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Anxious about starting FEC in Jan :(

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

I gather that between bank and school holidays, a lot of appointments have been delayed. So if you don't get a letter within a few days, it might be worth chasing up. Even if someone can just tell you when or about when, so you can plan.

Cheryl

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Re: Anxious about starting FEC in Jan :(

hi

It's great to hear from you all and know that everyone is doing ok. I don't know about the rest of you but i,m finding i,m getting through this last bout of SE,s much better than usual, must be because i,m not worrying obout overdoing it now - i don,t care, i,ve finished. Shouldn't speak too soon, i could fall flat on my face tomorrow.

Ding ding next round rads.

Should be getting my scan appointments through soon, anyone else? For me this is my next major hurdle, i feel i need to get these out of the way before i can start to relax a little.

Good luck to those who still have there last tax to go, thinking of you.

maria x

Peachez
Member

Re: Anxious about starting FEC in Jan :(

Thank you Jo BCC.

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

I see the Onc next week and I think I get my Arimidex prescription then. (I think that's the one.) Then rads will be delayed until June because of a holiday we booked about a year ago (part of a 2 for 1 deal), which also gives me a little more recovery time.

Is there something good about emerging into the sunshine and longer days? Let's just home we have a half-way decent summer when we are all able to enjoy it properly.

Let's see: I'll be able to watch Wimbledon live for the first time in years.

Cheryl

Jo_BCC
Member

Re: Anxious about starting FEC in Jan :(

Hi Peachez

I've put for you below the link to BCC's free excercise DVD and exercise sheet. Just follow the link to order your free copy. Hope it helps.

http://www.breastcancercare.org.uk/healthcare-professionals/publications/quick-order-list/*/changeTe...

Jo, Facilitator

Peachez
Member

Re: Anxious about starting FEC in Jan :(

Hi All, Sorry I lost touch. Hope everyone is doing ok, and I will try to look in a bit more often as the TAX truck gets off me! PMs are welcome too!
popping in for a quick update for your roll call:

Last chemo was 27th April as Alto says (ta).

Bone density scan May 4th, Rads plannin scan May 5th

Rads due to start May 23rd, to inc collar bone area too, worrying more about Lymphodema more now having had 29 nodes removed (5 infected)and rads too. However I was advised to just use my arm normally and haven't been doing specific exercises! Help!!

I am to start Femara (Letrozole) the same day as the Rads start.

Love to all,

P xxxx

janipi
Member

Re: Anxious about starting FEC in Jan :(

Can't believe we have all come this far! When FEC started the world was wintry cold and dark. I'm now emerging from the last TAX. Tired, sore but triumphant. Rads planning on Thursday ready for the next adventure. I always read the threads but sometimes don't post due to lazyness and being unable to throw a sentence together. Hopefully my chemo head will gradually unscramble soon. It's been an eventful journey that none of us planned but thanks to this site we can share the good and bad times and not feel isolated. Well done for making the roll call Diana. Bald, fat, tired and battered we may be but we are still running (just about!) to the finishing line. x

Alto
Member

Re: Anxious about starting FEC in Jan :(

Well done Diana!

Peachez had her last one on 27th April - she posts a lot on the Dark Woods thread.

Jane xxx

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

Brilliant, Diana!

Let's hope the absentees have got through so easily that they're getting on with life and find they don't need the support of the forum, or at least of this thread. I know some are active on other threads.

Cheryl

ragamuffin
Member

Re: Anxious about starting FEC in Jan :(

Roll Call for the January Start FEC-ers and Tax-ers

January start date/ Last dose of Chemo!

Cheryl (CherylLT) 5th / April 22nd

Jan (Janipi) 6th/

Deb (Weena) 6th/

Maria (Mazbaz) 7th/ April 28th

(Stay Calm & Carry On) 10th/ April 28th

Janet (Jaybee46) 11th/

(Den42) 11th/

Sarah (SarahBeara) 12th/

(Peachez) 13th/

Kaz (Kazza21) 13th/

Diana (Ragamuffin) 14th/ April 30th

(Pooki) 18th/

Jane (Alto) 20th/ May 4th

(Biff) 20th/

Pat (Pattimi) ?/

Hi All “Started in January Ladies”

Apologies if I’ve missed anybody- good idea to start the roll call Cheryl – I made a list way back at the beginning of our chemo start so have put it into a table to make it easy to read. (But the lines of the table don't want to show here-so not quite as easy to read as I anticipated) Yesterday I lost a post into cyber space so I’ve done this in word. We haven’t heard from quite a few people over the past couple of months.

