A quick update, as I have not been on in a while. I need a little op as my valve has gone walkies ha. Im healed really well and now back to work. I need a bit more filling as im a bit wonkey at the mo, Im so happy with the result. Im feeling positive and reminding my self of the benifits of the situation ie: I can now not wear a bra, which I have not been able to do since I was 12 lol. No nipples means they dont show through light summer clothes. The biggest less than 6% change of breast cancer (yippee).
Its fantastic to read through all your progress and warms my heart to see all the support offered from each other.
If any of u stunning ladies would like a treat and to feel comfortable, I work as a hair stylist in Ebrington St, Plymouth It can be scary but I shall look after u, promise.
Best of luck to every one, much love
hi ladies, the mustard tree is wonderful, lots of nice biccies and hot drinks on tap and friendly ears if you need one.
i would be keen to meet up with those that wish to, the best support is from those experiencing this blip in our lives.
hope all is ok with you all
Sharron, I am doing ok thank you 🙂 had the dressings off and looks good well healed.
Ang, the mustard tree seems to be helping a lot of you, thinking of given it a go.
minty27, Hope your well.
I hope everyone else is well x
Hope you're all doing well 🙂
Tina - Hope you're recovering well after your surgery. It helps to get your treatment plan and to know what's happening next.
Ang - Thanks for that info. I've been taking them in the morning and so far ok. A few more flushes during the day but no worse (or better) at night. Still waiting for a start date for Rads. I've been working 3 hours a day Mon - Fri. It's been ok, they don't ask much of me thank goodness 🙂 Out this evening to have supper with a friend so that will make a nice change. Am impatient to get my life (and hair) back!
Love to all
Sharon- Just thought I would pre-warn you about my experience with the flushes whilst on Tamox. I have only been on it since Oct but I have found them to be far more intense than the ones I experienced beforehand. Also from previous threads on here, it does make a difference according to what time you take them. By taking them in the morning, for me, it means that daytime flushes are worse (hourly) but I don't really suffer during the nights, a bonus when you have to get up early for work, but of course, I suppose this could pose a problem for shift workers.
I did 3 days work of 3 hours last week and by Friday I slept for 16 hours!!! Hope being tired bucks up cuz there aint gonna be enough hours in the day else!!
Today, I have just been to Mustard Tree to help with the pilot for the Pathfinders 1 sessions which are group sessions based on the various stages of treatment and coping afterwards. This afternoons session was about radiotherapy. Unfortunately these sessions weren't up and running until recently and I am sure they will help people through the various processes. Pathfinders 2 has various sessions about moving forward after treatments. Would recommend anybody to go at (with or without partners/carers) at any stage even if you passed a certain stage. It's really helpful and interesting!
Love Ang xx
Hi Tina and welcome to our unfortunate club but at least you've found us and we are all here for you. The LGFG sessions are held at the mustard tree macmillan centre at derriford, you can get to it from oncology it is sign posted or ask at reception. Good luck with your treatment plan.
Sending you love and light
Not been on for a while, but great to read all your comments. Im a bit behind you guys had my WLE and SNB on Monday last week go back on the 20th for the treatment plan. The LGFG makeup session sounds great fun where can you get that?
Hello Ladies 🙂
And a big hello to the new ladies. Been having some 'puter problems but I think I'm sorted! Hope you're all well. Been sat here with a notepad so I can remember everyones name...how sad is that??
Sarah - Also having some terrible hot flushes, but when I spoke to the ONC (Liz, I think it was) about taking Sage, she advised me against it. Told me to see how it went, and if they didn't improve, they could give me something. They aren't improving, and are disturbing my sleep. Night time is definately the worse 😞 Haven't even started Tamoxifen yet. Have that to look forward to on Tuesday!
Ang - I'm taking part in the Impact High trial for Rads. Anyone else done it? I get 3 weeks...not sure about boosters. I'm also back at work, albeit on very reduced hours. Am knackered now so goodness nows what I'll be like during Rads! Nana naps are a way of life at the moment!
Herbi - I was very sick during my last cycle. Can they review your anti-sickness meds?
Kim - I'm also with Dr Kelly's team. Hope your chemo's going ok?
Geanie - How lovely to be finished! Are you feeling well?
Minty - Hope your SE's are small ones? Isn't the LGFB session good? Which perfume did you get? It is a roller-coaster isn't it. One day I'm up then I'm sobbing in a corner somewhere! I'm sure that's chemical related and will pass now.
Well, have such plans today and can't be bothered to do any of them! Just a thought, but would anyone be interested in meeting up for a coffee at some point??
i am in plymouth (plymstock) and having chemo 4 on mon 5th march. I am under Dr *(actually saw him today at hospital appt!!!!) i was under Mr * as well and had WLE in november. Been a rollercoaster since october last year and will be glad to get off. I have to have herceptin as well after radiotherapy. I went to my LGFG make up session last week at the mustard tree and have come away with lots of nice make-up to try just in time for daughters wedding in May
Yep I'm in Plymouth too!! I've had 3 chemo so far with Mr * and when thats all done and dusted ( much, much easier said than done) I will have my MX with the lovely Mr *! I use the Mustard Tree lots, the ladies there are so lovely - not to mention the Reflexologist. I am booked on the next LGFG session......any one else going to that one?
We share the same Onc,for surgery had mine back last september with chemo first, sorry to hear your feeling sick, have you been given anti-sickness tablets dom peridone? if they are not working ask them for some stronger ones Omnestrone (or something like that) failing that drink ginger infused cordial, eat ginger bisquits basically ginger is natures answer to sickness. Good luck for no 4 your nearly through this.
