Hi everyone i am a Feb starter. Just need some advice.
I must say I need to get my breathing sorted out, was out of breath when walking. Don't know why it's begining to scare me now. My belly is so bloated as well. And still very tired. Sick of moaning how tired I am.
Now waiting for Thursday for my T to begin.
Can you girls tell me when's the best time to take the steroids, as I have got to take 4 the day before my first T and 4 on the day and 4 the day after.
hope your all doing well.
sue X X
Hi Suzy sorry it's sore for you. It's quite a barbaric thing really. I know two ladies on Feb Rads had similar problems to those you describe & both said it got much better quite quickly. They were surprised how fast. For me, it stayed the same for a week after, whilst the rads were still working, but quickly better after that & back in a bra by 2 weeks after. You might need a staged return to your bras as well as work😀, I know I could only wear mine for either the morning or afternoon for about a week after that. I am pleased to say the 'tan' line is also beginning to fade now (6 weeks post). I do feel miles better now & even played tennis for an hour on Friday, albeit with underarm serves & not a lot of running for balls more than 10 feet away, but returning to work seems quite daunting to me. I had a zero hours contract job, which I had to resign from when I was diagnosed, so just mucking about at the moment. I will probably give myself the summer to recuperate (still have some redundancy money left from 2013 when I lost my career job) & start to look in the Autumn when I have some more normal looking hair (well we live in hope!). All the best for your last couple of zaps. Hope TC/Chelle going ok with the rads. xx
Big hugs tc. Must be hard for you right now.
good luck for tomorrow. I had my first today and it's was like nothing happened!!!!! A walk in the park I would say lol!
TC life is so tough sometimes. Big hugs to you for rads & your brother too. Chelle hope you're doing ok too. Suzy nearly finished your rads now. Hope this week is ok for you xx
Ps in terms of the fatigue, daily walks really help. I used to drag myself off to meet my friends for a walk some days, thinking I would never make it round, but I would actually come back a lot more perky. Sounds counterintuitive, but I wasn't the only one who found that. Also eating healthily & drinking lots of fluids seem to help the fatigue. Really no idea why!! I was ready for bed most nights by 9-9.30. HB to,d me he used to get upset on Sat nights on his own, guess he was thinking this is what it would be like ... xx
Oh dear poor you. I didn't get that but some people definitely did. In fact I remember quite a few people moaning about it. There's no solotion other than to do everything slowly & pace yourself I'm afraid (from what I remember them all saying. Are you still on FEC or have you moved to T? x
yes I can relate to all of them, the only other one is I get out of breath more now is this normal? Have to keep sitting down after trying to do chores. I am 64 don't know if my age has anything to do with it. I get very fatigued. It's all getting me down I am afraid.
Sue x X X
Most people had hair loss, a horrible tasting mouth, morning sickness feeling, hungover tired feeling, dry nails, sore feet, terrible indigestion, dry everything (skin, lips, use your imagination), either constipation or diarrhoea. Some were actually sick (mainly the FEC) , got mouth ulcers, were hospitalised for neutropenic infections, bad headaches, dry cracking nails, muscle aches & pains (mainly the T). Have I forgotten anything ladies? If your SE are not amongst those listed, tell us what they are & chances are someone had it. How are you coping? xx
Good morning ladies, I am in the Feb forum. So hope you don't mind me popping in.
I would very much appreciate your help with side effects from FEC T. Please could you take a couple of minutes to just jot down any you had no matter how small. It would put my mind at rest to see if what I am getting is because of the chemo. I am a born worrier lol lol.
Please do this only if you have time.
Sue x X X
Just returned from an open evening at the rads department. Got to meat the team and see the machine and what happens. Makes it all very real just as I had started to feel a bit more normal. But also eases the anxiety of starting rads.
how are we all doing?
some talk earlier about counselling and having been for my 3rd session today I can highly recommend it. If anything it has made me realise that I need to start to spend time on 'me' much much more. I'm seriously not sure how to do that but at least I can think much more about 'me'
Hi TC I'm going to the lovely N Mids. It is usually ok but have found that the first day of the week is always busy with long delays. They are really lovely staff and it's fairly easy for me to get to.
Where you going for yours? Take this free time to rest up and keep doing the exercises as the position can make you a bit stiff. Take cream with you and put it on as soon as you get dressed. I have found it very uncomfortable to wear my bra so have been making do with a vest. Hope your physio goes well and is not too painful. xx
Hi ladies still here Seroma gone, finally got my dates for radiotherapy 14th April 15 sessions. Have an appointment with physio on Wednesday re cording and possible slight lymphodemia. Feel as though I'm turning a corner but may being too optomistic. You all sound very tired after rads. I would love to go swimming but don't suppose that's aloud xxx
Oh Ange, Glad your rads have finished. I'm starting to think about returning to work but just want this next month to go. I've just had herceptin on Friday with rads and am so tired. Can't think how I'll manage going back to work. Can't wait for some normality to return. xx
I didn't realise how tired I would be from the travel, rads and Herceptin. I also have overdone the housework and am in the process of clearing out the fridge and freezer. Have only 15 days to go to the end of rads. Getting anxious about what happens next. How do you prepare for the end of treatment? It feels like a safety net is being removed. The last 8 months has almost been non stop treatment of some sort or other.
Hope everyone is having a peaceful evening.
TC all the best for your rads tomorrow.
Chelle hope your planning goes well and the physio works.
Hi everyone. Sorry to hear you had to have yet another seroma drainage Suzy. Hope this is the last one for you. Will you still go ahead with rads as planned? Chelle hope your physio goes ok so you can get on with rads & TC really hope not lymphoedema for you. Have u seen the specialist nurse? We had a chat on it after rads, but you might need to go earlier if you think you're getting it. Shazza very impressed you're back at work. I have been off trying to get back to normal life too, although knackered for 3 days after a yoga class on Weds (it was the lie on the floor, meditate & do gentle stretches type, not hot yoga) so def not ready for work. Played tennis for 20 mins yesterday with kids sponge balls. Than goodness for the latter, as realised my reactions are woefully slow when got smacked straight in the nose by our 17 year old. Brain didn't even manage a duck or flinch.
Emotionally ok until good friend diagnosed yesterday. I just burst into tears & HB looked really shell shocked too. I don't know if it was the sad little 'not good news, L has been diagnosed with BC' text from the husband, which just took us back our diagnosis moment, or I was crying because of what I know she has to face. This blo*dy disease claims another good person. She had DCIS 3-4 years ago & opted for the wait & see 'it might never happen' option. When I was having chemo, I really wanted to say to her, get it chopped out, it's not worth the risk, but decided everyone has to make their own decisions. Happy Easter all. We're off to see my sister for lunch today. Nice to have a day off gardening! xxxx
glad to hear it's improving. Slow but at least In The right direction.
I have had a start date for rads but have had to postpone due to my lack of movement. So physio is now a priority for me before my planning scan on the 4th. Hoping to start some time soonafter that.
I have also approached work to return on a very very part time basis. Feels like I may be returning to the real wirld soon lol!