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Anyone due to start chemo in April? - Awesom April Angels

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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi Ladies
Thanks for all your good wishes this morning, just a quick check in before i head off for Hickman and Chemo (not a very funny act :))

Lori, Amber, Debra - hope you are all still doing ok, I'll be joining the bandwagon soon no doubt. It really does make it easier when you at least know what s/e's may be like albeit everyone will be different

Mamakaz - I can't believe you are not entitled to any benefits ? I know some people are entitled to benefits even when they are still getting a full time wage (it's so wrong) - I'm sure the macmillan website has some good info on benefits etc which may be helpful. Also, if you scroll back a few pages I'm sure Linda posted a link to all the various chemo protocals and S/Es which should help

Angiepops - may be too late but I am getting the chest line (hickman) as I don't have any veins! I think the line in the arm is a Picc line and this needs to feed in through a vein in your arm

Keeley93 - well done onjoining for your mum (I would def have to do the same if it was my mum 🙂 - i'm sure you will find lots of help and support

Welcome to all the other new ladies

Pauline xx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi Debra,
So sorry to hear how your feeling and like Amber has said, completely understand where your coming from.
You are doing all you can its not an easy road and with everything else losing your hair is such a huge thing. I too am dreading it but hope to do the same as a few others...try n take control when the time comes and fingers up to this crap.....it aint gonna get the better of us!!!!!
I hope that with support, understanding and lots of rest your spirits are lifted, we do know how you must be feeling especially as you are cold capping (many of us are not) we are thinking about you and wishing you the best outcome - huge hug Debs!
Hang in there, lots of love
Lori xx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Mamakaz - Good luck with your first treatment this week, I'm about a week behind you and waiting to see if I can get my portacath fitted before my first chemo session, are you having the white blood cell enhancement injections too?
I am thinking of having my hair cut short this week before I start chemo and then when it falls out having a short wig too......but can't decide! I have my sister and niece staying at the moment and they want to take me to try some wigs on as a 'girlie' day out so I could be spending tomorrow wig hunting and not in a hospital! 🙂
Kate
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Re: Anyone due to start chemo in April? - Awesom April Angels

Mamakaz - Good luck with your first treatment this week, I'm about a week behind you and waiting to see if I can get my portacath fitted before my first chemo session, are you having the white blood cell enhancement injections too?
I am thinking of having my hair cut short this week before I start chemo and then when it falls out having a short wig too......but can't decide! I have my sister and niece staying at the moment and they want to take me to try some wigs on as a 'girlie' day out so I could be spending tomorrow wig hunting and not in a hospital! 🙂
Kate
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi everyone,
I am also starting my treatment - tomorrow in fact! I am on TCH, starting with a loading dose of Herceptin tomorrow after my pre-chemo chat, then back on Tuesday for the chemo. I am terrified. Even more so than when I had my surgery. I think it's a fear of the unknown. I am also having a portacath fitted on the 24th as they couldn't do it before my first chemo so I asked if they could do it just before my 2nd so that I have a chance of fighting off any infection! Already had my hair cut really short which everyone says they like. Don't know if they are just being kind or they didn't like to say my hair was horrible before!!
Would really like to get back to work as I am self employed and after some very long phone calls to DWP have been told that I can't claim any sort of benefit! I've always worked and paid into the system and it all seems so unfair. Are there any ladies who are having the same treatment? Just wondering how the SE's are and if there will be days when I would be able to work. Carboplatin, Paclitaxel and Herceptin are the drugs I'll be having - one thing I won't be having though is the cold cap! My hair is really fine anyway and my head gets cold enough as it is!!! Good luck to everyone and Lola, I will see you tomorrow! Love Karen xxxxxxx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi Debra,
Sorry to hear your not feeling so good. Losing my hair is a biggy for me too, it feels like everything's being taken away and your out of control. I intend to regain control by cutting my hair short when my scalp starts to feel sore, then it's my decision. I intend to start wearing my wig straight away as I dont think Iam strong enough to go out with short hair yet, have you got a wig sorted?
Cancer puts a big strain on relationships and we have to try and get through this the best we can with the support of our families and friends And all the lovely ladies on here. Your fiancé may be finding it difficult not knowing what to say sometimes. Some people may not think loosing your hair is a big issue but I totally understand where you are comming from.
Try to take control so you are the controlling the situation if you can, you're allowed to have a down day this is a hard journey so take some time out for yourself and try have get some sleep.
Hope this helps even a little,
big hugs xxxxx
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Re: Anyone due to start chemo in April? - Awesom April Angels

