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Anybody between exeter, newton abbot and plymouth?

foxyferret
Member

Re: Anybody between exeter, newton abbot and plymouth?

Twinnumber1 - pleased it went well and you're not feeling too bad. I've not had chemo so can only pass on advice that I've read here. Which is...please take your anti sickness meds even if you don't feel bad as it's much easier to prevent rather than cure, drink loads of water to flush the chemo through. Ooops just read back and see that you are. Love your sense of humour (Doesn't time fly when you're having fun?).

Netty - hope you're doing well today.

Sooz - that is just pants. To have psyched yourself up for for the results and they're not there is the pits. The waiting room is the worst place to be! You are entitled to be very grumpy indeed. Good luck next Tuesday. 'Force' at Exeter are wonderful, they will do anything they can to help you, just ask. They helped me no end.

Twinnumber1 has already started chemo (and joined the starting chemo in March thread) and I think both Sooz and Netty are likely to have chemo. I can't help you with that as I was lucky enough to not need it. So the best advice I can give you is to join your "starting chemo in........" threads as you will get invaluable support there. As, of course, you will supprt each other on here.

Somehow I get the feeling that I am quite a lot older than all of you (I'm 58) and I strangely feel quite "motherly" towards you all so please let me know how you're getting on.
Sooz
Member

Re: Anybody between exeter, newton abbot and plymouth?

Hi Girls

That happened to me [FF]with the post not showing (bliming gremlins).

Ha, Netty it is SO nice to have the drains removed. I don't know about you but its like I'm suddenly missing my little follower! (Nah crazy not gonna miss that)

I don't like the sound of giving yourself your own injection Twinnumber1. Hope your next sessions will be ok for you.

Today I turned up for my pathology report, clinic was running 35min behind, getting very anxious by the minute. Consultant calls me in "very sorry, but your results have not come back yet" WHAAAaaattt!!!! I was gobsmacked! Booked me another appointment for next Tuesday. All the waiting is the worst for me.

Still, I also have the Look Good, Feel Better session to look forward to - booked at 'Force' in Exeter (on 9th April too).

This forum is a nightmare for typing things in - it keeps disappearing!
(Sorry, I'm a bit grumpy today and everything is winding me up)

Best of luck to you all with your recoveries and progress.

Sooz x
Twinnumber1
Member

Re: Anybody between exeter, newton abbot and plymouth?

Ha ha - just seen I called it look "goof" feel good instead of look good.
Twinnumber1
Member

Re: Anybody between exeter, newton abbot and plymouth?

Hi Netty, Sooz and Foxyferret
So glad for you Netty and Sooz that your operations have gone so well and that you are both home and sound so happy. I'm sure you were glad to get rid of the drain Netty, I was very lucky and didn't need one. I did have some seroma fluid build up in the cavity for a few days and I sounded like a hot water bottle sloshing around for a few days but it soon got absorbed. Sooz - 8.5 hr op - good grief! But obviously well worth it. I'll be thinking of you both for your results appointments. I agree with you Foxyferret that it is amazing you can have bits chopped off with minimal pain! My op seems such a long time ago but it was only six weeks. Doesn't time fly when you are having fun!
Well my first chemo session went very well - definitely a case of fearing the unknown was worse than the actual treatment. T here was a bit of a delay as my chemo hadn't been made up but the nurse went through everything again for me. The treatment itself took about 2.5 hours and I didn't have any bad reactions to it nor the anti sickness drugs etc apart from she warned me one of them could give me the feeling of sitting in stinging nettles for a moment - I did get the weird sensation but it was very slight - thankfully!
I was sent home with a goody bag of drugs - anti sickness, more steroids (I had already had some to start the day before chemo), ones to protect your gut, antibiotics for days 5-14, and an injection (to help the bone marrow produce white blood cells) which my twin sister gave to me today. A bit nerve wracking as it was the first time she had done an injection but it was easy, it's only a subcutaneous one which goes just under the skin. As for all the pills, I had to buy a diary to enter everything I have to take and tick them off as I go as I would never remember it all!
As for any side effects I have felt slightly nauseous but the drugs have kept it at bay and I've been a little light headed. However the nurse said that any side effects I do suffer from will generally kick in on about day 3 so ...... we shall see. I've been drinking plenty of fluids as this helps some side effects (bladder irritation is one of the side effects of the chemo I am on) and eating little and often.
Netty, I'm already booked on the look goof feel good class and guess what, I'm booked on the 9th April in the Mustard Tree. If you don't have to cancel, I'll see you there. My next chemo is on 3rd April so as long as I'm feeling ok, I'll be there.
well, time for bed. Best wishes to you all.
Jess xxx
foxyferret
Member

Re: Anybody between exeter, newton abbot and plymouth?

