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Anyone diagnosed in their 20s?

153 REPLIES 153
Jill1998
Community Champion

Re: Anyone diagnosed in their 20s?

Hi Shawty welcome to the forum!!In the going through treatment section of the site there are chemotherapy monthly threads where ladies going through chemo together can give each other support /share tips etc ,there is a May thread up and running may be worth a look.Good luck with the rest of the treatment .Jill.
ShawtyOBC
Member

Re: Anyone diagnosed in their 20s?

Hi Everyone,

i am 28 years old, not married, no kids. I was dignosed on 10th March 2017 with Stage 1, Triple Negitive, Invasive Ductual Carsinoma, tumour was a grade 3. I had a mastectomy on my right breast on 13th March 2017. On 02 May 2017 i had a checmo port inserted as i am terrified of needles.

I started my first round of 05 May 2017. I was scared at first as I was driving myself insane by Googling everything I could possibly think of and then freaking out by all the negitivity around chemo. So I STOPPED all of that! Went in and faced the first round like a champ. I was prepped, given anit-nausea meds and fed breakfast and lunch. My treatment centre is amazing, where you receive individual attention and are treated like a princess. After lunch i was given my two doses of chemo one of them being the Red Devil. I was afraid at first but then as it went in i calmed down and just relaxed. As the night progressed i started to feel nauseous and weak. I was told by my oncologist that nausea can be eased with something sour. I love sour things so this was easy, i took pieces of fresh lemon and kept it in my mouth and chewed at it. I also had ginger beer which helped as well. The second day i was very tired i got in and out of bed, took my second nausea pill had something to eat, socialised a bit with my family and took cat naps along the day. The third day i was extreamly tired, so i took my third nause pill, ate and just relaxed. I found that sleeping alot caused me to feel miserable. So get outa bed, take a bath, have something nice to eat and relax! It will be okay. I have my second round this friday so at least i know how to deal with it now

Jill1998
Community Champion

Re: Anyone diagnosed in their 20s?

Hi Jen,welcome to the forum .Hopefully some other ladies will be along soon to share their experiences .This is quite a quiet part of the forum ,if you want to join us in the "just diagnosed "section you will get a lot of advice and support .
Jennmac06
Member

Re: Anyone diagnosed in their 20s?

I was diagnosed last week. My doctor said that the biopsy showed cancer but they have no idea of the stage/grade/type yet. Hoping to get results soon and determine treatment. The lump is about the size of a grape, doubling in size since I first found it back in September.
MAAARYYY
Member

Re: Anyone diagnosed in their 20s?

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Nic2612
Member

Re: Anyone diagnosed in their 20s?

Hi ladies I was diagnosed in September 2016 it was tough but I have just finished chemotherapy and now awaiting operation of a masectomy but I can't believe I have smashed chemo and now it's onwards and upwards!!! Keep smiling ladies!!!
Sam_BCC
Member

Re: Anyone diagnosed in their 20s?

Hi everyone

If anyone would like more information on breast cancer and fertility I have included here the link to the BCC booklet which you may find useful to read:-

http://www2.breastcancercare.org.uk/publications/treatment-side-effects/fertility-issues-breast-canc...

I hope this is helpful.

Kind regards Sam, BCC Facilitator

tors
Member

Re: Anyone diagnosed in their 20s?

bumping up for shivvy

xxx

clairemm
Member

Re: Anyone diagnosed in their 20s?

Hi everyone,
seems there r alot of us young ones on here when i first started using this site back in 2004 there was NO real young ones well think there was one other in their 20's nice to meet u all but just such a shame we have to meet by all having the same illness 😞
I was diagnosed in september 2004 a week b4 my 25th birthday because of my age my useless GP put me down as non urgent and i had to wait 4 months to be seen DISGUSTING in that time waiting for appoitment i was in agony and even went to A&E twice as the lump in my breast was so painful well finally diagnosed had to have a mastectomy as there was 4 lumps and chose to have a LD reconstruction done same time as operation 4 out of 26 lymph nodes were infected i had Grade 3 stage 3 HER 2 and ER possitive so had chemo, radio and Herceptin (which had just been excepted for early stage breast cancer) i was on treatment for 4 years and doing well then in 2009 after waiting yet again this time 11 month i was diagnosed with secondaries to my bones I have been on treatment ever since and have suffered alot of pain spending 65 days last year in the hospice for pain control luckly now the pain is at bay and i am able to live more like a 31 year old than a 101 year old lol
Even tho its not nice that we r all going through this awful illness its nice to have other young ones to talk to I use to feel so isolated and alone as I never had any younger women to talk to I was the youngest my hospital had had in 10 years. It does make u wonder why so many younger women are getting breast cancer. Anyway nice talking to u all Love Clairemm xx

Joanna3
Member

Re: Anyone diagnosed in their 20s?

