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Anxious about starting FEC in Jan :(

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Re: Anxious about starting FEC in Jan :(

I,ve done it, I,ve done it - shaved head,miles better, no more cold cap for me. AND went nude to the theatre (without wig i mean). I feel liberated. Poor gillian, to be relegated to the back of the cupboard after just one outing.

Well done Jane and alto for getting through fec 3. 3 down 3 to go, yippee! Can't you tell i,m now one the up side of fec 3,he he much more positive.

Maria x

janipi
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Re: Anxious about starting FEC in Jan :(

Just lost what I had written!! I found FEC 3 quite tough to get over. Spent alot of time horizontal the first week. Feeling good now though. Maria, well done for taking Gillian out and about. I'm very conscious of mine riding up at the back and me frantically pulling it down, Sainsburys or the High Street I seem to keep one hand free to adjust it as necessary. To be honest I'm more comfortable in a hat. Hang on to that spag bol Jane. I won't be sorry to leave FEC behind for the early SE's. Bit scared of TAX though. I have read some horror stories lately.The Hickman line will be a relief. No more sore arms. x

Alto
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Re: Anxious about starting FEC in Jan :(

Hello all!

FEC3 was a bit nasty yesterday - my veins have just about given up now so they had to use a really dinky one at the base of my index finger and IT HURT. Having a Hickman Line put in before the next one (TAX1), thank goodness.

Definitely worse SEs this time - came so close to being sick this morning I don't know how I escaped. it was 5 minutes after I'd taken the morning pile of pills as well, so I was really determined not to lose the lot!

I've spent most of the day sleeping and have eated spag bol tonight, so hopefully it's all a bit more stable now!

I can just picture you Maria - Gillian held on with a big shiny strap like the ones on old fireman's helmets... very elegant!

Jane xxx

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Re: Anxious about starting FEC in Jan :(

Well it's took me a full week to feel anything like normal. yippee i feel ok today!

Cheryl i remember that summer well, My mum was heavily pregnant with my brother.

I,ve finally done it - Gillian made her debut(wig). Went out for something to eat with some friends and thought i'd bite the bullet. Went ok, but what i didn't realise is how wigs don't like hair (however minor). Could feel it gradually slipping back as the evening wore on. It wouldn't have took much for people to realise that i was wearing a wig, as i spent the whole night yanking it back in to place hehe. My friends thought it was hilarious. Going to the theatre for my birthday tomorrow night,so Gillian is making her 2nd appearance. Going to be lots more people about this time. I,ll have to get an elastic band to go under my chin to keep it on lol.

How are all you feccer 3's doing, hopefully your fairing better than i did.

Maria x

Mezzomamma
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Re: Anxious about starting FEC in Jan :(

I don't know about excessive thirst, but I get a dry sensation in my that seems to go right through to my stomach, and I estimate I'm drinking nearly twice as much as usual. I go on the theory that my body is telling me I need extra fluid. During my first pregnancy I was perpetually thirsty. I could drink a couple of big glasses of water and I'd be thirsty again a few minutes later. (It was the infamous hot summer of 1976.)

Cheryl

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Re: Anxious about starting FEC in Jan :(

Hi everyone

How you all bearing up?

Jane are you gearing up for fec 3 tomorrow, drinking plenty, etc,etc,etc.

How is your hair looking now Donna? I,m on fec 3 and have used cold cap. I found it thinned alot on first fec. Woke up one morning and had a matted birds nest on either side of my head. When i tried to de - tangle it, it just came away in my hands. I was horrified. I looked like bloody Worsely Gummage( only with nice teeth)LOL. It had to go! Got it cut really short and although i'ts not how i like my hair to be, it's now presentable. As Joanne says if you can keep up with cold cap it will be better when it's starts to regrow.

Well i,m feeling better, but not quite my old self at the mo at all. In a bit of the 'cup half empty' mood. Thought i would be glad that i,ve got fec 3 out of the way, half way through and all that! Now i,m finding that another 3 seems like way too many!

Anybody finding they,ve got excessive thirst,that can't be quenched? Am sick of drinking.