hi angels
not been on for a couple of pages due to waiting for my appointment to see the onc ,which finally came and now ive got to decide if i have the tube thing in the upper arm and chest? (not very medically inclined im afraid) to get blood out for tests and the chemo stuff to go in? has anyone got that, going on the 11th so i have to answer them tommorow morning (monday).
any info will help
thanks, angie xx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Thanks Amber D, I think I need to speak to the nurse I met on Thursday and see what she suggests.
Katexx
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Re: Anyone due to start chemo in April? - Awesom April Angels

I am very low today! 2nd chemotherapy was on Tues with cold cap. My hair is thining especially underneath and I can't bear to comb it. I have 2 more of the red stuff before starting something which can be taken in tablet form. I can't bear to loose my hair I find it so distressing, I am finding it hard to cope. Today I have not got dressed and cannot look in a mirror. My fiancé and I have been arguing today too. I don't know what to next.
Debra xx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Evening everyone,
Fec-t cycle 1 day 6
Snowing again today!
Woke up to the usual s/tab meds sorted me out but have had a really woozy head most of the day and constipation, what joy! Quick visit to Tescos n now hopefully sorted fingers crossed. Can't really taste my food today either, fancy something to eat and then when I get it don't really want it. Apart from these minors all good.
Good Luck Pauline for tomorrow, tick the box!
Debra & Lori, hope s/e not too bad
Kate, I went to a hairdressers who specialise in wigs recommended by my oncology nurse for mine.. She advised me to get one which was very similar to my own colour and style so that it wouldn't be too much of a drastic change therefore avoiding people drawing attention to mine until I became more comfortable wearing it.
take care xxx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi everyone, I was diagnosed 15th feb and had mastectomy and expander implant on 21st March. I am feeling great so far, already been out and about every day since leaving hospital. I got my results last Thursday which unfortunately showed 3 independent areas of cancer that were 3 different grades and also some 'rogue' cancer cells floating around my sentinel lymph node. So although my lymph nodes are clear they don't want to risk that other rogue cells have already made it past there so I am starting chemo in next 2 weeks and have to have radio after the 8 doses of chemo. I have 2 great surgeons and the oncologist who I met Thursday was clear in his communication, willing to spend time answering questions and also has a sense of humour that clicked with my husband so I'm hoping we will get through this with the right support. The one thing I don't seem to have info on yet is wigs.....and I can't imagine being happy seeing myself bald gas I'd look too much like my brother I think (urgh!) that I'm now thinking my focus this week is wig 'policy' hunting so I can get myself sorted. Does anyone else know much about wigs yet?
Kate
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi AAA's,
Thanks for the kind welcome - it's so good not to be in this alone.
Amber, your SE's sound manageable and I really hope they continue to be - you have given me a huge boost as I start on Friday 12th and then it's the last weekend of my children's school holidays and I would so love not to be completely out of action.
Has anyone any experience of a picc line? My chemo can't start without it as I had a bilateral MX and ANC both sides. Just wondering how painful and how long to stop hurting?! Sounding like a wimp, but I've only just got proper movement back after surgery.
Good luck on Monday Pauline, keep taking the irn bru and whisky!
Hope you all picked the Grand National winner (I didn't)!
xxx Katie xxx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Evening Ladies,
Seems to be a pattern forming, woke about 6 usual slight nausea, headache and indigestion, took meds n back to bed. Had a good day with all the kids, did a belated Easter egg hunt as we were away last weekend, now it's snowing!
Continuing to take all anti sickness meds and drink plenty, fingers crossed.
Lori - good to hear your doing ok, maybe try some pineapple ice lollies to help your mouth until you see your bcn on Monday.
Debra hope your ok and s/e not too bad
Ive definitely got the chemo fog, my brain can't retain any info at the moment so I apologise if I miss any of you out when posting
Have a nice evening everyone xxx
Member

