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Anybody from Norfolk out there in the ether??

59 REPLIES 59
joy-joy
Member

Re: Anybody from Norfolk out there in the ether??

Hi sarah....I am only a few miles down the road in cambridgeshire,....I had my lumpectomy amonth ago and my sister a mastectomy 6 weeks ago....its pants...but all the staff have been great...let me kniw if you woukd like to meet up I love that farm shop at elvdon....hope you have had a good Christmas day.....joy

JETS
Member

Re: Anybody from Norfolk out there in the ether??

Hi

This post looks a bit dated now but thought I would try to resurrect for a bit of local contact.  I'm south of Norwich  (near Attleborough) - diagnosed early Dec with masectomy booked 12 Jan.  Feeling very lonely as also got dealt 'husband of 20 years left me' in Nov about a week before my first GP appointment....you couldnt write it all!  Im in NNUH and they have been overwhelming with kindness.

I am up for coffees etc whenever I can get drive again.....let me know if anyone wants to meet...

I was given a leaflet about the big c at NNUH but have no idea where it is on the grounds - can anyone signpost me?

 

Sarah

Atat
Member

Re: Anybody from Norfolk out there in the ether??

Yes, I'm here. Live in Norfolk. Had good surgeon at nnuh but dreadful delays over radiotherapy. Anyone else had the same problem there?
Atat
jillybee
Member

Re: Anybody from Norfolk out there in the ether??

AJfan,just seen your post....your consultant a certain Ms.A.......just fabulous,isn't she.where do you live??
AJfan
Member

Re: Anybody from Norfolk out there in the ether??

HI I live near Bury St Edmunds, and having treatment at WSH. I bet your consultant is the same as mine, as yes she is great.Only see her every 3 months now.
jillybee
Member

Re: Anybody from Norfolk out there in the ether??

Just found this site, am a suffolk girl, well, a Londoner really, bit lived in EA for 30 years., I think I know the lady consultant from WSH, she is mine, just fabulous, isn't she.

Biddlybee
Member

Re: Anybody from Norfolk out there in the ether??

Hello all norfolk dumplins! Going to see the oncologist at N&N on 20th Sept for my chemo plan. Dont know if I will be a Sept Star or an Oct Optimist yet! Marie, have you finished your rads treatment now? Hope all well x
nanniereeree
Member

Re: Anybody from Norfolk out there in the ether??

Evening norfolk dumplings I have been told I'm to have rads after chemo so I have opted for NNUH rather than Addenbrookes as my daughter works there. So I may see you in the rads suite but I don't go toil August they are just getting ahead...
Marie
Mazzalou
Member

Re: Anybody from Norfolk out there in the ether??

You will be in excellent hands at the West Suffolk, Jiggyjoo, especailly if you are seen by my lovely lady consultant. I am a bit ahead of you as had my 2 year follow-up last month and sadly waved goodbye to my consultant, altho the BCN team are still there for me as I am on the waiting list for my nipple tattooing later this year. Let me know how you get on and love to all the other Norfolk/Suffolk ladies out there

susieseaside64
Member

Re: Anybody from Norfolk out there in the ether??

Hello again Philomena and hello to jiggyjoo
I'm now halfway through rads and not feeling too bad so far apart from quite tired and a sore nipple!
Good to see you are halfway through chemo Philomena - hope all goes well for you.
Staff are lovely @ N&N and I've been having some foot reflexology at the Big C Centre....heavenly!
I live on my own ( parents deceased and no children) and friends have been lovely but have busy lives, so it's been good to be able to drop into the Big C after appointments for a bit of company and a cuppa rather than go home to an empty flat. Sat outside in the garden reading for quite some time after my oncology appt.
I can also recommend the yoga badminton and aquafit groups for women with or who have had cancer at the Sportspark at UEA for anyone who lives close enough. Coral who runs it is lovely and the ladies in the yoga group I go to have been very supportive and Suzie the teacher is great.
Hope your appointment in June goes well jiggyjoo.
Sue x
jiggyjoo
Member

Re: Anybody from Norfolk out there in the ether??