Would love to hear how everybody has gone/is going. Well I hope.

Diana xx

This post does not want to do what I want it to so have to say the first date is the start and the second date is the day of the last dose of chemo. Hope it makes sense ! Hve now editted several time to correct spelling mistakes chemo brain in full swing!

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

It's been relatively easy for me to stay away from people during outbreaks of sickness, physically easy that is, but it's pretty isolating. Good luck!

We've had a cold, dry east wind for a few days which is drying the garden and means sitting in the sun isn't comfortable for long, blast it.

Cheryl

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Re: Anxious about starting FEC in Jan :(

hi all

Jane i don't blame you for wanting to get away from Bc for a few days, It will do you good. Good luck for Wednesday.

Cheryl - i don't think much damage was done, just abit of a bruise thats all. Just hope i've got enough protection from infections for the next few weeks.

Maria x

Alto
Member

Re: Anxious about starting FEC in Jan :(

I'll add to the roll call.

I've got my final Tax on Wednesday this week then should start Tamoxifen on 25th May and four weeks of rads on 30th May.

I'm only dipping in to the forums at the moment as I'm feeling pretty good at the moment apart from my legs (combination of steroid fluid retention and Tax badly affecting my leg muscles), so although I'm not very mobile I'm doing my best to forget about this part of my life for a few days, or at least keep it in a box for a bit.

Jane xxx

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

I hope no serious damage was done, Maria. And having to stay away from people does nothing for the morale, does it?

Cheryl

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Re: Anxious about starting FEC in Jan :(

hi everyone

cheryl your right we do need a role call. I posted on the other thread to as i read you,ve not been your usual perky self, hope your feeling better.

I,m 2 days post fec 6 and feeling ok. starting rads in about 3 weeks time i think.

I gave my self an injection this morning and the bloody syringe bit came away from the needle as i was injecting ( second rate product)and i ended up with lenograstrim all over my stomach instead of inside it. I,ve still got 5 injections to go so i,m hoping this will be okay to prevent me getting any infections, i,ve done so well upto now.

I,m having to stay away from most of my family at the moment also because a few of the littlies have chicken pox. It doesn't help the moral to be away from the people who have been keeping me afloat for the past 6 months.

love and hugs

Maria x

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

Bump.

How is everyone doing? I've lost track of who should have had their final FECcing by now and who has been delayed or gone onto TAX or other treatments.

Time for a roll call?

Cheryl--Trying to recover from FEC 6 a week ago.

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

It has occured to me to wonder what the combination of starting Arimidex (I think) and then rads is going to do to my chances of regrowing hair. The fuzz I have left has grown a little since I shaved it down to suede head, but continues to thin. I may have to have very short hair for longer than I would prefer, as my hair is fine and a bit thin at the best of times. When I had rads only, before, my hair did thin a bit, just as it might after bad flu, and my nails split and shattered for a while, but it was back to normal after a couple of months, I think. This, of course, is likely to be worse, and you have to worry about the long-term effect of anti-oestrogens on top of everything else.

We're going to Calahonda in Andalucia. It's about half way between Finguerola and Marbella, if you know that part of Spain. The place we are staying has flowers and trees everywhere, and some beautiful gardens with cascades and fountains where I can sit out of the sun. It's been years since I've been able to lie on a beach or around a pool all day. End of May/early June is nicer than high summer, as things are less crowded and the temperatures are more comfortable, but we can't usually take holidays then, so this is an extra treat.

Have a good Easter; I hope you have friends and family to spend it with. Our youngest is with us for a couple of days, and we divvied up the LGFB goodie bag last night. Nice to do something girlie with my daughter.

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Re: Anxious about starting FEC in Jan :(

Hi

I know what you mean about being worried about lymphodema Diana, i had 30 nodes removed. I suppose we can only do our bests in terms of looking after the area to be irradiated and keep our fingers crossed.

I,m starting tamoxifen around the same time as rads, and i,m really worried that my hair may never grow back as it was. It's very fine anyway,(when i,ve got some) so i can hardly afford for it to thin.
I,ve got a mental image of myself as a rather large, bald headed bearded lady with a gruff voice. Arrrgh!

Good luck with your last tax on Saturday, i hope the SE,s are minimal

Cheryl - I,m so envious of your holiday! I know i've probably asked before but where is it your going ?

Maria x

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

I'll be starting rads in early June, as it's being delayed for a holiday. You can do a lot to minimise any SEs or damage to your skin, and I think protecting and moisturising it in advance is a good idea. You can probably use any lotion you like until you get close to the start date, and of course plenty of fluid and healthy eating will help.

