I can understand your disappointment but we were asked some direct questions by another forum member, which we have tried to answer in this post. They specifically asked for the opinion of our clinical team, which we have provided.
(Posted on behalf of Breast Cancer Care's clinical team)
We have been asked by a forum user to comment on this thread. There is a lot of good advice in the thread. We would always advise talking with your specialist and breast care nurse about your treatment choices but I know it's also helpful to hear from other people about their experiences too. As mentioned in this thread some people do experience significant side-effects whilst taking tamoxifen, but the vast majority of people who take this drug report they manage to cope.
Breast Cancer Care has written a factsheet about Tamoxifen, which you can download free by clicking on the link; http://www2.breastcancercare.org.uk/sites/default/files/tamoxifen.pdf
It is important to point out that Indole 3 Carbinol has not been clinically tested or approved as a treatment for breast cancer, and shouldn’t be considered as a substitute for tamoxifen. At Breast Cancer Care we would advise against purchasing any treatments from the internet for breast cancer. This is because although there are many treatments advertised they are not regulated meaning it is difficult to be sure that what you are buying is the correct medication.
We would suggest only taking medication which has been prescribed by a specialist and which has been dispensed by a regulated pharmacist.
I can see you plan to call the helpline, and we'd be more than happy to talk about these issues further there. I wish you all the best with your decision and the rest of your treatment.
Posted on behalf of the Breast Cancer Care clinical team.
Welcome to the BCC forums. Whilst you wait for the other users to reply with their experiences can I suggest you give the BCC helpline a call and talk things through with one of our trained members of staff. Here you can share your concerns and discuss any questions you may have with someone who will be able to offer you emotional support as well as practical infromation. The number to call is 0808 800 6000 and the lines are open Monday to Friday 9 to 5pm and Saturday 10 to 2pm.
Best wishes Sam, BCC Facilitator