I didn't enjoy yoga - too cross with myself for not booking the rooms before, when I could have cancelled them anyway!
I rang the spa back as we won't be staying at that hotel, and seem to have got a better deal! I've booked 10 "Spa Day" packages for £39 each which includes use of facilites, a robe, towel, slippers and a 50 minute treatment. No lunch included, but anyone wanting to eat there would get 25% off the hotel restaurant bill. I think this is more packages than we actually need, but keeps all our options open at no extra cost.
There is a Premier Inn in the city centre which comes in at £106.50 per night for a twin room, with brekkie. Its not too far from the Park Inn (to nip back and get changed for the evening) and very handy if we're out on the town either evening. For those of us not wanting any more treatments (!) also close to shops (and bars!). It also gets a 4.5/5 rating on Trip Advisor. Rather than lose this one too, I've booked 6 twin rooms! They can be cancelled up to 1pm on the day and no deposit so if you lovely ladies prefer Didsbury, I can just change it.
I don't know how everyone is getting there, it strikes me that the Travel Lodge in Didsbury would be fine for anyone driving or flying, but a bit of a pain if you're going by train. Also more difficult to get into and out of time (especially when seriously chilled from either the spa or the bar!). Let me know what you all think.
Must go - work calls - people seem to have realised I'm back and want me to do stuff!
I am feeling super-guilty now. When I spoke to the hotel a week or so ago they said they had loads of rooms free. I've just tried to book the cancellable ones and the price has shot up! They now want £159 per room per night!!! I'm really sorry I wasted so much time faffing around trying to save a few quid! (and then got side-tracked by life in general!).
Sandy's idea of a Premier Inn may be better; but if there's football match planned we will have to get going as all the hotels will fill up quickly. I have yoga tonight so have to dash off, but I'm happy to put all the rooms on my credit card and just cancel them if anyone has to drop out.
The spa is still booked, and isn't dependent on us staying in the hotel.
bit chilly, i had my scarf round my neck for ages til i got warm glad its done though
hope you're all keeping well.
i went to work with no wig today, or hat or scarf. a bit chilly tho, but its done now. feels like me again.
Thank you Mel, Mel, and diggy.
I'm beginning to feel better again. The pain seems to be getting less and I have started the "Getting fitter, feeling stronger" dvd. Which has shown me that i am just where I should be in terms of recovery by which excercises I can manage. I start my radiotherapy on Dec 2nd and hoping my neutrophils are ok for Thursdays Herceptin.
Ok ladies. Where are we all hiding? We need to get the ball rolling for meeting up. The Park Inn has said that we need to hurry as places are limited due to some football event that weekend and Im wondering whether we should go for something less complicated for us all. Maybe on the lines of a Premier Inn near or around Manchester for the same Saturday night with a pub nearby so we can have a meal and chat. We can all book ourselves in and that way no one person is responsible for everyone (so to speak). For me, it's not too expensive and there will be easy accessible and ample car parking at the Premier Inn. Most of them have restrurants on site too. All we have to do is look forward to who turns up.
What do you think? I'm happy to start the ball rolling or i'm easy to follow the original plan too.
Sandy- sending hugs and thinking of you. It will get better so hang on- it's too hard to think of new ways forward for work when you're in the middle of dealing with treatment crap- there's plenty time for that afterwards. i'm trying not to think about work atm and just get better. look after yourself -things will improve.
love Mel xx
Just got back from hospital and I can't have the Herceptin due to low Neutrophils. I don't know why as my last chemo was on Sept 3rd. Surely bloods should be back to normal now?
We are to try again next Thursday and I have to restart taking my temperature. Im just hoping that I don't end up having the injections again.
Sorry to rant but I thought the days of fishing for a vein for blood tests and getting a line in was over. This feels never ending.
Lv n Hugs Angels. xxx
Went to hospital to get Froobee filled with 500mls of saline on Wednsday. It took over 20 mins of pushing, digging and eventually, manipulation whilst using a scanner, to find the port in which to inject it into. I think my new found fear of needles came to the fore and I could only describe it as one of the most uncomfortable experiences ive had yet. Just one day off then on to a different hospital nearly an hour away for the radiotherapy scan and yet more needles for the mapping tattoo's, one of which was very near the port and area bruised from the day before. Tommorrow back at the chemo suite for a blood test, Herceptin IV, and six hours thereafter to make sure I have no reaction.
