Hi guys I was diganosed last year with BC ER/PR+HER- mets to the liver I did chemo and now I am on zoledex and Tamoxifen. Is anyone on this treatment and how is it working for you and how long have you been on this. I live in Zimbabwe
Hi, I've been around the block a few times so not a young 'un. I have secondaries in my liver and they scare me a lot, however they have behaved well over the last 2.5 years. The white if my eyes sometimes takes on a yellow tinge, but my liver blood tests are still looking ok.
other than my regular treatment, nothing special has been done about my liver mets
ive never had a bone scan just ct and MRI. I'm at the oncologists on Friday so I will mention the pain, it's weird how it's just one leg, I don't take pain killers but think I might start having to. I've got chemo again next Wednesday. When is your bone scan?
I should be over the moon with the liver results which I am, but I've convinced myself it's somewhere else xxx
I was just passing by - have never posted before but have been reading/lurking for a few years. Your post touched me and I just wanted to say that when I had taxotere/docetaxol the bone pain was very bad, and I think it is the same for most people if not all. Before BC I never took painkillers, but with the docetaxol I kept on top of it with regular medication, codeine and paracetamol. Ask for some relief when you go back to hospital. I hope you are a little bit reassured. It is horrible but the chemo pain will pass. I'm not diagnosed with secondaries but waiting for a bone scan to find out! So I know about the anxiety and mind games and consequent ups and downs.... One day I'm planning my funeral and the next I'm sure it's just a stiff neck. It's not much fun and hard to be positive.
Take care, hope you are feeling a little better today.
met liver surgeon this weeks it's nothing to worry about he doesn't want to see me again. I've had my first lot of T chemotheraphy, it's hit me harder than the fec every bone hurts and I've convinced myself it's in my bones especially my legs.sick of worrying all the time. I've had brilliant news but I'm scared there gonna tell me something else is wrong, I'm doing my head in. Hope everyone is ok xxx
Lou, I'm sorry you are having a mixed up mess! I hope this decision is correct. Nobody wants to need surgery, but how wonderful if it's fixable and curable! FF
Sorry I've not been on for a bit. Well it was a bit of a shock. In my liver there is a cyst but the other thing they to,d me was cancer turns out not to be. Went in for the results, he said the chemotheraphy had done nothing to the 1.5cm legion and with the different contrast in the ct and latest MRI it showed up very different. He said a load of liver specialists were looking at it from another hospital and they would let me know in 5 days. So as you can imagine I was very shocked, my nurse then rang me after 5 days and said the liver people had all agreed it was something called an adenoma, I've probably spelt it wrong, it's not cancer but I've still got to see a liver specialist cos they can grow and I might have to get it removed. They cancelled my chemotheraphy last week, but I've got it again on Wednesday, I've had fec now going on to the T. I'm worried there gonna ring again and say they've made another mistake and it is cancer. So for 2 months I thought I was stage 4 but it turns out I'm not.
Hope everyone else is getting on ok xxx
Lou, We haven't heard from you in a bit, hope your results went well! We are here if you need us.
Jacksy, I remember how happy my mom always was when I would stop at her house! Lol, I only lived a block away! I also remember being announced if I thought she stopped by too often. That's when I was young, dumb, and newly married. Now, I would give anything for her to be able to walk through my door! Time has moved on and the circle continues. I love when any of my kids come by! I get "ridiculously happy" even if it's just a day! They are always our lives! FF
Hi everyone, hope your scans went ok Lou, and your biopsy Margaret, must be getting your results soon then the waiting will be over.
Yes Funnyface people think we're so brave but they would do the same. There is no alternative. And even hiding under the duvet doesn't last long as I eventually need the loo/a cup of tea!
im enjoying the sunshine and getting over my treatment this week, so got a quiet weekend planned. Looking forward to seeing my daughter back from uni tonight, which makes me feel ridiculously happy...
have good weekend one and all
Lou, Glad your treatment wasn't so bad. Some times it takes a bit to figure out the SE's and how to best combat them!! Good luck with scan results.
Madmargaret, Wishing you the best with your biopsy procedure and results! Not much of a choice is how I feel when people tell me I'm so brave! Believe me I have no bravery in this just have to get on with it! Bravery is if I risk my life to save someone else's! Take care ladies! FF
will be glad when biopsy gets done on Thursday
I hate feeling like a hamster on a wheel....can't get off. But hey ho not got much of a choice...go with the flow
hope all went well with your MRI and ct
Hi deb, jacksy and madmarge,
hows everyone doing? I've got MRI and CT tomorrow so I'm a bit nervous. Don't get the results till 11 days later . Had another fec chemotheraphy last Wednesday which wasn't to bad just feel a bit tired.
Just done a quick reply but don't know where it has gone but anyway it was to say I really appreciated the welcome don't feel quite so alone now x
And I meant to say hi and welcome to madmargaret too. It annoys me that I can't see the posts while I'm replying...brain like a sieve. Hope you find some helpful information and good support here X
I think we are all older than we like to think or admit!! Debhummingbird I can hardly believe that - your liver mets are from your BC 20 years ago?? I don't know if you've been on any treatment in that time, but that kinda gives us all hope that they could be growing really really slowly 👍🏼😀.
All the best to you all. I'm fighting off a bout of norovirus 😷 So not very happy today
Are you having treatment. At the moment the have put me on Letrozole til they decide what else to do after the liver biopsy. Feet haven't touched the ground these last six weeks with tests,X-rays bloods scans biopsies etc.HEy ho though everyone has been so kind . Thanks for replying too.refuse to act my age as well as you can tell from the name I have chosen lol. X
Hi I am new on here.
