Oh no Angie, hope you are okay and that things have settled down now. Hopefully 2014 will be a better year for you whatever you decide to do.
I have one more days work tomorrow before a week off for Xmas and it can't come soon enough....I'm shattered with all this work! I've also had my eyes tested and now have to wear glasses for both long and short distances whereas 18 months ago when they were tested I had 20/20 vision so chemo and tamoxifen haven't done my eyes any good! Hope no one else is having the same problems.
Hope everyone is okay and looking forward to a peaceful and happy christmas
mel - i feel for you, i know what you mean, if theres nothing to worry about we seem to be able to find something. i havent been weepy, ive been angry. mainly at my oh and then when his son started playing up i couldnt cope. ive been to docs and got citalipram, wont work for a few weeks but hey ho, roll on 2014. i had an interesting chat with my macmillan nurse and she said it might not be the tamoxifen thats making me have the strange thoughts i have, maybe ive just changed, as a person, and what was ok before - isnt now. thats a scary thought - so i'm going to see what i feel like after a few weeks, hopefully i'll still be me! i do think though that we have been through such a lot this year, and if we look back its been pretty hard going, so maybe we just need more time than we realise to actually go back to our normal selves. i dont think you're the only one feeling this way, i know i certainly am spiraling on a big downer, its just not something that everyone can speak about.
judy - poor you, in the middle. my oh wont speak to his dad, he said some horrrible things to me when i was having chemo and he said that was it! he's 81 and i forgave him, but he wont.
so, update on mad stepson, he was charged with threatening behaviour and we have peace for a while because he went to england out of the way.
well ladies, just been writing christmas cards for people at work - they have all been great. when i think back i dont know if i would have managed without them all, looking back it was pretty crappy wasnt it?
dont you think we're all truly amazing awesome april angels!!
I have put for you below the link to BCC's publication 'Moving Forward' which I hope you find helpful. Our helpline team are also at hand if you wish to talk to someone in confidence about how you are feeling, they're here to support you. Calls are free 0808 800 6000 lines open weekdays 9-5 and Saturdays 10-2.
hi all you awesome angels
Rozz- glad you're getting to grips with the lymphoedema. My son is in his 4th year doing physics.
Angie- oh no not what you needed at all. You're right to take your time before making any drastic decisions- time to put yourself first?
My arm and shoulder is definitely improving now I've stepped up the exercises. I'm using the dvd in the moving forward folder.
That's the good bit now for the bad-- I am soooo depressed. I'm just weeping all over the place and have turned into one big knot of anxiety. I'm not worrying about me and the cancer coming back, i seem to have transferred it to oh and children, so I keep thinking what's the next awful thing that's going to happen? My mum died of cancer last year, I got cancer this year- I'm so scared of what might be to come. I feel like I've got through all that crap and now I've just fallen off the edge of a cliff emotionally. i know you can be depressed at the end of treatment, plus this started 2 weeks into tamoxifen. I've been to GP who has increased anti depressants but they'll take a few weeks to kick in. I hope they work because I can't cope with feeling like this. I'm dreading xmas and I feel really bad that I'm not just full of joy having finished chemo. This is the worst I've felt through the whole thing- I could understand if I'd just been diagnosed.I'm 6 weeks post chemo, has anyone else felt like this? sorry to winge but I'm rock bottom just now.
love Mel xxx
Oh Angie. Poor you. Police? Really?????? You really shouldn't have to put up with any more emotional turmoiI. I hope things improve for you soon sweetie.
Amber - How i giggled. The fry up I was refering to was the Rads. Lol. Every time the machine makes that buzzing noise I now think of sausage, egg, and bacon and Im starving when I finally get home. You also kicked started me into getting a few prezzies wrapped for xmas and OH and I have used the rads trip to Lincoln to go xmas shopping.
Lynn - Love your hair in your pickie. What a lovely colour. Mine still looks like it's shaved but I will update my picture soon.
