Finally, getting back to you Pam X. Our daughters doctor has in creased the chemo 6 treatments at 3 times the dose as last time with 3 weeks inbetween treatments. She has had her first treatment and it was really rough. She agreed to 1 more at triple strength to see if it is better than the first. She has lost hair, has some nueropathy and the hot flashes have come back too. But the worst was the bone pain. She said every bone in her body hurt.
She is getting Paclitaxel and Carboplatin this time. First time was Paclitaxel and Adriamycin.
The doctor said if it is that bad again he will do the remaining 4 at the lower dose but that would mean 12 more treatments to go. We will see how she does. Next treatment is Aug. 3.
She is doing a list of things, protein shakes, mostly, fruit and vegetables capsules, no soy. Plus B6 and sublingual B12. Some other things that the doctor advised. No sugar. Very little meat.
Continued prayers for all the gals and if I missed anything you asked, let me know.
I gave the book recommended to me for Tracy and also a book on what to have in the kitchen for cancer patients. Think I am going to bring the cook book back till she is back on solid foods. We can try some of the recipes in the meantime.
Deena
its official got my final result yesterday i am triple negative was grade 3 on biopsy then grade 1 when tumour was removed met oncologist yesterday who says it was borderline grade 2 so i would need chemo so im having Fec-T then rads at least i now have a plan ,been refered to lymphadeama clinic my L arm swollen since iumpectomy,this is pants
Pam x, just found out the doctor has increased the number of chemo cycles. Dont know the number yet. She is seeing him on the 18th. Will know more after.
Deena
It was almost 2 years exactly from the first surgery to the mastectomy. But she had been telling the doctors she felt something was wrong since right after the first surgery. That same breast kept itching. It was only her repeated urgings that they kept trying new tests till they found the new one. The initial itching may have been healing.
She feels totally clear now. Believes it is never going to happen again. I will find out the names of the chemos. She starts June 25th. The reason only 4 is because she had the mastectomy with the removal of the nipples and no node involvement. She had 2 opinions on treatment and they both said this was the right treatment.
Wish they would leave the message we are replying to--can't remember if I answered all you questions. I will check back after the 25th. Praying for you and all the other ladies on this site. I really appreciate Bel.
Just order a book she suggested from Amazon about Surviving TN and another I saw there. Will Post after I receive and read them.
By for now.
Deena
Bel, I really appreciate your upbeat, yet practical advice. Our daughter will be starting chemo for the second time with TN cancer. This time she decided to have a double mastectomy. She had expanders put in during the mastectomy and she is looking very good. After chemo and some healing time she will have implants and reconstructive surgery w building new nipples. Also a tummy tuck. She finds out the 18 when her 4 treatments 3 weeks apart will start.
We also have a neice who is a 5 year survivor of TN.
You are right about there being sad times, I cry occasionally too. She gives herself a set amount of time to cry and worry and then she says, Now, I'm getting on with Life. She always comes back to that.
Keep answering questions for the new gals and inspiring those of us who have loved ones that are kicking cancers behind. Thank you.
Hi not sure if I can call myself a surviror as such at this early stage - I went through treament last year
Diagnosis Feb 2014
Chemo April to July 2014
Bi lateral masectomy and lymph node clearance August - cancer was in left breast and lymph nodes
Radiotheraphy Sept/Oct 15 sessions
I am having my first six month check up next week
I was feeling pretty good, but now feeling very very tired and seem to ache all over??
Back at work full time
Starting to read too much about re occurance or spread in the first three years ! Not told much about triple negative when I was diagnosed but learning more - and a bit freaked out by what I have read - is this too much knowledge??
Good luck with your phased return to work, having something "normal" to focus on (rather than just BC) can be quite refreshing.
As for bras - I have tried lots, expensive ones that feel like they are cutting me in two, and lovely soft ones from the M&S post-surgery range. These have come on leaps and bounds in the 6 years since my surgery and the lost ability to wear underwired fashion bras. I don't wear a prosthetic but all my bras have the pockets for them. Plus in M&S you don't pay VAT on their post-op bras, you fill in a little card attached to the bra at the till with your consultants name and hospital - every little helps!
Oh Bel, it is Wonderful. So very happy for you and your friends and family. Grateful too, because it gives hope to those who are going through it now. Bless you.