Hi Hero67 that is such encouraging news. Thanks for charing and hope all goes well with the tests.
thats fantastic and has helped. Praying your annual check next month goes swiftly and all clear! 5 years is a big milestone.
im 10 days in to radiotherapy and skin has started to breakdown. Skin nurse has given me dermal, cooling pads and granule gel to use and thus far it's working
hope everyone else is ok
I haven't been on this site for a while now, but I thought I would just let you know that it is 5 years ago today that I was diagnosed with breast cancer.I'm going for my annual check up next month and I'm keeping my fingers crossed that everything is ok. I am terrified of tempting fate and wasn't going to write anything, but I thought that any newbies might be relieved to hear about me. I found out it was triple negative on 25th November following a WLE and 3 lymph nodes removed (which were clear).I started chemo in January and was allergic to the taxane chemo and couldn't have it. I ended up having 6 lots of FEC followed by 20 rounds of radiotherapy.I'm doing fine and try to keep myself as active as possible. My diet is better now than it was, but I am certainly no angel! I hope this post helps .xxx
Hi Ann & Dee thanks so much for your replies, I will look into the research especially any on the TNBC foundation site
Ann - great to hear you are all done and hope you have a lovely holiday. I'm so looking forward to the time we can get back to doing normal things.
Dee - your daughter sounds like an amazing warrior queen having worked all the way through her treatment and come through this twice. So pleased she is doing well now and I agree this site can help so much when you're in the middle of this nightmare.
Helly - thanks for your info about the ginger, I had no idea that might be helpful so will look that up too.
i won't be starting until I've finished my chemo as my onc advised not but want to get my facts straight and ducks in a row so I'm ready
Tracy is doing well. She has not had reconstructive surgery yet and may never do it. She worked throughout both times except for a day or 2 here and there and 6 weeks after mastectomy. First time she had chemo and radiation. Second time chemo and double mastectomy.
She has a new job and like you she will always be aware of what is going on in her body.
We are very grateful and are praying for you and all the others who are going through this experience.
Bye for now. I'll be checking in every once and awhile.
Thanks for your reply Dee I will look into the curcumin C3 complex. I'm just over a year since I had right mastectomy followed by 6 fec-t chemo, node clearance and 15 rads. I've recently started in a clinical trial for aspirin but obviously don't know whether I'm taking aspirin or a placebo. I do hope your daughter has finished with this awful tnbc journey. I'm trying to put the past year behind me but will always be on my guard.I started back to work 6 weeks ago so that feels good. I'm off to fuerteventura for 2 weeks on Saturday for some sunshine as it's starting to get a bit colder here in the UK. Anyway thanks again Dee and keep in touch.Xx
You might try entering a Search on the internet for Turmeric use for TNBC. I am in America and can find several articles on it. The main thing is to not go to companies that sell or manufacture the products. Here we have WebMD.com, MayoClinic site and American Cancer Society, TNBC site.
Our daughter had TNBC twice and has gone through 2 rounds of Chemo and 1 round of radiation and then a double mastectomy. She insisted that I start taking Turmeric (Curcumin C3 Complex) with Black Pepper. I have been taking 1500 mg a day. She just doesn't want me to go through what she did. She takes it too but I think she takes a little more.
More and more is being learned every day and I pray that they will find a cure for this and all cancers.
Hang in there, do research there where you live. Keep coming back to a Positive Attitude and Find the things that make you happy and do them. I believe the feelings of hope, love, satisfaction, enjoyment, laughter, friendship and giving help us in any fight.
Tracy is doing very well and I am so blessed to have found this site when she first found out she had it. It was the first place I found that had long term survivors. It helped me help her.
Hi Chris I'm confused too. Ive been taking turmeric in a 1 a day capsule holland and barret brand. I also at one point bought a root extract one which was costly and I would have stuck with it until I heard you need to take with black pepper for absorption. I don't really like it added to food unless it's a curry or indian dish and as I don't want spicy food every day I feel I wouldn't be getting enough of it. So if anyone knows how much and the best way to take it please let us know. Oh and I was also told Chris not to take it during chemo but don't even know how true that is either. I stopped taking all of my supplements during chemo and like you say it all gets a bit confusing. Xxx
Hello ladies, I haven't posted for a while either but nice to see that the thread is picking up. When I was first diagnosed in July I found the support on here - even just reading the posts of others- a bit of a life saver. I'm doing Neo adjuvant chemo and of EC then carbo platin / paclitaxel and now just over half way through.
can I ask what you lovely ladies are doing about turmeric because I'm really confused . Don't know whether. I should take this as a supplement, during cooking or added to juices. I asked my onc and he was non committal.