It's nice and sunny here today,so am going to take my moaning dog Paddy out for a walk ( He,s been a bit neglected the last 5 days, only been able to take him round the block). Hopefully i'll be full of the joys of spring when i get back, fresh air will have got rid of my headache and i'll have loads of energy. Gotta try!

Maria x

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Re: Anxious about starting FEC in Jan :(

Hi Donna. i also am having cold cap and had FEC 3 last week. initially thought my hair was 'safe' but started shedding about day 20 FEC 1. used to wash my hair daily,(it was my crowning glory!) so when started falling out i was devastated and wondered if it was worth continuing with the cap. i now wear a headscarf as i have a bald patch on the top and i rarely wash it or even comb it, just cover it up. i am going to continue with the cap though as my way of thinking is that when the chemo has ended, even if i only have 20% left, it won't take as long for the regrowth to 'knit' in, as it would if i was totally bald. may sound quite vain but the change of image has been very stressful and still gets to me. i have never looked so 'ugly' in all my life. but on a plus, halfway through now, the end is in site and looking forward to the day when i can 'safely' wash, brush and style my hair again. Joanne xx

Mezzomamma
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Re: Anxious about starting FEC in Jan :(

Donna, now that your hair has dried, is it just thinner or are there patches? If it's only thinner, perhaps you will go on with a head of hair for a while. Sorry you've lost so much.

Cheryl

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Re: Anxious about starting FEC in Jan :(

well i washed it and it went into a dreadlock,, panic mode set in, tears set in, etc etc

i put loads of conditioner on and combed it carefully, but loads has come out,,
would i be bald now if id not used the cold cap?

sorry feeling sad

Donna
x

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Re: Anxious about starting FEC in Jan :(

Right, having heard many comments about how bad fec 3 is, i have decided to give it a miss and move straight on to fec 4 thank you very much.... I have to admit,i am 3 and half weeks now on from fec 2 and i do feel almost absolutely normal again, so hopefully when we do all get to the end we shall be back to being human again fairly quickly.
The eyelash/brow gel is made by a company called Talika, google it, or there is a link on the LGFB website.. I have zero hair anywhere on my body apart form a bit of fuzz on lower legs, but facial hair still intact.. (i dont mean beard and whiskers!!!).. It is expensive, but seeing as i have been buying kids beanie hats from Asda in the sale i think i can justify the expense.. LOL
Donna... i would say, bite the bullet, wash the hair, see what happens... i know they say that if you leave it long enough it will wash itself but i remember when i had my recon surgery and was in hospital a week, by day 6 i was literally BEGGING the nurses to get me to the sink to wash my hair, i couldnt bear the smell... the body odour i didnt mind Ha Ha, but the greasy locks, no way... Good Luck ! xxxx

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Re: Anxious about starting FEC in Jan :(

good morning ladies,,,,

well still no taste buds,, grrrr i love my coffee, i have tons of chocolates and i will not open them and waste them,,,

Sarah,,,, i too would love to know what the name of the eyelash coating gel thingy is too, ive been using rapid lash from boots,, i would so love to keep my eyelashes and brows.

ive not washed my hair for a week, i wont even comb it, been using cold cap but strands still come away,, must get over it, must get over it,
but i cant...

jane, lots of luck for 3 on wednesday, ive not had 3..

take care
love and hugs
Donna
xx

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

Yes, name of the eyelash stuff please while I still have some! I'm hoping to get up to Brum city centre on Tuesday for the meet-up, so I could brave a cosmetics counter or two to look for it.

So far my facial hair is still with me, just a bit thinner, but I'm watching anxiously this week and the next. Body hair is thinning as well. My scalp is still fuzzy.

The LGFB DVD turned up towards the end of last week, and I'm glad the makeover ladies took their scarves and wigs off so everyone can see a couple of patchy scalps. I don't think you quite anticipate what happens between thinning and bald. Well, how can you, unless you have a friend or relative willing to show you?