I found that the last bit was like getting over flu: I'd feel fine so long as I wasn't doing any thing, but if I let the guilt take over and got up to do housework or gardening, I'd be shaky and wiped out in a very short time. (A bit like some stages of chemo, too.) So I had to learn to rest as much as I needed and only work for very short intervals.

Cheryl

ragamuffin
Member

Re: Anxious about starting FEC in Jan :(

Thanks Maria and Cheryl.

I guess my concern re rads is because I have had 26 lymph nodes removed from my axilla- 5 were found to have mets and one with "extra capsular spread"- means clavicle area to be irradiated.

I don't want to develop lymphodema -am religiously doing the exercises and putting E45 on my skin in preparation. Have 1x Tax to go next Saturday - haven't got a definite date to start rads yet but near the end of May most likely.

Diana x

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

Yes, if someone had said 'we want you to come Thursday because we're only doing a reduced group on Friday because of the Bank Holiday', I would have made a note and would have been glad to get it over with yesterday. Never mind, it's done now.

Good luck next Thursday, Maria. I hope it goes well. My rads are being delayed a bit so we can go on a holiday which we booked last year. Sun, sea and sangria, as they say. Well, not much sun, but at least I can have the sangria while I sit in the shade. Just over a month away, too.

Cheryl

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Re: Anxious about starting FEC in Jan :(

Hi Anybody thats still here

Cheryl when you said that your chemo was on friday i was quite surprised that they were doing it then. So glad for you that they didn'y delay it.

Diana - i had rads about 10 years ago on my throat and it was really painful. When i mentioned it to the oncologist she told me i would be glad to know that it was nothing like that and will be much easier. It may become sore but not painful, if that makes any sense.

I have my last chemo next thursday and then i think i start rads about 23nd may. going to a younger womens forum in manchester on the 20/21st which i,m really looking forward to. I may even have a few glasses of wine

maria x

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

Diana, I had rads a couple of years ago and perhaps I was just lucky, but it was much easier (aside from daily appointments) than chemo has been. Rads after chemo may be a different kettle of fish, of course, which I will find out in a month or so.

Well my last FEC nearly didn't happen--first, there was a mix-up about when my appointment was supposed to be; apparently it should have been yesterday, but I flourished my appointment card which clearly said FRI. Then the PICC line didn't want to be flushed, but alternating push and pull finally got things flowing. Just to put the cherry on top, they removed the PICC line at the end.

Hooray! (Yeah, yeah, SEs to come, but it still feels good.)

Cheryl

ragamuffin
Member

Re: Anxious about starting FEC in Jan :(

Well done Cheryl - I hope I'll be in the same boat next weekend.

I thought this thread was on it's last legs as everyone seems to have moved onto the Dark Woods thread. I've been following you all over there and really enjoy the humour. Never really felt wobbly or anxious or got at by gremlins or monsters or in need of the fairies or flamethrowers so haven't posted there.

Maybe when the Rads start I'll feel the need as the side effects of those are more likely to be longer lasting and/or more damaging.

Happy Easter to all- Diana xx

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

Just a quick update--last FEC today! Arimidex next and rads in June.

Good luck to everyone still ploughing through it all and congratulations to those also coming up to their final chemo.

Cheryl

Alto
Member

Re: Anxious about starting FEC in Jan :(

I've been in work this week as I have been 10 days after my last two chemos but I think enough is enough - I'm just to tired now after changing to Tax. I think I'll go in tomorrow to finish off the piece of work I was doing then I'll call it a day. I don't think I've got anything I need to prove!

I've got Tax 2 next week - not looking forward to the SEs is the last one was anything to go by!

Jane xxx

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

Good luck tomorrow, Maria, I'm just a bit out of things today and only visiting computer for short times at intervals. Still waiting for appointments for heart tests & hoping they are just routine in the end.

Cheryl

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Re: Anxious about starting FEC in Jan :(

Hi everyone

Fec 5 for me tomorrow, bloods today, so keep your fingers crossed for me. The day before being fecced is always a bit mad for me. Running around trying to get everything done whilst i,m still feeling good. It's beautiful weather here today so sod the washing and house work, i,m going out!

Cheryl - have you got your results from your heart test yet?

Love and Hugs to everyone, hope no news is good news

Maria x

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

Bump.

How is everyone coming along? I think there are more FEC5s and possibly some TAXs this week, but I know some have had delays along the way. Is it time for an update?

I had FEC5 last Friday. I'm waiting to hear about heart tests, but I think these will be fairly routine and shouldn't delay anything. I also have to have a bone density scan before starting anti-oestrogen when FEC finishes. I've really been pretty lucky in terms of SEs, not having anything too dramatic so far.