I am another new member but have been lucky enough to hear from a few of you on here already so thank you. Diagnosed on Wednesday, aged 30, 3cm lump, oestrogen negative, cancer in nodes also. The aim for me is to have chemo starting soon, then the lump removed and then I think radiotherapy.

Feels pretty surreal writing it all down but there are so many of us in the same boat so I feel less alone. I read your forum several times and thought it was time to join in. Sorry we were here. I hope we can comfort and support each other?

Joanna. X

Lynzi84
Member

Re: Anyone diagnosed in their 20s?

Hi all

i was diagnosed 25th Nov 2011 when i was 26, just turned 27. had WLE & SNB on 30th Nov 2011 and now waiting to start chemo on 10th Jan - TAC minus the C 6 cycles over 18w then 3 weeks of Rads.

still doesn't seem real to me, how is it supposed to sink in when everyone was convinced it was nothing????

xxxxx

bigbirdkate
Member

Re: Anyone diagnosed in their 20s?

I was dx on 17th august 2011 and started chemo on 31st august! I tried the cold cap but after 2 doses my hair went patchy so I gave up on it and shaved it off. I have got 2 excellent wigs so it didn't bother me too much. I too am more worried about fertility than anything else. I have got to take tamoxifen now for 5 years so will have to wait until I have finished taken it until I try for children now.

Breast cancer can really screw up you plans can't it! I have told my OH that we have got 5 years for him to propose, get married and buy a bigger house in preparation for when we gave babies! I always see the glass as half full so I think that is a nice way to think about it.

My op has been delayed til the 13th now as my blood count was too low. I hope your op goes well.

Kate xx

pink_princess_
Member

Re: Anyone diagnosed in their 20s?

Hi kt23,

Sorry u had to join us but you will get a lot of support from this site.

I found my lump when I was 29 but DX just after my 30 th birthday, was told grade 2 13mm and armpit looked fine, had my lumpectomy in October and when the results came back it was borderline grade 3 so having chemo, was also told because of my age.

I already have children but the thought of the choice being taken away worried me but I was told that as I was young I had a higher chance of my fertility returning.

Hope your operations goes well, I wasn't that sore after think it's just the thought that makes us all nervous.

Big hugs xxx

kt23
Member

Re: Anyone diagnosed in their 20s?

Hi Kate,

Thank you for replying. I am having a operation to remove the lump next Wednesday, I have been told that I wil be having radiotherapy and hormone tablets, depending what the results of the lump I will be having chemo to. They said that I will probably be having chemo due to my age.

I am meeting fertility specialist this week to talk through what to expect. The nurse told me that I Gould still be able I have kids but jut in case they may freeze some eggs for me.

How long have you been diagnosed for? With your chemo did you use a cold cap? I am not worried about having chemo or radiotherapy as long as I can still have children.

I am very thankful for your message. I wish you all the luck with your operation at the end of the week. 🙂

Kt xx

bigbirdkate
Member

Re: Anyone diagnosed in their 20s?

Hi kt,

I am so sorry you have to be going through this at your age. I am 30 and in a very similar situation as you.

I have just finished chemo and am due a lumpectomy at the end of the week. Only then will I find out what stage I am. My lump was also under 2cm with no spread so I am guessing I am stage 2. Do you know what treatment you are having yet?

My lump ached too, which is how I found it. From what I have read on here it is quite common for it to ache.

Regarding fertility, I have exactly the same concerns as you. Chemo can bring on an early menopause however as you are so young you are in a better position as you should have lots of eggs left. I have been given zoledex injections through chemo which are supposed to freeze your ovaries so the chemo has less of an effect on them. Are you hormone receptive? If not then you could store some eggs just in case. Fertility is a massive issue so make sure you discuss it with your onc so they can talk you through all of your options.

