Hi Pam, if you look at the Predict model it states the prognosis from age of diagnosis. Therefore I count my years from date of diagnosis. I asked my onc and he told me the prognosis at the time of my diagnosis
Hope that helps but why not ask your oncologist at your next check up
Love Sue x
This month I am celebrating 3 years 'clean'. I had my ovaries out over 12 years ago to help reduce my risk... but it didn't given that what I ended up with was TNBC. SO now I am going into my 4th year. One hard thing for me is since I am 'pretty ok' now.... some doctors don't seem very interested .... like 'oh she is no longer sick.'
I count years on Oct 23 cause that is when I had my two foobs implanted which could not happen till all the surgery, chemo, rad. therapy was over and done.
I am happy to provide support and friendship to anyone dealing with TNBC. We need each other.
Hi pam glad cough is improving . Just got result of left mammo today no sign of anything abnormal ya got my appt with onc in August .i try not to think about dates so can't help with that pam .take care everyone 🎀DEN x
Thank you Marina.
TNBC Is very scary. Had cough for five weeks now but subsiding. Constantly looking out for secondaries. Mammo on 24th August which is around three years since diagnosis. I still can't get clear information when you count remission start from. I know three years is good but is this from surgery, chemo or rads? I had chemo first 8 then surgery, then 20 rads. So the timing is different. Some say from diagnosis but how can that be as you still had cancer then?
Looking at stats and I know we shouldn't but after three years the recurrence rate drops a lot so dates are important. I think my three years will fall in 2018 but am not sure???
Still have pain and tintinus but a small price to pay for life.
Love to you all.
eat well, exercise if you can and take care.
Fantastic news Pam you got result quick which was good of them . How is hip pain hope it's eased . Take care.DEN 🎀
Phew Pam what a fantastic relief im so pleased for you and because they had great result they wanted to let you know a.s.a.p.xxx
Sorry you are here Moonin
There is a lady on this site several years in remission. wishing you all the best.
oh, forgot to say most TNCB is grade 3 and I had four nodes infected and had to have full clearance. I'm now 2:8 years in remission.
I was diagnosed in March with TNBC grade 3.
cells positive in lymph nodes - 3 removed
i have had 3 FEC chemo and 1 T
i came home yesterday from hospital after having neutropenic sepsis.
My chemo is changing next Friday to 12 weekly cycles of Carbo/taxol
do people survive TNBC?
Scan done thankfully. Got very sick in tube but they got clear images. Just have to wait now.
You have been such a support.
All the best Pam...and everyone else who are going through various stages of this journey!
love and thanks for sharing xxxx
Hi Pam haven't posted lately but look at posts on a regular basis to see how everyone is doing.I've noticed a few of yours over last couple of weeks and have been thinking about you so feel I must let you know this. I wish you a clear scan tomorrow. Your cough could be caused by all sorts of things but as we all know every little twinge is a worry. You've had it pretty rough with one thing or another but at least they seem to be checking everything out for you Pam. You will be on my mind tomorrow duck and I'll keep everything crossed for a good outcome. Love and hugs Anne. Xxx
Pam sorry you are going through all these problems which are causing to understandably causing you worry it's no good me saying don't worry but try and be positive there,s lots of things they can be I know it's hard because any pain we immediately think the worst will keep my fingers crossed for you . Feel free to email me as well . DEN
im not good at all. Also,have a lot of hip pain which is severe. Have emailed hospital about that as well. God I hope I've not not secondary's after coming so far. Very scared and in pain.
Hi pam sorry to hear you having some more health worries , I have had chest problems since last year so have nebulisers I have had several chest infections where I have needed steroids dr not sure what it is ?? Asthma ?coad or chemo damage . I have also been diagnosed with hiatus hernia feel I am falling apart but happy to still be able to enjoy my grandchildren . I had left mammogram on Thursday I think you said yours was August . I hope all your tests and cough turn out to need minimal treatment if any . Keep in touch . 🎀
Have cough now so being sent for CT scan!!
Had blood test at GPs last week for full bloods, TSH,ALT and B12. Bad results and been called in for appointment tomorrow. Worried about blood cancer and lungs now..
Will update you when I get some results. CT next Thursday and GP Tuesday.
Hope youre well?
I was recently diagnosed recurrence (previously ER+, PR+, Her2neu -ve in 2006) in lymph nodes 16 out of 18 nodes positive, TNBC gred 3. Now on chemo cyclophosphamide and toxotere for 4 cycles. Could you give tips on what type of diet you're following (the literatures said that TNBC feeds on fatty acids) and advice on low fat diet and to lower cholesterol.