Is there anyone out there who is not as young as they would like to be lol. Just diagnosed BC with liver lesions...biopsy of liver next week. Is lesion from breast or left from another site operated on 13 years ago. It's just I don't know from reading on here if there are any " oldies" like me who have had successful treatment . Thanks
im not bad got chemotheraphy tomorrow then I've got a ct scan on Monday. Hopefully will show chemotheraphy is doing something, well I hope it does. I still have my moments though, nice to hear jacksy is still going strong after 10 years with what I've read on the internet I didn't think that was possible, so I need to stop googling.
Hi lovely ladies and especially Lou and others newly diagnosed with secondaries.
i actually started this thread ten years ago and I'm still well and able to do my job,so I hope you can take heart from that. Lou I think it's dangerous reading the Internet, although we all do it!, as even data a few years old is now so out of date. Things are moving fast and new treatments becoming available all the time. I didn't think I'd see my youngest child even go to secondary school and now she's away at uni!
having one or two isolated tumours in your liver makes you more likely to be eligible for direct treatments such as surgery or radio frequency ablation (RFA), a kind of laser treatment with radio waves. I've had both and now my liver has been clear for 4 years. If you have a scattered distribution then systemic treatments (that go round your bloodstream like chemo etc) can still get good results. You have to remember that your onc is a medical oncologist,i.e not a surgeon, radiographer or anything else. Occasionally they can get a bit blinkered and only look at medicinal treatments, and 'forget' there are other treatments out there. As soon as I asked my onc about RFA he said he would contact somebody and find out if I was eligible for referral, so it might be worth reminding yours later. They usually want to see how you respond to chemo first to get as much shrinkage as possible before referring you, and being on chemo isn't conducive to healthy healing after surgery so they will probably wait until you have finished the course.
You are still very much in the shock and devastation stage of coming to terms with a secondary diagnosis and yes it is utterly terrifying. You are allowed to be an emotional wreck! But it WILL pass and in time you will find a new stability and acceptance and be able to enjoy things and look ahead and make plans, and the ground under your feet will feel solid again.
Try not to worry about what others are having, like different meds to take home. Everyone's body reacts differently, and they are probably having different side effects to you so need something different. You are all on good and 'mainstream' chemos that have been proven to have good effects. Try to trust your team.
Wishing all you newbies the very best outcomes. Be kind to yourselves.
I'm back on Wednesday for chemo, then my next appointment with the doctor is the 17th. Got to go in the morning for my blood, then off to a spa for 2 nights, it's only local, I'm hoping I can relax and enjoy it but how I'm feeling I doubt I will
thanks for replying. I'm Er and PR positive but her negative. I'm not sure if this is a good or bad thing. I'm just scared there growing Massive and this chemo not do anything. There only 1cm and 1.3cm I think and they are next to each other. I'm at hospital in morning for bloods, then going to a spa then back for chemo Wednesday . It's just most things I've read about liver mets is doom and gloom. Somedays I'm ok somedays I'm not, I'm scared about the next scan and that probably won't be for another 5 weeks. Think I read that's once you have secondary breast cancer it will always spread somewhere else, feel like a ticking time bomb lol xxxx
Hi all liver newbies.
It is such a shock when breast cancer comes back and I don't think any of us have ever been prepared for that awful diagnosis. Unfortunately it can come back many many years down the line or it a secondary diagnosis can come at the same time as a primary diagnosis - at the moment there is no test to predict what will happen with you as each case is individual.
We all know how horrible that time is and to have it happen so soon after having a baby must really throw you out, plus going straight on to a pretty harsh chemo and dealing with the SEs doesn't make it any easier - other than you know you are bashing the little uggers!
I had FEC chemo in 2008 when I was dx with a local recurrence and bone mets. I then went on to hormone treatment (arimidex) and had a very good, ie stable response for nearly 5 years. I then developed some pain in my leg and got various scans organised which eventually showed liver mets, and progression in my bone mets. I started on Capecitabine which reduced the liver mets for about 18 months before moving onto a Herceptin drug regime (long story but I had changed from HER2- to HER2+) which kept me stable (and reduced the liver mets) until I had some progression. I have now gone onto Kadcyla and am coming up to my first set of scans to see how it is working. During FEC, which is a course of 6 treatments, you would normally have a scan after 3 cycles and then one at the end. After that (I think you, Lou, are hormone positive) you would normally go onto a hormone treatment with scans every 3 months initially.
I hope this helps and sorry I've not been able to offer support earlier but I'm just recovering from flu so not been on the boards much. Feel free to ask any other questions, one of us is bound to be able to help.
Deb Hummingbird, No my tumors are in my lungs not my liver. I know Lou81 was looking for people with liver lesions, but I thought it would be helpful to hear from any one with organ mets! There is long term liver mets survivors too. Keep hoping!
Lou81, The spa treat will do you good! It will give you some time to relax and absorbid your own thoughts! I can't even imagine how yiur head is spinning with just having an infant. I know what a mess I was with dx and how long it took me to screw my headback on. I tell my story in hopes of giving others hope. I always wish for it to help them stop fretting so bad.
Hugs to both of you. FF
Thats encouraging to read my primary tumour was 5.6cm, they were gonna do chemotheraphy first but then changed there mind to do a mastectomy, then they found the liver legions. I've noticed today my hair is falling out but I've got a wig ready. Xxx
I have never asked the size of my liver legion. I do know that my primary tumour was 5.5 cm and after 6 fec they had to use a marker to find it as it had shrunk so much. I had 3 liver legions and now have just 1 and my bone is healing so fec really can work. My onc wants to scan every 6 months and I have bloods done every month so they keep an eye on things. There are lots of lovely ladies on here, Nicky and Mojan always have so much advice when it comes to liver mets.
Enjoy your spa day and good luck with your next treatment. Xx