TC so pleased you had a good appt with your surgeon. It's important that you are happy with what's been decided. It's your body after all. For what it's worth, I agree being balanced/minimising future risks is definitely worthwhile. Seems like a pain to volunteer for more surgery now, but I'm sure you will look back & be pleased you did it. I look like a demented badger/skunk too. The rads is nothing to worry about in terms of the planning or process. It is a little undignified with your boob(s) out, especially now things don't look as they were, the arms can ache if they are up too long & it's a pain in the bott having to go every day. It is also a bit sore, but not anything like the pain of surgery. The worst bit is the psychology of it, by that I mean the thought of it. I had a major 'really don't want to do this' the weekend before I started. I hadn't really focused on rads, just getting to the end of chemo. I looked at the impact rads has on reducing recurrence & it is huge. It really improves all of our chances. On that basis I forced myself, against all my instincts, to do it. So you are not alone. The part of BC treatment that is the hardest, is whichever one you're currently on.
Suzy sorry you are feeling low, I would really recommend the counselling. You wonder what you're going to talk about, but all sorts comes out. I did cry a lot in my first one, in fact couldn't stop...it totally overwhelmed me, but that sort of got it out of my system. I feel that I know myself a lot better now.
Chelle I just lay there in my rads planning whilst they talked measurements amongst themselves, they put a piece of plastic on my chest & drew round my nipples with pens, which was slightly weird, but it's in case they lose the dots. At our place you can choose normal or invisible tatts. I did the latter, but no-one tells you that you get 5 needle stabs x 3, rather than just 3. Then someone like Suzy does your CT, which is just lying there with the bed moving around. All the radiographers throughout the process were lovely except one bossy little madam, who treated you like a naughty school child. xx
Chelle I'm doing counselling. I found the first session a bit like that, but I have learnt quite a lot about myself in subsequent ones & I'm really pleased that I have done them. The emphasis seems to be on putting your needs first & not being too stressed or hard on yourself if things don't go to plan or you can't do everything you'd like to. Suzy one of the ladies on our rads thread is having a compression bra & manual lymphatic drainage massages to help her recurrent seroma. Would that be worth asking about? Bra doesn't sound exactly comfy though. TC hope things are settling down for you. Ange I guess your last zap must be quite soon? Just to say things rapidly get better after you are over that initial 7-10 day period after rads, which is a relief. Have a good day all. x
Ps Suzy I have my post rads check & Herceptin today. I will let you know if it's back to normal ie intense fatigue was due to rads or whether my reaction to H is getting worse. Hope you got on ok on Friday with yours x
Chelle I know there is a standard & a modified position for arms (because they ticked standard for me & there is obviously an alternative). I can't believe you are the only person who is unable to assume the position, so there must be a plan B. If you took strong painkillers before, could someone lift your arm into position or is it actually stuck? Don't worry about it either way, I'm sure they've seen it all before. One lady on our thread had to have her bingo wings taped out of the way. She said the worst thing was the shame! Just booked a hol for my OH's 50th this time next year & was thinking how wonderful it will be to have normalish hair by then (wistful sigh.....). xx
I think my rads will be focussed on my armpit and clavicle? I saw my onc on Thursday as she was leading a course I was doing and she asked me if I had started and asked if I could get my arm up....... That tells me I need to get it up!!!
how is everyone ts sunny day?
My arm is defo easier since getting the drain out but I still can't get my arm above my head ready for rads. I gave my rads planning meeting in Thursday and am really worried they won't be able to do what's needed 😕
Fingers crossed for you Suzy. I think we have all had to develop patience during this process .. Waiting for appointments, waiting for tests, waiting for results, waiting for chemo to start, waiting for chemo to finish etc etc. Great news re R1R2 as it has certainly worked extremely well for me. Very little burning in the first place RTOG 0 in the majority with a little grade one under my arm/over the breast bone, on the mend from day 4 onwards & bra back on day 5. There was one very bossy little radiographer who seemed really put out that I wasn't using acqueous cream & told me to stop using it, but I ignored her & carried on. I alternated R1/R2 with Ralife cream, from the people who makes Onicolife nail drops, because I had ordered that before I even heard of R1/R2. That cream is also very soothing. I might just have got lucky & had rads proof skin of course. We'll never know. Also all these creams are expensive compared to E45 or acqueous. Have a nice weekend. xx
REALLY pleased for you Chelle. Once step closer to normal life again. I bet you slept better last night without all that going on. Suzy hope you aren't too sore & good luck for rads. xx
Multi tasking man?!?!!! Don't believe it! Bet he has a good woman behind him telling his what to do/say!
THE DRAIN IS OUT!
the drain is out!!!!!
Ha ha, your multi-tasking men comment has really made me laugh Bibi. Thanks for cheering up my morning.
Good luck today Suzy. Mine was a 15 minute job, but had the full theatre prep just in case. Surgeon chatted about tamoxifen the whole way through. I kind of wanted him to focus on the job in hand, but he was obviously that rare breed ... A man who can multi-task. TC sorry you're feeling frustrated with your blinking seroma. They just seem to go on & on don't they? I can't shift my head cold either. I've had a red raw sore throat for 10 days & it seems to have moved to my ear now (never had ear problems with a cold before, but it's like seroma of the ear & feels like it's going to explode). My whole jaw is hurting & I think the eustachian tube is blocked up. All very odd. I should have at least some immune system by now, as 2 months post chemo. My oncologist says your counts are normal within a month, but the white cells can't mount a proper attack on infections for up to 6 months after. Nice, guess we just have to grin & bear it TC. Chelle great news about your drain. A real prospect of it coming out soon. Must be such a relief after weeks & weeks of dragging it round with you. Ange sounds like you are motoring through your rads now. Does go quite fast because your days are shorter. Good news mine feels miles better today (day 5 post) & the sunburny feeling is milder. Have a good day all .... Pouring here & really windy. xx
Hi ladies feeling sorry for myself Seroma, cold aching like I'm still on Chemo. Rang the breast care nurse different one answered. Told me that they don't like draining seroma and that would only do it if I was in pain and everybody's pain threshold is different. Says the Breast Care Nurse who has never had a Seroma. I'm not actually in pain as such, just feel as everything is going to burst open. My hysterectomy was not as bad as this. Hi Sue I'm the one from Colchester I also suffered from shortness of breath xx
Wow ladies you seem to be coping with your next stage of treatment rearly well.