Re: Anyone due to start chemo in April? - Awesom April Angels

Hi Everyone,

Just been catching up with your post and wanted 'to get back to you' - had my best day today, since starting on 27th March!
The only SE I have at the moment started to come on last night, my mouth was becoming quite dry, which was no surprise really and a small inconvenience compared to the headaches, nausea, reflux, tiredness & aching bones....thankfully not all together!! The problem seems to be with my saliva glands they have just stopped working - they feel hard, slightly swollen and very sore when you try to eat. Not sure if there is anything I can do about this but I will make a few enquiries, I'm back at hospital on Monday so may just pop-in and ask my BCN what she advises.

Debra, Amber, Glad you are both hanging in there, it is weird how this stuff really does effect us all in a slightly different way, I hope your SE's are managable and not making you feel too miserable.

Anne, I am thrilled to hear that you don't have this 'Chemo Cloud' hanging over you - great news! I will be thinking about you on Tuesday and yes every day after that too as unlike the chemo it is a daily treatment but hopefully quite a quick process and weather permitting not too much of a problem travelling up and down every day. Good Luck!

Pauline, I may not get a chance to log-in tomorrow but wanted to wish you all the best for Monday, you will sail it, I'm sure!! I hope your feeling ok and remember to watch out for those weird sensations as I posted on 27th March! I will be thinking about you, Good Luck!

It is hard to respond to everyone at once now as we have more people joining and we are all going through slightly different stages at the moment, results, treatments etc but I am getting a great deal of support, advice and clarity by reading all your posts. I hope you are all doing well and will catch up with others soon now that I am feeling much better. Welcome to all the new ladies too, it's a great site and very helpful to be a part of - hope you find it a great support!

Next week is a busy one locally I have CT scan, Echo Cardiogram, Prosthesis fitting and Head Strong Class, the week after I have booked my Look Good Feel Better class....I feel like I am starting to need that one although (touch wood) this is day 11 for me and I am not losing any hair....YET!!

Take Care all,
Love Lori xx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi Spudgirl,
It will be to check your heart before your chemo. It is part of the normal protocol before we start or as soon as possible afterwards, then at certain intervals during treatment. I had one a couple of weeks ago. The doctor uses ultrasound to check what levels your heart is pumping at. It is painless and takes about 15 minutes. Afterwards, if you ask, he might tell you what he found. Mine did and I was perfectly normal. Sometimes you have an ECHO scan (what you are having) and sometimes a MUGA scan which is a bit more complicated.

Linda xxx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Ouick question please. The hospital phoned me the other day to say itheymade me an appointment in cardiology to have an echography which i think translates as ultrasound. The lady couldn't tell me why. Any ideas what it might be for? Is it something to do with portacath fitting next Friday? Or chemo?
Thanks x
Member

Re: Anyone due to start chemo in April? - Awesom April Angels

Ouick question please. The hospital phoned me the other day to say itheymade me an appointment in cardiology to have an echography which i think translates as ultrasound. The lady couldn't tell me why. Any ideas what it might be for? Is it something to do with portacath fitting next Friday? Or chemo?
Thanks x
Member

Re: Anyone due to start chemo in April? - Awesom April Angels

Hi to all AAA's,
FEC-T cycle 1 Day 4
Welcome to Katie & Jo another 2 on the Fec-t along with Mel A, glad you've got a date. The unknown is so uncertain and worrying at times but now things are progressing, you can start ticking off the boxes.
Another reasonable day so can't complain. Woke at 3.30am with a headache and nausea followed by indegestion took some meds and back to sleep until 8. Went out shopping and met friends for lunch, a bit tired later in the afternoon so had a nap. Felt a bit spaced out this evening for a bit but ok now. Still drinking loads and taking all the anti sickness meds.
Lori & Debra - hope your ok
enjoy the weekend everyone, been a glorious day here
xxx
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Re: Anyone due to start chemo in April? - Awesom April Angels