Philomena, I do completely agree with you about N&N - they were amazing in their care and attention. The chemo nurses were so lovely,also the Radiotherapy dept. I was treated 2011/2012 and have since then moved from Norwich area to Suffolk/Essex border. I am now under Bury St.Edmunds hospital - nervously waitig for my 2 year from diagnosis appointment on June 11th.
Congrats on reaching the halfway stage of your chemo and hope the rest of your treatment goes well.
x

Philomena_b
Member

Re: Anybody from Norfolk out there in the ether??

Hello Norfolk /Suffolk ladies,
I have noted that this site hasn't been used for sometime, hoping to revive this...
Iwas diagnose with grade 3 aggressive/ invasive BC triple neg. Yesterday I had my3rd FEC chemo so am congratulating myself on being halfway Through treatment.
I live In Norwich so lucky i do not have to travel far for my treatment. Have to say the staff at the N&Nhave been awesome from the domestics and volunteers to the specialist consultants, I feel very lucky to be cared for by such a wonderfulbunch of people.
pepihorse
Member

Re: Anybody from Norfolk out there in the ether??

Hi Little maker, I am on the Norfolk Suffolk borders too! but was treated at NNUH. Best wishes with your treatment x

susieseaside64
Member

Re: Anybody from Norfolk out there in the ether??

Hello little maker
I hope your recovery from Mx is going well.
I had 2nd WLE to get clear margins (phew!) and I'm waiting for rads. May have to have plastic surgery next year as my scar is very pulled in and my boob is a rather strange shape! Still consider myself to be very fortunate that it was caught so early with minimal treatment 🙂
Best wishes

Sue
nanniereeree
Member

Re: Anybody from Norfolk out there in the ether??

Hi littlemaker and welcome I'm in kings Lynn and at the QEH getting treatment. Was DX on the 27th feb with grade 2 Invasive breast cancer had right mx on the 25th march seeing oncologist on wed the 25 th April.
this is a brill site for info and help
Marie
little_maker
Member

Re: Anybody from Norfolk out there in the ether??

Hi all. I'm new to this - got diagnosed 19March with grade 3 tumour had left Mx on 15 April at jpuh and will also be h having chemo. I live on coast between norfolk Suffolk borders a n d just wanted to say hello!
susieseaside64
Member

Re: Anybody from Norfolk out there in the ether??

Hi there Philomena.b
I agree with you about the Big C centre although I have only been once so far. I expect I'll be dropping in once my rads sessions start. I baked cakes for friends who came for afternoon tea and they donated £30 so I have that to take in anyway.
I hope your chemo goes ok without too many SEs.
Sue x
Philomena_b
Member

Re: Anybody from Norfolk out there in the ether??

Hi Norfolk Ladies.
I was diagnosed with BC in Feb. I have had my lumpectomy and will start on Monday chemo (FEC). I live in Norwich and have found all my care so far top notch. The Big C is great, really nice to meet and speak to others who know how you feel.
Mazzalou
Member

Re: Anybody from Norfolk out there in the ether??

Hi there nanniereeree Marie
Welcome on board although it's a real bummer having to be here in the 1st place. I have had the 'Full Monty' treatment with my mx 2 years ago and then 6 chemos (3FEC and 3 docetaxels) with 15 rads and a years worth of herceptin all done at the West Suffolk in Bury St Edmunds apart from the rads at the NNUH and I live in Thetford. In some ways I'm glad that I have had the 'full Monty' as I know that I have thrown everything available at it and there's no 'I wish I had had that' about my treatment. As my surgeon said to me before my mx 'this time tomorrow your bc will be out and in the bucket' and the rest of my treatment was my insurance policy against a recurrence as my lymph nodes were clear. Fingers crossed for your results, and at least if you do have to have chemo you should be done and dusted before your half a grandchild is born so something really special to look forward to.
Take care
Mazzalou

nanniereeree
Member

Re: Anybody from Norfolk out there in the ether??

Hi susieseaside64,
half a grandchild still in the oven lol . Due in Oct.
The QEH has been great so far.. I know one of the chemo nurses there at NNUH her name is Sharon she is crazy but lovely.
I am going with the attitude that I will need everything and if I don't that is a bonus
I to that name when I was younger a friends sister who had lukemia called me myree as she could not say Marie and when I got grandkids that just stuck nanniereeree
Marie
susieseaside64
Member

Re: Anybody from Norfolk out there in the ether??

