Any triple negative survivors out there?

[Melia07]

Happy New year wishing to you all hope that 2017 be a healthy and Successful one 🙂 🙂 🙂 🙂

[Warcol]

Happy New Year everyone! Hope this year is better than the last one xx

[1852]

Hi everyone just popped on to say happy new year hope it's a good healthy one DEN 🍷🍾😀 

[1852]

Hi everyone just popped on to say happy new year hope it's a good healthy one DEN 🍷🍾😀

[Warcol]

Merry Christmas and happy new year to you all! I'm preparing to return to work in the new year and celebrate my 1st year cancerversary! Onwards and upwards to everyone xxx

[Dee1945]

  At this time of year I am especially thankful for family and friends. Included in Friends are those of you on this thread. I found voices here that sooth my mind and gave me hope for our daughter's future. So I want to let you know that she is doing well. The answer from long term survivors here gave her hope and a determination to survive and thrive!

  I pray that the new year will bring more wonderful stories of survival and triumph for each and every one of you.......

  Merry Christmas......Happy Hannukah......Happy Kwanzaa

Love and thanks, Dee

[Melia07]

Same here wishing all a very good Christmas. My last day of rads is Friday hoped to have a good Christmas with the family.
XXX Shernise

[Whitfield]

You too Den.

pam xx

[1852]

A thought I'd pop on to say hope you all have a good Christmas and best wishes for 2017. DEN 

[Fishandchips]

I haven't read any details but skybabe777 if you are using cannabis oil for tnbc you need high thc not cbd.
Cbd will not help you

[Melia07]

Hi ladies another day after rads. Still feeling real tired in the morning, I also thinking of giving up my job. My left side where I had the nodes remove still hurts, I no surgery is only five weeks ago. Just don't know how I'll cope with work after the big C. xxx

[Warcol]

Hi everyone
Finished active treatment 2 weeks ago and have appt with BCN tomorrow! Got pain in my shoulder and arm so going to talk about that as well as signs to loom out for! Looking forward to Xmas and returning to work in January xx merry Christmas everyone xx

[Marina]

Hi all, I am fine, just have tingly feet when I put them up and when I go to bed. Still eating healthily and making huge changes to my life, giving up my job and starting anew.

Marina

[suzanne2]

Hi all, hi Pam, hope you are all doing okay? I'm not too bad, still aching a lot and feeling like a 90 year old lol. Are u all ready for Christmas. Let us know how u get on with the oil. Xxxx

[Melia07]

Morning all third day of rads today. Not doing too bad. xxx

[Whitfield]

Just checking in with you all after some months and hoping you are all doing well.

Best wishes.

Pam x

[Skybabe777]

I just received my first batch of CBD oil. I'm starting chemo in a week and a half. Hope it helps.

[Alexisb]

Hello
I haven't posted much before but l wanted to say how Holland and Barrett's certified Aloe Vera Gel 99.9% is brilliant to rub in to the sunburn type itching as my 19 rads progressed. Really worth a try. I put it on 2-3 times s day.
At the time it was also buy 1 get 1 for a penny.
Hope this help.
Good luck everyone.
Ruth

[Marieapo1]

I recommend canabis oil and Dr. Prescribed marinol which is a form of Marijuana. This has really helped me with side affects. I was diagnosed with triple negative aggressive breast cancer in August 2016 and will be finished with chemo GOD willing in mid January. GOD BLESS YOU ALL with this horrible disease. Hope this helps

[Melia07]

Ok ladies thank you still having chemo brain sometimes can't even think straight. Xx

[Whitfield]

Side Effects.  Will try to remember to use whole words.  Pam x

[Whitfield]

Yes, as co firmed SE is short for Side Effects.  Will try to remember to use whole words.

pamx

[Warcol]

Side effects xxx

[Melia07]

Hi Whitfield

What is SE please
Thanks x

[Melia07]

Thanks Whitfield

I'll be having 15. I'll try and drink as much water as I can.
Shernise xx

[Whitfield]

Depending on how many your having. All I would say is the SE are compinding and towards the end you may get pretty tired. So have a back up plan if driving oneself.

also drink 3 Ltrs of water a day if you can. This helps the skin.

good luck.

pam x

[Whitfield]

Depending on how many your having.  All I would say is the SE are compinding and towards the end you may get pretty tired.  So have a back up plan if driving oneself.

also drink 3 Ltrs of water a day if you can.  This helps the skin.

good luck.

pam x

[Melia07]

Hi Taran
Thanks much for your reply. xx

[Melia07]

Hi Warcol
Thanks very much for that. Xx

[Taran]

Hi Melia,

I will be half way through rads tomorrow (10 of 20) and so far haven't had many side effects. Getting a little pink and sore the end of last week, but not too bad. I've been driving myself to and from appointments without any problems and plan to do so for the rest. xx

[Warcol]

Hi melia
Yes I drove to and from for each session xx

[Melia07]

Hi Warcol

Thanks for your feedback at the moment I'm still recovering from surgery. My oncologist told me that I'll be fine from rad but base on what I've read and hear that's not the case.
I would like to know if anyone drove themselves to and back from rad without no problem.