I would like to join aaa on behalf of my mum who is not really computer savvy but is going need lots of support and I know she'll benefit from all this positivity. We re all a little confused at the mo. mum is 66 5 weeks ago went for standard mammogram and a lump was found - she had lumpectomy to remove 9mm lump. Had brill op and really positive results clear margin no lumpectomy in lymph glands but some of the removed lump was her2 +. After first appt we knew that chemo and herceptin were on cards but yesterday the registrar said even with chemo and herceptin that the cancer could return in 24 months. If I'm being honest he didn't phrase it as sensitively as that !! Mum doesn't have cancer anywhere at midi how can doctothings such things !! I ve decided to make appointment with gp to go through done stuff but mum is bring really positive.

Im going to tell her all about you positive people and hopefully she will be able to add done positivity to this once her chemo starts in next few weeks 🙂
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi all, had my follow up appt following ANC today, they took another 18 nodes and another 7 had traces (so 11/28 in total) have ct and bone scans next week then onc on 15th and should start by end of the month.
Mel, new hair cut is growing on me, wasn't sure at first but people seem to like it!
Hi Jo and Katie, welcome!
Debra, Amber and Lori hope you continue to be ok
have a good weekend everyone xxx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi lori
I hope you are coping well
I wont be joining you at Wansbeck for the chemo. The onc said I wont need it ( there would only be 3% benefit )
The tumour had clear margins and sentinel node was also clear the only negative he said was the size of the lump it was 51mm
I am to have 15 sessions of radiotherapy at Freeman first session on Tuesday and have to take Letrozole for 5yrs.
A two hour car journey every day but hey I'm not going to complain about that I think I have been really lucky
Member

Re: Anyone due to start chemo in April? - Awesom April Angels

Hi everyone this is my first post!
I too am due to start my chemo in April (16 to be precise!) and will also on FEC T!
I am feeling ok about things its more the fear of the unknown so just want to get started now. I have already had my haircut was well below my shoulders and now it's in very short bob below my ears and my neck is very cold! Am also yet to do anything about sorting a wig but its next on my list - apparently my 8 year old needs one too!!!
Am going to give the cold cap a go but will see how we go with that as I am not a great lover of the cold!
Good luck to you all.

Jo
xxxx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi Katie, welcome to the group!!

A few AAAs have started treatment recently and there are a few more due to start over the next week or so. I start on Monday and am also on FEC T so I'll keep you posted on how things go.
I haven't cut my hair either and given it will be gone in a few weeks my intention is to just leave it for now and shave it off when the first signs show. Not planning to wear the cold cap myself as I love the heat and dont think I could handle it!! 😎
Feel pretty organised for Monday, just need to book app for wig which I'm trying to time for when I will have lost my hair. Looking forward to a good weekend before the fun starts..
Hope all the AAAs who have started are holding up well - big hugs xx
Pauline xx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi AAA's, I know there are rather a lot of you already, but I was hoping to join your group to get and offer support as I start chemo (FEC T) on 12th April. Had a bilateral Mx on 26th March (IBC 27mm right and 7mm left with lymph involvement). I'm feeling really apprehensive, but trying to keep a brave face for my family, especially three teenage children! Am planning to use the cold cap and haven't had my past-shoulder length hair cut yet, so probably under-prepared on that front. No wig either, but have spotted a Raquel Welch one online that might work..! Good luck to anyone having treatment today, Katie
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi everyone,
I got confirmation today that I will be starting my chemo on 10th April (6x FECT). Whilst feeling very nervous I'm pleased to get things moving so I can have my life back sooner. I'm going for blood tests on Tuesday so have booked an appointment for a wig fitting on the same day - there is a wig shop at the hospital. It's a shame that I'll be losing my hair as I really like my new Pixie crop. I've always had long hair. I hope you like your new cut Zuzy.
I went for my prosthesis on Tuesday and one of the staff at the Macmillan centre showed me how to tie scarves. I couldn't believe how easy it was. I now feel as ready as I'll ever be. Hats and scarves bought, wig appointment booked, dvd from 'look good feel better' ordered and number to hand to book a makeover session. All this and the fantastic tips and advice from everyone on this forum has made me feel like I have more control over the dreaded hair loss business. Let's hope I can stay this positive after my first cycle .
Littlescoot - I had similar feelings when I got my results back following my mx. I had 3 tumous, 1 was 65mm grade 3, the others grade 2. Even though my lymph nodes were clear and the tumours were removed with clear margins, I was more shocked by the grade and size. It does scare me that it was so aggressive in case it comes back, however I am trying to focus on the fact that the chemo should destroy any trace of anything that may have been missed and as my cancer was hormone dependent, Tamoxifen should reduce the risk of recurrance. It's easier said than done, but try to focus on getting through this battle. The other might never happen.
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Re: Anyone due to start chemo in April? - Awesom April Angels