Hello nanniereeree
Love the name by the way!
I'm having treatement at NNUH and so far it's all been good. Staff have been lovely. How has it been at QEH?
I had my second WLE Thurday - no date for results as yet. Hopefully within a couple of weeks.
Half a Grandchild??? I am intrigued..... 🙂
Hope your results are ok.

Sue x
nanniereeree
Member

Re: Anybody from Norfolk out there in the ether??

Hi ladies another Norfolk dumpling just been dx this month I am at kings Lynn my daughter works at NNUH but I am at QEH had mx mon results next week .i am 52 married for 34 years 2 children 2and a half grandchildren
Mazzalou
Member

Re: Anybody from Norfolk out there in the ether??

Hi
If anybody else is around Waitrose in Wymondham on Tuesday around 1pm perhaps you might like to join Susieseaside64 and me for coffee.
The more the merrier!

Mazzalou
Member

Re: Anybody from Norfolk out there in the ether??

Not sure if you have cracked it yet Susie but I have messaged you so you should receive an email too to let you know. You can also log in and check your messages here. hope to hear f rom you soon

susieseaside64
Member

Re: Anybody from Norfolk out there in the ether??

When I click on 'Messages' I just get 'No messages available' and no tabs! Thaat's what confused me yesterday...
Good job we are planning ahead!
Mazzalou
Member

Re: Anybody from Norfolk out there in the ether??

Just click on messages which you will find to the left-hand side of this page near to the top under the heading People. click on the tab -New Message' and be sure type in Mazzalou in the recipients box with the message you want to send to me. You can always type your email address in there and then we can communicate via emails which is probably much easier!
Looking forward to hearing from you soon Susie
xxx

susieseaside64
Member

Re: Anybody from Norfolk out there in the ether??

How do I message you Mazzalou?
susieseaside64
Member

Re: Anybody from Norfolk out there in the ether??

How do I message you Mazzalou?
Mazzalou
Member

Re: Anybody from Norfolk out there in the ether??

Well done on your good news Sue. I can do Tues, Wed or Thursday lunchtime next week in Waitrose and then I have 2 weeks off so it would be lovely to meet up before your surgery and Rads. I can go to lunch anytime between 12 and 2 so let me know what is good for you. If you message me I'll let you have my home email address if easier to arrange something.
Anybody else out there who wants to join us please - the more the merrier?
Looking forward to seeing you Sue - I know what you look like from your photo so let's hope that the White Rabbit from Alice in Wonderland doesn't turn up too to confuse me!!!!
xx

susieseaside64
Member

Re: Anybody from Norfolk out there in the ether??

Hi Norfolk ladies
Results pretty good today as still no invasive cells but need more clearance so have to go back for more surgery on 28/3 then rads after.
Anyone fancy descending on Waitrose cafe in Wymondham next week? I can fit in with you Mazzalou.
Sue x
susieseaside64
Member

Re: Anybody from Norfolk out there in the ether??

Sounds a good plan Mazzalou. Will let you know after results so can I plan again - hurray! XXX
Mazzalou
Member

Re: Anybody from Norfolk out there in the ether??

Just to say that I will be thinking of you on Wednesday Susieseaside64 so if you fancy spending your coffee voucher over at Waitrose one lunchtime Tues, Wed or Thursday please let me know as I have been there, done it, and come out the other side with the scars to prove it!!! Seriously, next Monday the 11th of March, will be exactly 2 years since I ound 'my lump' and my world seemingly turned upside down. Here I am 2 years later with hair and a gorgeous grandson Max who was born on December 15th so life is soooo much now than 2 years ago. This Thursday is my birthday too so another cause for celebration.
Can I just extend my invitation to coffee at Waitrose in Wymondham to anybody out there who would like to meet up? Just message me and I am sure we can sort something out so look forward to hearing from you! I work in Wymondahm, live in Thetford and regularly visit Bury St Edmunds, but thankfully my visits are now social as opposed to chemo or herceptin!
As for the Big C Centre, it is a resource for everybody as all our needs differ and they have a really good selection of reading matter that you can borrow or peruse. Just by going you will be supporting the centre which will enable it to be there for future users.
Yes, there are lots of us Norfolkians out there - even if some of us are very south of the county and have their treatment in Suffolk so once again - 3 cheers for the West Suffolk Hospital in Bury St Edmunds where I had all my treatment, other than my rads which were done at the NNUH.
Thank goodness that we are well served here in East Anglia by the NHS
xxx

Marie_67
Member

Re: Anybody from Norfolk out there in the ether??

