Gilly, I feel for you so much, waiting for results was the worst thing and I know I started feeling pains all over my body and imagining I was riddled with it, the worry sends you crazy!
As for the biopsy, mine was painful for a good few weeks after.
It is awful that you're having to wait so long for confirmation. I got myself into such a state one day that I rang my BCN and she told me some results over the phone which I would otherwise had to waited until my next appointment for. Maybe that is worth trying on Monday?
I know its easy for me to say but try not to think about what it might be until you know for sure, keep busy and take one day at a time, you will be up and down like a rollercoaster.
Thanks for your kind words and support. Yes lump is 2.5cm not mm but seems like its getting bigger also very painful and stinging spreading into armpit. There does seem to be a huge difference in waiting time for results. I think I have to wait so long because they are so busy. I'm in Plymouth. Anyone near?
Hi Gilly, sorry you have found yourself here ! We all try to help and pass on our experiences and of course there is an abundance of support 😊 It all makes your brain explode in the beginning and you can't begin to make any sense of it initially but it does all get a bit easier the more knowledge you gain, can't imagine why you are having such a long wait for your biopsy results, that awful! Like Jill mine were a week and that was hard enough, try not to jump the gun about treatment as it may not be anything like you are imagining, if you only have a 2.5mm lump then it's minisule, or did you mean cm?
Lumpectomy neednt leave you with a dent, mine didn't , I had an area above my nipple removed and other than a thin scar you would never know.Try not to jump the gun as you don't even know for certain it's breast cancer yet, they have been known to get it wrong, they didn't think mine would be but it was! Xx Jo
Sorry to hear your news, I'm 8 weeks since diagnosis, have had 2 lots of surgery(lumpectomy and reexcision to try get clear margin) and need chemo due to 1 of 3 nodes being positive, chemo starting this Monday.Will need further surgery after.
That is a long wait for results of biopsy, I got mine back a week later exactly(under nhs). Whatever they decide surgery wise don't let them make you wait too long, I waited 3 weeks from diagnosis till surgery and in hindsight I wish it had been sooner as lump was bit bigger than had been measured on ultrasound and got regraded from 2 to 3. I had moved to private system due to having insurance and should have insisted it be sooner but surgeon said it will make no difference....
From the knowledge I have I don't think you have to wait 8 weeks after surgery to start chemo. Depends how you heal but I think 3/4 weeks is enough. Mine is starting 3 weeks 2 days after last surgery.
Wait and see what the results say, you may not even need chemo....every case is different....if you do I don't think working near lots of children will help as immunity will be lower.
Good luck, let us know how you get on x
So glad I've found this forum. Found lump on 25th Sept, hosp appt 13th Oct (Breast Cancer Awareness Day, oh the irony). Had mammogram, ultrasound and biopsy. 2.5 mm lump on right boob but near the top by rib cage. Consultants 'pretty certain' its cancer. We are taking that as 'it is' as they gave no indication of doubt and must see 100s every year.
Have to wait until next Friday 30th for results and absolute diagnosis and the wait is driving me mad! I work in a school and its half term week but never have I wanted half term to go so quickly.
Its 10 days since I had biopsy but it is still sore and stinging sensation spreading into armpit.
I know that I will have to have surgery to remove lump but dont know if it will be full masectomy. If they just cut out lump and some healthy tissue around it I will be left with a crater! Have read on here that sometimes better to have masectomy as it speeds up the rest of the treatment??
Million and one questions I keep thinking about but am hoping that you lovely people can suggest some too so that I have everything covered.
Head really not engaged when we were with consultant but husband said that they said I would prob start chemo 8 weeks after surgery which would be January ish time. Did you manage to go back to work in between? I work in a school which has to be the most germ ridden place in the world in January so thinking it would not be a good idea for me to go anywhere near.
Have no idea what type my lump is so all conversations on here about various treatment currently going over my head.
Am starting very positive about all this. My son says I'm the strongest woman he knows.......we'll have to see. Am starting to write a blog as I've read that it's the best way to keep frinds and family uptodate and avoids awkward conversations.
Think I will be using this forum a lot in the next few weeks!
