Ah no I think I'll go stir crazy. There was 125ml over last 24 hrs so only 25ml less than last 2 days. If I had a big poncho I'd be able to hide the drain and go out lol.Pam how are you doing with your hand?xxx
Thanks Jane im glad that seems normal. I've got really good movement in my arm so it makes things feel more normalish and I did rest more yesterday as I felt quite tired. I'll be pleased when I can get out of the house for a while.xxx
Hello Annie, I didn't have a drain so can't say whether that's right or wrong. Best go with what breast nurse says is okay.
It does sound as if you're doing a lot. I didn't do much at all first two weeks other than the exercises but I did have both lymph clearance and lumptectomy at same time so I was different. Try to keep bowels open with high fibre, fruit and water intake if taking codine or other opiates. I got impacted stools and needed help from the DN with something up bottom.
I'm not overdoing it Pam just breakfast for us both washed pots and put some washing. I emptied my drain and from half 10 yesterday to half 10 today was 150ml does that seem normal? B/nurse says can come out when less than 30ml. Xx
Thanks for messages well wishers. Op went well had to stay in hospital overnight bit stiff and numb down back of upper arm and doing exercises and light jobs around the house so far so good. Xx
Hi pam hope you feeling better hubby doing ok thanks we both want to lose weight but we are hopeless like our food too much m afraid
Ann hope all as gone well and you was able to relax
I just wish weather would improve I feel the cold much more now but never mind could be worse I suppose best wishes to all DEN
Hello Den - how's the family and hubby?
i didn't know it would be this painful re the operations. I'm told he gallagioon removal was a problem and apparently he have to scrap the bone to get it out! It's getting a bit better but hit me gown what with breast odeama and having had a serious cancer. I'm improving now.
what would I do without you lovely ladies?
hoping the gall bladder will be okay as GP said it may need to come out if my liver keeps shoeing signs of stress. It's full of stones. I can't take another op.
will feel better when GP has examined breasts.
my get some lymphodema sessions from the L charity.
lover to all.
Ah thanks Den I had right mastectomy 9th October last year and came through fine.Im scared of getting the complications after that I hear and read about. I don't really know much about relaxation techniques maybe something I could find on you tube do you think? Xx
Hi Ann daw good luck with node clearance try not to worry too much can you do some relaxation techniques prior to admission .
pam I had a ganglion removed from my hand when I was 18 I had 12 big stitches and can still see scar I can remember I also had cyst removed from forefinger 4stitches had massive dressing on hand and finger for weeks trying to do things were very frustrating hope yours is improving DEN
You will be fine, as said best get this fine ASAP. It's the gold standard so we're lucky as in some counties people don't get the service we do.
hand is out of operation at the moment so can't type much. Ended in having 2 in 1 - cyst removal under thumb area and carpal tunnel expansion. Very painful.
gettingGP to breast next for me next week as I can't do this at the mo.
good luck for Sunday.
Hi Pam I hope you're getting by ok with your hand out of action. I was due to have the node clearance op 28th but the hospital phoned me on Wednesday and asked if I wanted it brought forward to Sunday so I said yes (may as well get it over and done with ). I'm really scared Pam I'll let you know how it goes lol.xxx
sorry you you are here. I had grade 3, stage 3 like you. 8 chemos, surgery and 20 rads. I'm not sure why you need more chemos but am sure the hospital are doing this for a reason. They know some TNBC Respond well to some chemos so maybe this is why. We are all different and our cancers respond differently. I was diagnoised August 14 so a year ahead of you. You can do it but do see if you can get some counselling. I found this really helpful. It's horrid I know but there is light.
Oh by the way I also had cancer in the nodes so full clearance as well.
wishing you well. ,Pam x
my update is I can't do my manual drainage as the hand operation turned out to be more tricky. Two operations in one. Gangagloon removal and carpal tunnel. I'm now in severe pain. I do feel I'm being punished with so much going g wrong during treatment and so many other issues. I'm scared in can't exaim the breast which had the cancer in it and the lymph fluid is building up. 🙁
Oh and yes I'm trying to manually drain the breast. The lympodema service is hard to get at Royal Marsden and there is a wait. It seem the NHS do not think this is a priority.