I wish you all the luck in the world with your treatment. Chemo is not a bed of roses but it is no where near as bad as I thought it would be (i wasn't sick at all and still managed to enjoy Christmas etc). Feel free to contact me if you have got any questions.

Kate xx

kt23
Member

Re: Anyone diagnosed in their 20s?

Hi everyone I am 23 and got Diagnosed on thursday (29th) with Invasive Ductal breast cancer. I have so many questions, as all i know is that it is less than 2cm and hasn't spread anywhere else in the breast's. Reading the information i have been given is very overwhelming and has left me with more questions than answers as i haven't been told what stage the cancer is yet or anything other than I have it. I get a slight aching pain now and the in the breast is this normal with IDBC?

My Absolout worry being this young is becoming infertial as myself and my fiancé was going to try for kids after our wedding next year. I know now that trying for children then isnt going to happen 😞

Kt x

tors
Member

Re: Anyone diagnosed in their 20s?

Bumping up for KT23. hope this helps you see that, although you are in the minority being diagnosed in your twenties, you are certainly not alone.

Xxx

luvlygal
Member

Re: Anyone diagnosed in their 20s?

@crazy cat lady, hi thanks a lot for ur reply n wishes..it helped me to stop worryin a lot and gud to know about lotsa follow up apptmnts too..my next one is on 5th jan will let u know how it goes...merry christmas to u..xxx

@butterfly83 thanks s lot for ur reply sharing helps a lot. i wont worry much anymore about not havin chemo..gud luck to u darl..xxx

@mary grace thanks a lot for ur reply. now i understand a bit more about 'aggressively', earlier i thought it meant havin a mastectomy+chemo+rads and i read in an article that my type needs to be treated aggressively and right away n not havin chemo worried me..thanks for ur post it helps a lot..gud luck to u..xxx

@ellie93 thanks a lot for ur reply darlin..m sorry to find another person in a similar situation..
they dunno yet whether my type responds to radio as well..yes the word rare does make me think a lot like 'hw did i become the one'? so frustrating.. just prayin for a cure for all types of cancer one magic bullet that can wipe this out. i wish u very best of luck xxx

@lucy bcc thanks for the info xx

thanks a lot angels ur kind support helped me so much...wish u the very best..xx

ellie93
Member

Re: Anyone diagnosed in their 20s?

Hi luvlygal, i am 18 and was diagnosed with a very rare type of cancer called phyllodes earlyer this year. like yours mine does not respond to chemo, or radio for that matter. however mine is a very aggressive fast growing tumour, the only treatment is surgery, so i have had a lumpectomy, mastectomy, further tissue taken, and then have had reconstruction (which will be re-done next year). i also find it very frustrating how it is rare, because there is little accurate information about it on the internet. and it is very hard to find others in the same situation. I am relieved i didnt have chemo, although knowing that it is hard to treat scares me alot. But do not worry, you will have many follow up appointments and they will keep a close eye on it. so i'm sure you will be fine.

All the best, Ellie xxx

Mary_grace
Member

Re: Anyone diagnosed in their 20s?

Hi Luvly, Sorry for butting in on your thread. I was dx at 47 - didn't and don't think myself old but am definitely not in my 20s. I was, however, dx with a relatively rare bc - tubular - which like yours didn't need chemo as it was slow growing. That freaked me out a bit. Much as I didn't want chemo, I had a sense that it would be an extra comfort blanket to know everything had been chemo'd. The onc and surgeon, like yours, were extremely clear that it would be overtreatment. In fact, if I had had an mx rather than a wle, I wouldn't have had to have rads either.

At the same time, my onc insisted my bc was being treated "curatively", in a belt and braces way with rads and hormone therapy (I am on 5 years of tamoxifen and he says never underestimate it, it can be as important a weapon as chemo as can rads) and one year on has told me "he sincerely hopes he will never see me again."

The point of my ramble is that, treating bc aggressively means different things depending on its type, size etc and if there was any doubt at all they would be giving you chemo xx

Butterfly83
Member

Re: Anyone diagnosed in their 20s?