Evening Ladies,
So far so good today has been fine again!
Kim - glad you have a date at least you can plan ahead now
Pauline - sorry you have to wait until Monday, but at least you can enjoy your weekend. Haven't tried the whiskey n iron bru yet, maybe best wait a few days. The first day I wasnt really up for much to eat but been ok since and taste buds are fine so far. I've been really trying to drink plenty so don't know if that has helped. I was given all meds up front and have taken all the anti sickness ones as prescribed whether or not I feel sick. it seems to be keeping the sickness at bay rather than wait til it happens. I also have strong ones that I could take if I felt really bad and just want to curl up n bed but fingers crossed I haven't needed them.
i expected it to be a lot worse, each day I wake up and think is this the bad day so fingers crossed, you should have seen me this morning when the steroids kicked in, the housework got blitz no problem.
Debra & Lori hope your s/es are not too bad
take care xxxx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi Ladies

Got a call this morning to say chemo is delayed until Monday at which point they will put in a Hickman line and then do the treatment same day - so not too bad. Interestingly, a portocatch was mentioned (like some of you other ladies have) however, I was advised a hickman line would be better as some of the chemo nurses are not comfortable working with the portocath. Really inspires you with confidence!!! (especially as I am attending the biggest, specialist cancer hospital in the west of Scotland - go figure!) Anyway, just glad it is starting on Monday - and have another 'free' weekend to enjoy first 🙂

Spudgirl - yep I am triple neg and cocktail of choice is FEC-T - yummy!

Amber - sounds like things are going okish? How has your appetite been and taste buds? (tried that whiskey and Inr bru yet ? :)) My hair is shoulder length so like you ,plan to shave off once scalp starts to show first signs..
Can I ask a silly question, are you given all the pills for s/e's upfront and take as and when you need them or do you need to call your own doc or chemo nurse to get more prescribed depending on what you need? Just trying to figure out how it works if you present with a s/e other than the normal nausea etc. Would you go to your GP in that instance ?

Off for a nice glass of red!

take care ladies
Pauline xx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi everyone, met with the oncologist today and have been given a provisional start date of 12th April for first cycle of EC Chemotherapy, I have to wait an extra week has I currently have a boil that is being treated with antibiotics and I can't start my chemo until the infection has gone. I mentioned that was going to a family wedding on the 31st May and I was told there would be no problem putting back the 3rd cycle by a couple of days until after the wedding, which is great as I really don't want To miss it.
there was no mention of picc or portacath today....that may come next week.
I visit the chemo suite next week and my BCN will give me a voucher for my wig, from an exclusive wig supplier in the Victorian arcade in Leeds! She is also arranging an appointment with the 'looking good, feeling good' charity, which shows you how to adapt your routine and makeup routine to cope with changes to your skin and hairloss, apparently you are given a goody bag full of cosmetics by Christian Dior, Clarins, Estée Lauder etc, it may be worth mentioning it to your BCN to see if she can book you in at a local venue.
I'm lucky that there is a Breast Cancer Haven in Leeds that offers a range of complimentary therapies, support groups and counselling which I might consider, depending on how I react to the chemo.
My order has arrived from Anna Bandana, the sleep cap and headband scarf are both lovely and excellent quality. I can definitely recommend this site as it is I also really reasonable.
Debra, Lori and Amber I hope the SE are not too unbearable
Kim x
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi Spud,

When you saw the oncologist and he told you which treatment you will be having, did you sign a consent form? If so, the treatment plan will be on there and you should have been given a copy of it.