[Warcol]

Hi Melia
I have my last session of rads today and my skin has started to burn and is very itchy! I'm currently being dressed by the nurses using liquid paraffin! I also have little energy to do anything and tire quite quickly
Colista xxx

[Melia07]

Hi Suzanne 2 I'm from Cambridgeshire and yes I had lymp nodes remove 10
Starting radiotherapy next month.
Does anyone on here had side effect from radiotherapy. X

[Stefani]

Hi Caz

I was diagnose with triple negative breast cancer recently 7 October 2016  stage 4. Scan show small spots on the lungs. I am also struggling. I am on double dose (Dr words) chemo every 2 weeks for 4 weeks will then go on single every week. Not sure which is which but this is what I'm on

Aprepitant  165mg,

Graniseton3mg,

Dexamethasone 12mg,

Doxorubicin 120mg,

Cyclophosphamide  IV 1200mg

At first Dr  want to do surgery for 1 lymph node next day but after the scan and lung spots Dr decide to start chemo straight away. My tumour (right breast )was 7cm x 5cm. I can definitely feel that it shrinking. 

I know this is not helping you but this is the first that I read about someone else have the spots on the lungs and would love to know how you doing. 

[bel]

Hi Kat,

Really sorry to hear about your mum. Just wanted to say I had triple neg over 14 years ago (aged 31) & have been fine since. I did the FEC, though back then we didn't get given the Taxol, so I can't comment on that. But I also got really conscious about my diet, and I'll never know for sure if that helped me stay clear, but it does make sense to me that what we ingest can support, or not support, our health, and I wanted to be giving myself as much support as possible.

In a nutshell (happy to answer more questions) this is what I did. I still keep to this now as a basic diet, though not as strictly as back when diagnosed and for the first couple of years after:

-Mostly organic, especially meat, eggs & dairy (if eating it, which I hardly do)

-Almost no red meat

-Tons of fruit (especially berries, and less of sugary fruit like mango) & veg, including daily juices (look up the dirty dozen & clean 15 online, as advises on what's important to buy organic & what's not so important)

-Wholegrains rather than white refined stuff

-Pulses

-very little sugar & alcohol

-nuts & seeds 

There are lots of great cookbooks out there these days, so you can make healthy food that's delicious, which is important! I've had Rebecca Katz's The Cancer Fighting Kitchen highly recommended to me.

Bel x

[Whitfield]

Hello KM123,

Hope treatment goes well.  Things I can tell are -

Drink a lot of water during whole of treatment including rads

Dark Nail Varnish as chemo can make nails loose/fall off

Keep on top of medication/do own chart if you can

Remember immune system will be hit hard so keep away from people with colds/flu and wash hands regularly

Eat what you can keep down during chemo then after keep to a good diet.  There is a booklet on this site about food and what to eat/.

Discuss any Vits with team as some react against chemo.  After take what you feel is good plus Vit D3

Get some counselling booked in - very useful.  You can get some too at most Maggies Centres or hospitals

Taxol is a good drug for TNBC so sometimes hard to take with side effects it can do good stuff against the cancer.

Buy if you can / cotton skullcaps as it gets cold on head on head during winter if you loose your hair.  Most of us don't cover head when sleeping so it gets chilly.

Post op - if this applys

Do exercises as per hospital instructions.  This can be hard but if you put in the work you will see results.  Hopefully no cording.

Do come on site as others will give their advice and help.

Sending hugs.

Pam x

[KM123]

Hello all,

my mum was diagnosed with triple negative breast cancer a few months ago and she has just had her second session of chemo 2 days ago. She's having 4x FEC and 4xT and three weeks between every session. She's getting a bit scared about T she thinks it's going to be a lot harder than FEC.  Has anyone had this and what was it like/ what side effects? My mums not had any major side effect so far wth fec, just feeling sick and tired for first 4/5 days and really dry skin (any good natural creams I should get her??).

The thing I'm really scared about is if when she becomes cancer free she will get it again in a few years time.

Also any food tips? we've been searching everything.. honey, turmeric, garlic, apricot seeds, etc.

kat x

[suzanne2]

Hi all hope you are all doing ok, can sorry I can't help you, did you have lymph node involvement. Melisa, can where are u both from xxx

[Melia07]

I'm a triple negative survivor just finish chemo and surgery

[Warcol]

Caz
There is a forum on Facebook called uk breast cancer survivors and sufferers that have ladies with mets as well as a secondary site! If not already on the U.K one or triple neg one will be happy to add you
Love Colista xx

[Caz38]

Thank you I shall look for secondary forums xx

[Caz38]

Yes I am on a few facebook pages. Thanks for your advice shall try the secondary forums xx 

[Taran]

I'm sorry I can't help Caz, but I was wondering if you had joined any support groups on Facebook? They are amazingly supportive and I know there are separate groups for secondary ladies, where I'm sure someone would be able to answer your questions better. Wish I could help more xx

[Warcol]

Pam beat me too it I was going to suggest the secondary forum! Good luck and thinking of you! Xx

[Whitfield]

Caz,  Someone should respond but just so you know there is a forum on this site for secondary suffers.  My thoughts are with you and wishing you good response to treatment. Pam x

[Caz38]

Are there any long term survivors triple negative stage 4? I was diagnosed Nov 2015 with lung mets (very tiny) had 6FEC treatments,clear scan April 2016, recurrence June 2016 in breast, mastectomy July 2016, 15 rads, recent scan shows mets back in lungs and a small area of the liver. Now on weekly taxol.. can this be kept at bay for long time? Looking for people who are in the same position. Need some hope as I am struggling to deal with this now. I am mum to three sons . I am 38 years old. Initial tumour was 7x7 cm

[ChrisAsh]

Thanks for sharing your story hero67 - this is really wonderful inspiring news and just what I needed to read today.

as Pam says, hope everyone else is doing ok too

chris xx

[Whitfield]

Prayers for all.

still having a lot of pain under arm and breast, hand and now ear is back buzzing.  I'm so fed up with poor health.

not getting messages from here now so not see. Any recent posts.

hope all is doing well.

pam x

[1852]

That's great news hope good health continues  👍 🎀