Hi Guys
Fiona, I was talking to the specialist breast nurse at the Beatson last week about Herceptrin, how they know if 18 sessions is enough etc (some of the ladies at Haimyres have been on it for years). Some countries only give 3 sessions. She told me that they are doing clinical trials at the Beatson as that might be enough to do the trick! Apparently the 18 protocol is based on results done on mice, they just times it to gross for humans. Having said that, I would be devastated if I didn't get it as my tumour was fed by HER2 (I am er/or negative) Don't know if that's any consolation. I would appeal it, especially if your heart recovered naturally!! Keeping fingers crossed for you Fiona. You so do not need this.
I had my 7th rads today and waited, wait for it, 2 and a half hours! The computers were down in the mornig and the spent the whole day catching up. The waiting is horrendous and the whole day is wasted. Yesterday was ok, I was seen at 2 and my appointment time was 1.30, but the other lady she shares the car was very late in being seen so stll didnt get home till 5pm. I spend the morning trying to get as much done as I can. Still, by Jan it will just be Herceptrin every 3 weeks, so the end is in sight.
Carol, so glad you enjoyed the LGFG day. i too was stunned by the amount of stuff we got and am still using everything. I gave loads of it to my sister too. It was a great day, such fun. Wish we could go again! Incidentally, that was the most tactless remark made to you even though I am sure she would have been mortified if she knew she upset you. I think I have a bit of 'survivors guilt' because I ave now met some people who are terminal; ne lady has cervical cancer (didnt respond to chemo)and is her husband's carer. He has prostate cancer and too, is terminal. What can you say? She is getting Marie Curie nurses at night.
Hope you are feeling a bit better Shiela. Maggie how are you coping with FEC? Not long to go, and I can reiterate what everyone say, Rads is a walk in the park in comparison. Just take an engrossing book!
I met Sharon up at Hairmyres for Herceptrin and she looked a million dollers, the picture of health and her hair looked great. Gives us hope now that I have cut off the rest of the chemo hair that Tax left me! Baldie again fro the 2nd time this year!
It is always a problem for all is us to get together - I have never managed it due to treatment. I have had to miss 4 lunches/ get togethers/ booze ups because of the times of my rads. What are they like about changing you times? If I could get morning appointments I could have the afternoons free.
I have done all my christmas shopping on line! Got some real bargains too. All this bloody free time, could do some deep searches.
No way could I go round the shops. Getting round ASDA is a task and a half.
Off for a bath then bed, need to do my big shop tomorrow morn I have 2 Ryvitas and an inch of milk - having visitors in the evening. hope they don't beat me home.
Sleep well and take care.
Annie xx