Mel A - Im sure the BP is nothing to worry about. I was told that any number of things can happen to us ladies post chemo for up to six months or more. Mine is still low white cell count although they said it would slowly get better. It is, but in very small incriments. It is high enough now for me to restart the herceptin (just) but they are going to wait until after Rads and this is my last week. yaaayyyy.
I do seem to see a light at the end of the tunnel now but daren't rejoice just in case it's whipped away again.
Mel - I hope it's not frozen shoulder I have read about that. I really hope it resolves it'self soon.
Rozz - I see my oncologist in Feb too. I have just started having broken sleep too and I don't know whether it's Tamoxifen kicking in or the Rads. I suppose i'll soon find out.
Got to go. I hope everyone else is good and looking forward to Christmas. Lv & Hugs Sandy. xxxxxx
rozz - it was 3 babies 2 pitbulls and a pair of psycho parents. it didnt get resolved, the police are involved and now its making me question my whole life here in this relationship unfortunately because i think diifferently about things since i was dx. the only place i feel ok at he moment is work, its normal there. my family are all cool, really good but so far away. i am thinking positive and feel quite determined that i am going to change things for the better - for me- coming up to christmas is not a good time for making changes so i might sit on it for a while. i am reading all your posts on tablet, just dont switch on the lappy top these days!
hope youre not all spent up ladies!
and are you all being good for santa he's watching you know!
I'm back with mum & dad so that's 2 weeks since my last post - this is going to be a long one!
Mel A – meal sounds great, it will be good to have the time to chat.
Philomena – hope you have/had a good time in Ireland! We’ll be in Winterton from Sunday for a couple of days if you can rescue me from the DIY for a bit?
Mel – Fallowfield (where I lived until I was 4!) can’t be far away as I think the student residences are all walking distance from each other & the lecture places etc. What course is your son doing?
Dates for our meet-up are Friday 4th and Saturday 5th .
The Onicolife was recommended by my Onc (who doesn’t even recommend things like aloe vera normally!) I found the website via google, it’s a bit clunky but the stuff seems good. I have the drops & gel which I use am & pm. My nails are getting no worse, but its too early to say if it’s a great product or not.
I’m not doing well on the tamoxifen either; lack of sleep is the main problem, I’ll tough it out until I see my Onc in February & see if he can suggest anything. Not taking it isn’t an option. It doesn’t seem to matter if I take them in the morning or evening. What I should do is keep a note of when I have flushes and when I wake up at night etc. Maybe after Christmas…
Sandy, I felt increasingly better over my 5 weeks of rads – at the start I was considering renting an invalid scooter (seriously!), at then end I was back to overtaking people on my walks. Everyone’s different though and it doesn’t help if you’re being sent all over the place for appointments.
Everyone seems to be having haircuts! How wonderful! I’m having mine chopped next week; too many bad hair days to go though!
Caz – I’m sure you’ll get your energy back, especially since you were so fit before. I’ve joined a gym & I’m getting rehab advice - which means easy does it!
Angie – I hope you resolved your family problem. I’m finding my OH thinks that now I’m back at work (4 days) I’m up to my normal strength but being at work means I need more rest! He’s been fine though, and hasn’t tried to land 2 babies on me!
I saw the Occupational Health doctor a couple of weeks ago. He was fine, supported my phased return plan & recommended working from home sometimes for the next 6 months. He also said I should book a holiday! When OH and I can work out when we can both have time off at the same time. Cyprus sounded lovely, Kate.
I saw the lymphoedema specialist on Monday; she was lovely and spent ages talking me through all the theory etc. I’m waiting for the prescription for my sleeves & a glove for the night-time. No promises, but she was optimistic that the compression would work. I was a bit fed up when I found out that hot baths and wine can make it worse – they’re among my favourite treats! I’m hopeful that the sleeve will reduce the swelling and then I can just wear them at night or just when exercising / travelling etc. Fingers crossed.