Luvly I know exactly how you are feeling I was diagnosed @27 had WLE& SNB for 10mm mostly grade 1 but some grade 2 cells with DCIS was told I'd def be having chemo so prepared myself for that read about all the women on here that had it or were having it. Then when I got the reults of my op and SNB( no lymph or vascular invasion clear margins) they said I didn't need chemo. I started to worry even thought about getting a second opinion. What I'm trying to say is that every one is different and every cancer is different if your doctors don't think you need it or it's of no benefit they'll be right. As my friend who is a senior onc researcher says 'they don't p@&s around with cancer.
Please try not to worry there are lots of women that don't have chemo and are fine. My BCN says sometimes the risks outweigh the benefits. Or even no benefit to it.
Hope this helps xx

Lucy_BCC
Member

Re: Anyone diagnosed in their 20s?

Hi luvlygal and welcome to the BCC forums

Along with the support you have here you may find it helpful to call our helpline for further support and information, our team will be able to help you with your queries about treatment options too, the lines are open 9-5 mon-fri and 9-2 sat on 0808 800 6000

I am posting a link to the BCC younger women's information page where you will find publications and support ideas specifically for younger women with breast cancer which I hope you will find useful:

http://www.breastcancercare.org.uk/younger-women

Take care
Lucy

crazy_cat_lady
Member

Re: Anyone diagnosed in their 20s?

Hiya luvlygal,

Just wanted to respond your post, though I'm an oldie compared to you at 37, I was dx Oct 2010 and my treatment finished Xmas eve that yr, yes I too ONLY had WLE, SNB and RADS, and told my prognosis is very good, I've just had my first mammo since, which was clear.

The thing with these forums, is you'll read about lots of ladies having chemo because they say - 'of their age' but usually they have grade 3 or lymph involvement, but it makes us younger ladies not having chemo think we're not throwing enough at 'it'.

The fact is your bc is slow growing that's good, as you'll get lots of follow up appts over the coming years, so ANYTHING suspicious will be picked up quickly. Yes it is ok to feel terrified, it won't stop your recovery - no matter what people say! It does get easier, though a year on, yes I worry about lots of niggling pain, and it coming back, but a clear mammo does help a little.

Good luck luvvie with the rest of your treatment, keep posting, as I'm sure someone at the same stage as yourself will be along soon.

Take care, and do try to enjoy Christmas xxxx

luvlygal
Member

Re: Anyone diagnosed in their 20s?

hi,
i am 24 and have been diagnosed with one of the rarest types - secretory breast cancer. there is not much information about it my doc told me but as far as he knows it has good prognosis. they had to do a surgery to diagnose it is cancer..mammogram, ultrasound, fnac biopsy all turned out to be normal/benign..it was so hard for me to take it in wen they told me the surgery confirmed it as cancer on 27th oct.this happened jus 2 months after my marriage..i had to wait until dec 13th to have lumpectomy and SNB. it was a really hard wait with a lot of depression but i was so relieved to hear my lymph nodes were clear after the surgery. now i am waiting for my pathology report i'm jus hoping for the margins to be clear or i need to have more surgery which i cant imagine havin.. they also told me my type doesnt respond to chemotherapy as it is very slow growing form of cancer- i am really worried about this..
did anyone else have only lumpectomy and radiation without chemotherapy?
i know i am really fortunate to have the best people in my life.. but i am so upset about what if it comes back n the fact that it doesn't respond to chemotherapy n it is also the rarest type...my family n frens keep singing the same song - ''stay positive'' n ''nothing will happen to u'' including my husband. this honestly does not help me..i really dont know how to stay positive at this time?? i really cant find any strength can this worsen my illness? or is this normal to feel n still get alright with treatment? pls help me
thanks n hugs n love

ErinG
Member

Re: Anyone diagnosed in their 20s?

Hi girls,

I just wanted to post something as I was dx in May 2008, just turned 24.

I actually posted at the start of this thread over 18 months ago and havent been on recently.

I just wanted to say that its horrible and it feels like things wont get better but they do... I think about the things I went through most days but now I feel proud of myself for getting through it rather than upset at the whole ordeal

Its so hard to see past everything but it does get easier! Everyone says it but its about taking it one day at a time!!!

I recently got engaged and am getting married in 18 months, it'll be the 5th anniversary of my dx, so will be in remission... i never thought i'd ever be able to see that far ahead but over the last 18 months I've really felt like my life is getting back to normal

Keep strong ladies, you can do it!