Sooz - I did reply to you last night but the Gremlins seem to have stolen the post. I am so glad that all went well and you are delighted with the results. Yes, the physcological feeling of not having lost your breast must be good but ...eight and a half hours? Good grief. Also very pleased that your pain is well under control.

Netty - also so pleased that things have gone well for you. You obviously made the right decision to get it done and go home. Glad you're also able to reduce the pain medication.
I still have trouble believing that we can be cut open, parts of us removed and it's not THAT painful!

I hope both of you have the good old "uneventful recovery", BUT if you have any concerns about anything at all get in touch with your Breast Care Nurse (BCN) and ask. Don't wait to see if "it goes away" get advice.

I hope both of you get good news at your next appointments for your pathology reports.
Keep up the exercises!

Twinnumber1 - I hope you're ok and your se's are few, please let us know when you can.
Netty_E
Member

Re: Anybody between exeter, newton abbot and plymouth?

Hi all,
What a load of lovely messages to come back too!
op went well on monday, ended up coming home instead of staying the night as they were short of beds and there was a risk we could have sat there all day and still not have been operated on - so hubby and i decided we'd prefer to go ahead and he'd look after me at home.
Drain came out today - was so glad to see the back of it!!
i've started doing my exercises, and i've reduced pain meds so so far so good!
go back on 26th marh for histology results! fingers crossed they got it all,especially as they told me on monday that the lump was bigger than the original mammo had said (well according to the MRI!).
Foxyferret - long may the unpainful mammo's continue!
sooz - i'm so pleased that your doing well and are happy..... good place to be i think
twinnumber 1 - how did the chemo go on wed? have u booked in for the look good feel good class at the mustard tree? on tuesday afternoons?? i'm booked in gor 9th april. but may have to cancel - u could have my space maybe!
as always hugs to you all
Netty x
Sooz
Member

Re: Anybody between exeter, newton abbot and plymouth?

Hi Girls,
I'm still around - Got out of Hospital yesterday.
Well what can I say but I'm totally amazed and astounded with how it all went for me.
Last Wednesday was the Op for Mastectomy (LB), SLNB and immediate reconstruction (DIEP) although PS had no choice but to take a fine slither of muscle too.
The operation took eight and half hours, I've NOT been in any pain whatsoever, kept under control with Morphine, paracetomal, ibuprofen, then later morphine reduced to Tramadol.
The results are amazing, I am so pleased I chose the immediate roconstruction as mentally (pyschologically) I feel I have NEVER lost my breast.
I am badly bruised, swollen and breast is numb, I was terrified to have my stomach cut from hip to hip, but I didnt need to be, the end result is well worth it.
I have my Histology appointment on Friday to discuss my treatment plan, I have been pre-warned I will definately be on Hormonal treatment and most likely to have Chemo too. Fingers crossed I wont need radiotherapy as this could affect the reconstruction (the lovely job the surgeon has done creating my new breast).
Exeter's RD&E was good, there main concern was that you were comfortable and not in any pain.
Netty - I hope things went just as well for you too.
Twinnumber - Hope the Chemo went ok today, let us know how it was for you?
Thanks for asking after me Foxyferret.
Best wishes to you all
Sooz
foxyferret
Member

Re: Anybody between exeter, newton abbot and plymouth?

I've just counted them up and this was my sixth mammo and the first that wasn't painful. First five were very ouchy! Don't know why...can't explain why.... perhaps some radiographers are better than others???
Glad you've joined the March thread for chemo. I'm sure you'll find them a great source of support and useful advice.
Good luck.
Twinnumber1
Member

Re: Anybody between exeter, newton abbot and plymouth?

So glad it didn't hurt - I must say the ones I had (the only ones I've had) on the day of the tests were VERY painful. However, my twin had mammogramfollowing my diagnosis anod her's didn't hurt a bit! Thank you for directing me to the "Spring into chemo in March" - I joined them couple of days ago and it's really helpful.
all the best
foxyferret
Member

Re: Anybody between exeter, newton abbot and plymouth?

Thank you for asking Twinnumber. The mammogram was fine, I was expecting it to really hurt as my affected boob is very tender after the rads. It was the first mammo that i've ever had that DIDN'T hurt. I was amazed and grateful. Little bit achey today but nothing to speak of.
Only downside was that results will take 4-6 weeks! When I said this was a long time the radiographer said they might come sooner. As I feel only bad news will come sooner I don't want to hear for at least 4 weeks!
Have you seen/joined the "Spring into chemo in March" thread? If you haven't found them, please have a look, you will get wonderful support and tips on how to cope from them. Every month there is a chemo thread and the ladies on them all say that it is of enormous benefit to talk to others going through the same thing.
Thank you for explaining the Mustard Tree, make the most of that. Wigs, beanies, scarves, keep your options open but in the end it's your choice. Glad you had a lovely lunch with the girls.
Once again - good luck - hope your SE's are small.

