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Hi Sandy,
Well that sounds logical. I wonder if you will get the same answer on tuesday....
Sorry your neuts are down, this carry on seems never ending, as you say, onwards and upwards
Hello everyone,
Had gynae appt this morning. They would not do hysterectomy along with ovaries/tubes as risks outweigh benefits for me. Uterine cancer is not associated with BRCA mutation, is not common, is usually symptomatic (post menopausal bleeding, pain). I'm happy with this. In fact, I wish he'd to retrain as a breast surgeon - so much more skilful with the conscious patient, a real breath of fresh air. I actually walked out smiling and happy!!
Kate, I hope I'm not scaremongering about the risk of not detecting changes under a reconstruction. Approx 5% of the breast tissue remains. Population risk of recurrence with triple negative 25% over 10 years, 10% lifetime for hormone receptive. Mx reduces my 80% BRCA risk by 95%, so 4% lifetime risk for me.( Is my probability calculation correct?).
BCC have put me in touch with someone in my position. She decided no recon for the same reason I'm considering. However, it is not impossible to detect changes under a recon. The health profs will tell you there is no evidence to suggest no recon gives you a better chance, but they cannot tell me any more than that, so I'm continuing to question and look for information. Here are my theories, which no-one has denied yet. Implants sit behind the muscle, so the remaining breast tissue would be at the front. However, own body tissue (DIEP, etc) which I prefer, are softer, so possibly more chance of feeling something deeper. I asked surgeon if a smaller reconstruction would give a better chance of palpation - he laughed at me and said I read too much. I'm not sure why he bothers meeting us at all
Hello Spudgirl, feeling constantly tired is perfectly normal after all that, no way should you feel you ought to go back to work. Your body will tell you when you're ready.
I'm having visions of the Douglas Hurd puppet from Spitting Image (remember them?) 
Mine is going into a little quiff at the top, and sticking out randomly at the sides. I'm turning into Vivian from the Young Ones
Your thoughts please everyone:
I'm still in uncertainty about whether to ask for a hysterectomy, and whether to have reconstruction or not.
(BRCA2 surgeries in the pipeline, I need ovary/tubes out and double mx)
Can anybody help with their experience of hysterectomy? Did you get any problems post op? What does it feel like after? Does it affect your sex life?
Ditto any help on whether to get recon or not? My big concern is how would you feel any lumps, etc in the breast tissue remaining under the recon?
Kate - Thats great news. Keep up the celebrations.
I had a really bad Monday night. Its seems so long since chemo and to go back to the suite for the loading dose of Herceptin bought it all back. I arrived at 9am an emotional reck and it was the chemo suite who took the blood so that I didnt have to go to pathology. I sat next to this bloke who was a lot like my dad and kept me talking and laughing whilst they were fishing for veins. Absolute diamond at the time.
Blood test done. Yaay. I was in all day as they have to keep you because herceptin can cause serious reactions in some. So I waited for the blood results which came back good. Then I waited... and waited...... and waited. The lovely man just didn't draw breath literally. Did I know that the Panamar Canal is the biggest canal in the world?....how long it took to build.........11.30 and the nurse came again to canulate my hand. Another hunt for a vein which was very small and near my little finger and painful. Only just in and the head nurse popped her head round and said, "wait the drugs aren't ready". Baring in mind the last two attemps were thwarted because of low bloods, (when they could get it), things for me got a little tense. I just knew that they wanted to postpone because the official six hour wait would take it beyond 5pm.
I think my whole body language showed that there was no way I was returning tomorrow for another go. Even lovely Mr chatty man unplugged himself and took to the toilet. In the end it was the oncologist who hadn't ordered the drugs so someone personally went to get them and they arrived an hour later. Needless to say I was the last one there and should have gone on to a ward to be watched. Chatty Man was with me the whole time having his treatment too. At around 4pm even he said he would give me a rest and went to the loo again. Honestly I tried everything, reading a book, pretending to text, but he just went on and on and on. In truth? at 5pm? when they gave me my car park pass. I just got in the car and drove home absolutely knackered.
Rozz - Like you I too think that every little ache and pain is something more sinister. I hope your tummy is more settled now and wishing you all the best for your forthcoming appointments.
Mel A - Your post to Caz about her hair made me investigate as I couldn't see how good it was from the very small profile pics on our posts. I had no idea we could click on each others pickie to see it enlarged or that there are others. I will update mine soon.
Angie - Good to hear your mind has been put at rest a little by the nurse. (Don't forget us and pop her on speedial for any relevant info LOl).
Hope everyone else is good. Take it easy angels. Sandy. xxxxx
