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You will be in excellent hands at the West Suffolk, Jiggyjoo, especailly if you are seen by my lovely lady consultant. I am a bit ahead of you as had my 2 year follow-up last month and sadly waved goodbye to my consultant, altho the BCN team are still there for me as I am on the waiting list for my nipple tattooing later this year. Let me know how you get on and love to all the other Norfolk/Suffolk ladies out there
Hello again Philomena and hello to jiggyjoo
I'm now halfway through rads and not feeling too bad so far apart from quite tired and a sore nipple!
Good to see you are halfway through chemo Philomena - hope all goes well for you.
Staff are lovely @ N&N and I've been having some foot reflexology at the Big C Centre....heavenly!
I live on my own ( parents deceased and no children) and friends have been lovely but have busy lives, so it's been good to be able to drop into the Big C after appointments for a bit of company and a cuppa rather than go home to an empty flat. Sat outside in the garden reading for quite some time after my oncology appt.
I can also recommend the yoga badminton and aquafit groups for women with or who have had cancer at the Sportspark at UEA for anyone who lives close enough. Coral who runs it is lovely and the ladies in the yoga group I go to have been very supportive and Suzie the teacher is great.
Hope your appointment in June goes well jiggyjoo.
Sue x
I'm now halfway through rads and not feeling too bad so far apart from quite tired and a sore nipple!
Good to see you are halfway through chemo Philomena - hope all goes well for you.
Staff are lovely @ N&N and I've been having some foot reflexology at the Big C Centre....heavenly!
I live on my own ( parents deceased and no children) and friends have been lovely but have busy lives, so it's been good to be able to drop into the Big C after appointments for a bit of company and a cuppa rather than go home to an empty flat. Sat outside in the garden reading for quite some time after my oncology appt.
I can also recommend the yoga badminton and aquafit groups for women with or who have had cancer at the Sportspark at UEA for anyone who lives close enough. Coral who runs it is lovely and the ladies in the yoga group I go to have been very supportive and Suzie the teacher is great.
Hope your appointment in June goes well jiggyjoo.
Sue x
Hi there nanniereeree Marie
Welcome on board although it's a real bummer having to be here in the 1st place. I have had the 'Full Monty' treatment with my mx 2 years ago and then 6 chemos (3FEC and 3 docetaxels) with 15 rads and a years worth of herceptin all done at the West Suffolk in Bury St Edmunds apart from the rads at the NNUH and I live in Thetford. In some ways I'm glad that I have had the 'full Monty' as I know that I have thrown everything available at it and there's no 'I wish I had had that' about my treatment. As my surgeon said to me before my mx 'this time tomorrow your bc will be out and in the bucket' and the rest of my treatment was my insurance policy against a recurrence as my lymph nodes were clear. Fingers crossed for your results, and at least if you do have to have chemo you should be done and dusted before your half a grandchild is born so something really special to look forward to.
Take care
Mazzalou
Welcome on board although it's a real bummer having to be here in the 1st place. I have had the 'Full Monty' treatment with my mx 2 years ago and then 6 chemos (3FEC and 3 docetaxels) with 15 rads and a years worth of herceptin all done at the West Suffolk in Bury St Edmunds apart from the rads at the NNUH and I live in Thetford. In some ways I'm glad that I have had the 'full Monty' as I know that I have thrown everything available at it and there's no 'I wish I had had that' about my treatment. As my surgeon said to me before my mx 'this time tomorrow your bc will be out and in the bucket' and the rest of my treatment was my insurance policy against a recurrence as my lymph nodes were clear. Fingers crossed for your results, and at least if you do have to have chemo you should be done and dusted before your half a grandchild is born so something really special to look forward to.
Take care
Mazzalou
Hi
If anybody else is around Waitrose in Wymondham on Tuesday around 1pm perhaps you might like to join Susieseaside64 and me for coffee.
The more the merrier!
If anybody else is around Waitrose in Wymondham on Tuesday around 1pm perhaps you might like to join Susieseaside64 and me for coffee.
The more the merrier!
Just click on messages which you will find to the left-hand side of this page near to the top under the heading People. click on the tab -New Message' and be sure type in Mazzalou in the recipients box with the message you want to send to me. You can always type your email address in there and then we can communicate via emails which is probably much easier!
Looking forward to hearing from you soon Susie
xxx
Looking forward to hearing from you soon Susie
xxx
Well done on your good news Sue. I can do Tues, Wed or Thursday lunchtime next week in Waitrose and then I have 2 weeks off so it would be lovely to meet up before your surgery and Rads. I can go to lunch anytime between 12 and 2 so let me know what is good for you. If you message me I'll let you have my home email address if easier to arrange something.
Anybody else out there who wants to join us please - the more the merrier?