Netty - hope all is ok, thinking of you. Hope you're at home and recovering well. (Don't forget the exercises!)
Twinnumber1
Member

Re: Anybody between exeter, newton abbot and plymouth?

Ps Foxyferret - how dI'd you get on with your yearly mammogram on Monday? X
Twinnumber1
Member

Re: Anybody between exeter, newton abbot and plymouth?

thank you Foxyferret - a little bit nervous but also "eager" to get it started. Finished work today by having a lovely lunch with the girls. The Mustard Tree is the Macmillan drop in centre at the hospital. I have a wig consultation there at the end of the month but still haven't decided whether I will have one - I quite like all the beanies etc.
Netty - I hope everything went ok for you yesterday and you are now at home. Take it easy and get plenty of rest.
Jess x
foxyferret
Member

Re: Anybody between exeter, newton abbot and plymouth?

Best of luck for tomorrow Netty. Glad that you have "met" someone at the same hospital as you. Hope you can meet up at the mustard tree (what on earth is that?).
Sooz - are you out there ? How are you doing?
Twinnumber1 - glad you're ok and back at work. Good luck with the chemo on Wednesday, hope your side effects are few.
Twinnumber1
Member

Re: Anybody between exeter, newton abbot and plymouth?

Hi Netty
I hadn't realised you were having your lymph nodes out and staying overnight in hospital - I was very lucky being able to go home the same day. I had two and a half weeks off work and then worked mornings only for 2 weeks. Have only just gone back full time and now will be starting the chemo so will have to see how I get on with that. Not sure I'll be up to much for a while.
would love to meet up for a coffee one day and to have a chat - once you've got over your surgery?
Best of luck for Monday.
jess x
Netty_E
Member

Re: Anybody between exeter, newton abbot and plymouth?

Hi Twinnumber1
i aspire to have a similar experience to u! as i could really do with being back at work within 2 weeks!
i'm having my lymph node out so that means i'll be experiencing derriford overnight!
if you ever fancy meeting up PB and we'll arrange something - or we can leave it to fate and see if we bump into each other at the mustard tree! ha ha

hugs
Nettyx
Netty_E
Member

Re: Anybody between exeter, newton abbot and plymouth?

Hi foxyferret
funnily enough its the asda sports bras i've brought! clearly great minds think alike.
thank you for the warning regarding the numbness and the sharp pains.

i'd take it as a good sign that there are things you've forgotten!!

thanks for your messages
Netty xx
Twinnumber1
Member

Re: Anybody between exeter, newton abbot and plymouth?

Hi Netty
I’ve just joined the Forum, I’ve been meaning to for a while now and have finally done it today. I see that you are in Ivybridge – I live in Plymouth.
I had WLE and SNB on 30 Jan at Derriford and it all went very well. Had the radioactive dye at 10 am and then went through the admission admin and then operated on at about 1.30 pm. I was awake by 4.30 and then home by 6.45. I took the paracetemol and Ibruprofen as instructed and also did my exercises and was back at work just after 2 weeks later. My treatment plan includes chemotherapy though and I’ll be starting that on Wednesday (13th).
I wish you all the very best for Monday. Best of luck.
xx
foxyferret
Member

Re: Anybody between exeter, newton abbot and plymouth?

Hi Netty,
I found asda sports bras were the most comfy but as I'm pretty small breasted (even smaller now!) I usually went without!
I forgot to say that numbness is to be expected (it's only now, a year on, that I can feel it when I apply roll on deodorant!). Little niggly/sharp pains, lasting a nonosecond, I was told are the severed nerves regenerating themselves.
Glad you've got the shirts, you will need clothing that buttons at the front. I am surprised that I have forgotten some of the things that made life easier at the time. I suppose it shows you that life moves on and we forget these horrible times.

Best of luck,
FF
Netty_E
Member

Re: Anybody between exeter, newton abbot and plymouth?

Hi foxyferret,

thank you for the advice - i'll bear it in mind and will make sure i do my exercises! especially as i will be having radiotherapy at some point.
i've got my comfy bra's ready, shirts to slip into, and lots of books to read so i'm set as much as possible for monday!!

see you on the other side

Netty xx
Netty_E
Member

Re: Anybody between exeter, newton abbot and plymouth?

GMT - thank you for your message - i have to admit i can't fault derriford hospital. they have been great - and long may that continue. it was a shame you had to experience it but at least you had a positive experience.
thank you again for sharing
Netty xx
GMT
Member

Re: Anybody between exeter, newton abbot and plymouth?