I had my portacath fitted yesterday. The procedure wasn't the most pleasant experience, but there was no pain at all other than the "sharp stings" when the local anaesthetic was administered - a bit like at the dentist when you get an injection in the gum. I was given the choice of sedation or no sedation. I chose not to have any. I was a bit uncomfortable due to having to lie on my back for 45 minutes with my head turned sideways, so I got a crick in my neck, and I felt a bit woosey half way through. I was assured my heart and BP were absolutely normal and there were no complications. They gave me a bit of oxygen and I was as right as rain again. I took a couple of painkillers last night as a precaution for when the local anaesthetic wore off, went to bed early and slept right through the night. Today I have no pain at all and haven't needed any painkillers. It just itches a bit, but this might be the dressings.

I hope this hasn't put anyone off - it really was painless. Once the dressings are off I can bathe, swim, and not worry about knackered and sore veins!

Linda xxx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Sandy - Wendy is right, you need someone to talk it through. I didn't do that last time, but it meant by the end of treatment I hadn't really acknowledged anything, so had several counselling sessions after and talked about other stuff too and felt a ton better! I think you'd be better talking with someone now. If they offer me anything like that this time round I'll just say yes, even if I feel okay.
Rozz - thanks for the info on the Portacath! My veins go into hiding when I have injections (like Pauline I think!) so its always a hassle trying to find one and sometimes end up with needles in stupid places because of it. So although I am not thrilled at the thought, I think it will be better for me.
Pauline - which chemo are you having? I only ask because you have triple neg too. My Onc told me mine and stupidly I thought I would remember it and now haven't a clue, although I think it began with an A. I'll ask him next time I see him to write it down, but that'll be on 15th when I start. It didn't occur to me that it was that important to know yet, but my dentist says he wants to know.

xx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Primrose hill - sorry you're having a rough time. I really would recommend some counselling. I've been a bit of a emotional mess recently and have now had 3 sessions with a good psychotherapist, to whom I was referred by my breast care nurse. It really does help - sometimes it's just easier to unload to someone who isn't close and involved. The therapist I'm seeing is also very good at practical, usable "tools" to help people cope with the treatment.

All the best - thinking of you
Wendy x
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Re: Anyone due to start chemo in April? - Awesom April Angels

Morning girls,
Fec-t Cycle 1 day 3
Dare I say another good sleep, had my Neulasta injection around 6 last night and no side effects as yet. about at 6 this morning with a bit of a headache and slight sicky feeling so took anti sickness tabs n headex and slept for another couple of hours. Have eaten breakfast and took steroids and the rest of anti sickness tabs and feel fine, Iam also trying to drink lots of fluid during the day. Keeping waiting for a bad day to hit me.
Lori & Debra hope your doing fine, my chemo nurse said the s/e could feel like a bad hangover
Rozz - welcome to the gang it will be good to pick your brains as well
Littlescoot - glad they got everything, this is good, try and think positive
Primrosehill - great you start next Tuesday, the hanging around is the worst, once you know you can move forward and start ticking off the boxes. My hair is a biggy for me too, I have lots. I've bought a couple of wigs and have decided to get my hair cut short when I start to feel my scalp getting sore. That way I will start wearing my wig and won't have the trauma of handfuls of hair falling out. Iam just not confident enough yet to go out with short hair. I felt better about making the decision as I felt I was in control where previously I felt I had no control over anything. So by cutting your hair it's your decision and you have taken control - go girl ! We are all here to support each other.
Pauline - what a terrible day you had yesterday, these things don't help us when we're so near to our start dates. I think your right to insist they at least try, for one youll be mentally prepared for tomorrow and if your anything like me don't want anything to postpone it now. I just wanted to get it started as soon as. Good luck for tomorrow I'll be thinking about you.