Looking forward to seeing you Sue - I know what you look like from your photo so let's hope that the White Rabbit from Alice in Wonderland doesn't turn up too to confuse me!!!!
xx
Anybody else out there who wants to join us please - the more the merrier?
Looking forward to seeing you Sue - I know what you look like from your photo so let's hope that the White Rabbit from Alice in Wonderland doesn't turn up too to confuse me!!!!
xx
Just to say that I will be thinking of you on Wednesday Susieseaside64 so if you fancy spending your coffee voucher over at Waitrose one lunchtime Tues, Wed or Thursday please let me know as I have been there, done it, and come out the other side with the scars to prove it!!! Seriously, next Monday the 11th of March, will be exactly 2 years since I ound 'my lump' and my world seemingly turned upside down. Here I am 2 years later with hair and a gorgeous grandson Max who was born on December 15th so life is soooo much now than 2 years ago. This Thursday is my birthday too so another cause for celebration.
Can I just extend my invitation to coffee at Waitrose in Wymondham to anybody out there who would like to meet up? Just message me and I am sure we can sort something out so look forward to hearing from you! I work in Wymondahm, live in Thetford and regularly visit Bury St Edmunds, but thankfully my visits are now social as opposed to chemo or herceptin!
As for the Big C Centre, it is a resource for everybody as all our needs differ and they have a really good selection of reading matter that you can borrow or peruse. Just by going you will be supporting the centre which will enable it to be there for future users.
Yes, there are lots of us Norfolkians out there - even if some of us are very south of the county and have their treatment in Suffolk so once again - 3 cheers for the West Suffolk Hospital in Bury St Edmunds where I had all my treatment, other than my rads which were done at the NNUH.
Thank goodness that we are well served here in East Anglia by the NHS
xxx
Can I just extend my invitation to coffee at Waitrose in Wymondham to anybody out there who would like to meet up? Just message me and I am sure we can sort something out so look forward to hearing from you! I work in Wymondahm, live in Thetford and regularly visit Bury St Edmunds, but thankfully my visits are now social as opposed to chemo or herceptin!
As for the Big C Centre, it is a resource for everybody as all our needs differ and they have a really good selection of reading matter that you can borrow or peruse. Just by going you will be supporting the centre which will enable it to be there for future users.
Yes, there are lots of us Norfolkians out there - even if some of us are very south of the county and have their treatment in Suffolk so once again - 3 cheers for the West Suffolk Hospital in Bury St Edmunds where I had all my treatment, other than my rads which were done at the NNUH.
Thank goodness that we are well served here in East Anglia by the NHS
xxx
Hi Skippy9
It wasn't me having a blood transfusion - I only went to the NNUH for my rads in Nov/Dec 2011 and had to have one of my herceptins whilst I was there too rather than have to go to the West Suffolk in Bury on the same day.
I also work for the Police at OCC, but not as an officer. Do let me know if you would like to meet up for a coffee at Waitrose before your op on the 20th of this month.
Keep smiling ladies - you'll be fine. Trust me as I have been there, done it and got the T-shirt too!
xx
It wasn't me having a blood transfusion - I only went to the NNUH for my rads in Nov/Dec 2011 and had to have one of my herceptins whilst I was there too rather than have to go to the West Suffolk in Bury on the same day.
I also work for the Police at OCC, but not as an officer. Do let me know if you would like to meet up for a coffee at Waitrose before your op on the 20th of this month.
Keep smiling ladies - you'll be fine. Trust me as I have been there, done it and got the T-shirt too!
xx
Hi there, Skippy9
Fancy you living in Wymondham as I work there at the biggest employer in the town, just across the road from Waitrose - I am sure you can guess where this is. I work there on Tuesday, Wednesday and Thursday so if you fancy meeting up for a coffee in Waitrose one lunchtime just message me and we can arrange a chat over a coffee.
In the meantime, I had my mx with immediate reconstruction in April 2011, followed by 6 chemos - 3 FEC and 3 Docetaxel, 15 rads and 18 herceptins. All my treatment, other than the rads was at the West Suffolk Hospital in Bury St Edmunds and the rads was at the NNUH. Your mx op is nothing to worry about - I was up and about soon after getting back from theatre and eating a sandwich too. As Willowcat says the must annoying thing is having to have drain bottles attached to you, but the 1st one was removed after a couple of days and the 2nd one a few days after this. I also had to keep a record of how much was in the bottles each day so not for the faint-hearted, altho you carry them around in a shoulder bag and tuck the tubing inside the bag. The tubes are quite long, but this is so you can sleep with the bottles on the floor by your bed, and even have a bath with the bottle over the side of the bath on the floor. I honestly don't remember being in much pain or discomfort, but you will be given painkillers to take anyway. Do make sure that you do your exercises after your op, and also if you are having rads as this can cause your muscles to tighten. I have just had my recon redone a month ago as the rads had caused it to distort - a known side-effect, but this was even more of a doddle as no drains this time - just no heavy lifting or hoovering
Docetaxel is a killer and remember that the effects of chemo are cumulative and that is why you feel worse now. Your finger nails will take quite a long time to recover so keep them protected with a clear polish/strengthener. you may also find that your eyes may water profusely too now that you have had your last one and this will cause your nose to run as well - not a good look!