Cheryl

Alto
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Re: Anxious about starting FEC in Jan :(

Oh dear maria, hope you're feeling a bit better now. I usually quite like Manuka but it really doesn't go well with chemo SEs - yuck, yuck, yuck.

I've got FEC3 on Wednesday and really not looking forward to it - it seems to have been rather nasty for quite lot of people.

Jane xxx

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Re: Anxious about starting FEC in Jan :(

Hi guys

Where you all gone? have a couple of days off and you all disappear. Hope you all okay anyway.

Just about coming round now after nasty feccer 3, and boy was it a feccer.

Manuka honey - good stuff or it would be if the smell didn't send me gagging to the kitchen sink every time i open it. Do you think the old trick of holding my nose would work or should i just put it on the kids toast in the mornings to get rid of it lol.

Sarah - thank goodness your getting the injections next fec, got to keep up with us honey, can't have you slacking . What's this super strengthening eyelash gel you,ve been using, think i could do with some. I,d try anything not to lose them, though a few have disappeared from the corners.

Maria x

Alto
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Re: Anxious about starting FEC in Jan :(

Sarah, I've got several jars of Manuka honey waiting to be opened and was taking it regularly before chemo started but with my chemo tastebuds I can't bear the taste of it for most of the time. It makes me feel ill just to think about eating it, so it's just sitting on the shelf 😞

Jane xxx

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Re: Anxious about starting FEC in Jan :(

Gritty cancer stuff???? That should have read shitty cancer stuff... LOL!!

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Re: Anxious about starting FEC in Jan :(

So, a 4 hr round trip to the hospital, blood tests, waiting for results..... And............fec3 postponed for another week due to still crap WBC... It has gone up to a measly 0.9, doctor wants it at 1.5 before I can have the lovely cocktail again. They did agree to giving me the injections after next one so hopefully that will do the trick. I am so determined to have this all over and done with by may as it's my 40th birthday and am looking to that for my new start, all done with this gritty cancer stuff... I shall up my intake of manuka honey, actually I have barely been taking it and I had heard it's the only thing that will make any difference.( I have heard bout life Mel too but it is double the price, not that I'm a tight arse but I think oh drew the line after I spent £25 on a strengthening eyelash gel...mind you, so far so good the rest of my body is bald as a coot but brows and lashes are hanging in there). The one positive of chemo seems to be super soft skin, I swear it's smooth as marble.....every cloud eh...
Hope you sort out your sickness Maria, it's my big fear that my nausea will get worse not better as I go along...
I guess I have a nice week of virtual normality to look forward too, hopefully I'll have some energy to do something productive once the boys are back at school other than worrying what's happening in ' Everwood' on sky tv.... And then neighbors, then home and away, then emmerdale etc etc....
Lots of love to all xxxxx

Mezzomamma
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Re: Anxious about starting FEC in Jan :(

Sorry they haven't got your sickness meds right yet, Maria. I hope it settles soon and is sorted better for the next one.

Cheryl

janipi
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Re: Anxious about starting FEC in Jan :(

I am having neulasta jab as the fil 7days didn't work first time. They do come with side effects though, one of them being nausea. We can't win!
Maria. Poor you! I was given cyclizine tablets. They do cause drowsiness but stop the sickness. I've heard lots of people talk about emend too. Apparently if you are very bad GP will come out with injection of it (cyclizine). Don't suffer, this is all bad enough.
My wbc has got lower every chemo. only 2 at the last one. A friend recommended Life-mel honey. She took a spoonful night and morning through chemo and her wbc was always around the 5 mark each time. It is 37.50 for a small jar! I did buy it because I thought I'll try anything to feel better. OH's face when he saw the size of the jar lol. He had better not put it on his toast. Lots of rest everyone... and treats...we deserve them x

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Re: Anxious about starting FEC in Jan :(

hi

Sarah - I,m on filgrastrim as well and was just given it without asking. I have mine for 7 days starting day after chemo. Seems to have worked so far. I,m 42 and again was told i was given it because of my age. Regardless of your age i think if your WBC has been low twice, you'd be quite justified in asking for something to keep them up. There is a better one called neulasta(?) you only have one injection of this, but apparently it cost about £750 so they try not prescribe it. GOOD LUCK