Hi Whitfield my mammo is next week a bit worried but I found lumps in breast they didn't show on mammo so don't rely on mammo too much . Hope you ok . Best wishes to all .
Are you okay Warcol?
I'm getting nervous for next mammo in August as so many lumps in breasts!
hope everyone is doing okay?
Sorry you find yourself here. Are you in UK?
Most TNCB are grade three because of their aggressive and basal cell status. Just remember we are here for questions. Don't accept a too long wait for appointments if you can as although what doctors say is right you will want to catch this as early as possible. I believe in UK there are guidelines for when treatment to start after firs being diagnosed. Maybe someone here can help with that? Recall a 30 days period which I just meet but can't recall. Anyone HELP with this info?
I had a 31mm lump and node involvement and and had chemo first then surgery, then 20 rads and this was in 2014 and I mstill here.
The people on this site can be such a hell and support.
6 years out. Was diagnosed with stage 3b with 13 out of 19 lymph nodes positive.
Just take one day at a time.Think positive.
My mother is dx with TNBC with metastasis to the bones. Tumor of more than 5 cm in left breast and armpit.
I am totally depressed, don't know what to do. Everything seems to be over.
Is there any cure for TNBC with 4th stage? Any survivors with 4th Stage TNBC.
Any help would be appreciated.
I am in remission as of March of this year. Spending more time being in the moment and living life on purpose. I have had chemo and radiation, completing my therapies as of November 23,2016.
Am hopeful that all will be well.
I was dx with tnbc in 2006 and all has been well. I am currently having an investigation for an itchy patch on the good breast and am hopeful it will be ok though obviously anxious.
Hey there. I've just had my fourth year clear, and am back at my old job working in a developing nation. I was diagnosed at stage 3. I did chemo, radiation, had 2 separate mastectomies, a complete lymphedectomy on my right side and a hysterectomy.
i feel healthy and full of positivity. It all seems so far in the past now....and having survived all that, I feel grateful and full of optimism.
Its a difficult process....but there are moments of profound awareness and gratitude.
I am not the person I was before. I'm better.
i have just been diagnosed with tnc.Had surgery..tumour under 2cm and not spread to lymph nodes.. I feel very alone at the minute and for my own sanity i will have to stop googling..I start chemo on 4th May..feeling very anxious about that but know i just have to get on with it.. Trying to remain upbeat.
Hi Annie you sound very positive it's good your family are supportive too . Have a great holiday don't google anymore and come back from your holiday fighting fit .we are here if you need to sound off . I recommend you join forum for people starting in May 17 and there are forums for younger ladies as well . Take care DEN X
I had a biopsy done on 2-1-17 and showed positive for TNBC-IDC. Had surgery on 3-1-17, lumpectomy and 2 sentinel lymnph nodes were clean. My tumor was smaller than 2cm. but not too much smaller. I had my first chemo (Adriamycin & Cytoxan) on 3-20-17. The side effects have been extremely challenging. I got my chemo on Monday afternoon and was fairly okay until Wednesday afternoon. I think I started having nausea sneak up on me and I was not taking the anti-nausea meds like I was supposed to, because I have a hard time taking Rx drugs because I have never had to before and I don't like putting bad stuff in my body. So Wednesday afternoon and all day Thursday I felt pretty yucky. You can keep in touch with your clinic and they can have you come in and they put fluids and medications in your body to help with side effects. I have a port in my chest that they use. Important to keep up with anti-nausea meds the first week after chemo. Everyone is different and every day can be different. But if you are feeling bad the clinic can often put things in you to make you feel much better.
Hi all I was diagnosed with tnbc mid January and had left mx end of January tumor was 3cm no node or vascular involvement finally started chemo yesterday FecT as a previous history of lung disease and further tests also went for a second opinion with Pro Justin Stebbings if anyone is concerned about their treatment I would thoroughly recommend him . I have not had any feelings of sickness as yet and no other side effects as yet but a bit of light headiness as this is the first day after chemo is it usually later in the process that she start
JBS your feelings are normal once you get treatment plan you will be able to think straighter everyone is different but we are all frightened at first and you will have good and not so good days but don't read negative posts it's like childbirth some people enjoy talking about the bad bits not the good bits .none of us wanted to be on this forum but we are so being positive is the way to go we are here and will help you if we can as. Pam says there are other forums to join good luck with your mri keep in touch DEN