like kate says, i had pain and tingling for a while, still get it now but not as bad. take the painkillers but be careful not to use it too much under the influence. it does go off after draining, i used to call in at the hospital and they would do it if it got too much for me to relieve the pain.
Pauline and Debra it good to hear from you again. And yes I can't wait until 5th/6th April.
I know it's been a while since your surgery ladies but I wonder if I can ask some questions just to put my mind at rest.
Should i be starting to feel a little better by now? ( Had my last drain out last Weds).The pain under the whole of my upper right arm feels like ive had boiling hot water poured over it. It also feels numb on the underside and has a tingling sensation too. It got so bad I ended up at A & E on Sat the Dr on call there at least took BP, pulse and blood. Everytihing was ok apart from noticable swelling on the breast and upper arm but the doctor daren't do anything without getting hold of the surgeon and told me I must contact the breast unit this morning.
I tried, but the nurse said nothing can be done as he's not in unitl my appointment on Weds. Now I feel like i'm being a nuisance. I'm already on paracetomol and tramadol so daren't take anything else. It really feels like i'm getting worse but have done everthing I can in getting help. I suppose the only thing I can do is wait until Weds.
Did any of you ladies have this pain and sensation after surgery? If so how long is recovery?
Mel - Well done for sticking to the chemo regime. Must have been tempting to miss or reduce the last ones. Like you I felt I had to stick it out and give it my all.
Philomena - Great news for you and your family that you dont carry the BRCA gene. Now you can concentrate on getting better and having loads of cuddles from your kids, family, and Luca. (What a lovely name)!
Amber - I hope the starfish relapse is only temporary.
Mel - A hope youve had a great time in Anglesea.
Caz - Hope the finishing rads celebrations went well and you had a champers for me.
Judy, Kate, Kim, Lynn, Angie, Diggy, Lori, Hope your all ok and feeling well. Lv and hugs Sandy. xxxx
Pauline can you remind me of the dates we're supposed to be going? chemo brain!!!
I clearly can't count, 11 ladies! Guess if someone else doesn't mind a single room, then we can always share if I can come!
Hi Angles - so sorry for not posting for so long, I didn't realise how long it's been! I'm still catching up with all your posts!! I've been busy working and doing things around the house. I had my post treatment app with Onc this week. She has recommended a bone scan because of pains in my legs, she reckons it will be ok but just wants to check! It won't happen until after my hols now so I'll park that worry for now! Still waiting on my dad's scan results which is a worry! I'm off to Florida on Thursday, it really can't come quick enough!
April get together - I'm not sure I can go now ladies as we usually go to Lanzarote each May with my brother and SIL, they are struggling to get time off in May so may need to be April. I wont know for a while - total bummer! Anyway, taking me out the equation there are 12 ladies staying overnight:- Kim, Amber, Philomena,Kate,Lynn,Moira,Diggy,Mel, Rozz, Caz and Lori. Why dont you ladies go on and book and I can get a room on my own if I can come, I'm fine to do that. Mel A and Sandy are also going but not staying overnight.
Mel - so glad you eventually got out and are recovering, you really have been through the mill
Sandy - you too, hope you are feeling a bit better now and like the laides said, dont feel guilty
Philomena - great news, bet that was a relief!
Amber - glad you had a lovely holiday, did you get your bone scan results?
Lynn - Not sure if you are back yet, hope you had a lovely time
Angie - hope you too are feeling a bit better
sorry I haven't mentioned everyone, still catching up. villa in Florida has free wifi so I'll ensure to touch base while I'm away
take care Angels
Sandy- so glad you're home and drain free. Don't feel guilty, Your need for downtime won't last long and like Philomena says family like to help.
Congrats to those who've finished rads- I just can't keep up with you all.