Had my anti sickness meds changed this time because after last 2 fec had started to vomit 4 hours after chemo. Once sick i felt better. They give me same meds but stronger, put into my drip. This should last 3 days. What RUBBISH, started feeling nauseous after 4 hours and started vomiting after 7 hours, but this time didn't feel better afterwards. Haven't even been able to keep water down, so been up most of the night. Thankfully i seemed to have settled a bit this morning, have kept fluids down and am working myself up to eating some thing.

re veins - doctor has said i can have a central line put in if i want, so this has made me feel better. I,m not going to have one yet, am going to see how i go on, but am relieved that i have got an option if they become too sore. They just told me to ring secretary if and when i change my mind and they would arrange it.

I had cold cap again, what a chicken lol x

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Re: Anxious about starting FEC in Jan :(

Sarah - ask about filigrastim (i think) injections which you inject to keep up WBC. I've been prescribed these from 1st FEC without asking. My last one was 1.4, so 0.1 low but they still went ahead and gave me extra injections for days 4 - 12. I know from others that it's not the norm to just give them out and so was quite surprised to be offered them but they explained that younger people (i'm 41) produce more WBC so suffer more on chemo, someone said it might be because i have 2 kids that they gave it - with risk of infection, who knows but it's worth an ask.

Mezzomamma
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Re: Anxious about starting FEC in Jan :(

Oh, Sarah, too bad. I'm glad you can rest this afternoon, hope it helps.

Cheryl

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Re: Anxious about starting FEC in Jan :(

Oh bums..... Hospital called with blood results. WBC at 0.3!!!!! Last time they delayed FEC 2 cos it was 0.8. Not a happy camper at all right now, had myself all psyched up for FEC 3 tomorrow, looking highly unlikely right now. Have to trek an hour to the hospital again tomorrow and they will do more tests, if by some miracle it's up to 1 then they will do the chemo.... Looking for a miracle and shoving manuka honey down my throat by the spoonful.
A kindly friend is coming over to take the boys out on an adventure up on the moors this afternoon so I shall lie on the sofa with some peace and quiet and a whole series of 24 to catch up on....
S xx

Mezzomamma
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Re: Anxious about starting FEC in Jan :(

I've had occasional gritty eyes all the way through, especially when I wake at night and sometimes first thing. On the other hand, I have permanent year round hayfever. Artificial tears or allergy eyedrops help; if these are not enough there is a type of artificial tears in small vials which you might be able to get on prescription. (Still have a few vials from rads 2 years ago--rads can dry your eyes too.)

Cheryl

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Re: Anxious about starting FEC in Jan :(

Everyone sounds quite perky at the mo - long may it reign!

My FEC3 is hanging around in the form of a woolly head but lumps are noticably shrinking so it's obviously all for the good.

Re hair - it's pants to have to shave it but another step towards the end. Best of luck x

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Re: Anxious about starting FEC in Jan :(

Masochism quite coommon for us all now me thinks.

Yes i,ve had what i thought was the start of hay fever but obviously way too early.

Hope your getting on the wii with your boys Sarah, try boxing that will tire them out

Just got a big mirror and had a look at the back of my head. Gosh my hair is a STATE. I know i,m sporting male pattern alopecia type hair do (bald on top, hair round sides lol). But i didn,t realise just how thin what remains, had gone (can see scalp badly). WHY WHY WHY am i clinging to my sparse fuzzy hair aghh! Wish you could all see it, it would give you all a laugh. look like scary mad women . Going to have to give myself seriously good talking to tonight - hopefully by morning i will have talked myself into relinquishing my hold on seriously bad hairdo and not bother with cold cap tomorrow. Yeah right ha ha

speak to you all soon maria x

janipi
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Re: Anxious about starting FEC in Jan :(

Hi all! Hope you have plenty of blood left Maria. Never a dull moment with us chemo ladies. My eyes are feeling gritty too but I think it's due to eyelashes departing. I have had another quiet day and am frustrated that I haven't bounced back as quickly as FEC 2. Bit queasy too. I think every FEC is different. The dark, dark, woods thread is fab. It's very busy and takes alot of catching up with, but I love the humour. Thank goodness for the wii Sarah! SCACO I'm going to read that article.
Another day done, the duvet is calling.