Hi hope you are better now. I am writing to you because I have just been diagnosed with very similar breast cancer to yours. It is grade 2 5mm size Er positive and Her2 negative.It was a routine mamogramm test and radiologist found this 5mm lump in my left breast, he took an ultrasound but said lymph nodes not effected.Now with the lab results since it is lobular I need to take an MRI to check my other breast.If they find another cancer in the other breast do they operate twice or once? Why did you need chem? Sorry for asking these questions but I don't know anything about these things. I hate the waiting and I feel like screaming. Thankyou for any help.
Good luck with your treatment.
Try to get the Oncotype DX test. That analyses whether it is or is not useful to have chemo. I was grade 3 and they wanted to give me chemo but after the DX test stated that it would be useless for me (it is a genetic test) I didn't have to.
Don't understand why not more people insist on it. There are certain requisites, you have to be stage 1, and have max of 1 node involved. And be Her2 negative but estragen positive. It has been accepted by NICE but of course they hold back on giving it as it costs a lot.
Hi ladies it seems an age now since I wrote on this forum thank goodness for it I've met and talked to some fantastic ladies it was November 2014 when I went for a routine mammogram not thinking anything of it got on with my work etc then bang a phone call from my local hospital turned my life upside down went and had a biopsy still in the back of my mind thinking it was nothing serious there was no lump or any indication anything was wrong then those words rang in my ear it was possibly grade 2 ductal I went in on December 23 my wedding anniversary!!!!!for a wle and the results of that were grade 2 but lobular/dcis lobular is hard to detect I had no lymph node involvement or vascular involvement but I was her 2 positive plus hormone positive which meant I had to have chemo /radiotherapy which I did followed by herceptin of which I am on number 13 out of 18 no problems at all with that I'm currently taking letrozole for five years as I am post menopausal to decrease the oestrogen which I am struggling with joint pain is not so good at the moment but on the whole I feel great and honestly the time has flown by you will all be fine keep busy and strong and always come on here if you feel down there are so many ladies with different stories and stages to talk about lot's of love Judi
Hi ladies, just popping in from the November Newbies 2013. If you're her2 positive unfortunately you must have chemo to recieve the herceptin meds (part of NICE requirements). I wasn't her2 but ladies within our group were.
Good luck to those receiving pathology results next week, as others have mention - 1 thing at a time. Concentrate on the now and break it into stages (surgery, chemo, rads, tamoxifen were my stages). You'll all get there and be amazed how quickly the time passes when your going through treatment.
Stay strong, wishing you ALL a speedy recovery XXX
it all seems a minefield, I've no idea what to expect.
its been a frustrating day, had a call this afternoon to say they have to delay my results appointment from Tuesday to Thursday, they told me it was an overbooking of appointments. Wasn't happy so rang breast nurse and she said it got changed as results wouldn't be back.
I feel like I'm over reacting but it seems such a long way off. Just want to know now, think maybe it's the control freak in me lol. Trying to keep things together but I feel exhausted by it all.
Seems from other threads I've been reading that all the waiting is pretty standard. Rant over 😞
hope you are well xx
how is everyone today?
seems most of you are further on than me, I'm confused by the grading and treatments. I don't get my full results until next thursday. Discussed the possibles with the breast nurse.
if I'm right, and I'm not sure, you only go through chemo if the tests show it's not hormone driven cancer. Have I got that right, they haven't really explained the grading. I've had 2 lymph nodes removed, not sure if that's a good sign or not.
it looks like the surgery went well, had the dressings off yesterday and they said it healing well but had lots of pain again today. Trying not to think that I might have to have more done.....
finding it hard that this is only the first stage, the waiting for results is mind boggling, I can't wait to get back to work so I can think of something else.
Thanks all for your responses, it shocks me of how many are going through this.
how long ago was your surgery?
I know we can only take it a stage at a time, I just keep thinking of getting well enough for the next bit.
hubby has struggled but been great, I'm not sure how to help him. I've got lots of support from family and friends but he hasn't had an outlet. He's been scaring himself with research on it all but thankfully not telling me what he's been reading. Can't see the point in worrying about stuff that might not be relevant to me.
there are so many variants on treatment, I never realised that.