Miasma and others,
TNBC has more sub groups and no the presentation in my link below shows a highly cancer specialist professional explain types, outcomes and new thoughts on treatment. It's a very interesting presentation with slides and Q & A after.
There is a lot to learn if you spare the time and listen to what she is saying.
Suzanne you will be at that wedding ! Good news marina X hi pam good to hear from you and to hear you ok
we both seem to be still having to go to appointments don't we I am going to see orthopaedic consultant regarding frozen shoulder it is not improving but I know they take a long time . We have had some good news
we are to become grandparents again next year that will make 5 altogether so I have got to keep well take care all DEN
sorry to not have posted. For some reason I've not been receiving notifications of post so thought you had all gone quite.
you will be pleased to know I'm doing okayish. I have the ear problem again and am waiting for appt at the London ENT hospital. Referrals went missing so it's been a long wait and I still don't have a date. I have this week found lumps in both breasts but hospital are asking me to wait until next week then report again if they're still there. I think the hospital is fed up with me. I'm still going to the pain clinic for underarm pain and they've given me strips to where. But reading the paperwork which comes with it it says know risks are these strips are know to cause tumours in mice. So I'm now not using them. Next appt is 24th Nov. The swollen breast (lymphodeama) is smaller now and the hospital wan me to go into normal very supportive bras. These are the forth type I've had to. It so spent a fortune. First lot were for just after surgery, then I got those ASDA ones, then more supportive were needed so had to buy M&S sports bras which hospital said were good. Then saw the hospital again and they said no you need normal brads with large straps and full support as it's important to keep breast apart for drainage. So more bras broke. So pretty much broke spending so much on this desease what with also. Wing made redundant last Dec.
Went to see specslist re lady garden problem. Good news vulva not showing any signs of cancer but shrinkage due to menopause. The hospital gave some hormone cream but I reall my GP saying no to this due to cancer. So only using this when in crisis. Itching much better and swelling down but this area now has odeam due to long term swelling.
other than all of the above I'm ok.
one other good news is second year mamo was clear this was in August.
Hopefully I'll get your posts now.
also joined this TNBC FaceBook group.
i did miss you all.
Oh Suzanne2 don´t say that, you are doing fine and will be able to celebrate next June I am sure. I am at least hoping to have more hair by then!!!
Tomorrow I see onc for PET scan results, a little nervous.
Still no news from Pam, I may send her a private message.
Hi Marina I had my last chemo on 1st April so have had more hair growing time than you. I had my 1st cut 3 weeks ago and it's a couple of inches all over but I still can't get brave enough to go out without a wig. I think I want to see a bit more length on the fringe area then I'll be okay with it. We go on hols on 29th October so hoping to be hair ready for then. Thanks for getting the forum going a bit more Marina. I've also been wondering where you have been as well Pam. Xxx
Hi Colista what amount of turmeric do you add to juices and what food do you put it in or on. I know we put it in curries etc but does it taste very strong on English food. I believe it also needs to be taken with black pepper for absorption by the body. Sometimes you don't know what to do for the best there's so much info out there. I also take omega 3 as im not over fond of fish on a regular basis. I take vitamin D3 as it's made from plants whereas D is artificially made or so I've read. Have you got anymore good info on things that you would like to share please? Xxx
Hi Marina nice to hear from you. I haven't posted on here for ages as everyone seemed to go to Facebook which I don't do full stop. So pleased to hear you are well and I hope everyone else is too. I finished all my treatment in July and am in a clinical trial for aspirin so could be taking 100mg 300 mg or the placibo. I've also had app with my consultant this week to discuss my reconstruction options. I have a appointment with a plastic surgeon on 2nd December. As I had tnbc there's always the worry of it coming back but moving forward well. I'm back at work and feel well. I hope as well that you ladies on Facebook pop on here sometimes. Where are you at with your treatment Marina? Xxx
Good morning all,
Lets not all just go to Facebook, this forum has been invaluable to me. I feel I have got to know peoples stories, the trhreads have been very positive for me and I have gained so much knowledge and understanding of what I , like the others here, are going through. I confess I have joined the FB group but although interesting it does not have that personal touch I find here.
So ladies please keep up the good work here. In the meantime I am well and get my PET scan results next week when I see my oncologist.
best wishes to all, Marina