Thanks Den, 2 weeks post T and I feel human but I have no taste and everything I do eat just leaves me straight away!!! I have appt with oncologist next wk and they've already mentioned reducing the dose, so will see what they say next week.
i have read through some of the old posts in this thread and am slightly encouraged by how many there are of us with TNBC and more surviving it.
I will as everyone I'm sure always worry about reoccurrence but for now I need to get through this hurdle I just hate feeling so low on T!!! X. Colista
Hi Katy if your scans are clear try to trust that result. It means your lymph nodes have done their job and trapped the nasty cells in time. That's why they do the node clearance so it stops it in its tracks. You'll be fine hunny.xxx
Hi Colista I agree with you about the T chemo. When I had my 1st dose I had like a choking bout and my hubby Trev wanted to fetch one of the chemo nurses but I said no I think I'm ok now. Looking back in hindsight though I remember feeling not at all well during that session. When I went for the next session this happened again but much worse and very scary so I was sent home and told to come back the following week and they put a antihistamine through my line first. This didn't help I am definitely allergic to it. I was told it isn't the actual drug that causes the reaction but a detergent that is mixed with it to help our body to absorb it. I had to go to Nottingham City hospital for my last 2 chemo for Abraxane as my hospital don't fund this chemo. What I'd like to stress if any of you ladies having T start to feel slightly different or a bit unwell don't be like me and shrug it off tell your chemo nurse and they quickly deal with it. I was ok having the abraxane but I ended up losing a couple of layers of toe and finger nails which are now recovering.I also had bad neuropathy in my toes which is gradually getting much better thank goodness. We are all different but we are all tough cookies and we can with help all beat this thing that is testing us to the hilt. Xxx
My oncologist said the same in the chemo will hut down and kill stray cells which is why we need it. I had eight four EC and four Taxol. After that surgery then rads. The surgery included full node clearance as they knew nodes had cancer in them 4 out of 24 positive. But the chemo worked its job and what they took out had no viable cells which was the best news I could have wished for. So remember this when feeling down or sick from chemo as its doing its job. They will keep tabs on it and if th tumour is not shrinking they will change the drugs.
What I find hard is people say you've beaten cancer but don't realise that after treatment if you're lucky your in remission. It's alway with us but I decided not to listen to all that and just try to enjoy each day. My treatment ended last May and I'm still struggling both physically and mentally and this site has helped me no end. So as you can see you will move from here to there and each day will affect you differently and it's okay to be sad, angry and just be whatever you feel. It's a hard journey and I wish you the best one possible.
I so wish I could have a magic wand to take this away for you all. Stay strong and ask as many questions as you want.
So sorry new ladies are having to join the group. Do try to look back and you will Bev who has posted some very positive things.
Most TNBC are grade 3 because of the cells looking very abnormal. But I recall my BC nurse saying to me TNBC can sometimes respond well to chemo.
As as for what has given us this I really don't know. Personally before cancer and still, I don't drink, smoke, eat red meat, mo processed meat and am within normal body weight. I don't luckily for me have the BRAC gene so it's a mystery.
all we can do is eat well, try to exercise and do the treatment then we know we have done all we can. Having this awful decease is terrible for those with young children which relates to the lady two ladies postings. I have seen babes in arms being treated st the Royal Mardsen which is heartbreaking. All we can do is treatment and support each other.
try not to GOOGLE stats as this will only scare you/us.
Sending love and wishing for good outcome to all.
Oh, if you can get name down for counselling this really helped me.
Hi Taran - and ladies,
So sorry that you are in such a challenging place. Some of us, who have different kinds of receptors do understand how you may feel.
I love the way you put it Taran - and it is so right. The wife of a business associate of mine has been diagnosed with a triple negative last week Wednesday. And I hope, in time, that I can support her, as well as him, through this.
Here in East Sussex, being so very rural, it is challenging to find personal support - our nearest cancer centre is 40 minutes drive away. A drive we make for treatment - but it is challenging at any other time.
As to diet, etc. - and I should say - this is very much a personal opinion - it is very good to eat healthily and with much consideration. Unfortunately many marketing organisations are using our vulnerability and fear to make money on the back of us. However, there is some quite sensible advice out there. It does pay to actually research any claims and thoughts, so we can all make well informed decisions as to what we eat, drink and have around us in our daily lives.
A number of thoughts have been posted on this thread - as to cosmetics, meat, dairy, etc,as well as some really interesting recipes. You might find it of interest to browse through it - https://forum.breastcancercare.org.uk/t5/Chemotherapy/Chemotherapy-Tips-and-Tricks/m-p/1017289#U1017...