Love and light
Hello my birds (in my bestest plymouth! ....lol)....
Seems that Derriford is getting a fair amount of business their way then!!
Sharon - Feel you are a neighbour..hahaha! Yep rads all finished in November, they were easy enough at the time, but I did get hit with the fatigue about 2 weeks after finishing them and then I would say it took mw another 6 weeks until I turned a corner and got my energy back....it's a strange fatigue, that's for sure! Just go with it tho' and it will soon pass! We all react differently.
I did have to chase the oncs up a bit tho as waiting for the treatment seemed to take forever, and other friends of mine (who have also had rads advised me to keep nagging!), so just be aware of that. Don't that tattoo get on your nerves....looks like a flippin blachead ...lol
Sarahlouise.....Tamox and killer flushes.....me too!! They get to me the most, I haven't found mood swings a problem but brain functionlity and memory is dire ( but frustrating and comical at the same time...well you gotta laugh!)...takin citalopram but may have to change to something else as seem to be losing efficiency. I take my tamox in the morning and start having flushes within the hour, and then find worst times are betweem 4 and 10 when I can have about a dozen of the bleeders! But I don't get much thru the night....thankful for that as I have just started work again!
I also went to the Look Good feel Good session and agree with you, had the most fab time.
So glad every one on here seems to be sounding upbeat...long may it continue, but this is a great site for the ups and downs!
I,m not exactly in Plymouth , a bit further out in launceston, but being treated at Derriford. Had mx in november, mr cant was surgeon , and am now half way thru chemo ( dr Kelly ) , have been feeling sick all way through but number 4 tomorrow,
Hugs to all
Sharon - It has been a beautiful spring day today I thoroughly enjoyed every minute of it. I started Tamoxifen not long after surgery and have been up and down with it, its been about 4 or 5 months since the first few I found the hardest I got really depressed and my OH said I was hyper and stressy whatever that means LOL he say's I am a lot calmer and my mood swings are better so I guess that my body is getting used to it, still get wicked hot flushes which don't help but am trying a variety of things to get rid of them including natural approach sage tea, spoken to my onc. who said it was ok for me to take sage, some people argue that it contains estrogen or estrogen mimickers onc says its a tiny amount and would not have any affect, he's the boss so I'll agree with him.
As far as rads are concerned I finished on the 25th of Jan and only starting to get the sore,red, itchy tight skin now its kind of delayed reaction according to the rads nurse its probably at its worst now, I did get tired and fatigued but just went with it. I use 99.9% Aloe Gel from Holland and Barratt as its much nicer than that aqueous cream they give out, again onc. said its fine to use that one. Hope all goes well for your Rads, you'll do fine. I found it a walk in the park compared to chemo and surgery.
Sending you lots of love and light.
Galaxygirl - I'm in Laira! Hasn't it been a glorious day today? Have you finished your Rads now? I'm tattooed up and ready to go 🙂
Sarahlouise - Thanks for the tip. I'll have a look tomorrow 🙂 Was going to get some caffeine shampoo as well. I've had my LGFB session. Really enjoyed it. How are you finding the Tamoxifen? I start mine on the 6th...and I could hear Jethro as I read your post 🙂
Hi or should I say OOO RRRR!!! LOL (my sad attempt at a west country accent),
galaxygirl99 - I had my mx in September 2011, 2 months short of my 44th birthday.
Dotflot - Hair Tip I got from american website is to take Biotin (you can get it in holland and barratt) everyone including the ladies up the mustard tree (local macmillan centre at derriford) say I have an amazing mop of hair finished chemo july last year and so grateful thats its over.
Tina - I live in the south hams just outside of plymouth in Newton Ferrers, I get my herceptin administered to me by a nurse at home now but did travel every time up to derriford for treatment, they are talking about doing chemo at home visits maybe something to ask about next time your up there, I also had my treatments at an outreach post in kingsbridge if that is nearer.
Erin - Sending you extra hugs as I know how young you are and you are dealing with all this, we are all here for you hun.
Would recommend all of you to go to the Mustard Tree macmillan centre they do a "look good feel good" session you have to book up for it but its really great, you get a load of free makeup and other freebies as well as a good natter with others all going through the same thing varying ages as well. I am permanently doing herceptin/tamoxifen. Any advice please feel free to ask or PM me.
Sending you all lots of hugs
love and light
Hello Ladies 🙂
Lovely to see locals on here!
Tina - Hope you're ok after your surgery? What have you had? I had WLE and ANC. I'm feeling really well thanks 🙂 So pleased chemo is over. Checking the mirror daily for new hair sproutage! If you have any questions, please feel free to ask away...
Hugz to you all
I'm at Crownhill!! Had bi-lateral surgery in Aug on 44th Birthday, followed by rads, opted not to have chemo....(eek!!)
Been reading this site but never actually posted before.
Big hugs to you all xx
Hi Tina, Erin, Sharon,
I live just outside of plymouth in the south hams had chemo (finished July last year), surgery (sept 2011) and rads (just finished) all at Derriford.
Sending you all love and light
Great to hear from you both, had my surgery on Monday dont go back for a few weeks, how are you both?
Hello Ladies 🙂
I'm also in Plymouth. Had surgery in August and last chemo on 14th Feb. Just waiting for Rads to start..
Starting treatment at the end of the mth, live in south hams but come under derriford any one else in the area?