take care. Xxx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Yes, it is true that we have no control of life, however it this case you are in the process of saving yours. Call your BCN and get some councelling put in place, I have two sessions and found it helpful. Your stress related feelings are normal and everyone feels those.
Also, once you start your treatment you will other people you are going through similar treatments.
so, ask about counseling and possibly the cold cap I am hoping to keep my hair.
remenber my cancer came back and I am still here 11 years later at 50 years of age to fight another day.
love and best wishes.
Debra xx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi. Have got my date for chemo. I start on tuesday. Also have had my long curly hair cut to a very short pixie. Feel so low and everything seems daunting. I am worried its spread as I had tummy ache last night and felt sick. I get headaches too. Im sooo scared keep crying and feel out of control. Saw the doctor last night who basically said get through each day at a time and anyone could die anytime. xxxx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi. Have got my date for chemo. I start on tuesday. Also have had my long curly hair cut to a very short pixie. Feel so low and everything seems daunting. I am worried its spread as I had tummy ache last night and felt sick. I get headaches too. Im sooo scared keep crying and feel out of control. Saw the doctor last night who basically said get through each day at a time and anyone could die anytime. xxxx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Dear Littlescoot,
they have got it all and the chemotheraphy will mop up anything horrid. The size is not as important as the grade.
I have had chemotheraphy no 2, not as bad as first I feel like I have a hangover but no enjoyment to remember.
i know about fear because I have had a new breast cancer diagnosis in Feb this year resulting in an masectomomy, grade 3 like
you. My prognosis is good like yours will be because the margins are clear.
I am trying the cold cap, my hair is shredding, so fingers crossed!
thinking of you all.
Debra xx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi, I started my chemo on 28th March, but I hope you don't mind me joining in with the April group; most of the March group seem to be on their second cycle already and as I will have to have 8 cycles, they will be done with it all well before me.
I've been prompted to reply to Spudgirl re the Portacath. I had one put in a couple of weeks ago. I opted for a general anasthetic, but regretted that. I'd just started to feel really well after the surgery, then had to recover from another op; with hindsight I'm sure a local would have been easier to get over. The Port itself does show as a lump under the skin, and I still have marks from the incision but these are minor and will fade I'm sure. It took a few days to settle down, but it's now completely painfree and I only notice it if I touch it inadvertently. I had my first round of EC chemo last Thursday and it was really easy to insert the lines into the Port, minimal discomfort at the time and absolutely none afterwards. I normally end up with a huge bruise on my hand after a cannula so I'm really glad I went with this option. Good luck!
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi Ladies
Debra, Lori and Amber hope you are all doing Ok, and thanks for letting us know what to expect.
Littlescoot - excellent news that they have got it all.
Zuzy -I have changed my hair appointment on Tuesday from the usual colour and trim to a short cut. I suffer from female pattern baldness and have extremely thin hair on my crown so it is more or less inevitable that I will lose my hair. I think it will be easier to deal with short strands of hair falling out rather than seeing long strands in the pillow or brush !
I have my oncology appointment tomorrow so will give you an update tomorrow .
Take care everyone
Kim.
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi Ladies

As suspected, went to my pre chemo app today and had horendous time trying to get blood - 'you will need a hickman line or portocath fitted' the nurse told me. Well surprise ******surprise, I thought, I have been telling you this all along!!! After some 'words' i got them to try a few more times and one nurse eventully got blood from a vein I pointed out to her. Too much messing about however, so will need to get line fitted before chemo can start (due to start this Friday). I have insisted that they at least try on friday and then arrange for the line to be fitted before chemo no. 2 - really peed off, as I have been telling them this all along and my surgeon pointed it out at the start of the process however, no-one seems to have listened or prepared for it! (I've also not heard a word from my BCN in weeks, which is annoying me as well) - sorry for rant ladies!