Erin xxx

Lucy_BCC
Member

Re: Anyone diagnosed in their 20s?

Hi Chloe and welcome to the BCC forums

In addition to the support and information you have here please feel free to call our helpline on 0808 800 6000, here you can speak to someone in confidence about your concerns, the lines are open 9-5 weekdays and 9-2 Sat.

I am posting a links to the newly diagnosed and the younger women's services pages which contain information about issues you are worried about, just follow these links:

http://www.breastcancercare.org.uk/category/type-person-particularly-relevant/younger-women-breast-c...

http://www.breastcancercare.org.uk/diagnosis

Take care
Lucy

m1yu
Member

Re: Anyone diagnosed in their 20s?

Hello to all the new comers: hannah, butterfly, emma, chloe:

welcome but so sorry more young ones are joining the club.

I have no family history so can understand the shock and disbelief. "You are too young to get cancer." I was told by so many.

For those of you who are going to have chemo and worried about losing hair. Ask about cold cap, I used it and it worked well. My hair was thinned the first time and went patchy the second time, I wore a hat and nobody noticed.

Re: Hot flushes, there're some complimentary things that can help. But not every onc is approved of them. So do some research and speak to your onc.

Re: work, do speak to your employer and hope you have one that's nice and understanding like mine.

Remember that you are not alone. Speak to your family and friends, even though they might not understand how you feel, they want to help. Tell them what you need from them and they will be there for you.

Take care & hugs to all you young one xx

ChloeM
Member

Re: Anyone diagnosed in their 20s?

Hello, this is my first time on here. I am 29 and was diganosed with triple negative grade 3 breast cancer two weeks ago. I have just had surgery and am waiting to see if the sentinel node has cancer and if the margains they surgeon got around the tumor are sufficient. I am really scared and upset and would appreciate anyone's help or advice. I have all my family around me but no one can really understand how this feels. I am so scared about needing more surgery and issues around fertility. I am beginning chemo next month. I am also scared about loosing my hair. Please email me with any help - thank you so much, chloe

_Emma_
Member

Re: Anyone diagnosed in their 20s?

Hi Everyone I'm new to the forum and straight away pleased to find this topic.

I am hugely relieved that I'm not the only one going through this. I'm 23 and have recently been diagnosed with breast cancer and have no family history. I have had my lumpectomy and central node biopsy, however it turns out the cancer has decided to travel to another area of my breast so the doctor has recommended I have a mastectomy with an immediate reconstruction on the 18th October. The good news is it didn't have time to travel through my lymph node and I don't have to have radio or chemotherapy.
I am really nervous about the op as I am not sure how I'm going to react to how the new boob will look and feel like and how my partner will react to it.
I have been going round the last few months pretending that this isn't happening to me even in all of my appointments I have pretended that its all fine.
However as a result I have had a massive breakdown in the middle of work and was unable to recover. I managed to speak to my cancer nurse who has been looking after me and she said she was waiting for the phone call from me.
I will be put on tamoxifen for 5 yrs once the op is done. Hot flushes here we come, its so unfair!
I feel much better knowing i'm not alone and that there are people that will understand exactly the emotions you go through and the questions that roam around your head on a daily basis.

xxxx

Butterfly83
Member

Re: Anyone diagnosed in their 20s?

Hiya Hannah, I know exactly how you feel. I'm 27 and was diagnosed 4 weeks ago had my lumpectomy and node biopsy thankfully got the all clear. Now waiting to start radiotherapy. I feel exactly the same as you tho it's not something you expect. I never thought I'd get breast cancer at this age I always thought it was something that didn't affect younger women.
It's nice to know your not alone xxx

Hannah86
Member

Re: Anyone diagnosed in their 20s?

Hi everybody
I'm new to the forum and was drawn to this topic as I'm finding it really difficult to find/meet anyone who is anywhere close to my age. Im 25 and was diagnosed in March when I was 24. I had lumpectomy, axillary clearance, chemotherapy and now having radiotherapy. Also have to keep on with Herceptin and have started on tamoxifen too.
It's just not something you expect to happen to you anyway but especially not in your 20s with no family history. There's so many issues with regards to work, relationships, fertility that I feel nobody else understands - and how unfair is it to have to put up with hot flushes when you're 25?!
Pingu - I'm sorry about your situation it must be so difficult, I've been living with my mum during treatment and I know she's found it pretty difficult. I can't relate to the situation a huge amount at the moment, but all I can say is that what has helped me more than anything is talking to others going through the same. I hope you find some answers and help on this forum.

ellie93
Member

Re: Anyone diagnosed in their 20s?