All I can say Amber is the way I'm feeling now, it's a good job i wasn't there when that lady started poking you. Having said that, you should be proud of how you delt with it. And great news on the bone scan. x
Carol - I hope you and your dad had a great time at Chattsworth and all goes well with your return to work. Before BC I was self employed and because of it I now know I have to change my job from being a horse riding instructor for something less risky for me. I do have Business Admim qualifiations but who's going to employ someone who's had BC.
Mel - I hope you feel better soon. x
Diggy - Glad you met up with your family too. It's a great tonic. I too appreciate the trees and sky and lots of things that before BC didn't seem as quiet as beautiful as they do now.
Philomena - Can't wait till we can meet up with you again and the other angels in April. It seems so long ago since we met in Wells. Hope you get to meet up with Rozz soon too.
Angie - Normal life. Forgotten what it was like. LOL
Must go as I feel a woe is me moment about to take hold. Going to watch a soap or too to make me feel better.
Have a good night angels. Hope we all have a good one. Sandy xxxx
Amber- so sorry you met a pillock. some people just don't know when to shut up. sending a big hug.
Mel- I'm so in awe of you going back to teaching. I'm signed off til January when the money runs out, then I'll have to see. Have you checked if you can claim ESA while your pay is reduced? i get it while I'm on half pay. It is not dependant on any other income. you just have to have paid NI contributions for 2 years.
On saturday I developed a sore lumpy itchy rash all over the cancer boob. It's not getting any better. Don't know if it's a side effect or something else. tried antihistamine, didn't help. Anyone else had this? seeing onc on wednesday so I can ask then.
i'm starting counselling as well next week- think i've gone a bit generally mad!!!! i feel like everything is on hold as it takes me until dinnertime to get up, then I'm just knackered for the rest of the day.
love to all you wonderful angels
gales, hail and rain. delightful! Will be great driving to work in the snow and ice when it comes, might have to start later so i can drive in daylight.
amber - how awful, some people are just the pits of the earth. what a cow!
This work thing girls, its not as easy as it sounds is it? i am so lucky with my lot at work, they completely understand and support everything i need to do. i havent lost any pay, but i have only just started 'real working' again.
i was asked today if i was having up and down days and if i had had a breakdown yet after finishing treatment. apparantly, a friend of ours had a friend that was fine for a few months after treatment ended and then she went completely to pieces because it was all too much being 'normal life' again.
oh joy! something else to keep an eye out for? maybe that was me a few weeks ago when i was going a bit nuts?
so caz, mel, all angels returning to work - maybe we need to take it easy as we do it in case we are still fragile.
kate - sun???
have a lovely weekend ladies, get some r & r
Mel - my return to work meeting went very well, I am relieved to say. I had a proposal of what I thought might be sensible to attempt from now until christmas which started with 1 day at the end of next week, then 2 days the week after, and then 3 for a couple of weeks etc - arranged so I was not in the office consecutive days. This was fine but they thought I shouldn't even attempt full days so it will be 4 hours/day for a couple of weeks and then 6, aiming to be 5 full days in Jan. I must say that feels good as I think a full day and commute would be optimistic alot of the time. i will be using my accrued holiday for the hours I am not in work so that I am not losing pay, which will still leave me some days for the period Jan-Mar.
Please count me in for the meal/comedy club in Manchester - not sure if I have missed any info on paying for this - please let me know if I have.
Had a rough nights sleep again and hands really very sore this morning - my fingers 'flick' when I try to grip something - anyone else had this. It ears off after an hour or so of being up. However, I think my body would benefit from exercide - I feel I have terrrible posture from sitting and sleeping so much so I am going to try a short bike ride this morning.