As for you rads - the worst bit is having to find parking everyday at the NNUH
! I live in Thetford so it was a daily trek up the A11 in the run-up to Christmas 2011, but before you know it you will be done. Other than doing your post-op exercises make sure you slap on the aqueous cream, not just on your boob area, but up to your neck and underarm and down to your waist too and leave off the deodorant. Use a non-perfumed soap and shower gel/bath foam and drink plenty of fluids too and try to wear something really soft made of natural fibres next to your skin - I wore Sloggi crop tops - but watch the purple ink that they mark you with as it has a tendency to come off on your clothes!
The very last piece of advice that I can think of at the mo is that if you are worried about anything then speak up and somebody will be able to reassure you and put your mind at ease. The Big C Centre is there too, but if you are having rads then you may not be able to have a massage for a while, but they do head massages which are lovely and help to stimulate the blood flow to encourage hair growth, as well as reflexology too.
Don't forget - if you fancy meeting up just send me a message and you can see for yourself that my hair has grown back!
Good luck - I'm sure you will be fine
Mazzalou xxx
Fancy you living in Wymondham as I work there at the biggest employer in the town, just across the road from Waitrose - I am sure you can guess where this is. I work there on Tuesday, Wednesday and Thursday so if you fancy meeting up for a coffee in Waitrose one lunchtime just message me and we can arrange a chat over a coffee.
In the meantime, I had my mx with immediate reconstruction in April 2011, followed by 6 chemos - 3 FEC and 3 Docetaxel, 15 rads and 18 herceptins. All my treatment, other than the rads was at the West Suffolk Hospital in Bury St Edmunds and the rads was at the NNUH. Your mx op is nothing to worry about - I was up and about soon after getting back from theatre and eating a sandwich too. As Willowcat says the must annoying thing is having to have drain bottles attached to you, but the 1st one was removed after a couple of days and the 2nd one a few days after this. I also had to keep a record of how much was in the bottles each day so not for the faint-hearted, altho you carry them around in a shoulder bag and tuck the tubing inside the bag. The tubes are quite long, but this is so you can sleep with the bottles on the floor by your bed, and even have a bath with the bottle over the side of the bath on the floor. I honestly don't remember being in much pain or discomfort, but you will be given painkillers to take anyway. Do make sure that you do your exercises after your op, and also if you are having rads as this can cause your muscles to tighten. I have just had my recon redone a month ago as the rads had caused it to distort - a known side-effect, but this was even more of a doddle as no drains this time - just no heavy lifting or hoovering
Docetaxel is a killer and remember that the effects of chemo are cumulative and that is why you feel worse now. Your finger nails will take quite a long time to recover so keep them protected with a clear polish/strengthener. you may also find that your eyes may water profusely too now that you have had your last one and this will cause your nose to run as well - not a good look!
As for you rads - the worst bit is having to find parking everyday at the NNUH
! I live in Thetford so it was a daily trek up the A11 in the run-up to Christmas 2011, but before you know it you will be done. Other than doing your post-op exercises make sure you slap on the aqueous cream, not just on your boob area, but up to your neck and underarm and down to your waist too and leave off the deodorant. Use a non-perfumed soap and shower gel/bath foam and drink plenty of fluids too and try to wear something really soft made of natural fibres next to your skin - I wore Sloggi crop tops - but watch the purple ink that they mark you with as it has a tendency to come off on your clothes!The very last piece of advice that I can think of at the mo is that if you are worried about anything then speak up and somebody will be able to reassure you and put your mind at ease. The Big C Centre is there too, but if you are having rads then you may not be able to have a massage for a while, but they do head massages which are lovely and help to stimulate the blood flow to encourage hair growth, as well as reflexology too.
Don't forget - if you fancy meeting up just send me a message and you can see for yourself that my hair has grown back!
Good luck - I'm sure you will be fine
Mazzalou
xxx
Not forgetting that here in Norfolk, and East Anglia in general, we have access to the very best health care too!
Is nice to have snow like in England! I just came in Latvia (my orgin country) with my friend (british) and she did not use to cold weather I did put on her all my thick jumpers and now she is sitting under 3 blankets in bed! Bless her. I was trying to teach her skiing but her balanss were not good. Tomorrow we are going to capital to see some historical places i hope so it will be better. 