I started last chemo cycle yesterday on a 75% dose after the disasterous 0 WBC count last cycle. Onc said I could skip it altogether, but I'd already geared myself up for 8 and I don't ever want to look back and think I wish I'd had the last one. So 75% it is. last dose is next Friday. Have got friendly with 2 women I met at chemo clinic who also finish same regime next Friday so hopefully celebrations all round. Thinking of taking cakes but none of us will be able to eat them. Still the nurses will appreciate them. They've finally replaced missing nurses so yesterday was the quickest I've ever done, in and out in an hour and a half.
Up at 4.30 am as usual and feeling sick as a dog but nearly done! I start tamoxifen 2 weeks after chemo. Bit worried about side effects but just have to wait and see. Glad it's going well for you Kate and you've been able to go back to work. I've just got another 3 month sick note from GP.
I've also referred myself for counselling at my cancer centre at the hospital. I just feel rather lost at the moment. normal life seems such a long time ago, and I don't know which bits I want back. Well I know the bits I do want back but don't know how to get out of the bits I don't want - mostly work!! not sure how to escape from something i've done for the last 26 years, but I keep thinking if this comes back in the next few years I will regret having gone back. Sadly retirement not an option.
Judy- my skin did not start to break down until about day 15 of rads and got worse in the week after. Dressings were great in the end and all healed now. keep slapping on the aqueous!!!
love to you all
ps lovely daughter ran the race for life last night in the dark. She did it with a friend in 28 minutes and raised over 300 pounds. tried to put a link on but it was removed. I'll try to add a photo but haven't managed this yet! I crawled off my sick bed to go and watch- so proud
well done caz P
welcome back sandy
i do believe its wear pink to work day tommorow, so all my girls are allowed to have a day off uniform and ive got a big pink padded minnie mouse bow to wear. No doubt the crew are on it, theyve got their pink tops n stuff ready! Boss still has to wear his bra yet, he keeps getting sent to our other hotel.
Oh well, all in good fun eh?
i might wear my bow to the docs, i'll be locked up it looks like a big sausage on my head at the moment!
Carol - Thanks we are all truly wonderful aren't we sweetie. I hope you are enjoying the celebrations. I keep waking up and thinking yay that part is all over. What a journey were all having!!!!
Mel - I'm wishing you all the best for Friday a long time coming for you but getting there never the less. Bless you. Were all on the platform waiting.
Amber - I hope your biking is going well. Getting your fitness up to speed and something to do whilst waiting for your OH to return.
Judy - Your rads must nearly be over too. How long has it between your surgery and Rads. The thought of anyone going near my right boob at the moment fills me with dread and it just dosn't seem that long since yours. I know how you all felt waiting to get the results from your operations too. I get mine next Wednesday..I have no idea what to expect.
Kate and Angie and anyone else who has started work. I think you really are so brave and I hope that you have good supportive bosses. I just can't think of it at all. It fills me with a sense of not being able to cope at the moment. Most of my low points are because OH is doing so much for me, the house, the kids, and going out the door at half seven to work. I cried yesterday when the nurse asked how I was feeling because i felt so guilty.
Mel A - Im really glad you met up with Rozz to walk the poochies. Wish I was nearer to meet with more of you.
Philomena - Thanks for passing on those messages for me and it was great to talk to you sunday. I hope I was ok. I was talking to you ok I think but those tramadol tablets they gave me really spaced me out. Are your Rads Se's all over now.
Hope everyone else is ok. Hubby in for dinner. Going to get my sorry ass up and make him a coffee.
Lv and Hugs angels. sandy. xxxx
Sandy, so lovely to hear from you. You are amazing and don't you forget it! 🙂
Finished rads today - yipee!!! Tamoxifen starts tomorrow...
Take care all you lovely angels, just a quick post for now, off for celebration.
Oh how ive missed you Angels.