Hope you are all happy and getting healthy,
I phoned bcn about the shoulder arm pain and she thought it was probably caused by rads which can keep causing effects for months. she suggested doing the exercises 3 times a day and taking ibuprofen for a few days, and to call again if no better in 2 weeks and she'll refer me for physio. She thought it could be the beginning of a frozen shoulder which can happen too. Does it never end?
Well done on your weight loss too, Amber- losing it slowly is supposed to be better. In the moving forward folder it suggests 1-2 lbs a week so you're doing fine. I'm trying for a 1lb a week!
Mel- a huge well done for your first full working day. You must feel you're getting back to some sort of normality. I don't think people understand fatigue unless they've experienced it- take it as easy as you can and don't get sucked back into the madness!!!!!
Buffet thing sounds great
love to you all Mel xxx
Talking about haircuts and weightloss - what a turnaround from 6 months ago:-) I'm getting mine trimmed around the ears tomorrow too. I may follow suit Lynn and post an up to date me pic on fb too. I'll inbox you my full name. I'd also like to add everyone to my fb account if anyone is happy with that.
Sandy I hope you are coping ok with the rads and have got the herceptin v. Rads thing sorted out. I hope treatment is going well for other ladies who are still having it too - is it just Mel and Lori?
Angie I'm sorry to hear about your family problems. You've had enough to deal with this year.
Kate I'm glad you enjoyed your holiday.
Work is going ok for me. I did my first full day today and felt fine. I found last week tiring at the start of the week, but felt better by Thursday. Although my boss is being great about phasing my return so it works for me, I 'm not convinced that she really understands what the tiredness is like, nor that it will be a while before I'll be anything like right. Looking back I must have been wonderwoman to have managed what I did before! My sleeping patterns are still erratic, waking every couple of hours. I do hope it does settle after the 3 months Mel. Tiredness aside I've loved working with the kids again this week. A couple of kids told me 'I look different', one liked my earrings and one was glad I was working in their class. All made me smile 🙂
I'll wait until the new year and then book us into the red hot world buffet if everyone is happy with that.
Kim- sounds like you had a great time- could do with a bit of sun.
Amber- building AND xmas? hope it's all done in time. Enjoy the nativity.
Sandy- it's good to know teenagers have their uses! my eldest will be back next week for the holiday. really looking forward to seeing him.
Lori- You had a chemo book????
Angie- 2 dogs and 3 babies would send anyone into meltdown! It's hard to say NO to family but you have to look after yourself first. hope it's all resolved soon.
sounds like it's haircut time for lots of you- mines not there yet but growing. Seems to be developing a sort of tufty look- am wondering if it's going curly. Haven't tried to do anything about the colour, it seems to be getting darker as it comes through but mostly grey. Wig is out a lot, good in cold weather.
I managed to see my GP (like getting an appt with God) to get some help with ses of tamoxifen and general support. I was hoping to have less tablets to take but oh well! I've gone back on lansoprazole for indigestion for now, increased anti depressant i was already on as apparently it helps with hot flushes and have got sleeping tablets to take when I can't cope with lack of sleep any more! hopefully this will get me through the 3 mnth 'settling' time on tamoxifen.
getting lots of arm/ shoulder pain on surgery side, much worse than it was. Don't think there's any swelling, but not sure what's going on. Anyone else having this? maybe it's just using it more as I tryto do normal activities again.
I'm trying to lose some weight- just by eating healthily- and I've lost about 5 lbs. It's very slow going and there's a long long way to go.
i know some of you have asked but is there anything i'm supposed to be doing for our meet up? and what were the dates again...........
Kate - It's really good to hear you have had a good holiday. I think Rozz has already booked some rooms for us.
Lynn - How did the Christmas party go. Im with you on the xmas card thing in that I have even more good people to write one for now. I can't wait to start feeling a little fitter now either.
Carol - Thanks for letting me know that E45 cream is ok.
Diggy - Hope your phased back to work is going ok.
Amber - So sorry your OH not around at xmas but lovely that you have your sister and kids. Still haven't got the decos out yet. Maybe today.