Hi pingu, i really feel for your daughter, and also you, cos it must be hard seeing her suffering like this.
I am 18 and have had an MX and LD flap reconstruction (which has not been successful, so i am due to have it re-done next year). I have a councillor and a psychologist because i'm finding it hard to come to terms with. But they definitly help, so i would recommend it. I hope she finds the confidence to start going out, she shouldnt let this horrible thing get her down and stop her enjoying her life. i am also finding it hard to explain to people what has happened to me (mainly boys, as boys at my age are very immature and it would probably freak them out). So i just tend to keep the surgery bits to myself, until i feel confident in them enough to tell them everything.
Best wishes, ellie xxx

ellie93
Member

Re: Anyone diagnosed in their 20s?

Hi pingu, i really feel for your daughter, and also you, cos it must be hard seeing her suffering like this.
I am 18 and have had an MX and LD flap reconstruction (which has not been successful, so i am due to have it re-done next year). I have a councillor and a psychologist because i'm finding it hard to come to terms with. B

cannoliwings
Member

Re: Anyone diagnosed in their 20s?

Hi Pingu,
I read your post and really wish I had something helpful to offer.
My diagnosis and treatments are different from your daughter's and I am a bit older at 31, but the thing about counselling struck a chord with me. It maybe that she might like to go at some point but wants to keep it very private. Maybe you could give her all the tools to go - as in, the numbers to call, a choice of places etc but promise not to tell anyone or ....ask any questions.
Of course this is very specific idea whcih may not be relevant to your daughter but I know that many people who go to counselling talk about it openly and many are extremely private about it.
She might feel better about going if she knows it is her secret.
Just an idea!
Very best wishes to you both,
Cannoliwings

m1yu
Member

Re: Anyone diagnosed in their 20s?

Hi pingu,

Being just 1 year older than your daughter and still single, I can relate to a lot of the feelings she had. So I guess you've come to the right place!

I didn't have surgery, so don't really worry about my body image or anything. But mine is terminal because it has spread, so I find it really hard to tell people initially (men and women) that my cancer is incurable. I had counselling, too. So here are a few thoughts:

What is she scared of? If it's the surgery itself (I know I would be because I never had any sorts of surgery), then be here for her. If it's the effect of surgery (i.e. body image, potential partner), then here are my counsellor's advice: Be honest with him from the beginning. If he really loves you for who you are, not what you look like, then he will love you any way. But if he ditches you because of your image, then he's not worth loving anyway. I always say that marrying no one is better than marrying the wrong man.

Why is she sitting at home nearly every week? I did that when I was first diagnosed. Now, I came out of my little world and found lots of support. Is she avoiding male friends? I found that starting off with male friends of a different age group a lot easier. Some one who can be a father figure, or a young boy, by building up the confidence and feeling comfortable talking to men about female illness help a lot!!

It also took me a while to go for counselling because I do NOT want others to think "I'm weak", but it benefited me greatly and I learnt that asking for help is NOT a sign of weakness.

Sorry for long post, but I hope some of what I have written has helped a little. I am so sorry that another young girl like me is suffering this terrible illness and another loving mother is suffering with her.

Take care and hope she can walk out of that little world too. Any time you or your daughter need anything, just come back to this forum, there are lots of supportive ladies on here.

M xxx

Sandytoes
Member

Re: Anyone diagnosed in their 20s?

Bump.

Sandytoes
Member

Re: Anyone diagnosed in their 20s?

Zee - I didn't see your post before. I'm a few years older than you at 33, but starting Tamoxifen after my surgery next month...so can't help with any questions yet - but may well be asking you some soon! However, bumping this up as there are other girls on here who are taking Tamoxifen.

x

Sandytoes
Member

Re: Anyone diagnosed in their 20s?