Anyway, that all sounds pathetic compared to what some of you lovely ladies are going through
Amber, Lori - hope you are still ok, your posts are really helping me to prepare - thanks so much
Littlescoot - hope you see the Onc soon and find out treatment plans and put your mind at rest

big hugs
Pauline xx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi
Linda & Lori, thanks for the replies and info, asked my nurse and she said much the same so will just have to wait and see. Still feel fine tonight but feel there's a time bomb waiting to kick off.
Linda, just read your post on Valentines, so sorry you re had a rubbish day, hopefully you're feeling a bit better now and try n put it behind you
take care xxxx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi, I am new here. Have been diagnosed with DCIS, I think it is invasive as there is a lump under my arm, a biopsy found cancer cells there. I have been told there are 3 lumps all in the same place, total area ~4cm. Starting chemo next Tues to try to shrink things a little.Poss 6 FEC but have not had the results from HER test. Positive for hormone receptive, so could be that I have 4 FEC and 4 of something else. Then an op to remove lump, then radio, then Tamoxifen.
My question is, is there anyone else in the same boat as me I am 38 years young......Any tips and advice is greatly recieved.
Thanks x x
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi Amber,

Lucky lady getting Emend and Neulasta!!! At my hospital we only get those if we are ill on the first cycle, and then get them for all subsequent cycles. I haven't started my chemo yet, but some of the Valentines suffered bone pain with the injection and needed painkillers. Perhaps you could have a quick browse through.

xxx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Neulasta side effects -

Very common:
  • Bone pain, general aches and pains in joints and muscles

  • Nausea and headaches

Common:
  • Pain and redness at site of injection
I had the nausea and headaches straight after my chemo on the Wednesday, I had my Neulasta on the Thursday but the other SE's of bone/muscle pain did not start until Saturday evening so not sure if these were progressive SE's of the Chemo or the Neulasta?
Hang in there everyone!
Love Lori xx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Littlescoot, wasn't ignoring you....... this page only showed when I posted mine! Good news that they got it all and that you know what you're dealing with and have a plan of action to finish it off! Hugs xx
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hair chopped, eeeek! Was going to go chin length but hairdresser persuaded me to go much shorter.....my ears are cold!
Amber, glad SEs are holding off so far, hope injection is ok
Debra and Lori hope you are doing ok.
wendy glad fitting went ok
spudgirl, can't help othe than to say maybe check if you can rebook if you either feel crap or overrun, you don't want to miss your only chance!
xxx
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Re: Anyone due to start chemo in April? - Awesom April Angels

*in our power to beat it! (makes more sense!)
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi ladies,
I've been reading your thread with interest as i'm having a mx with anc on 17th and next step will be chemo.
Good luck to all of you. I think as women we have an inner power that keeps us strong and even at our most vulnerable we find something positive to pull us through. There is nothing we can do to change what has happened to us but we can do everything our power beat it.
love to you all
Emma
x
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Re: Anyone due to start chemo in April? - Awesom April Angels

Dear Littlescoot,
Justs read your latest posting.You should be rejoicing. Its all gone. they caught it. I am not sure how the technology . you have excess to works but I do know that if your surgeon is positive then you have good reason to be happy. Some times I think we are afraid to be happy,but this is good news. You can get on with your treatment and then get on with the rest of your long life. I go for my appointment 12th April but the surgeon has already given me an idea of my treatment and that includes chemo. So we might be going through the chemo at the same time (any tips are gratefully recieved). The rest is now do- able, lets do it with a smile. Lots of hugs. xxxx
Elliedog.
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Re: Anyone due to start chemo in April? - Awesom April Angels

Thank you maggie- I was really hoping that's how they did the scoring, and I know my stats for the 49mm one so I have just started to breathe again:)
thank you 🙂 xxxx
LS
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Re: Anyone due to start chemo in April? - Awesom April Angels

Hi Littlescoot, my surgeon told me that they are not concerned with the total size of the multiple tumours it's only the largest one that dictates treatment and prognosis so looking at your results it's the 49mm of grade 3 they will be interested in.
I hope this helps you. It's great news that they have got it all, and you can get treated and get on with your long life. They get great results these days.
Good luck
Maggie x