Cheryl

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

I normally go charging along, but I walk at about half the pace now, and that gets me puffed, especially any kind of hill at all. You're right, it's the way it's so unpredictable that's most of the problem, along with unpredictable English weather, so you lie in bed when it's sunny and then when you feel better it's tipping or cold.

Even long drives have this problem--could you stop and lie down quickly enough?

Still in a few weeks or a month, I should be getting back to walking.

Cheryl

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Re: Anxious about starting FEC in Jan :(

Cheryl - i know how you feel about going out on your own. I love nothing more than going on a long walk, but worry about suddenly becoming ill and being in some remote place. So i,m constantly ringing various friends and family members to come and join me. I think they dread me ringing now, cos as my OH says it's more like a frog march than a walk - well i need to get my heart rate up for it to have any benefit. lol

Maria x

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

I'm not sure a DVD is worth while at this point. I didn't realise there was more on that than in the leaflet, or I would have ordered it a long time ago. It will be interesting to see what the heart tests show, so I hope those appointments come through soon. Then when I start recovering from FEC6, we should be into the warmer part of the year and I can start building up again. I probably should be more proactive in asking my OH to go out for walks with me when he's at home--slthough he's largely retired now, he's been out a lot lately, and it always seems to coincide with the nicer weather.

Thanks for the offer, Maria.

Cheryl

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Re: Anxious about starting FEC in Jan :(

hi Cheryl

like Jane says there are a couple of aerobic type workouts at the back of the BBC DVD. I,ve done the first one. They are quite easy and i shoulds think they would be good to tide you over untill after chemo. You can order one from this site, they are free, but if you have any problems give me a PM and send you mine.

Maria x

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

No, I don't have the DVD, just downloaded the arm exercises. In fact, mobility hasn't been the problem for me, so I've just taken to stretching my left arm in multiple directions to keep the scar area flexible and because it does seem to reduce the pain a bit, possibly by creating some real sensations to overtcome the ones being generated by recovering nerves.

I am up and down the stairs, at least a few times even on my worst days. Part of the problem is that we don't have many shops or anything else within easy walking distance of our house, so most errands involve driving, waiting long and erratic times for a slow local bus (no shelter or bench, either, or walking over 1/4 mile to the nearest direct bus line. I've always relied on things like stairs and walking places at a brisk for most of my aerobic exercise, but we are equidistant between two high streets and both are further than I can walk at the moment.

I'll try to check around for other exercises online.

Cheryl

Alto
Member

Re: Anxious about starting FEC in Jan :(

Hi Cheryl,

I've found some dental wax that my daughter had for putting on her brace to stop sore spots so I've put some of that on the pointy bit and it works a treat. It stayed on all night so no more soreness. I doubt it'll stay on when I eat but it catches my tongue when I talk, not eat, so as long as I replace it after eating I should be fine.

I really want to wait to see my own dentist as I have a bit of a dental phobia and she's been lovely with me, plus I doubt very much that my blood count will be good enough this week and I can't have any treatment without that. I won't be silly though and will play it by ear!

Glad you're feeling a bit better - I've been going for short walks and it's nice just to get fresh air even though I can't walk far. I think exercise classes would be a good idea - it would get some of us together as well, having a bit of fun I should imagine - do you think we'd be able to take it seriously?

Do you have the BCC exercise DVD? I've only done the arm exercises (which are fantastic by the way - they don't look like much but the really work!) - there's a more general exercise class on there as well but I haven't looked at it yet - maybe I should...

Jane xxx

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

Things are better in the morning--the aches and pains only really kicked in late evening when the intravenous was starting to wear off. Getting to sleep and staying asleep was a problem, but finally got a few hours' uninterrupted sleep, which makes a big difference.

I'm sure I'm suffering from lack of exercise as much as anything, but part of the time I just don't feel secure going for walks on my own and we don't have exercise equipment at home. I'm really looking forward to being able to go swimming again one day.

I've just had a thought--I know some centres offer massage sessions and the like, but would group exercise classes be useful or appealing? Something gentle, with the option of chairs where needed? I'm not thinking specifically of the arm exercises, but heart, lung, general strength and flexibility.

Cheryl

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

Well everything that ever aches or stings is aching and stinging, and supper is an undigested lump in my stomach, so I'm taking my ondansetron and paracetamol and hoping for a bit of sleep. I have some joints affected by osteoarthritis, which normally only bothers me when I overuse them--too much typing and mousing, for example--but a couple of finger joints are stiff and painful. Could be coincidence, I suppose.