Hi Churl,
I to am from Attleborough, I was diagnosed in Dec 2011 then had treatment in 2012 at NNUH we may even have been having treatment at the same time.
Jane

Churl
Member

Re: Anybody from Norfolk out there in the ether??

Hi 🙂
I'm also in Norfolk, Attleborough to be precise! Think I was considered to be a 'younger one' at diagnosis in 2011 at the age of 36. Had mastectomy, chemo, rads and am currently on herceptin number 12 (just 5 more to go woooooo hooooooo!) all treatment was at N&N which I must say, has been fab! My oncologist is great and everyone at the Conley centre is so friendly. The Big C is a fantastic place, I haven't been in recently but in the early days it was a great place for information, or just somewhere friendly to 'hang out' between appointments. I did the scarf tying workshop and the look good feel better session, both helped hugely in making me feel confident going out with the headscarf on!!! Having four children I still had to do the school run etc so had to make the best of a bad situation!

So it would appear there are a few 'Norfolkians' out there 🙂
susieseaside64
Member

Re: Anybody from Norfolk out there in the ether??

Hello all
I'm also in Norfolk, Swardeston just south of Norwich.
I've had WLE and waiting for results on 6/3. I work in Wymondham (and have a Waitrose card for free coffee!)
Haven't been to the Big C Centre yet as only had a relatively minor op so far and thought I the resources may be better used by some of the ladies who have had more of a difficult time, but i wouldn't rule it out in the future!
I use mindfulness and yoga which has been very helpful.
Happy to meet up for a cuppa 🙂

Sue
cornetbabe
Member

Re: Anybody from Norfolk out there in the ether??

Hello fellow Norfolk ladies
I'm new to all this, having been diagnosed only last week. I have a grade 3 lump - that's all I know about it at the moment. I'm currently waiting for an MRI scan. Was hoping to get in this week but the scanner is playing up, so appt is on 11th March. After they look at the scan they'll decide their plan of action. I know it'll involve surgery and probably chemo (as I'm a 'younger woman' they normally do chemo apparently). I'm hoping I can get away with a lumpectomy rather than a mastectomy but we'll have to see. Just hope it's not spread too far.
I live in North Walsham so my treatment will be at the NNUH - glad to hear good things about it! So far I've been very impressed with the consultant and the breast care nurse I saw last week. Didn't feel hurried at all AND got a cup of tea and biscuits!
I'd be more than willing to meet up with anyone in the same boat. I'm 40, work as a Health visitor and enjoy playing cornet (hence the name) in Cawston Band.
Rachel x
Mazzalou
Member

Re: Anybody from Norfolk out there in the ether??

Hi Skippy9
It wasn't me having a blood transfusion - I only went to the NNUH for my rads in Nov/Dec 2011 and had to have one of my herceptins whilst I was there too rather than have to go to the West Suffolk in Bury on the same day.
I also work for the Police at OCC, but not as an officer. Do let me know if you would like to meet up for a coffee at Waitrose before your op on the 20th of this month.
Keep smiling ladies - you'll be fine. Trust me as I have been there, done it and got the T-shirt too!
xx

skippy9
Member

Re: Anybody from Norfolk out there in the ether??

Hi Mazzalou, just a quick question were you having a blood transfusion in November and met someone who works in the police (my husband) when I was having my tranfusion?
I don't do much heavy lifting or hoovering or anything at the moment!!!!! My fingers are too sore so thats my excuse!!!!
Must agree parking is rubbish at the NNUH which you do not need on top of everything else.
Thanks for your advice

xxx
Mazzalou
Member

Re: Anybody from Norfolk out there in the ether??

