Suzanne, I'm fine and managing to walk 2 to 4 miles a day. I'm 57 this year and was not very fit before treatment, if I were you I would mention this to your GP.
May you remain in remission for ever! You are an inspiration so brave xxxx. Thank you for taking the Tim to reply xxxx
Thanks Amanda! It's great you're back at work! Sometimes I think I have too much time in my hands and end up trawling through Tnbc groups and getting so sad whenever I hear of a recurrence or metastasis ....xxxxxx
We are all so brave. I'm just looking to cut out BPA from all my old Tupperware. We can just do what we can and hope for the best.
Hi ladies!! I am happy to see a thread of tn ladies! I was diagnosed end March 2015 and had neo adjunct chemo, lumpectomy and sentinel node removal and 10 rads...finished end November 2015. So basically I spent most of last year in treatment. I had my ups and downs, ended up in hospital on taxotere...but did get a PCr result which is supposed to be the best you can get right!? I am lucky to be feeling quite well physically ...mentally I struggle and seem to still find it hard to accept what's happening whilst at the same time paralyzed with the fear it will come back. I need your advice on how to move on.....the fact it's triple negative stops me in my tracks. I'm also very happy to read about the diets you are all on...me too 🙂 I look forward to getting to know you. Is this an active thread ?
Thank you so much for all your replies. I do understand about the dosage being related to your weight but as I weighed 7 st 12 oz at the start of treatment it does seem excessive. My oncologist has a very good reputation but I agree that I need to get tougher and make sure that I get the answers I need. Once again THANK YOU.
Sorry to hear here again. Here's my info...
On diagnosis sept 2013 I received 4 EC then 4 Piclataxol but my tumour was 31mm with known node involvement. I was given this first to try to shrink tumour to allow lumpectomy. I had a total medical response to the 8 chemos which meant the lump disappeared and nodes deceased turned to a glass like substance. I then had surgery With full node clearance followed by 20 rads. I know they measure the chemo against body weight so for heavier people the dose is higher. I know this because chemo I lost weight during and they said they might need to reduce dosage.
I hope this info helps and good luck with your treatment and remember that you can ask for a second opinion or transfer to another hospital if your not sure your getting the treatment you feel you need.
You also need to ask for an ultrasound to see how well the tumours are responding to the treatment. Then you can make a better judgement as they can change drugs if there is not much reduction.
wishing yiu well
Hi Vicky, I was diagnosed and treated for stage 1 tnbc 2 years ago with Epirubicin and CMF. I cannot answer your question directy but it is clear that your oncologist is not too reliable and that you have lost confidence in the decision making. I would definitely ask for a second opinion. This tnbc is a sneaky bugger. I would do my research on oncologists who have an interest in tnbc. You are entitled to a second opinion and most doctors will accept this. Don't worry about hurting his feelings or anything, this is YOUR LIFE!
Hope all goes well, Sue x
Hi most people get lower dose if it weekly mine was 195mg dose every 3 weeks it also depends on your weight to how much you can tolerate so lots of ladies get smaller dose if it weekly or other health conditions they give you as much they think you can tolerate hope this helps x
Hi, I'm new to this forum & I hope you don't mind me barging into your thread. I could really do with some advice regarding my personal situation.
I was first diagnosed with tnbc Nov 2012 when I found a lump in my right boob. The lump consisted of 10mm of idc surrounded by dcis making the whole mass 20mm. I had WLE & sentinal node biopsy (no node involvement). I had six cycles of EC chemo followed by 25 rads.
I did question why I was not given a taxane based chemo but can't even remember the reply I got.
Over the next couple of years I had various scans as I continued to find lumps in my right breast which always turned out to be cysts.
In June 2015 I saw my oncologist for a routine appointment & mentioned that there seemed to be a lump on my scar. I also mentioned that I had lost over a stone in weight in the last 6 months for no apparent reason. To cut a long story short I was found to have two new cancers in my right breast (17mm & 12mm), both tnbc
. I was told that they would perform another WLE which they did in October.
When I saw my oncologist he told me that he wanted to get some advice from another colleague before making a decision about further treatment but implied that he didn't necessarily feel that chemo would help. He rang me some days later and told me he hadn't managed to speak to his colleague & we had a chat about chemo possibilities. I told him that I would not be happy if they did not give me some kind of treatment as last time I'd had everything and it still came back. Eventually we agreed that I would have 4 x cycles of Docetaxel and depending on how I tollerated it would determine if I went on to have 2 further cycles.
I've now completed the 4 cycles and it has nearly killed me. I have questioned why I was given 156mg doses and was not convinced by the answer. The usual dosage appears to be 75 to 100 mg and that can be reduced if the side effects are severe.
I'm seeing my oncologist in 10 days and I will be refusing any more chemo. My main questions are
1. Has anyone ever had a local recurrence and not been offered a mastectomy?
2. Has anyone had Docetaxel and been given 156 mg dose?
3. Did anyone have EC for their initial tnbc?
Sorry this has turned into an essay
We all have our own paths and not one way is known to be better than other so go with what feels right for you and eat well, fresh organic if you can, exercise and remember the doctors are trying g to save us.
Chemo gave me a total pathological response which I wouldn't have had if I didn't do the eight chemos 4 EC and 4 Taxol. I know it's hard and the side effects are horrid and I nearly gave up on number 7 but the hospital were cute in sending in a professor to chat with me to get me to do the last two. They wouldn't do this if they thought it was not necessary. This is just my story and we all have to make our own decisions.
I had had the tingling plus lots of other SE but a year gone and that feeling has gone and I feel almost as good as I did before chemo. Just coping with rad effects and surgery effect now.
there is hope.
Hi Pam I had 3rd FEC on Wednesday so halfway through 3 T to go then 15 rads over 3 weeks. Side effects just a bit tired so far. I do fruit smoothies with hand blender but need to get a juicer for veggies what brand juicer do you use as there's so many to choose from. I know I need 1 that separates the pulp and that is easy to clean a couple I've seen are round about 100 pounds does that sound about right. How is your shoulder bye the way. Xx.
Hope everyone is okay. Just seen the news and picked up in the non drinking. I didn't drink much befiore getting cancer, maybe three drinks a year but now will not have any. Can't take risks.
been juicing and eating a lot of veg.
Whats happening with you guys?
I'm trying to put some goodness into my diet but still like my treats which I have often. But I do have smoothies every morning kale soinach ginger blueberries and also take vitamin D3 and biotin because my eyelashes keep falling out every few months I was stage 3 with 9 positve nodes and 2 tumours I was digonsed end of April 2014 x
I also opted for chemo first . My tumour was the size of yours at the start of chemo and now is a quarter of its original size and am waiting for my surgery in February.
I note from the threads that you are now eating more healthier. I have just begun to take linseed oil but what other changes have you made? Prior to diagnosis I ate a healthy diet but have to admit I did like sugar and exercised regularly.
I also have another really silly question I note you have had surgery. What did you take to hospital in terms of clothing etc.
Been eating broccoli since diagnosised and almost daily. We must remember that we also have to enjoy life.