Off for my daily fry up. Hope everyone else is good and getting in the christian spirit of things. xxxx
Oh Angie, just what you don't need eh. My 3 teenagers joined us last week after they got too much for the ex. I put mine to work. Chris painted the bathroom, De helps with the horses, Washing etc. Wes has A levels and work so he's hardly around but he has to be tidy.
You are soooooooo entitled to a meltdown and unless you say it as it is they aren't going to know how you are feeling. I used to shut up and put up. Not any more, and now I see the benifit of explaining quietly and slowly how Im feeling. Sometimes they just don't get that it you have been through the worst time of your life unless you write it down or draw diragrams for them. For us its worked and I really do thank God for when they help out now. I really hope things settle down for you especially for Christmas. Lv n Hugs Sandy. xxx
is it sad week......... or meltdown week........
my OH son has started a big family argument and i'm trying to keep out of it but i ended up saying a few bits and now i could kill him and his wife, ungrateful selfish pair of heathens!
i just cant be bothered with it all
they want to come and live with us for 2 weeks with 2 dogs 3 babies (eldest is 2) even though they have been offered a house to live in while theirs is repaired from a self inflicted flood. so we said, you have a house, and all hell let loose.
hope you are all well
Well it had to come sometime but I had my first major meltdown yesterday when on arriving at work someone parking infront of me then reversed back out without looking and hit my car. No-one was hurt, but there was enough damage for a claim, and it was just one thing too much to deal with...
I too have been in to chat to my hairdresser and going for a trim on Sat to tidy up a few of the wayward fine ends. Haven't bothered tackling the colour yet though. Had to go for a shoulder and neck massage today - too much tension from worrying about having too much to do and poor posture from so much sitting about, I think!
Still not managing to sleep though the night but not having hot flushes - or at least nothing like those I experienced on chemo. Joints still a problem first thing, and I am still suffering from fatigue. I have to say I found radiotherapy knocked me for six, though I did drive everyday and had 25 sessions - I was on a permanent energy low. My appointments were early and I found it increasingly hard to get up and get there on time as the weeks went on! Skin held up fine - I was told e45 or aqueous was fine, but just applied it after a shower.
Not back to much exercise as I am busy painting for an exhibition when not working, but I did feel the need to do some and went for a short walk/run last weekend. At the time felt ok, but then I stiffened up and barely had control over my legs for the next week - hilarious!
Not sure if I have missed anything re our meet up - do I need to make a booking or are we co-ordinating a block booking.
Cheers, Carol xx
sandy - i had 3 weeks of rads with very little discomfort. i did find on my last week that i was struggling, not so much tired but muscle weakness when walking. i was only 4 weeks after my last chemo so i put it down to that, but i think driving an 80 mile trip is a lot. re the scar, it didnt do much to it. re the e45 - if it has metal in it it will burn your skin. i didnt use anything except aqueous cream, i was told not to use any other cream including aloe vera . hope it goes well for you.
hi to everyone else, hope you are all well
Wow Lori - You have a book in which you keep all your stats? Seriously giong to have to demand more medical info from my hospital. All they have told me is that the wbc count is too low for me to go ahead. The other problem is that I need to be in one hospital for a blood test and for 6 hrs when I'm having radiotherapy at another hospital over an hour away in another direction.???????? I left the chemo suite and oncologist in deep dicussion but it looks like herceptin will have to wait til the end of rads. I was just too worried and exhausted and had to get out. You really do sound well sorted though. I'm not going to worry about work at all. I do feel that us ladies on herceptin are going to continue to have some side effects. One of them stated is fatigue.
Mel - Really glad youre feeling a little better. It really is still early days for you yet.
Judy - Thanks for reasurring me. I'm just going to keep going and see how I get on. I have 3 weeks of rads. Is that how many you had? Do you know when they can reconstruct yet? When I got my date I was over the moon. I felt nervous for the op but at the same time it really lifted my spirits.
Lv & Hugs. Sandy. xxxxx
Judy- it's so reassuring to hear your energy levels are back to normal!
and Sandy- I'm trying taking tamoxifen at teatime at the moment and I have slept a bit better- that's WITH sleeping tablets, which I don't really want to be taking every night. Maybe I'll try morning next!