Hi there, Skippy9
Fancy you living in Wymondham as I work there at the biggest employer in the town, just across the road from Waitrose - I am sure you can guess where this is. I work there on Tuesday, Wednesday and Thursday so if you fancy meeting up for a coffee in Waitrose one lunchtime just message me and we can arrange a chat over a coffee.
In the meantime, I had my mx with immediate reconstruction in April 2011, followed by 6 chemos - 3 FEC and 3 Docetaxel, 15 rads and 18 herceptins. All my treatment, other than the rads was at the West Suffolk Hospital in Bury St Edmunds and the rads was at the NNUH. Your mx op is nothing to worry about - I was up and about soon after getting back from theatre and eating a sandwich too. As Willowcat says the must annoying thing is having to have drain bottles attached to you, but the 1st one was removed after a couple of days and the 2nd one a few days after this. I also had to keep a record of how much was in the bottles each day so not for the faint-hearted, altho you carry them around in a shoulder bag and tuck the tubing inside the bag. The tubes are quite long, but this is so you can sleep with the bottles on the floor by your bed, and even have a bath with the bottle over the side of the bath on the floor. I honestly don't remember being in much pain or discomfort, but you will be given painkillers to take anyway. Do make sure that you do your exercises after your op, and also if you are having rads as this can cause your muscles to tighten. I have just had my recon redone a month ago as the rads had caused it to distort - a known side-effect, but this was even more of a doddle as no drains this time - just no heavy lifting or hoovering
Docetaxel is a killer and remember that the effects of chemo are cumulative and that is why you feel worse now. Your finger nails will take quite a long time to recover so keep them protected with a clear polish/strengthener. you may also find that your eyes may water profusely too now that you have had your last one and this will cause your nose to run as well - not a good look!
As for you rads - the worst bit is having to find parking everyday at the NNUH ! I live in Thetford so it was a daily trek up the A11 in the run-up to Christmas 2011, but before you know it you will be done. Other than doing your post-op exercises make sure you slap on the aqueous cream, not just on your boob area, but up to your neck and underarm and down to your waist too and leave off the deodorant. Use a non-perfumed soap and shower gel/bath foam and drink plenty of fluids too and try to wear something really soft made of natural fibres next to your skin - I wore Sloggi crop tops - but watch the purple ink that they mark you with as it has a tendency to come off on your clothes!
The very last piece of advice that I can think of at the mo is that if you are worried about anything then speak up and somebody will be able to reassure you and put your mind at ease. The Big C Centre is there too, but if you are having rads then you may not be able to have a massage for a while, but they do head massages which are lovely and help to stimulate the blood flow to encourage hair growth, as well as reflexology too.
Don't forget - if you fancy meeting up just send me a message and you can see for yourself that my hair has grown back!
Good luck - I'm sure you will be fine
Mazzalou xxx

Marie_67
Member

Re: Anybody from Norfolk out there in the ether??

Hi I live at Attleborough, I had mx Dec 2011 and then ANC Fef 2012, followed by 6 FEC-T and 15 fractions rads. Not had recon yet.The pain after op was quite minimal, I am still numb around scar and under arm and despite doing arm exercises I still a year later don't have full range of movement, I also developed some cording which was bloomin painful, but that has now settled down. I am now back at work full time, and just had first proper haircut!!!!
Have first follow up with surgeon 22nd Feb.
xxx

willowcat
Member

Re: Anybody from Norfolk out there in the ether??

Im not sure about all the terminology , but I had chemo first then mastectomy and I will be having radiotherapy starting valentines day. I was very nervous and worried about pain also, I didnt even realise I had had operation, they put me out, and it seemed like I had just turned away whilst tsalking to one of the nurses turned back and she said "all done" I couldnt believe it!!Not much pain , but very numb and afterwards shooting pains a bit when drugs started wearing off, bit sore under arm,the most annoying thing was wandering about with a couple of little tube things leading to two small drain things I had to carry around in a little bag over my shoulder, but that lasts a few days and the nurse comes to your home and checks that for you.Just make sure you do the exercises because you definitely need good movement in your arm to get in correct position for radiotherapy, plus it feels a lot better keeping the movement going, good luck, dont worry it will be fine!! xxx willowcat xxxx
skippy9
Member

Re: Anybody from Norfolk out there in the ether??