Went in on Thursday went to anasthetic about 1.30pm. Woke up around 4pm hardly any pain. Oh and kids visited around 7pm still felt incredebly upbeat but hated the two drains. Still hardly any pain. Visitors left and I remember settling down for a snooze. Remember being woken up for BP and pulse check twice. Then Friday morning early hours woke up with so much pain straight away I pressed the panic button. It really was hidious pain nothing i'd felt before ever. Felt like the absent boob was splitting tried to look but couldn't move. Anyway they did lift up my gown and I saw what looked like a giant boob four times the size of my other breast and leaking everywhere under the dressings. Next thing I remember was injection in my thigh, someone explaining another op then saying sign this, then text OH and tried to post you Angels, then something going in my canular arm. Then lovely oblivion. All I remember after is someone asking if this was my signature then a mask going over my face with a horrible smell.
Woke again early hours Sat with 3 drains in. I was in pain but bareable this time. Apparently i'd had a blood clot which stopped the drains working which caused a build up of fluid. They had to get hold of the poor surgeon who then worked into late Friday to clear the clot and put an extra drain in. I also have a hole in my back for some reason and have a pressure dressing there.
Im at home now after having two drains removed Monday and the last one today.
Can't wait to catch up with your posts so am going to try retrace to last Wedsneday and take it from there as I can hardly remember the weekend at all. Philomena I do remember your call and best wishes. Thank you sweetie.
Hope your all been behaving and taking it easy. xxxxx
was it like having a bath in lard - i did that, its very slippy stuff isnt it
hope youre keeping well all of you,
just to let you know, i made an appointment to see my locum doctor who originally diagnosed me, who i like, so i know she'll be ok to talk to.
i still feel like i'm going nuts, i could have hung myself the other day but i couldnt be bothered to go and find a rope in the shed. I do have a friend a few months ahead of me on the tamoxifen and she had the same kind of problems so i'm hoping it's just a chemical imbalance, she seems ok now, i'm in contact with her every day. I do know that i'm not thinking straight, so maybe thats a good thing that i know this.
judy - how sensible you are! we said we were moving up here to change our lives and we did, its so much better than when we worked too many hours in england. i love my job now, i used to hate going to work. OH never used to be in, now he's got loads of time to play on tractors and boats. Much better quality. when i got diagnosed it was like an end to the fairytale life.
Amber - i'm going to englandshire on the 28th of november. retail therapy and mauling babies! how brave you are going out on a bike! hope your leggies are ok.
Philomena - i seem to be ok at work, too busy to think i expect. when i get home its different, too much time on my hands.
lynn - happy holidays!
maisiecake - its weird how all the different thoughts manifest isnt it, i have some odd dreams too. i sometimes forget that anything was ever wrong and then it comes back to me. hope youre getting through the last bits of chemo ok.
mel A - i think we all need to evaluate the changes. maybe thats how to deal with things, sort them out.
I had free dental treatment and will still be getting it because i go to the hospital here. the dentist is a **** but its free as 'under ongoing treatment'. maybe because we're in the back of beyond though, things are different in the hospitals here. will do the petition as well.
so thankyou all, kim, kate, gilly, all the words of wisdom have been helpful. i did try some distraction therapy, i watched a feature length Jane Eyre on an obscure channel the other day. i never watch telly. it was nice.
deep breath, count to 100 as my friend says................ to tackle the mentalness!
thanks for all your words of wisdom.
i think i'm going to england at the end of november for a pre christmas dinner and shopping and stuff with the crew, new baby, presents all that kind of thing. ive had a long conversation with my daughter about all kinds of things, she wanted advice and had her own problems to sort out so we made it a bit of a sort your life out chat for us both for an hour and a half! had a chat with mother in law about nothing in particular for half an hour. i feel a bit better now but ive not done a thing today, just printing photos and making albums up of the grandkids. just seem to be having a weird kind of day, not thinking too straight at the moment.
im going to run a bath and have a soak, then do dinner, beef and a gigantic yorkshire pud for when OH gets back from work. hopefully i'll feel better tommorow cos its back to work.
I'm sure i'll sort myself out soon.