Hi, I'm not from your area but just wanted to say how good I found Derriford hosp. I was on holiday last year, the 3rd week of 3 week cycle of my fourth chemo when I should have been feeling well. To cut a long story short, I ended up on the oncology ward at Derriford for 4 days due to very low blood count and in danger of infection. They were very kind and the care very good. Hopefully you may not get to experience the oncology dept but if you do, I hope you have the same experience as me.
Best wishes as you start your journeys, I'm a year on from diagnosis,
much love
Gaynor xx

foxyferret
Member

Re: Anybody between exeter, newton abbot and plymouth?

Hi Netty

I had WLE and SNB (sentinel node biopsy) together. I'm guessing you've already had the SNB as they are removing your lymph nodes (ANC = ancilliary node clearance).
The WLE never caused a moments problem, the SNB was more painful, paracetamol took care of it. I was really surprised when I was discharged from hospital (day case) with just paracetamol but it was ok.
I can't say as to what a ANC is like but I do know that you MUST DO THE EXERCISES that they give you. They are really important to your mobility and....if you need radiotherapy you will need to get your arm above your head!
If paracetamol doesn't work for you get something stronger!
Getting comfortable in bed is a little bit difficult. I found sleeping sort of sitting up was best so I would suggest one of those V shaped pillows and another small pillow to support your breast.
I too was petrified but it's not that bad (it's the fear of the unknown!) I'm here on the other side of it and you will be too.
Get on to your BCN (breast care nurse) if you have any questions - they are there to help.

Thank you for the hug and your good wishes for Monday.
I hope all goes well for you, and I hope this has been helpful. Please post when you are able as I will be wondering about you. Good luck!

FF
Netty_E
Member

Re: Anybody between exeter, newton abbot and plymouth?

hi foxyferret

i'm having a wle and lymph nodes removed (haven't learned that acronym yet). petrified as never had op before but guess its one of those things.
and all the best for monday!!!

hugs
Netty x
foxyferret
Member

Re: Anybody between exeter, newton abbot and plymouth?

Sorry, just that little bit too late to advise you, sooz, about the pre-op and sentinel node radioactive jab. Wish I'd seen this sooner but thankfully not too late to wish you all the best for your op tomorrow.
Good luck to you too Netty.E for Monday. Are you also having mx? Or wle? I had two of the latter so can tell you of my experience with them if relevant but I was lucky enough to avoid mx.
I'm having my first yearly mammogram at the RD&E next Monday, scared stiff but hey ho, just another thing to get through.

Best of luck to both of you, please post when you can I will be thinking of you.
Netty_E
Member

Re: Anybody between exeter, newton abbot and plymouth?

Hi sooz
Are u being treated at Derriford? i was there this morning for my pre-op. i did not like the swobs up my nose!! but hey i guess things are going to get worse than that!
i go in next mon for my op.
Exmouth is long way from me as i'm in ivybridge, just outside plymouth but hey we've found each other now so can keep in touch and maybe meet one day when we've kicked this things butt!
hope your doing ok.....
hugs
Netty
Sooz
Member

Re: Anybody between exeter, newton abbot and plymouth?

Hi Netty
Dont know whether Exmouth is that close to you, but willing to meet up. Looks like we're both at the same stage at the moment with the awful waiting (roll on Wednesday), I have my pre-op assessment and sentinel node scan being done on Tuesday.
Dont know what to expect at the pre-op so would be interested to hear from others. Also have been warned the radioactive substance that gets injected to locate the main node can sting, anyone wish to share their experience on this?
Sooz x
Netty_E
Member

Re: Anybody between exeter, newton abbot and plymouth?

Hi thank you sooz, foxyferret and alto for your replies and for bumping me up!! lol
i guess i was just interested to see if i could find someone nearby who i could meet up with for a natter - i'm due in for my op on 11th and then i'll be at the mercy of my hubby and then my mum whose visiting!

Netty xx
Sooz
Member

Re: Anybody between exeter, newton abbot and plymouth?

Hi Netty
Not far from you, Exmouth.
First time I've used this forum.
Due for mx Op next Wednesday with immediate reconstruction (diep).
How can I help?
Sooz x
Alto
Member

Re: Anybody between exeter, newton abbot and plymouth?

Bumpetty Bump

Sorry, I'm many miles away but don't want this to slip off the first page 🙂

Jane xxx
foxyferret
Member

Re: Anybody between exeter, newton abbot and plymouth?

Not quite, but nearly, I'm the other side of Exeter. I'll help if I can and at the least my reply will bump your post into Latest Posts where it will be seen by many more ladies, who may be nearer.
Netty_E
Member

Anybody between exeter, newton abbot and plymouth?

hi
was wondering if there is anyone out there located anywhere between exeter,newton abbot and plymouth?

Netty xx