Welcome to the BCC discussion forums where I am sure you will find good support from others treading a similar path to yourself. To help you I have put below links to a couple of BCC's publications which you might like to read. Our helpline team are at hand if you find you would like to talk to someone in person away from family and friends. Calls are free 0808 800 6000 lines open Mon -Fri 9-5 and Sat 10-2. We also offer a 'Secondary Live Chat' service where you can 'talk' to others in a similar situation in real time via the computer each Tuesday evening between 8.30pm and 9.30pm, just follow the links to Live Chat if you are interested.
I hope you find this helpful. Take care,
Hi everyone 🙂
I was diagnosed with TN last May - a week before my 30th birthday. Some birthday present, huh?! My tumour was large (4cm) and had involved lymph nodes. I had chemo first 3xFEC and 3xTaxotere, followed by a wide local excision and lymph node clearance, followed by 22 rads, including 5 booster sessions. The chemo worked really well and my surgery results showed all lymph nodes were clear and only 1mm tumour left, removed with clear margins. I finished my rads a month ago and despite the encouraging response to treatment, I am completely frozen with fear. I am so terrified of it coming back or spreading, I am constantly getting myself in such a state about it. I've been having weird discomfort in my neck on the same side as the cancer, pain in the breast and also a pain in my chest on the other side that won't go away. I'm so scared that the cancer has come back already. I'm seeing my BCN on Wednesday and I really hope she can reassure me. I worry that my concerns aren't going to be taken seriously or investigated - does anyone else have this?
I do think some of you are right that if it's going to come back, it will no matter what we try to do to prevent it. Everyone I know can't believe that me of all people got cancer. I was 29, slim, don't drink or smoke, have eaten a healthy vegetarian diet for 20 years. It's so unfair, but none of it seems to matter - cancer doesn't care who you are 😞 I am encouraged by your posts, Josie and some others I've seen on here. I keep being told that it's normal to feel this scared once treatment has ended, but that doesn't really help! I can't stop crying and feel sick whenever I think about what could happen to me :'(