Yes, I agree. Particularly having the waterproof dressing. Only half in the shower but it seems to work. I'm still very aware of it by my neck though. Anyone else?
I had a Hickman line put in last August and have not had any problems with it. I find
it a boon when it comes to blood test as my viens are rubish as I expect yours are!
I anchor the liine with two pieces of micropore tape and that keeps it secure while
asleep. It works well. Stay positive and all will be well I am sure. Lots of
good luck. Joy
I'm having a visit from a district nurse Mon,Wed and Fri now until the stich comes out (after 3 weeks I think) and she is changing the soft dressing that covers the exit site. She's due tomorrow to flush it too. It's looped under the soft dressing to stop it moving and then the ends I'm taping to my chest - I asked for some of the white tape from the hospital. The nurses at the hospital suggested wearing a soft bra and popping the ends into it (I'm using a sloggi one). Another also suggested getting one of those little soft mobile phone holders, putting them in the end and hanging it round my neck (weird suggestion but I kind of know what she means).
I'm in my first week of sleeping with it and it is hard at first. I know what you mean about not wanting to pull it but luckily I can sleep on my back.
My problem is getting a good wash. I'm flannel washing at the moment.
I was told when the stich comes out a clear waterproof dressing will be put on but any tips from anyone about keeping it dry and still having a shower will be much appreciated.
My veins are very pleased I've had it though, they are just starting to feel better. And the chemo is much eaasier.
I found the best way to cope with the appearance of the line was to coil it round a couple of times and put a couple of large dressings over the entire area protecting the end of the line with a lint pocket. Not easy but eventually got the hang of it. Family and friends soon got used to the sight of it and I did wear a sleeveless vest top in bed as was worried about dislodging it. As you will be going for weekly line care you will find the nurses know the best and most discreet way to secure it.
Good luck, you will get used to it - if you've had it put in for the chemo you will find it a really painless proceedure - unlike others having it put through the veins in their arms.