Hand op is for cyst removal but at different hospital. They will check the lump after its removed. Fingers crossed its nothing more sinister.
I wasn't given a choice re lumptectomy or mastomecty but my tumour was 31mm which is quite big. They can tell you how the nodes responsed I would have thought. I was paid for four months by my employer so can't complain but we will have to wait until 66 for state pension! 🙁
broccili is supposed to be very good for us but I did try to juice this and it tastes awful so just steaming it now. Have a cancer blasting fruit juice daily. Flax seed, blueberry, strawberry, spinach and banana. Put in a Lot of spinach in as its that which is very good. Tastes okish.
good luck with the nodes xx
Hi Pam I will take some and make sure I've always got some in at home. Do you do the manual drainage by massaging Pam?. This neuropathy in fingers and toes drives me mad it feels like they are numb and frozen all the time but it will go away when the chemo is out of my system. Pam as I had mastectomy before chemo how do I know my response to the chemo because tumour was gone so nothing to measure it by.Oh also it's me who's 56 nearly Amanda is 49 today ducky. Ive been off work since diagnosis couldn't have kept my mind on task. They will pay me for a year so what the heck.When you juice veg what is a nice combination as I have to start this soon.I love fruit smoothies but can't get my head around drinking vegetables so need a nice recipe or two. Pam what is your hand op is it separate from this b/c thing?xxx
AnnDaw - do take some antibotics on hols with you just in case. Apparently my under arm pain occurs in approx 50 per cent of people who have node clearance and the hospital is to write to GP to put me on an antidepressant which is used to help pain. Neuropathway pain is what I have. It's odd as some days it's okay and other bad.
Off to do the manual lymph drainage. I think I can see signs of improvements and the sun is out.
Good luck for the op and remember to keep up the exercises as they do help with regaining movement. Will do these after drainage. Then off for a brisk 30 min walk which I'm told can contribute to general health and reduces reoccurrence.
what with this programme I've no time to work!
might be off line later next week as hand op is Thursday if not cancelled.
I'm looking up to you Amanda. Your same age as me and had same number of chemos and you managed to return to work. I found it all too much and had to quit. Pain and stress with the job and possible reoccurrence told me to stay home. I'm now feeling stronger but no job and at 56 who will want me know being older and having suffered cancer. But hey I'm still here.
Thanks Amanda I'll have a look for it. Mine was coming back white with bits of dark and now its not much and just white. I'm 56 a week today but like to be trendy and I think it makes you look younger. I bought the fast shampoo and conditioner but am now saving it till hair kicks in again. (Think it may have been you who told us about it).I'm just glad I'm done with the chemo its left me in a right state with neuropathy in feet and nails coming off. Never mind after op onwards and upwards hopefully.xxx
Hi Amanda thanks for the advice and where can we get solar oil?. Glad you've got some normality back that's what I'm looking forward to.I was getting a nice covering of hair after fec but the abraxane I had to have due to allergic reaction to docetaxel must be a bit harsh as hair seems to be going again.Node clearance 28th April then 15 rads at some point after that.Nice to hear from you Amanda.xxx
Hi Lesley nice to hear from you.I should have had last chemo 16th March but due to allergic reaction to docetaxel had to go to city hospital Nottingham for Abraxane as my hospital don't fund. It's still a taxane and is normally used to treat advanced b/c. My onc said nhs were splashing out on me as it's expensive.Anyway had last treatment 1st April and am so glad it's over. Apart from 4 nails already gone my feet have been bad with neuropathy. After this last one I've had bad pains in knees and shins as well. I didn't post for a while but still came on to see how other ladies were doing. Are you ok other than nails. Pam has had a bit of a hard time lately but hopefully things are getting better for her now. I have node clearance 28th April then fuerteventura for 2 weeks 28th may just hope I recover without complications for holiday.Have you finished your treatments now Lesley.?keep in touch lol.xxx
Hi Anne how are you? I think you must have finished chemo by now, I had my last on the 7 th March. Hope you are doing ok, I'm having exactly the same problem with my finger nails! Can't believe that it started after chemo was finished! Haven't posted for a while so just wanted to say hi xxxx
Thanks Den my thumbnails are literally hanging on by a thread and would be better if I could get them off but they would be sore. I'm having to keep plasters on all the time so I don't catch them on anything.As for chemo they had to change the last 2 to Abraxane as I had a reaction to docetaxel which was quite scary. Anyway so glad it's done and moving on to next step.xxx
Pam like we said at beginning of this journey I am there for you glad you felt happy with how you were treated it makes a difference.
