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Anxious wait and help needed

4 REPLIES 4
Rosetint
Member

Re: Anxious wait and help needed

Hi Lizred,

thanks for saying hello its nice to feel I'm not alone in all of this.  I've been backwards and forwards to hospital in the last two days with the sentinel lymph node biopsy tomorrow.  Am finally sleeping much better having accepted that the wait is all part of the process of getting me through to my surgery, keeping busy is definitely the key to things. Hope you're ok too now x

lizred
Member

Re: Anxious wait and help needed

Hi Rosetint, just wanted to say hello and hope you're still managing to sleep a bit better. I was diagnosed high grade DCIS last year mid May and didn't have my op until June 30th as there were several cycles of biopsies and such like to figure out what was going on. I definitely got the impression that, in terms of the cancer, that length of wait wouldn't make any difference; of course its different in terms of your general wellbeing and sanity - can feel like a lifetime to get through! I also worked until the day before my op, tried to carry on as normal as far as possible (then fell apart a bit afterwards), go for walks, made sure I had what I needed for hosp and after the op etc. Hope you're doing ok and things are falling into place at least a bit now x

Rosetint
Member

Re: Anxious wait and help needed

Thanks Cookiefairy,

 

I actually slept a little better last night which must be down to putting my thoughts out in the open here.  Pleased to hear your lymph node checks were all clear.  I've been for one of my pre op assessments today so that's one appointment down and three more to go befor the big op. Think I'll take a leaf out of your book and do a bit of planning too.

 

Thanks for listening.

 

Take care too 🙂

cookiefairy
Member

Re: Anxious wait and help needed

Hi, I found this forum really useful when I was diagnosed on 9th March high grade DCIS. The waiting was unbearable and I sympathise. I had some sleeping pills from the doctors, which helped At least it stopped me googling all sorts during the night 🙂 I had a masectomy with immediate silicon implant on 20th April, the delay was due to surgeons holiday and Easter. Then there was the wait for the lymphnode checks - another two weeks. Thankfully given the all clear on Thursday.

Sorry, this isn't about me, just wanted you to know that it is a waiting game, every day seems to feel like a week, I worked up until the day before I went in for my op, my mind was everywhere and I was pretty useless, but it kept me occupied!  Before you know it you will be back home recovering

Time is strange, drags when you dont want it to and flies by when you do - I used my waiting time to plan my 'mini break' in hospital (buying pjs etc. which I didn't need by the way!), downloading books, sorting out dvds, buying wool to crochet a blanket, baking and cooking and freezing meals.Ha ha I was like something possessed....

Its easy to say don't worry but speak to your GP, I found mine really supportive about my general health ie sleep etc rather than focussing on the op

Take Care and wishing you well  🙂

 

Rosetint
Member

Anxious wait and help needed

Hello all

 

I'm new to this so please bear with me  

 

I was diagnosed with DCIS - Grade 1 plus LCIS High Grade at the end of March after finding a lump, it was confirmed by a mammogram in the breast clinic they found the lobular cancer with ultrasound which was totally unexpected by me. The consultant recommends that I have a mastectomy and says that I can have reconstruction at the same time.  I am going to go for the DIEP route which I know is a bigger operation but I do think thats best for me.  What I am actually struggling with is the waiting time. I have a sentinel lymph node biopsy week after next so more waiting and if that is clear then the mastectomy will happen at the end of May. I'm not sleeping well and when I do drop off I wake early and my mind starts buzzing again.  Is this a normal waiting time?  Then again what is normal in the scheme of things? How do you all cope?  Any help would be greatly appreciated.

 

Thanks

 

Rosetint xx