Hi mooks sorry to hear of your diagnosis if you haven't already you may get better response on the secondary group which appears very active .DEN
Biggest bit of advice I can give is to be patient and accept you'll take a while to get back to normal. And you really can/will. I wasn't patient, longed for my life post treatment to immediately snap back into place. And was disappointed when it didn't. But, honestly, you need time to digest the magnitude of what you've been through. It's huge, and even more so when you're as young as I was/you are. I don't know re the periods, as I never did any testing and they just came back, but I'd totally insist on getting levels checked if that's what you want. Sometimes, I find, you have to push the NHS (assuming you're in the UK) for stuff!
Thanks Bel, yeah I don’t think I’ve really thought about how big of an affect this has had on me, it makes sense why I’m having anxiety really, I’ve just been so focused on getting better and trying to do more and move forward that I’ve not really thought about the impact of all of this on my mental state.
Regarding the periods, do we have our hormone levels checked or fertility checked or do we have to request this as I think it’s very important but no nurse or doctor has yet mentioned it
Sorry girls to keep bombarding you all with questions...
My op is on Friday, it’s a lumpectomy. I’m more nervous about the lead up than the actual surgery, apparently they have to inject this dye behind my nipple whilst having a mammogram, with no local anesthetic, I’m so nervous about this it’s going to really hurt. Mammograms are uncomfortable enough without a needle going into your breast. That’s then followed by another needle into the lump.
Im going to talk to doctor tomorrow but can any of you tell me about it, am I over reacting does it really hurt? xx
Hi ladies I have another question... I’ve asked my nurse when should I expect my periods to return after chemotherapy as they have now stopped and she said it’s likely they will because of my age, but I could go into early menopause and chemotherapy could have caused infertility. Please could you tell me what are your personal experiences with this? And is there anything I can do to help it happen as I just want to be healthy again.
Thank you xx
Breaking news for TNBC June 18, 2018
A combination of Keytruda (pembrolizumab) and Zejula (niraparib) has shown promising and durable response rates in triple-negative breast cancer patients, regardless of their BRCA mutational status. A pill a day is working for many testers.
Hi swallows I can't help with information regarding braca test but others will be able to . I had a mastectomy in 2014 followed by chemo . I had two lumps one only small both triple neg .no spread so just chemo . You will still be in shock once you have seen onc and know your plan your mind will settle to getting through chemo . When you get your date I recommend you join the forum with others going through chemo I found doing this helped . Take care of yourself DEN 🎀
I was diagnosed with triple negative breast cancer yesterday. 22mm, no node invoolvement, clearish margins. Tissue beyond is changing they said. I am glad now that had a mastectomy now, although with lumpectomy, they could have offered me radiatherapy as well. I am 53, so we was expecting the common, hormone receptive breast cancer, not this one. I have oncologist in two weeks time. I have only one child, a daughter who is 13 a I had her when I was 40. I have some family history but am not close to my aunts and they live abroad so am never really sure what is happening with them or my cousins. I asked for a BRCA test as I am worried about my daughter now.
I read somewhere that if you get the BRCA and it comes back positive, there may be another drug they can give you along with the Chemotherapy and also that you could join a trial? I will go back and check where I read this and let you know, but I can't remmeber at this moment.
Is there anyone who can send a ray of hope? I am shell shocked too and really worried, but glad I found this site.
Thank you for your encouraging Post. Our daughter is a 2 time triple neg cancer survivor. It has been 3 years since her double mastectomy. 5 years since her lumpectomy. After both she had both chemo and radiation. The first go round there was no Braca but the second time there was.
Again thank you for your encouraging Post.
Hi pam how you doing its a long time since you posted hope you doing ok can't believe it's nearly 4 yrs this summer I know you go on Facebook (I don't do Facebook) . Hi to everyone else hope all going well for you all its good to see some names I know are doing ok let's hope it continues . Best wishes to all 🎀
Sorry to hear about your diagnosis, Evosam. I was diagnosed with triple neg 16 years ago aged 31. I wasn't tested for BRCA at the time as we had no other family history, but some years later 2 cousins, both in their 40s, developed BC, and I was then tested and found to have BRCA1. I'm not sure how old you are, but I believe that if you are below a certain age (like 45?) & have been diagnosed with triple neg it's now fairly routine to be offered the BRCA test. But given your family members only died of the disease late in life, I guess there is a good chance it wasn't caused by the mutation, as they say a particular cause for concern is when family members are diagnosed young.
Personally, if in doubt I'd have the test. I'm glad I did, even though it's not much fun finding out about the mutation. But it does empower you to make choices. I had a double mastectomy & reconstruction 18 months ago and I am very glad I did this and have now reduced my risk of a new BC massively. I'm also very happy with the results of the surgery, something I hadn't anticipated!
Sorry to hear about your diagnosis, Evosam. I was diagnosed with triple neg 16 years ago aged 31. I wasn't tested for BRCA at the time as we had no other family history, but years later 2 cousins, both in their 40s, developed BC, and I was then tested and found to have BRCA1. I'm not sure how old you are, but I believe that if you are below a certain age (maybe 45?) & have been diagnosed with triple neg it's now fairly routine to be offered the BRCA test. But given your family members only died of the disease late in life, I guess there is a good chance it wasn't caused by the mutation, as they say a particular cause for concern is when family members are diagnosed young.
Personally, if in doubt I'd have the test. I'm glad I did, even though it's not much fun finding out about the mutation. But it does empower you to make choices. I had a double mastectomy & reconstruction 18 months ago and I am very glad I did this and have now reduced my risk of a new BC massively.
I was diagnosed today with TNBC, left breast 35 mm, no node involvement, clear margins. Appointment with Oncologist in 2 weeks, chemo starts then in around 4-6 weeks, then radiotherapy. Not sure whether to have this BRCA test done, I know my paternal grandmother died from breast cancer in her 70's and my maternal grandmother died from ovarian cancer at 85, but no other females in the family. Oh forgot to say had Lumpectomy 5th May.