My hair is short grey and tufty so I'm wearing wig at the moment, which is fine until i have a hot flush then I have to whip it off! I'm feeling less tearful today, which is a relief, but don't think it's gone.
have a sleeping night all love Mel xx
Well i'm into my 3rd day of Rads and all seems to be well apart from a little pain after where the implant port is and it itches. The only problem I have and need your advice with is that I have to attend a different hospital which is an 80 mile round trip. I feel fine at the moment driving there and back but lots of people tell me i may be too tired to do it in the last week. I remember one or two of you having to do the same. What do you think?
Also they have told me that E45 cream applied twice daily is just as good for the rad site as aqueous cream. Should I believe them i wonder,
Lori - I just wanted to ask. Do you have a blood test every time you have heceptin? Your so lucky being able to have the injection. Well done you must be ticking them off now.
Rozz - Thanks for the hotel address. Decided to stay with our Angels over the Saturday night so will book the double room for OH and I asap.
Philomena - My hair is coming back straight, thick and black (apart from the peppered grey). It used to be a strawberry brown and curly. No eyelashes yet thought. Enjoy your visit to see your relatives in Ireland. How exciting?
Mel - Im sorry you feel bad on Tamoxifen. Are you sleeping ok. I have found that if I take it at night I'm waking every 2 hours and that made me feel tired and upset. I now take it first thing. I do get the flushes during the day but my nights are mainly free from them and i sleep alot better which has improved how I feel. I do hope your feeling better soon.
Judy - Good to hear from you and that things have settled down and your feeling ok. Could I ask if your MX scar was ok during rads? My clothes are also tighter on my right arm too but then they have been since the op. I'm also feeling more confident that the cording will improve too after hearing that yours is getting better. Are you still doing the exercises? I'm struggling to find the time to do them now with all this travelling and with everything else to do. Ah well striding forwards, (mainly to Lincoln), just hoping the weather stays ok so i can get there and back. Take care Angels. Love Sandy. xxxx
I think it would be good to go for a meal where we can talk too. Rozz my son is at uni in Manchester too. He lives in Fallowfield. Is thaat near the hotel? what is oni thingy? does it help with the nails?
Sandy - so sorry your blood count is low again and about sad loss of toe nails. It just goes on and on doesn't it.
Last post I said it was all going well on Tamoxifen- well I'd like to change that to feeling crap on tamoxifen after 2 weeks now the side effects are kicking in! I feel nauseous, have hot flushes all night, and have felt increasingly depressed. Keep bursting into tears for no reason all very menopausal! I'm going to try taking it at teatime as well- have been taking it at night. Hope they settle down a bit or I think I'll be in the 30% that give up. BCC helpline suggested splitting the dose taking half morning and half at night but the tablets don't split. Have to ask for a different brand to try this.Onc said to give se's about 12 weeks to settle so looks like I'll be weeping my way through xmas. Has anyone tried a chillow pillow and do they help?
Caz- well done for going back to work, don't over do it!
love and hugs to you all and have a cool night!
I am visiting parents today - they're both snoozing so I have some "me" time! This is the address of Premier Inn: 72 Dale Street, Manchester M1 2HR tel: 0871 527 9390. I have just realised the postcode is very close to my son's who is at Uni in Manchester - maybe I'll surprise him! The info on the hotel says there's a car park nearby - probably worth investigating if you'll be driving. From the website: "Tariff Street Multi Storey - postcode M1 2JF or Dale Street car park (open until 6.30pm)- postcode M1 2HG. Both car parks are operated by Town Centre Car Parks and discounted rates are available for guests. Car park tickets can be validated at hotel reception for discount."