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Re: Anxious about starting FEC in Jan :(

Blood tests for me too today, fingers crossed ( in an entirely masochistic sense) for FEC 3 on Friday. Eyes have been really sore the last few days, gritty, tired, hoping I'm not getting conjunctivitis, anyone else got funny eyes??
Read the dark dark woods thread today, hadn't been there before strangely and I loved it... So much humour and life it really perked me up. Have to say it's hard having the boys home all week, the wii has been well used!! Daddy home tomorrow night.. Woo hoo, someone else to tell them 10 times to have breakfast, get dressed, clean teeth........ Hope everyone bearing up okxxx

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Re: Anxious about starting FEC in Jan :(

Hi guys

Thanks for your words of wisdom. Not been worring too much about it, but if i'd been a week or so off my next fec i,d have been panicking especially as i havn't been given any phone numbers to ring if i need any advice. Note to self - remember to get numbers and ask to meet breast care nurse tomorrow!

staycalm think your right about the end of treatment - am going to look at that article.

How are you all? We all seem fairly quiet at the moment so i,m hoping this is because we're all well.
maria x

Mezzomamma
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Re: Anxious about starting FEC in Jan :(

Tell them tomorrow, Maria. Perhaps they need to take a little extra care at the end of your session, and possibly monitor your platelets.

Cheryl

Peachez
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Re: Anxious about starting FEC in Jan :(

Maria, I had this years ago after giving blood before going to the Library; it was just a good vein that hadn't had enough pressure applied. Mind the look on the libraian's face as I stood there unaware that blood was pooring down my arm was a picture...

Hope all goes well for you. P xxx

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Re: Anxious about starting FEC in Jan :(

Maria, that's not pleasant! I'm sure the hosp. will ring fast if there's anything wrong - but I'm sure it'll be fine, just not taped up securely enough. At least you have plenty of blood still circulating.. (or did have...)

Sophie xxx

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Re: Anxious about starting FEC in Jan :(

hi everyone

Went for bloods today in preparation for fec 3 tomorrow. Got home,took my coat off, was covered in blood. Cleaned myself up and bleeding had stopped, but am really worried now that bloods not back to normal. They better be, don,t want to leave it another week!

Maria x

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Re: Anxious about starting FEC in Jan :(

Hi

Just adding to the thoughts of distant light that is the end of the treatment. I read a really good article about dealing with cancer and how some people can feel flat at the end, but the clinical psycologist explained this by saying that cancer patients are actually waiting for something bad to go, rather than something good to come (hols, new job, new house, etc) so if a patient had high hopes of everything feeling different and fabulous it can be a bit of a disappointment to find it's just the d
same as when you left it (i.e day of diagnosis). This seems sensible to me and hopefully will stop me from falling flat on my face after evrything i've been thru'!

There's a link to article towards the start of the 'dark woods' thread if you want it. x

Mezzomamma
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Re: Anxious about starting FEC in Jan :(

It really does take over your life, doesn't it? Perhaps it's no surprise that the end of treatment can leave a big hole in your life, rather than a return to it. I was really planning to ease into retirement over a few years, but....

Cheryl

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Re: Anxious about starting FEC in Jan :(