Its helping to to read through the posts on here, thanks everyone who is sharing xx
thanks for your responses, it's took me a while to come back on, think I've been avoiding things a bit.
had a mad cleaning stint before my surgery last week, so glad I did as I didn't realise I would feel so drained.
had my first shower alone today....go me !! And back to wearing proper clothes.
has anyone else had the Grisotti flap surgery? I'm glad they could save part of the breast but was shocked at how much had gone. Having very strange stinging sensation through the breast...very odd feeling as I know the nipple has gone. I'm back at the hospital tomorrow to have the dressing off, bit worried about how it will look, I've googled the surgery, not sure if that was a good idea or not 😞
Get the path results next week but trying not to focus to much on it.
was not impressed with the hospital, was on a general day surgery ward and they weren't prepared. Didn't let anyone stay with me at all so was on my own for all of it, they even questioned why I was crying after I had come round. They also had to go hunting down a support bra to go home in as they had none on the ward, anyone else have this type of experience? Really considering complaining as felt their care wasn't good, I'm not usually one to make a fuss but was not expecting that.
hope everyone is doing well with your own treatments
love Sue xx
Dear newbies, Sorry you've had to join us all on the forum.I am celebrating my 53 rd birthday today, reflecting on what a year I' ve had. All going along fine, 2 children doing exams, work lovely new job as community neonatal nurse, married 27 years., then found lump in March.
Today 7 months later, on sick leave ,however looking forward to returning to work next month.Managed to avoid radiation and chemotherapy by having mastectomy and breast reconstruction at the same time, following initial lumpectomy failed to give clear margins.In hindsight would have gone straight for mastectomy and immediate reconstruction.Once the lumpectomy is performed your no longer an emergency and so further treatment can be prolonged
Immediate reconstruction is reported to have a better outcome.It is however a long operation 10 hrs, followed by a 7_10 day stay in hospital, followed by 3 months wearing stomach binder and support bra 24/7.Personally I haven't regretted it out come one new boob, made of my own live tissue which feels pretty good, looks fantastic , waiting for tattoo but not at all disappointed .However it's not for everyone.
I would have gone for mastectomy straight away if I'd had a crystal ball, but still have enjoyed a hav ing the whole of the summer off. I've managed to return to work before sick pay runs out , my children did well in there exams and off for lunch with my friend today.
The main thing I've learnt is that things don't happen quickly with breast cancer, there's a lot of waiting but the treatment is wonderful , and different for each individual so hang on in there and use this site for help support and advice.Hope this helps Sarahxxxx
I was diagnosed with the same on 26/8 and my surgery is also on 17/9 ! I have also only started looking into things in the last few days and came across this forum earlier.
I am quite a practical person and tend to get on with things, I'm trying to stay positive and not make a big deal of it(I have 2 kids). I'm putting a brave face on with friends and family as when I've been on the other side of the fence it's hard to know what to say....
It's a totally new world and I thought cancer was something that happened to other people but hey it's not...however I do know it's a lot different than being diagnosed many years ago
I have read through quite a few of the threads and thanks to all, this looks like a great place to get support and share with people going through the same.
I did call BCC a few days ago with a question and the lady I spoke to couldn't have been more helpful, patient or understanding, I could have stayed on the phone all afternoon only I had to go to work so I would definitely recommend calling with any questions.
Thank you both.
started a list of questions yesterday, not sure if to ring and ask or wait until my pre op appointment on Thursday.
i will check out other thread.
Sorry to hear of your diagnosis. I know what you mean about not remembering anything at the time! My advice would be to write down all your questions and either ring your breast care nurse to go through them or take your list yo your next appointment, that's what I did, otherwise you constantly have things you meant to ask! Good luck! Xx
i was diagnosed with invasive breast cancer on 25/8, I signed consent for a lumpectomy within 40 minutes of being told, it all happens so fast. There's a plan to take a biopsy on lymph nodes, dyes, reconstruction and radiotherapy. I couldn't even start to get my head round it and have only started looking into the treatment today.
i couldn't think of a single question at the diagnosis stage, now I have loads and don't know where to start.
surgery is booked for 17th, I'm a planner and can cope with stuff if I have control of the plan, this is all if's and but's so I feel completely out of it as I have no control of what's about to happen. I just keep thinking one day at a time but after reading through all the information and side effects, and possiblities its so overwhelming.
Any insights, advice is appreciated.