My drain seems to have stopped! Virtually nothing overnight and it's feeling really sore and bruised under my skin around the drain site so I'm hoping that's a sign that it's sucked everything it can out lol!
i got my rads planning through yesterday but have had to postpone 😕
I need this drain out obviously but I also plan on driving myself there.
Good new is that a girl I met through a collegue if my husband has also had her rads planning through at the same time so I'm really hoping we have treatment together and some of our appointments time well and we can treat ourselves with coffee/lunch! Every cloud and all that!
have a good day ladies. If my nurse comes within the next half hour I can get a lift into town which will be SUCH a treat!
Brilliant news Suzy. Hope port removal goes ok. Ange & Suzy (when you get there) I found the double whammy of Herceptin & rads really knocked me for six the day after. I haven't had much rads fatigue, except needing to go to bed at 9-9.30pm most nights, but the day after Herceptin I felt like I'd had chemo again ... Very heavy, exhausted & lethargic. Just thought I'd warn you so you coukd keep the day after relatively free. It went the day after. Chelle hope you get another minimal drainage today xx
Yes me too bibi. Never warmed to her anyway but she was crying In this video today and I just thought that no one should feel like that. Just had an email back asking if I would go on the programme for 3 mins via Skype/FaceTime!!!!!! I feel flattered but I declined.......... I need my hair cutting lol!!!
How are we all today?
im feeling much better after suffering since Friday with my little girls bug that she kindly gave me. Also hopefully have good news that my drain is below 50ml today. Fingers crossed that this continues ts week and I will be drain free by the weekend.
Did id anyone see Victoria derbyshires new video about finishing chemo? Don't know if I'm crazy but I sent her an email to wish her well. Don't particularly like her but wouldn't wish this crap on anyone!
quiet day for me today. Parcel to pick up so I can go out for a walk later and I have a couple of bits of crocheting to get on with. 😁
Big hugs to to you all xxx
You're most welcome Sue. You're at the tough end of the journey, with treatments stretching out ahead of you, but once you get past the half way mark you will begin to see a small chink of light at the end of the tunnel. I used to say 1st treatment fear of the Unknown, 2nd fear of the known! Most people get similar SEs on the same drugs, but this time you will know what to expect, how to help yourself &, most importantly, that any SE will go in a few days or weeks. My 2nd was actually much better than the first, because I had better nausea drugs. My tip, apart from drink all the fluids, is that if your meds from the hospital aren't holding down the nausea, call your GP for Cyclizine. I dud that on the 3rd EC & the sickly feel went after 2 days instead of 4-5. All the best. xxx
Hi yes that's how I feel, I know it's got nothing to do with my breast cancer as I have had every scan going lol. I have lost 2 aunts and my sister with BC. So the doctor didn't want to take any chances. I suffer from anxiety and panics so I think when I get out of breath I might make it worse. I am on antidepressants for it. But when we are going through all this our mind works over time. I never ever thought I would get it. 😳
Hello and welcome sue!
i was definitely more and more breathless during fec. I couldn't walk round the corner to my girls school without being breathless. Mention it to your oncologist next time you see them. It may be nothing and they will keep an eye on it.
Thank you for replying to me. I have only had 1 chemo so far. Not looking forward to Thursday for 2nd one. This breathless thing has come in the past week.
Hi Sue Sorry to hear about your diagnosis. How are you getting on? I was breathless at times during chemo, possibly because of the general fatigue/anaemia (less red blood cells, so less oxygen going round). You will be pleased to hear I was back to normal a few weeks after chemo.
TC sorry to hear you slipped over. Bet you had a right panic as you were going over. Glad you enjoyed your time away. I'm 2 days post rads now & not much redness or fatigue yet. Does feel a bit sunburny but nothing worse than I did to myself in Greece in the 80s with the Hawaian Tropical! Side effects can continue to develop for a week or two after treatment, so I won't count my chickens. Weirdly I have a bit of a cold too this weekend. I was in a bit of a chemo panic about it, but I must have got enough immune system back to handle it, as it seems to be going.
Chelle fingers crossed for yours & for getting those flipping drains out this next week.
Suzy hope all's well & the seroma has finally given up.
Love to all x
Hi ladies i am just popping in from march 2016 thread. i have had one chemo FEC-T got the next one this tursday, i was just wondering does anyone get out of breath more now ? one more thing to worry about. 😬
everything seems such a push. i was an active cleaner for 30 years. whats happening to my body 😫.
i see there is a lady in colchester i live in chelmsford. hope you didnt mind me crashing your thread.
Know how you feel. My lovely friend has been round earlier and has just let me know that her little boy has been vomiting non stop since they got home. Don't want any more delays to my rxt. xx
I wish we could upload pictures the local pubs resident pianist was a skeleton dressed in tails and top hat. Made me giggle would have loved to share it with you xxx