I barely remember what normality is!!?? So looking forward to life post cancer, have told myself the last day of chemo will be the first day of the rest of my life!!!!
The whole financial issue is just one more thing to worry about isn't it. I am self employed, run a B&B and certainly haven't been able to work since October, as I went straight for recon surgery and that puts you out for a couple of months, then straight into chemo. I applied for ESA but as I stopped working to have children and only started again recently my NI contributions haven't been enough in the last 2 yrs apparently, sod the fact that I paid NI from the age of 18 to 32 that doesn't count... I have also just put in a a claim on my critical illness cover ( never thought I'd need it, almost didn't bother taking it out 12 yrs ago with the mortgage), keeping fingers crossed they pay out, I have heard they can be reticent to cough up the money. I have no idea what my future holds at the moment, right now I just want to sell up and move on. We have a massive house with a holiday cottage attached and I have been running the whole thing single handed while oh works away from home ( I even do all the cleaning myself) and the thing that BC has taught me is life should be so much simpler. I spend the whole summer holidays working 14 hrs a day, ( with the 2 boys to look after somehow) and to say it's stressful is an understatement. I wonder now whether my exhaustion last year was the cancer or just trying to do too much.
Right now my dream is a little 2 bed cottage with a small garden and a sea view.....
Oh yeah, and a dog.... And a nice car,... And a month on the amalfi coast in Italy,.... And and a and .....LOL.....
Still, every time I feel sorry for myself I think about the lady I met at chemo last time. I couldn't even tell you her age, she had been BC free for 4 yrs, ignored her bad backache, went for 5 yr mammogram and it was back and in her bones. She has been having chemo once a week every week since October. All she does is chemo, sleep, chemo, sleep...... I felt so bad for her, she said herself. It's no way to live.
On a brighter note my boys are still in their jammies, it's half term, no school run, and are watching top gear on Dave, talking about Mercedes and brake horse power... (that's my 5 yr old and nearly 8 yr old mind you!!!) brilliant....seems the days of cbeebies are already a distant memory.
Signs of spring are everywhere down here, snowdrops and crocuses in abundance...hooray, bring on the warm weather, wouldnt it be lovely to sit in the garden with a cup of tea and a good book for half hour in the sun.
Love to all xxxxxxxxx

Mezzomamma
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Re: Anxious about starting FEC in Jan :(

It's not just the loss of a small income from work, it's losing the contact with my students and colleagues, which was why I was cutting my hours gradually. As tiring as it can be, it's hard to give up teaching if you love it.

I suppose it might be time to go back to volunteering, or perhaps to think about giving private lessons at home. But as you say, Janipi, it's going to be a while before I can think seriously about any of this.

I don't stay too long in the bath, but by resting my PICC arm on the side I can keep everything dry under the cover. In some ways this is easier than in a small shower cubicle where it's hard to keep that arm out of the spray. Well, showers and baths have to be a bit shorter these dasy anyhow.

Cheryl

janipi
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Re: Anxious about starting FEC in Jan :(

I am a great fan of the picc line now. I do miss a good soak in the bath but that's about it. I don't ever feel it or think about it being there. dressing change by district nurse takes 5 minutes tops and she always comes when she says so so far so good. Insertion was painless and I only noticed a slight ache for a couple of days. Go
for it if you can get one. It pays to make things as easy as possible. Well done to the workers on FEC. I haven't been much help to my colleagues at the momemnt. I teach, but can't go in as a class of 28 4/5 year olds have every bug going this time of the year. I really miss them.I had a critical illness policy with my mortgage so now it is paid I am lucky enough to talke life easier. I will work half a week from September. I will be 50 then but who knows how I will feel or how treatment and tamoxifen will effect me? Scary stuff. Normal life still feels a long way to go.

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

Maria, the PICC doesn't interfere too much--take things easy with that arm for the first couple of weeks . I don't exercise it vigorously, so I just do stretches with my surgery arm and shoulder circles and the like with the PICC arm. I can reach and lift and type as normal, but I'm not doing heavy lifting at the moment and not stretching to reach the tops of white boards or high shelves. I have driven. (The PICC is in my right arm and I'm right-handed.) If you need to do more strenuous things, they can also put the line in your chest--the name of the gadget eludes me right now.

It might take a while to get used to holding that arm up while giving haircuts (I cut my OH's hair, but haven't done it lately), but I think you would get used to it, and again, the chest wall one might be better for you.

Cheryl

I would rather not need it, but it is better than possibly needing surgery on my veins later on, and must be better than undergoing a lot of pain with every blood test and every treatment. I live close to my hospital, so I go there to have it flushed.