Just to demonstrate my thinking - for example - we are being told that alcohol is a cancer risk, and I am aware of many ladies, who blamed their quite standard drinking for having got breast cancer.
Here are some researched figures - There are 32.2 million women in the UK, of which 2,576,000 will get BC according to latest statistics - of these BC diagnoses - 6% are linked (not necessarily caused!) by alcohol - i.e. 154,560. I am by no means trying to belittle anything, but it may sometimes help to look at the figures, break them down and understand them a bit better.
Hugs to you all
Hello Pam, I think the grade is how odd the cells from what they should be. I had what is known as a total response to chemo which can happen with TNBC. It means that when they cut it out they couldnt find any viable cells. When you start chemo they will measure the lump and probably put in a marker so they can see if the chemo is working. It can be changed if not.
Good luck and stay in touch.
Hi Pam, Pam here 57 yrs old TNBC like you. So sorry that you're here with us but we will try to support you. As said there are guidelines to start treatment and its normal to have CT and bone scans before the start. So it does seem a long wait. I was diagnoses August 21st 2014 and first chemo 15th Sep or there abouts and panicked after my first chemo as I was unwell in hospital and my next chemo was delayed by five weeks. I was told not to worry it doesn't grow that fast. Just keep an eye on the wait and look and ask for target date for treatment. There is no harm in letting the hospital know you these target dates.
I had chemo (8 session) first then surgery, then rads. I found the ladies in the monthly chemo sessions very supportive but most were doing this the other way round, surgery then chemo, rads. So you may need to pop back and forth to both threads.
I had a grade 3 - 31mm tumour with four nodes with cancer in them. I'm still here nearly two years on so don't give up hope. Keep well. Eat well, try to walk a. It and drink lots of water. I did put a list of things to prep and do during chemo in this forum which may help.
Good luck and if you want PM me do as its sound my diagnosis was similar to yours and our age similar.
So sorry to see you here, but great to read that you are finding the forum of help and see it as positive.
I have just popped in from the May 9 chemo thread - and being of a similar age to you, hope you don't mind me saying Hi to you, although I have a different diagnosis to yours.
It must be quite challenging for you to wait, as, very understandably, you want to do everything as quickly as possible to achieve a positive outcome. There are strict guidelines, as to when treatment for specific diagnosis has to start, and looking at the dates you quoted, you it looks as if you well within them. So, no, having your initial chemo appointment today, is not a bad thing at all. And at a guess this should mean you are likely to start your treatment next week.
When you do - you might find the Chemotherapy Monthly threads of great help - there is one for June starters, and you could join that, even if your treatment commences later in the month - there will be a lot of help, advice and support to help you prepare and support you through treatment- as well have the odd laugh.
I really sympathize with you - it was a very scary beginning, for me, too - and this is how I describe it -
"For me, when I was initialllly diagnosed, it was, as if thrown into the ocean with no lifebelt in side - nothing to hold onto - everything had changed - nothing as it was - no choice but to swim to survive - becoming exhausted with the swimming and having to learn to float and let myself drift. No control of what was going to happen to me. Every result and treatment is a bit of floating wood I hang onto. Some wood is a bit wrotten,some other bits are more solid. Collecting - first one, then two, then three planks, etc. When I had them all - my raft was built and I took one to start paddling. Starting to take control - starting to feel better - working towards finding land again. I can see it now - and am paddling hard to get there."
Please do not hesitate to send me a Private Message, when you have enabled it - should you prefer to communicate on some issues 'off forum' - however the Forums are a great place to be, as you get so much feed back from other ladies sharing their experiences.
Wishing you all the best and hoping all goes well for you today.
hi everyone, i was dx with tnbc on the 27th may, and still waiting to start my chemo, i am seeing the chemo nurse this morning, this afternoon i go for a muga scan, it seems such a long time to be waiting, feeling anxious and scared, i am 58 hope this is not a bad thing.
I have spent a good few hours reading this forum, all of it so positive, i look forward to talking to you, and listening to your advice.
Me too but we must live for today. You're still in shock and early days. Maybe some more counselling. Bi try and keep busy.
call the helpline here on this site for a chat if you can.
my cancer was 3mm, grade 3 and nodes involved do preset bad but look at Bev 14 yrs in remission on and off. But still here.
sending hugs.PAM XX
Still here Suzanne. Have some lasting affects from treatment and 2nd mamogramme this August. How are you doing?