Ann nails do take some stick don't they mine are still weak and break very easily but it's just a minor problem in the scheme of things glad you have got through chemo and hope all goes well for you
take care both of youDEN
Many thanks Ann and Den. I was pleased with the visit as they look a proper look this time. I'll just have to live with cysts and the breast lymphodeama.
Ann - So pleased that you have finished chemo. When you next see the surgeon remind them you want to see the results as you had to change drugs and want your status re pathology report. And good luck.
The nails do improve in time. Just be really careful with the hand your surgery is on as you do t really want to loose a nail on that said. I have antibiotics in in medicine cupboard just in case I think I may hurt that arms as I don't want hand and arm odeama. Let us know your results and we'll done finishing chemo.
Den - you are my constant in you're always there to offer support to which I'm most grateful. Cancer certainly has taken two years of my life and I'm gradually crawling back. Sending love.
Hi Pam pleased the lumps are only cysts that should put your mind at rest.I had my last chemo yesterday thank goodness but it's left it's mark. My nails are in a state thumbnails hanging on by a thread. I think the abraxane must be harsh. Anyway done now ready to get my head round next step.So glad you're ok Pam.xxx
Glad to hear that pam you can now enjoy your w/end these cysts are a source of worry I know I have probs with them and my remaining breast is painful due to them 😀💐
Thanks Den. I think it may have been the other way round 22do and 88 don't. I'm not looking to double check though. Can't wait for tomorrow for appointment.
must try to stay positive.
Thanks everyone. The last couple of days the pain has subsided. It was pretty bad.
On Friday I have hospital appointment for those other lumps which I'm praying are cysts.
Did a silly thing and looked at my stats using that tool everyone uses. I had t done this nor had the hospital told me my stats and was shocked at results. 22 percent with my original diagnosis die within five years. But am now thinking with my PcR to chemo this would change these to a better percentage.
Love to you all.
Hi pam sorry you are still struggling think you know deep down all you went through was worth it we are still here it's along time until you see pain team unfortunately I have observed local team a few times they are very good hope your team are . Keep your chin up x
jinny thanks for post nice to hear from someone further down this journey and doing well long may it continue
take care xDEN
So nice to hear from you all.
im really struggling with pain under arm. It's so extreme I sometimes think was it worth it. Today is so bad I've had take oral morphine. I just seem to got everything, cording, lympodema, pain and don't know what to do with myself.
i have a first appt for pain management in June. Been waiting for this since Feb.
sooooo fed up.
Hi Pam hope your well just to let you new ladies know im nearly 2 years out from stage 3 had 2 tumours and 9 positive nodes im still trying to find my normal anxiety still there but much better than a year ago keep strong ladies and keep going xx
hi pam I do remember you having problems with cysts when going through chemo hubby is good thanks grandkids growing up fast. It is difficult when boobs are lumpy isn't it anyway have a good Easter and take care X
Ann - I was a day case for the lump removal and node clearance. No drain, just a wound cover and told to do excercises from next day. First week very gentle then more one to others. This is really important to get the shoulder back working and avoid lympodema. I u fortunately got a lot of shoulder pain and still can't get hand behind me and it's now over a year since op. Had phyiso but think I now have to max movement I'll get. Also got breast lympodema but I'm still here. Your breast care nurse should be able to give you the details before the op.
Den - sorry about chest pain and glad you lump was cyst. I'm hoping mine are also cysts. As you know I seem to be riddled with them. You recall the ones in the lady garden and emergency op during chemo. The hand is one and I cal feel three lumps in breast. So hard to distinguish between what's a cancer lump and cysts. App next Friday.
How hubby and grandchildren?