I've decided I need to take a chill pill! I think I've been doing too much and I'm back in the mindset that there's never enough time to do all the things I want to do...... I need to reassess my priorities; eating better, exercising and keeping the stress levels down are more important than ever and I'm afraid I've just been slipping back in to my old habits of not finding time for the self-supporting stuff. So I'm giving myself a bit of a talking to this weekend. I've been working 3 days a week and have been fine, a bit tired sometimes but managed to do some serious cleaning at the cottage last week as well (e.g. scrubbing walls after ceiling replastered!) so not surprising really.
I've noticed some nail problems, but not as bad as you, Sandy. Its about 6 months since I started on Tax and as the nails leave the finger they're splitting into layers and are very weak. I'm keeping them short & using the Onicolife stuff my onc recommended. I can see the nail beginning to lift away at the fingertip on one or two of them so I have been warned! (Self-supporting stuff includes looking after my nails properly, which I have also been neglecting). Sorry to hear you can't get your herceptin, but as others have said, be patient and you will get there. Your rocking pose sounds oddly comforting, I may try it!
I finally have an appointment to see the lymphedema specialist on 9th. My BCN measured my arm and found it was 20% bigger than the other so I will probably have to wear a compression sleeve for a while (Lymphedivas here I come!). Apart from looking a bit pudgy, it isn't bothering me too much, but I would like to have matching hands & arms, even if I have to wait a while for matching boobs!
Hugs to all, hope you are all getting more like your old selves every day! Now I'm going to do my meditation - tho I will probably fall asleep - my parents don't seem to have to choose between heating & eating, its like an oven in here!
Mel - Te He. Thanks for the blanket tip. LOL. Will pop one in the airing cupboard in readyness. I'm having to put plasters over my nails too. Im with you on the less is best with regard to finances and our meeting up.
Im worried that if we all head for spa's, the comedy club, and meals in different places, we may miss each other and won't have time to meet and talk to each other properly. When Philomena and I met, two hours felt like 5 mins.
Caz - It's lovely to hear from you. I think your all very brave on the work front daunting as it may seem.
No Herceptin again due to another low count. The oncologist came to see me and told me my body is still recovering from the chemotherapy and surgery. I start radiotherapy on Monday and she assures me that RT shouldn't the effect the blood count and so i'm to have another test on Wednesday. (Really don't trust the word "shouldn't" anymore the surgeon also said that RT shouldn't effect the expander implant). Too many shouldn'ts for my liking. On a good note she had a look at my toe nails and said that ive picked up a fungal infection to the nail beds when they had just started to recover after chemo (must have been the pool), and this is happening to where the new nails are growing at the bottom of my now flapping, broken old ones, so we put curinail on it last night and they don't seem so painful even though it took two paracetomel, one tramadol and OH to hold me down during the application.
Mel A - Im going to take the Tamoxifen at tea time too as I'm having broken sleep. Thanks for that tip. I wish I could help you with the tiredness. Have you had a blood test lately? Im sure my tiredness or broken sleep is due to low count and sleeping at weird times.
All the best angels. Lv n Hugs. Sandy. xxxx
Hello Angels, just been catching up on al the posts I have missed as I haven't been on here for a little while. It is lovely to see/read about all the support there is for one another. Also good to know that others are going through similar experiences to me.
I went into work for a couple of hours last friday, then have done 10-2 Tues and Thurs and again tomorow. I have been so tired after being in for just 4 hours. I think it is mental as much as physical as I was quite apprehensive. Next week is supposed to be 10-4 Mon, Wed, Fri - seems daunting right now.
I too have the stiffness, aches and pains. and although I am not awake for hours at a time now I can't remember the last time I slept through the night. This must contribute to the tiredness.
I have an exhibition in January and quite a few pieces of work to make for this - however I am just not getting enough time when I have the energy at the moment so this is becoming stressful too!
Only 8.30 and I think I must head for bed. Oh to get my evenings back...
On the plus side I have lots of hair!!
Take care angels
Thanks Angels for good advice as usual. I've decided to lower my expectations to get up before midday and go for a short walk. Sandy- curling up in a corner sounds quite enticing.....I would need to complete the picture with a blanket over my head.
