Never made it back to work. Pain too much and other health issues. Sometimes better to,change life and take that reduced pension. We don’t know how long we have and we need to enjoy what we have if we can survive on less that would be my choice. X
I was diagnosed as triple neg. stage 3 in 2009.Had 6 treatments of FEC followed by radiotherapy.
I am now 8 years in remission, was told it would probably return in 2 years so ther is hope !
Sorry you are having to go through chemo again did you only have lumpectomy last time . I not surprised your emotions are all over the place losing your mum with same thing . Take care of yourself .💐🎀 DEN
Just wanted to say thank you boogiebrat and Den for your upbeat posts. I was feeling a little down today so it was good to read them x
I was diagnosed with stage 4, triple negative, invasive ductal carcinoma, I went thru 8 weeks of chemo, left breast mastectomy and then radiation. I am proud to say, on 4/20/2018, I will be attending a Celebration of life ceremony, for all of the 5 year survivors who were treated at CTCA. I just wanted to say, don't loose hope, make yourself a priority, make the health choices that will benefit you most and please, never never give up!
Hi everyone it's good to hear from you all good luck for your mammogram bumblebee . Hope your appointment goes ok pam . Take care DEN
Hi everyone, not been here for a long time, occasionally have a quick look. I was diagnosed april 2013, lumpectomy, chemo and rads. My 5 year mammagram is due in 2 weeks so starting to feel a bit anxious. Waiting for hip replacement now, had spine fused and a mini stroke event butstill working fulltime! As long as the c stays away I'm fine! I was part of the july junkies 2013
Pam here. Sorry I’ve not been on this,site much recently. I do the Facebook site now.
Im still struggling with l7mps and bumps and waiting for Marsden appt and still have pain. That said 8m still around.
hope you guys are doing ok?
I am 4yrs down the line from RT mastectomy and chemo , I have a few problems but am doing ok and getting on with life , I don't do Facebook and wish more came on this site to keep in touch welcome to all newcomers if I can answer any of your queries I will be happy to do so .DEN
Just found this thread so excuse me for being late to the party. I was diagnosed with ER+ primary in 2002 and then triple negative primary in 2014. 6cm tumour in breast and 5mm in lymph nodes grade 3. Thanks to the wonderful Royal Marsden I am still here. Chemo (carboplatin I cant take the Taxol drugs as I'm allergic to them) completely eliminated the tumours over 6 rounds nothing left by the time I went for double masectomy. Followed by 3 weeks of IMRT radiotherapy. 4 years later and no recurrence. My oncologist told me that he does not know of any TN patient who has had a recurrence after 5 years. if recurrence happens then usually in 2-3 years. Not the same for ER+ which can recur up to 20 years later. So 5 years is the big mental milestone. I can think the mental side of treatment and survivorship is just as hard as the physical side. But there are some great counsellors out there for the patient and their family.
Hi Colista lm taking part in the aspirin trials and it's for 100mg 300 mg or the placibo and of course I don't know which im taking. I also take D3 and turmeric but the turmeric I take is is a organic curcumin root one per day capsule. Im 8 weeks post reconstructive surgery with tissue expander which gets topped up fortnightly. Apparently they are stretching my skin as radiotherapy made it tight. Still got a way to go yet but very happy to have a boob back. I hope were doing everything right to keep it from coming back. I'm 2 and a half years post diagnosis and it all seems just like a bad memory now. Anne xxx
Thanks, Colista. I was going to ask my GP first. She was the one that said I was okay to take tumeric. Best wishes and thanks again, Jane xxxx
Thank you for your story, Colista. It helps so much to hear positive stories. I hope you don't mind my asking, but I wondered what dose of Aspirin you take. It's something I'm interested in trying.
I have been diagnosed with TNBC They said it’s metaplastic and quite rare. I am going in for wide local excision on Wednesday next week. My consultant says that it is very treatable but I am very anxious as the time is passing. There were no nodes showing on scans or mammogram so hopefully the ones that are removed will still be clear when surgery comes. I will be having chemotherapy and radiotherapy and it seems such a long road to go down. I’m struggling with that too.
Hi Catz I'm sorry to hear that you are still so anxious. There is loads going on out there re-:trip /neg and I'm in a clinical trial for aspirin and research has shown this to destroy trip/neg cells in mice..I have a friend and one of her clients has a son who is a oncologist in London and something is on the horizon for us ladies so have hope.Meanwhile I feel well and I just keep taking vitamin D3 and a organic turmeric root capsule daily and hope for the best.. I did opt for reconstruction which I had 7 weeks ago. Our diagnosis and treatment plan was the same except my tumour was 5cm so smaller than yours but the main thing is that they are long gone..I hope you can take some reassurance from this post and think of all the ladies who are long term survivors. We will be those ladies too. Anne xxx
Hi Woodie67 I'm 57 and had triple neg b/c. October 2015 had right mastectomy followed by fec-t chemo then lymph nodes cleared April 2016 and 15 rads. At first it is like a nightmare but once active treatment starts things get easier. Try not to worry too much about your op. (Is it tomorrow? ). I found myself not to be in pain afterwards just a bit tender and uncomfortable and not half as bad as I had imagined. The chemo is doable and like 1852 says join the chemo threads when the time comes. As I said my journey began over 2 years ago and now its all just a bad memory and I don't worry about the cancer returning even though I know that's possible. Im living life exactly as I did before. I had LD flap reconstruction 6 weeks ago using muscle and tissue from my back. It was a 4 and a half hour op and I'm fine. I'm so trying to reassure you that all will come good for you. We are all afraid of the unknown and I find it's never as bad as the fear. Anytime you are worried or needing answers someone will be on this site to support you. I don't post on here nowadays cos as I say life returns to normal but I do look out for new ladies like yourself on here hopefully to support you. When you wake up from your op your cancer will be gone. Love Anne. Xxx
Diagnosed grade3, stage2 ( 3cm tumour, 2mm from chest wall) in 2003 aged 58. Mastectomy, fec chemo, radio on 2 sites. I am still well with no recurrence despite poor prognosis. I visualise, meditate,walk and do yoga each day. I am not overweight and try to eat healthily but not vegetarian or organic diet. I try to live each day to the full. There is hope and the latest research on tnbc is promising.
Should I consider removal of other breast and ovaries? How often should I ask for a mammogram? I have no follow up consultation any more.
Trust this gives hope to other sufferers - it is scary!
I have notice mention of the Facebook page before. Is it an open or closed page? and what is the name? Our daughter is a two time TNBC survivor 5+ yrs out not from the first diagnosis. Double mastectomy after the second, 2 1/2 years ago. Only a few lymph (6) nodes removed the last time.
I really appreciated the support from the long term survivors, it helped me give encouragement to our daughter on those days when things looked dark.
Thank you for your support for us and for those who write in looking for that reassuring hand. She is doing well and is happy now and I will be eternally grateful..
Hi everyone it's very quiet on forum take it others are on Facebook . Just popped on to say hope 2018 is a good year for you all. I Am 31/2 years from diagnosis and just finger end and toe tips perifral neurothropy am getting on with life .
Best wishes DEN
Sorry can't help with node involvement just wanted to say good luck with treatment ,I m sure someone will answer your query soon DEN