Hope you have a lovely weekend angels. Tomorrow I am going to meet up with my dad and stay overnight near Chatsworth so I am looking forward to a change of scene.
mel - sometimes i get really tired at work but fortunately i can 'not work' but just be around to direct the others. its very very tiring to start so take it easy. i am feeling better in general now, not miserable like a few weeks ago but i have had to consciously make myself not be. out of the blue this weeek i had a day where i could hardly walk. its very odd to get symptoms back like that. hope it goes well for you. i take my tamoxifen at night and its no bother at all.
i helped my partners son and his family move house today, it took all day and i felt good, had lots of little foodie breaks, i'm really chuffed. nice to be out and about in the mountains too, theyve gone to a lovely place.
hope you are all well, need scarves and hats this week me thinks - cold weather is coming
caz- I have no energy either, but it's early days after chemo for me. I keep thinking I'll do that tomorrow, then tomorrow comes and I just can't. keep thinking i ought to be able to do more, but there we go. also sleeping badly.
I'm 52 and onc said it's possible periods can restart on tamoxifen, although they stopped on chemo. I was still having them before dx. Hoping to never see them again! my eyelashes are growing back - yeh!!!
I'm trying to follow the healthy eating plan fron the Haven, which someone gave me. Finding 8 fruit and veg a day a challenge, but hoping it will help me to feel generally better, if not thinner.
Start tamoxifen tomorrow- not looking forward to it.
I think you're all magnificent for getting through this. it isn't till the end that you look back and think OMG did I really do that? We are amazing awesome angels and don't forget it!
love Mel xxx
caz P - ive got lots of joint aches and pains, if i'm honest i'm just pretending that i havent and doing everything as normal. i find the drive home (30 mins) really makes my ankles stiff from being in the same position but if i keep moving i'm ok. i do take something if i feel its getting too much but just occasionally, dont be in pain if you can take something for it.
judy - yes i do believe we have done rather well, i know what you mean, other people see us differently and we must either be very good actors or we deserve a medal, because i think we've all done good. when i think back to how i was in may/june, well it was just awful, but it seemed ok. it all became normal so i just plodded on as usual, its only now that i think i was quite unwell.
kate - i hope i can get that done too. its supposed to be quite good. natural looking i believe. i dont mind waiting chance to recover from all this treatment.
Its good to read that everyone is starting to feel a little more normal as the days pass by!
Rozz, I'm happy to do either type of room for April. If you want me to book one myself and pay for it on my credit card I'm fine with doing that now if that helps.
I've been to see my cosmetic consultant today about reconstruction. He was very happy with how my skin and implant had survived radiotherapy and said I can have a diep reconstruction assuming the ct scan shows good blood flow to the muscles. I can't have the reconstruction until next September and he wants me to put some fat on my belly before then so they can be sure there is sufficient to give me a C cup! My other boob is E cup but there definitely isn't enough for that so they are going to reduce that one at a subsequent op. My OH is very jealous of being told that I need to put some weight on.......I thought I was fat but if i lost weight they may struggle to make a C cup!
Angie - I don't wear a hat or wig at all now, unless its really cold and then I wear a normal hat outside rather than a chemo hat! In fact today a shopkeeper told me she loved my hair and wished she was brave enough to have hers cut this short! 🙂
Good to catch up on all your posts - haven't been on here for a while. I have a meeting to discuss phasing back to work tomorrow but I am quite concerned about it. Energy levels way short of normal, and up and down. Awake alot almost every night with aching joints which probably doesn't help the energy levels. If I go out one day for more than a couple of hours I am pretty much wiped out the day after. Yesterday I went by train to Sheffield for my niece's graduation but today I felt rotten. Thoughts of exercise are just not there at present. To be honest I felt better/ more normal in my best weeks on chemo. Getting quite fed up.
I haven't been taking pain killers as I don't really want to be having to take them all the time. Are other angels with aches etc needing them?
i watched that channel 4 programme too, what horrors for those poor women.
all is well with me, been really busy at work did 34 rooms today, and i can easily do everything that i used to do, we dont seem to slow down when the season ends thankfully.
my hair is almost ready, if i just had a bit more fringe i would go to work wigless, but just that bit is putting me off, dont want to scare the guests.