Hi all, I live in Norfolk - Wymondham, went to a Look Good the day the snow came and took 2 hours to get home!! But it was worth it!!
Has anyone got any advice - I am due to have a full MX and ANC on 20 Feb and am really worried about the pain and recovery part of it. Just had my last Docetaxol on 28 Jan and still suffering with aches & pains, sore, discoloured fingers and generally feel rubbish, I know I will get over it but that was my 3rd and it seemed the worse. Did anyone else suffer and can you give me any advise re:MX?
I have IBC so had chemo first, then operation, then will have rads.
Thanks
xxx
jiggyjoo
Member

Re: Anybody from Norfolk out there in the ether??

The Big C Centre at Norfolk and Norwich Hospitals is great - lovely ladies running it and always so welcoming. When first diagnosed I walked in there in tears and they were so kind.
The Look Good Feel Better session was brilliant. Met some lovely ladies there and we received such lovely gifts of make-up etc. Plus the make up session which was fun and informative.

xx

willowcat
Member

Re: Anybody from Norfolk out there in the ether??

I certainly agree with that , too!!!First class treatment and wonderful people who work there too!¬! willowcat x
Mazzalou
Member

Re: Anybody from Norfolk out there in the ether??

Not forgetting that here in Norfolk, and East Anglia in general, we have access to the very best health care too!

willowcat
Member

Re: Anybody from Norfolk out there in the ether??

Hi Norfolk is very Beautiful in the snow, also in the summer, we have beautiful scenery if you get the chance comeand visit our lovely county, The Broads are a National Park and we have many areas of special scientific interest, full of wildlife , we do try and keep it secret though , specially for us!!!if I get a bit down I go to the sea and walk and walk, and my worries wash away!! Lots of luv D xx willowcat
zibzab
Member

Re: Anybody from Norfolk out there in the ether??

Is nice to have snow like in England! I just came in Latvia (my orgin country) with my friend (british) and she did not use to cold weather I did put on her all my thick jumpers and now she is sitting under 3 blankets in bed! Bless her. I was trying to teach her skiing but her balanss were not good. Tomorrow we are going to capital to see some historical places i hope so it will be better.

Mazzalou
Member

Re: Anybody from Norfolk out there in the ether??

Glad that you enjoyed the Look Good Feel Better workshop as much as I did Redterrier so to any of you who haven't indulged then you are truly missing out on a wonderful experience. They are very popular so you may have to wait a while for a session so don't delay!
By the way, not only do the Big C offer this and complimentary therapies, amongst other things such as counselling, advice sessions and a library of literature you can borrow, it is also a good place to sit and relax for you and whoever might be accompanying you to your chemo or rads sessions. They will even provide you with a pot of tea and biscuits! You can help yourself to a lovely heart-shaped support cushion which are specially made for breast cancer patients by volunteers.
The Big C Centre at the NNUH is a wonderful resource for us Norfolk Folk so do make use of it's facilities.

redterrier
Member

Re: Anybody from Norfolk out there in the ether??

Hi there all you lovely Norfolk/Suffolk ladies - hope you are all keeping warm with the snow? Here in North Norfolk we've had a fair bit but it's good to get out walking especially where no-one else has trodden it down yet - lovely.
I attended a Look Good Feel Better workshop at the NNUH on Tuesday morning (took 2 hours to get home in the snow blizzard that arrived as we left)! It was a super session - met 6 lovely ladies and we all came away looking very glam. It's a really relaxed session and the bonus is you get to take away a bag of super products - skincare, make-up and even some perfume. A real pick-me-up and well worth attending if you can - contact the BIG C Centre - the ladies there are lovely and they will arrange it for you.
zibzab
Member

Re: Anybody from Norfolk out there in the ether??

I do not know my self but it is european designation. It is a bit different wihich we use in England. I did my surgery abroad.My lymp was highly differentiated (similar to normal cells) SLOWLY GROWING 2 cm and 2 lymph nodes involved. As I had mastectomy I did not need radiotheraph. I had 6x FAC ( NOT FEC) chemo. Refused to reconstruction and was working trought my chemo. Thats helped me to go foward. I just kept my self bizy.