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Re: Anxious about starting FEC in Jan :(

hi guys

as you all know i,m also having problems with my veins and about to have fec3 on Thurs. Sophie,cheryl - can you still do everything as normal with PICC line, as in carrying bags, bending arm, doing exercises etc?

Cheryl i,m really sorry you,ve got the worry of your employment hanging over your head. You really could do with out that at the moment. Hope you find out sooner rather than later,so at least you know whats happening.

Alto well done for going back to work. It,s nice to have a bit of normality isn't it. It will probably make the time go faster, You'll be at the end of treatment before you know it. I did attempt to go back to work but the first thing i did was cut my finger, then spent the whole night trying to clean hair out of it (i,m a barber). The first blokes hair that i did told me as I was half way through cutting his hair that he had an ear and throat infection. This is after me asking before I started. Decided after this that it just wasn't worth the worry , so am leaving it now till I,m on rads.

Need the weather to get warmer now. I,ve found these last couple of days have made me lazy - too cold to go out. my snuggle blanket (that i think everyone on the planet got for xmas) is getting a good outing lol.

Maria x

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Re: Anxious about starting FEC in Jan :(

Guys - a PICC line is nothing to panic about, honestly. I demanded one (!) as my veins are pretty rubbish anyhow, and only having one arm available now for giving bloods, I wanted to take care of my veins! It's the epirubicin (E in FEC) that really screws with your veins.. so I figured even if I could only cope with the PICC for the three FEC, that would do. It was put in under a local anaesthetic, took less than ten minutes, and has made life a whole lot easier. My OH flushes it through weekly for me, so don't even have to hang around for the district nurse, all bloods can be taken from it, and it speeds up the time on the chemo ward as there is no searching for a vein.

Downside? The first couple of days after insertion can be uncomfortable, and showering is a pain as you can't get the dressings wet - but I bought a limbo shower sleeve and that solved that issue. I wear a tubigrip type thing over the top, and it doesn't get in the way at all.

If your veins are already giving you probs... then do consider it. I'd have another one like a shot, if I had to choose again - and mine looks like it will now stay in until all chemo done....

Sophie xx

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Re: Anxious about starting FEC in Jan :(

Hi Ladies
Hope you are all keeping your spirits up!!!
Sarah i have the same problem as you a very sore arm feels kind of bruised and the veins in my hand are sore too. I have just freaked myself out after reading your post re picc line..... really scared at the thought of this!!! i have my 3rd FEC on thursday and beginning to think that they may not be able to use my veins, i had a tough time on my 2nd FEC as it took them four goes to get a vein. I have just got myself some hot mites and am hoping that this will do the trick on Thursday!!
Did your ong say it was a common problem??
Eeeeeekkkkssss
Hugs to all
Kaz xx

Mezzomamma
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Re: Anxious about starting FEC in Jan :(

I've been doing some work-related stuff from my home computer, which helps keep me from going mad, and possibly benefits others. I hope to be able to get back to it tomorrow or Wednesday, if tomorrow turns out to be another rest day. I haven't been 100% alert. My big job worry is whether I will have a job to go to next autumn, due to the heavy cuts to adult education and Skills for LIfe in particular. We get very ominous notices. If they offered me severence it wouldn't be so bad, but I'm sessionally-paid not salaried, which means employments rights are virtually nil. I was only planning on one more year part time as I will turn 65 after that, but still have a child in education.

Glad to hear you're feeling better Sarah, especially with children at home. I hope they find a better vein, but perhaps the PICC would be better in the end.

Take care, all.

Cheryl

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Re: Anxious about starting FEC in Jan :(

Hi all, saw my oncology nurse today, they are keeping all my meds the same as last time but have to take the laxatives starting the day before, mm nice!!
My arm is still very sore and I asked about this. He said it would definitely get worse, they will try another vein on Friday and if it is still that bad then it looks like a picc line for me. Not relishing the thought of that but hey ho...
Definitely have more energy than after FEC 1 , I felt rough the 3rd week but so far I'm pretty good this week not even needing a daytime nap. Which is fortunate as the boys are on half term and oh has gone back to London again this morning.
Hope everyone is good, stay cozy and indulge in the duvet days!!!! xxxxx

Alto
Member

Re: Anxious about starting FEC in Jan :(

Cheryl, apart from theblood pressure your SE's sound exactly the same as mine - a little worse this time than the last. I also had slight tingling in my lips and fingertips this time.