Glad everyones getting there, it seemed like it would never happen only a few short months ago, and here we all are being normal again.
ive found a use for the redundant thermometers girls - when youre on tamoxifen and you get the hot flushes you can walk round the house taking room temps to find the best place to cool off.
hope you all keep well
Lori - Forgot to say im now 47yrs old with regard to the none returning periods.
Maybe it's a good job I didn't see the despatches programme at the moment as with every little twinge or pain I do think that that blood clot thing maybe coming back. Im sure its not as they have been checking really well and I have already had one check before centre parcs and I have another tomorrow with the last 60ml fill as they want to make sure everything is settled ready for the radiotherapy measure on Friday.
Judy - I'm still in a little pain and it seems to be coming from the node removal scar under my arm. I still don't want to move my arm very much and I'm still on painkillers twice a day. It gets worse went I get warm and moist under there. Is this normal nearly a month after surgery? They say the scar looks ok. Also i'm so glad to hear you went through radiotherapy so well after surgery. It's given me hope that it's not going to be too bad for me and "Froobee" (my newly named boob which looks stunning by the way with only a little scar across the middle. Im so pleased). It looks better that my other one even without the last fill and ive decided on nipple surgery or tatoo which should cover well over half the scar when I have my permanent implant put in in six months time.
Centre Parcs was lovely and tiring and I missed you all as service on my phone was minimal in the chalet. I was quiet happy when they all went swiming without me as I could catch up with all your posts using the wi-fi in the dome.
One other strange thing for any of you wanting to go swiming again. I decided that I could indulge in a paddle at least so I did. Big mistake. The clorine has somehow made my big toenails ooze a strange liquid from the top and they feel really painful like their being pulled off again as in the case of chemo. Thought I was over all that.
Lori - I don't have any aches or pains they all seem to have disapeared and I am on Tamoxifen too. Maybe it's that and the Herceptin together that causes the aches. I restart mine in a weeks time after time off for surgery. I have 14 more to go. Daunting too as we don't have the option of injections yet. But I'll let you know how things go. Also my oncologist told me to watch out for vaginal bleed whilst on Tamoxifen and to let her know straight away so things can be checked out. I don't think she expects me to have any further periods and wants to check up on anything untoward.
Amber - I glad your daughter is feeling a little better. Take it easy if you can.
Diggy - It's good to hear your hair is growing. Mine too. Just don't know what to do with it now. It's very dark and straight. Before this it was very light brown and curly.
Mel - Must be great to have the line out. Onwards and upwards eh?
Lynn - I watched those young poppy girls singing on Sunday night. I cried when her dad came in and she wasn't expecting him.
Kim - Pleased the transition to work is going well for you.
Mel A - How did your meeting with your boss go yesterday?
Have got to go now. Hope everyone I haven't mentioned is ok. Lv n hugs. Sandy xxxxxxx.
Good evening Angels
Lori I am very jealous of your Herceptin jabs - sadly not yet available here in Somerset.
Rozz thank you for doing the maths on the bookings for April. I like the cheaper option.
Mel yes please for the meal and comedy show.
On sat. I attended the first session of a course called 'Living Well With Cancer' run by the Penny Brohn cancer centre. Very interesting and good to meet others - all further down the road than us.
Feel like work is easier now that I am no longer suffering pains in my legs.
My hair is growing and it hasn't started to go curly - yet!!!!
Wishing you all well
Amber hope your daughter is feeling better today.So good that you can help her out.
Roz thanks for all your efforts. I'm happy to go with either plan - whatever suits everyone.
I'm slowly recovering from last chemo. Had a trip to A&E with chest pains on Thursday, but they decided after 6 hours that it was sternum pain caused by the neulasta. neuts borderline 1.9 but decided I'm less likely to catch anything at home than in hospital so i was released thank goodness. I've had PICC line out which definitely feels like an end. Had a shower without clingfilm- yeh!! Hair is currently dropping out again- showers of short white hair everywhere. lovely sunny day yesterday- went for walk, really enjoying getting out of the house again. love to all