Pingu,

I'm 33 and having a bilateral mastectomy with delayed reconstruction, but am in a different position as I have a wonderful and supportive husband. However, I have met some young women who have gone on to have relationships after mastectomies (unfortunately they're not on this forum though...). I even know one girl who's 30 and hasn't had reconstruction and has developed secondaries who has met a wonderful man and they are getting married. So pleased for her.

Whereabouts are you based? I can strongly reccommend one of the BCC Younger Women Forums where they cover topics from body image, relationships, fertility etc - and other topics that might not be quite so relevant now such as reconstruction. I certainly found it really useful to meet other similar aged girls in a similar situation. Before then I felt really isolated and as though my friends didn't understand.

I am also having counselling - but probably found the forum more useful as I regularly meet up with some of the girls I met and I have found that that has been useful therapy in itself as we talk about everything - and can even laugh about some of it - and the seminars were excellent. It has given me much more confidence as I know I am not alone.

Unfortunately as much as you love and want (and know!!) what's best for her - you wont be able to force her to go to counselling - but to offer to research it with her and take her along etc. Or ask her to at least try it out. She deserves some happiness after all she's gone through and just a helping hand in teaching her how to be happy and more confident.

Maybe get your daughter to get in touch with some of us on the forum too as we all understand to some extent how she feels?

All the best.

x

June_BCC
Member

Re: Anyone diagnosed in their 20s?

Hello pingu54

Welcome to the forums, this must be a very worrying time for you and your daughter.
Whilst waiting for replies from ther users maybe you or your daughter would like to talk things through with a member of our helpline staff who are there to offer emotional support as well as practical information.
The free phone number is 0808 800 600 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 9.00 to 2.00.

With best wishes
June, moderator

pingu54
Member

Re: Anyone diagnosed in their 20s?

I am looking for some advice for my daughter. She had to have a double mastectomy when she was 26 years old is is still receiving reconstruction. She had luekaemia as a child and we were told the side effects of the total body radiation had caused pre cancerous cells and she needed the surgery asap. I have tried for years to get her to go for councilling but she refused but now she is thinking about it and I wondered if you could help. She wouldnt form relationships because she wanted to wait until her surgery was finished, but now its almost there and she has admitted to me she`s scared to because she doesnt know how to explain to a potential partner what she has gone through. Is there anyone that can give her the advice she is looking for. She is wasting her life sitting at home nearly every week and will only go out on occasion with female friends and now she has listened to me about councilling I am now needing help in advising her. Please can you advise us.

Zee
Member

Re: Anyone diagnosed in their 20s?

Hi everyone

I was 22 when I was first diagnosed (back in 2005) - I found a lump the size of a golf ball in my left breast while showering. Everyone said I shouldn't worry - the docs had the lump removed in an outpatient surgery. And a week later the lab report came back that it was malignant and Grade 3! Was rushed into mx, chemo (6 cycles, every 3 weeks), then 25 days rad. It was receptor-negative though.

Just when I was about to hit my 5-year mark, I found another small, pea-sized lump in the remaining right breast. Docs wanted a lumpectomy, I asked to go directly for an mx. Turns out it was Stage 1, and I had 25 rad again, at the start of this year. Receptor-positive this time, and since January, I'm on tamoxifen (what a b*tch that is! Sorry *grin*). I'm 28 now, and flat as an ironing board where my chest is concerned!

I'm eager to find if other young women are on tamoxifen too... I have some questions I'd like to ask you.

XOXO

penguin82
Member

Re: Anyone diagnosed in their 20s?

Thank you Sandytoes xxx

Sandytoes
Member

Re: Anyone diagnosed in their 20s?

Hello Penguin82.

A horrible situation that i, and many others on thos forum, and many other girls i've met can empathise with. BUT all of our cancers are different, so while we can share stories I would discuss this in detail with your onc who should be able to give you percentage gains of different treatments.

I'm 33 and had my 2nd wedding anniversary on Monday - by which time we'd hoped to have been pregnant, but I was diagnosed in may. I had to have chemo which has a high chance of affecting my fertility (couldn't harvest eggs due to strong er+ and big lump.). Next step is surgery and rads and tamoxifen. I will be weighing up the risks of me coming off tamoxifen early, but doubt I will as I want to give myself the best chance. There are so many ladies on this website who went on to have children and then develop secondaries(quote having opted out of specific treatments) and having lost my mum to breast cancer I know that I need to do all I can to give me the best chance of survival before I revisit the idea of children. I want them to throw everything art me. This won't be until my late 30s now and it breaks my heart.

