the number of our band. The more the merrier and there's safey in numbers!

Right, my bed is calling. Think I'll sleep well tonight. xx

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

oh dear! my hubby is always going behind me going over everything ive done, cos its not to his standard! if anyone wants to borrow him ill whack him on ebay as a charity concern!
Flint sounds like a brill name, and posse`s are always good guys from the spaghettis ive watched. this is such a brill thread, its really made me chuckle and i always head to it when im feeling down.
Im shaving my head on 4th feb, day before chemo starts, trying to get some sponsor forms atm.
take care guys, Nikki x

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

Yep, group name needed. I'll have a think. We also need something to generically call all the baddies in Determination. You're right about the amalgamation. I went off on a tangent thinking what rock is hard and sharp like steel, and got flint! I never was one to stick to the tramlines 🙂 Dragon on buckle noted. I'll get round to some descriptions of us this weekend and see what you all think. I'll start with the core four and we can introduce new gunslingers as we go. We're getting mighty close to needing the next chapter when the Searchers stride into Determination. There y'go, first name suggestion. I'm trying to avoid Gang 'cos that might be better for the baddie gang. Or something Posse. We're tracking something down and are definitely going to deal with bad guys so posse should be ok I think. Borderers, Border Posse, Storm Posse (we're bringing a storm with us onto the bad guys, storming through Determination, um etc), Stormbringers, Wolf Pack, Light Seekers, Light Sabre, Darth Vaders, Help!!!!

I agree, Norway sounds cool! And I love quorders! I do it all the time too. Definitely a female skill.

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

Well, I think I logged off too early last night - you lot were certainly verbose!

Carole, Steel's fine with me - I have thick skin. However, if you are thinking of amalgamating Rocky and Steel, don't you get Stocky? Or Reel? I think we also have to think of a group name for us don't you? I don't think we can include a number as we seem to be picking up stragglers along the way. And welcome to you, one and all 🙂

TOM (the old man) is from Staffs too. The place that people confuse with Warsaw - if you know what I mean. Personally, I'm Welsh, but we've been on the south coast for the last 25 years, so my costume could be a bit mixed up I think. As long as I've got a dragon on my belt buckle, I'm OK.

Now, Magel, a get together in a cabin in Norway - that sounds brilliant! You really should go for that one. And if you do, we're tagging along, OK?

Talking of men, which you were, in my absence last night, I heard a great thing on the radio last night. Chris Evans and the sports reporter were talking and the sports guy started talking about his wife giving quorders. Apparently, quorder is the word he has for when his wife gives an order, disguised as a question. As in "would you like to empty the dishwasher darling?" It sounds like a question, but in reality, it's an order. Brilliant 😄 I do that all the time, I think it's a female speciality!

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

Good luck for tomorrow Sal, hope it all goes well

Casey xx

Guest user
Not applicable

Re: Another newly devastated of Bury St Edmunds

Hmm, going for a doubler here. Just wrote something and it didn't show up, so here goes again.

Martina, let us know how you are as soon as you can. Hope it went smoothly.

Hey Sal, best of luck tomorrow. Give them that ol' Mule-ishness if they tarry.