See you in the morning ladies, and I hope it's better for all of us.

I haven't noticed anything from Silvershar, but then I've only checked occasionally. Hope you're ok.

Cheryl

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

I would have thought a mouth ulcer could be dangerous in itself, as well as being painful. Is there an emergency dental service you could go to? Could your GP or chemo unit refer you?

Cheryl

Alto
Member

Re: Anxious about starting FEC in Jan :(

OK then. It's not fair. There.

Luckily it isn't hurting at the moment - I suspect the tooth is dead, thank goodness. I think I'll get ulcers galore from the sharp bit though so I hope the dentist will at least be able to file off the edge as that wouldn't be invasive. As long as my bloods are OK they shuld be able to do something.

I'll definitely need to drown my sorrows tonight!

Jane xxx

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

Of course it isn't fair! Can they give you a temporary filling and/or something to deaden the pain? One way and another, I'd say you have had more than your fair share of SEs.

Cheryl

Alto
Member

Re: Anxious about starting FEC in Jan :(

Aaargh - don't believe it!

I've just lost half a tooth and a very large filling!! Got a nasty sharp edge in my mouth now AND they can't see me until a week on Tuesday AND I have to get bloods done first to see if they can actually do anything. Knowing my luck it'll develop into raging toothache over the weekend.

Am I allowed to say it's not fair???

Jane xxx 😞

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

Just got home from FEC5. It's just as well the nurses check the anti-sickness prescription, because the wrong ones had been crossed off the list. (I double-checked what was actually in the pharmacy bag as well.)

And a book order from Amazon arrived today, so no foolery!

Cheryl

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Re: Anxious about starting FEC in Jan :(

Snap jane, I,ve just had the same with my son. I,ve gone from being 'flirty mum', swishing the hair and fluttering the eye lashes to 'feel sorry for me' with the bald head and one eyelash on either eye mum. Neither works. lol

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

Will the sympathy card work on your son?

I'm glad that part of things is behind me now.

Cheryl

Alto
Member

Re: Anxious about starting FEC in Jan :(

Rather you than me Cheryl!

I'm 8 days post Tax 1 now, totally exhausted and still feeling pretty rough from time to time.

Just been to son's y12 parents' evening and needed to take my OH's arm to get up the steps! The sympathy card didn't work with one of his teachers though - ouch! Serious *rse kicking - let's hope it works as it's the one he really needs for university.

Jane xxx

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Re: Anxious about starting FEC in Jan :(

Oh god that conjures up loads of images of how the doctors could get there own back for all the moaning we do. lol x let me know if they play any tricks on you.

Maria x

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

Guess who has FEC5 on April Fools!

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Re: Anxious about starting FEC in Jan :(

hi everyone

Flipping eck!!!! It's April tomorrow. Where has the time gone? I remember at the start of chemo, i just couldn't imagine getting through treatment. And here we are, most of us will be either fec 4 ot 5 now. I must say although it,s not been a breeze it certainly hasn't been has bad as i envisaged. (Hopefully will stay this way). There is a light at the end of the tunnel. Hope your all feeling the same as me. Maria x

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

Hi Pat, as Maria said, knowing what to expect makes it better. Write down anything that is difficult or worrying and discuss it at your next appointment with the Onc. Sometimes the steroids or anti-sickness medicines can be adjusted to suit you better. If sleeplessness is a very big problem your doctor might be willing to prescribe something for that. I often find the best thing is to get up, make a warm drink and curl up with a book until I feel sleepy, but of course others might prefer to watch a DVD or listen to music.

We all have bad days physically and mentally, so it's not just you. I think everyone has some trouble with sleeping at least at times and some people have a lot of trouble.

Please do join this or any other thread. It really helps to let things out to people who know what you're talking about, and often someone will have a suggestion that will work for you too.

Best wishes

Cheryl

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Re: Anxious about starting FEC in Jan :(

Hi Pat

Your def not the only one to be worried and stressed out on your first chemo. I think you would find that most people find it the hardest. It's the not knowing and being constantly aware of your body. I felt like a nervous wreck on fec 1 but then found fec 2 quite easy in comparison. I wasn't stressed because i knew what was going to happen. So yes in terms of stress it does get easier, but the SE,s get slighty worse (doable). Try not to worry too much about things Pat, you can always come here and get some support, and advice on managing SE,s. We all know what your going through. What chemo are you on? I,ve already had a mastectomy, node clearance, currently on fec 4 and will go on to have 30 rads then tamoxifen.

Good luck and hugs
Maria x