If 1982 is your birth date, then time is definitely on your side, and if you had a tiny lump with no lymph or vascular invasion, your onc may well think that coming off tamoxifen early could be an option for you, and a lower risk than
for some of us others. But I would talk this through with them and, personally, I'd also get a second opinion. You are very lucky not to need chemo - but tamoxifen could be 'your drug'.

Wishing you the best of luck. It's hard enough to deal with anyway and is really is horribly difficult when your exciting plans are thrown up in the air - especially when all of your friends are getting married and popping out babies left right and centre. But YOUR health is the most important thing to deal with right now.

Big hugs.

X

AnnieK68
Member

Re: Anyone diagnosed in their 20s?

Bumping up for penguin82

X

penguin82
Member

Re: Anyone diagnosed in their 20s?

Hi ladies,I've only just come on to the forums and my heart goes out to you all. I'm 28 and was diagnosed with bc this summer. Although I've been trying to be as positive as poss I'm now really angry that cancer is forcing me to have to make decisions I never thought I would have to make. (Then feel guilty feeling angry when so many others are in a tougher position than me)

I'm getting married in April and we were planning to start a family straight away. I've been advised radiotherapy and tamoxifin. I'm finding it really difficult to make a decision. I'm so upset that if i go on the tamoxifen i'll have to wait 5 years before trying. I would really appreciate hearing from others having to make these decisions xxx

tors
Member

Re: Anyone diagnosed in their 20s?

Bumping up for butterfly83

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cannoliwings
Member

Re: Anyone diagnosed in their 20s?

Hi Girls,
I am actually 30 but am told I look 22,so I'm joining in as an honorary 20 something (who is clearly in denial about being 30!!) I was diagnosed in May with 1 small grade 3 lump - said lump was banished under the surgeons knife and am now at the beginning of my 'chemo party' 1 x FEC down , 2 x FECs and 3 x T's to go! Plus I believe I'll have some radiation after that, just for sh*** and giggles, like.

I was completely shocked when I got my diagnosis. I didn't think for a moment the news would be bad, on account of being so young - despite having a strong family history.I think I was actually in a great mood and in some weird delusion where didn't really mind too much for at least a few days afterwards but obviously now I'm a patient; suffering side effects, dreading going bald, and worrying about my career / chemo balance, it feels pretty real.

Although I wouldn't wish this on anyone it is much less isolating when one knows one is not alone.

Wishing everyone the breast! (sorry terrible joke) and hope to talk more with you all soon.

bluesmurf
Member

Re: Anyone diagnosed in their 20s?

Hi flutterby
How are you? How you getting on?
I joined this site last year when I was diagnosed in march age 26, I had lumpectomy, chemotherapy and radiotherapy, now on tamoxifen for 5 years. I had great support from this site, feel free up be in touch with me if I can be of any help. I no it probably doesn't seem like it now but there is a light at the of the tunnel. Keep strong and stay positive, hope to hear from u soon x x

jaayres1970
Member

Re: Anyone diagnosed in their 20s?

Hi

I was diagnosed when I was 25, I am now 41 and have been clear ever since, I had a routine mammogram last week and have been called back for an ultra sound...just hoping its only scar tissue that they are checking as this has happened 3 times before.

16 years free though is amazing...I hope I have another 16 years free and that you can take some positive feelings away knowing you can go on without it coming back.

xxx

J01
Member

Re: Anyone diagnosed in their 20s?

Hi I was 34 when dx (mind you that as 14 years ago) I had mx/imm recon then chemo refused RADS ( I was told it was belt and braces and so therefore I kept rads in reserve in case I ever needed it with alocal recurrence.. which i havent yet) they didn't know til after mx/reco what the full state of the cancer was??? it too was grade 3 and with a 7cm tumor, I would ask about imm recon if that is what you want... remember you do have rights!!!

I went on to marry and have 2 beautiful children despite it all and being told that I probably would not be able to have kids!!!!!
XX

I have now been dx with new primary , other side and am working my way through chemo I will have another mx/imm recon...because its what I want.. at the end of sept beg of oct???

hope all goes well for you all
Jeanette xx