Mel A- take it easy if you can at work- hope you start to feel less tired soon.
comedy club is fine for me or just a meal, whatever everyone else wants to do.cheaper is best for me!
My finger nails have all peeled off very low now and are quite sore. I'm resorting to plasters on fingers- what must I look like!!
Tamoxifen seems to be going ok so far- not having any more hot flushes than I did on chemo, but still having them. wondering if poor sleep and indigestion is a side effect of tamoxifen? have lost the info sheet.
look after yourselves all, love Mel xxx
Rozz, Lori is right don't beat yourself up about the bookings at all. You really are doing fab for us all and you've stepped up to the plate. (Only a week ago I could be found in a corner of the bathroom, hugging my knees, and gently rocking from side to side with my thumb in my mouth). I think we all deserve this. So it's a huge thank you from me too.
I'm going to book a double at the same Premier today for OH and I. Can you let me know which one it is Rozz. "Yaaaaaaaaaaay". JUST CAN'T WAIT. It's a two hour drive for us and I do feel for those who are having to train or fly or who have a much longer journey like Mel, Lynn, Amber, and Angie I think.
Philomena - Had a giggle over your bed head. All my aches have gone for now but I do have cording under my arm which Im doing the exercises for. I do feel the stretching and im sure it would get worse if I didn't do them. As for getting better? Not so sure yet. My big toes nails are really painful again after the pool on holiday and the wick underneath is a pure white mixed with a little grey. Going to stick my head in the sand and paint them as I now have a pathological fear of hospitals and surgeries.
Mel - I'm glad youre back at work and all went well. Hope you get over that cold soon. Too cold for me yet to go hatless even though I have a nice covering now.
Amber - Hope your building work is going well and you get done what you want for Christmas. Were just doing the bathroom all new suite, tiles, carpet the works. Just finishing the decorating and it looks lovely.
Mel A - I too have felt quiet low during the past month. I really hope that you feel better soon. It is early days for us yet and we have had a lot thrown at us all at once. We are still healing in all ways.
Also to lift my spirits i did a little jewelry online shopping. (BC related of course, and a necessity as I nearly let the nurse have surgery side arm for blood pressure last week). I bought a beautiful medical bracelet from ID Band which has "Lympheodema risk No IV, BP or Needles to Right Arm" also ICE (in case of emergency) my telephone number just in case it's not only the bathroom i'm found hugging my knees, rocking, and sucking my thumb.
Thank you for your best wishes on the bloods for tomorrow. Lets hope they work. Lv n Hugs everyone. Sandy. xxxxx
premier inn sounds great to me and the spa package. I will be either driving or train on Friday. Looking forward to meeting you all soooo much! Rozz do we need to pay you, or pay when we arrive?
Well done Angie for getting hair out. I've just had my new wig (six month freebie). My hair is very short and it's very cold so I'm wearing it a lot now. I decided to get a grey/white wig as I will have to get my now white hair out at some time. Actually I think it really suits me- always knew I was an old lady at heart. will try to put a pic on, but haven't managed this yet.
Saw onc last week. He said rash on breast was a chemo se, and was only affecting one breast because it was more susceptible due to rads.gave me hydrocortisone cream. Now the rash has gone but the itching is still there and driving me mad. Also still have indigestion/heartburn. i keep trying to give up the lansoprazole and having to take it again.
Philomena- I seem to be having more pain and stiffness in my surgery arm now than I did for months after op. I do the exercises but it doesn't seem to make much difference. It feels like it's slowly seizing up!
On the bright side surgeon has refered me to plastic surgeon to see what can be done about the hole I've been left with where the tumor was. And started counselling to help deal with my many issues!
I went to a bcc meeting about signs and symptoms of recurrence. It was very informative and felt quite uplifted to begin with, then felt a bit down thinking about the possibility of the cancer spreading. Don't know if it was a good thing or not.
onc said not to expect to start feeling better for about another 3 weeks and I definitely don't! follow up in 3 months if no problems- is this what everyone is having?
Sorry to be glum, but feeling sorry for myself tbh
love Mel xxx