My big news is that I went back to work today for the first time since before Christmas! although my SEs were worse with FEC2 than FEC1, not having an infection this time has meant that I've recovered more quickly and apart from being tired and having a horrible mouth I feel fairly human.

They were lovely in work - so glad to have me back (even if only for a week and a half before FEC3!) I only work part time and was shattered by the end but glad I did it. Any time I can work now will delay the dreaded drop to half pay after 6 months!

Jane xxx

janipi
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Re: Anxious about starting FEC in Jan :(

Hi everyone!
Vegetable soup and a quiet day sounds good. I,ve had a duvet day today really. Weather doesn't help with the tiredness. I haven't done anything really productive apart from an online tesco shop. I'm finding it frustrating now because I want to be doing things but the body just says no. No it is then!lol

Mezzomamma
Member

Re: Anxious about starting FEC in Jan :(

It looks as though Day 4 is low blood pressure day for me, but at least lovely daughter is here to chat to, and she got lunch and is now working on a big vegetable soup, something we both love. Just the thing for a wet grey day.

Because I not only rested more over the weekend, but realised I might be wiped out quickly today, I was better prepared, so as soon as getting up became tiring I went back to bed for a while, and I have managed to avoid standing up too quickly, even though the need for the loo seems to come on rapidly. I tire quickly, even sitting up, but am managing.

I've noticed that my lips are getting progressively drier and need more salving and attention and the inside of my mouth and the tip of my tongue are more sensitive, but so far all manageable. I have had a little more queasiness which I prefer to too much steroid and a sensitive gag reflex when I cough or brush my teeth, but nothing too bad. Nibbling and sipping has kept the queasiness under control again and I think that is passing off in any case.

I hope everyone is coping.

Cheryl

Alto
Member

Re: Anxious about starting FEC in Jan :(

Glad everyone seems to be doing well at the moment. I had slightly worse SE's this time than with FEC1 (queasiness, achy legs and sore mouth), but as I haven't had an infection this time (touch wood!) I've actually recovered better and at 12 days post-FEC I almost feel normal apart from the peculiar mouth.

I'm going back to work tomorrow for the first time since before Christmas, just for a week and a half before FEC3, then will be off for the next week and a half. My managers have been really great and have told me to take whatever time I need. They're pleased I'm coming back but I'm only to do what I feel capable of and must stop if I feel too tired. I should be OK as I only work 5.5 hours a day anyway, and as long as I do my hours I work flexibly during the day so can come in later or take a longer lunch break if I need to.

janipi - I've been using the Rimmel Nail Rescue that I saw recommended somewhere as good preparation for Tax. I've nearly finished one treatment and I'll do another before my Tax starts in about a month or so, then go onto the dark nail varnish. I've got a lovely colour - haven't worn anything like it for years!

Jane xxx

janipi
Member

Re: Anxious about starting FEC in Jan :(

Isn't it great to feel normal and have a good night out? I can't wait for the good days to come. I am trying to nourish my nails ready for the TAX and they are looking good at the moment. I must remember to get my nail varnish out as that is recommended for TAX,I a have a purplish pink one to keep the daylight out.Hope everyone is OK. Slight annoying toothach today and tired day 4 but enjoying the signs of Spring in the garden. Hope half term isn't too exhausting for mums. x

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Re: Anxious about starting FEC in Jan :(

ha ha, found a positive for having cancer - for the first time in my life I have got long strong nails. Went out yesterday and bought 3 bright coloured nail varnishes. I had a great night last night, glass of wine, fresh cream cakes and experimented with my nails. They look fabulous if i do say so myself! Never had painted nails before. It's made me feel more feminine, which has been sadly lacking since losing hair in a very male pattern alopecia kinda way lol.

hope your all well

thoughts and love to you all Maria x