hi girlies, a meet up would be great, Sharon, I will sponsor you no probs.
crapping myself, mammo in a fortnight and im convinced I have a lump in my good boob!!!!!!!!!!! hope its my imagination
love n hugs
Hello ladies...it was great to meet the Edinburgh girls...had a great time. It's Fiona's birthday on Thursday...I know she has plans but wouldn't it be great if we could have a get together...any thoughts.
Yip Hazel, STOP THE BUS NOW!!!!!!!!!!!!!
Fiona- I'm getting a load of tickets soon so just tell me how many you want and I'll get them to you, whats your address for your birthday card?
We need to do lunch sometime celebrate your 40th
Good luck with scan, be thinking of you
I'm back down to London Mon and Tues.
Carol - how you feeling now?
I'm doing the Race for life on Sun 6th June and need some sponsors, anyone willing to donate to help me out, I'm really struggling as not at work and haven't managed to visit.
Hope everyone ok
love Sharon xxxx
Edinburgh was fab!! loved going through there, the sun was shining and the food was yummy but the company was great!!
Sharon, how do I go about getting tickets for your fundraiser? It would be great to meet up with everyone if they can manage to go..I'm really busy during June with the 12th being my only free Saturday. Sorry to hear you've been feeling a bit down lately...you are doing so well girl, we're all here for you!!
Well I did the scarves all by myself on Monday and I really enjoyed it. I won't feel so nervous next time but it's mental how your confidence takes a right old battering with treatment!! Also had to go for Lumbar Xray as my sore back is still here and not going away..results in 10 days, so here we go again!!!
I'm gearing up for the big 40 on Friday!! looking forward to going out for dinner Fri and Sat...just to be greedy!! and London the following week....Yay!!!
Hope everyone is doing ok? hopefully the summer will be here soon and cheer everyone up..
Take care for now
Was fab to see Fee & Mags at the weekend....hope to see you again soon!
Maybe you West Coasters can get something organised & we can come to you next time....would be nice to see everyone.
Sharon....I'm with you Chick! Fed up with the whole kit & kaboodle ..scans, appointments, treatments, poking & prodding, more scans, more appointments....pain & fatigue...new lumpy bits!
ENOUGH....STOP THE BUS!! I want off!!
.....lets have a huge party when it's all over! xxxxx
Sharon, nice to hear from you, sorry to hear you are feeling fed up, you must be, you have had so much to deal with, take care
love n hugs
Hope everyone getting on ok.
Sheila - hope chemo ok on you. Bet you really enjoyed your stay at hotel. I was away last weekend with family didn't want to come back.
Sorry I haven't been on for a while I'm just totally fed up with everything at moment.
Tablets going ok so far, back down to London next Mon and Tues for more scans and tests, it's never ending.
It would be good to meet up for lunch or dinner but not free till 5th June.
Good to read all your posts and welcome to new girls, hope you guys are doing good
Lots love Sharon xxxx
can i just say its Hamiltons Bar on hamilton place not square in stockbridge.
looking forward to seeing fee and mags and anybody else that can make it.
Sheila, good to hear from you, good luck with next week and more treatment...hope it all goes well..
Hope everyone is doing ok?...I've been quite busy so not on here a lot these days...I'm going solo at Maggie's next Monday for the scarf tying so wish me luck!! nothing like being hurled in at the deep end for keeping your mind occupied!! Also is there anyone wishing to go on a wee trip through to Edinburgh on Saturday to meet up with the girls from the Edinburgh thread...we all met at the YWF.. We are meeting up in Hamilton's on Hamilton square about 1.30pm for lunch.. Me and Maggie are going so far, if anyone else fancies going just let me know and we can all meet up....we're all on facebook too so if anyone wants to hook up, PM me and I'll get your details...
Hope all the girls on chemo are doing ok? Lynn, sorry to hear your having it tough with your Dad, it must be a big worry to you. Annie, good to hear you're finally starting to get some energy back...I think after all the treatment you've had it'll take a wee while..
Sharon is doing fine, her friends are organising a wee do for her in June in St Columkille's hall in Rutherglen, to help raise funds to help with all her costs travelling up and down to London..it's on Sat 19th June...If anyone wants to go let me know and I'll get you the details..Tickets are £5.
Take care Everyone
haven't been on for while - nice to catch up again.
Had 2 nights at Cameron House last week with Fiona and Jessica. It was so lovely just to get away and enjoy some spoiling. So good not to be on chemo, but dreading starting again. Hospital next Monday to get bloods checked. My arm is still very swollen and sore - hope it's not going to be like this for ever. Hair coming in again - white this time and nails dropping off.
Hope all you girls now finished treatment doing OK and trying to get back to a normal life without hospital.
Good luck to those of you going through chemo.
Would be so good to meet up again.
Love to everyone
My but thethread is quiet these days! Hope everyone us well and congrats to the girls going through chemo! You all seem to be coping really well!!
I am shocked about Sally Wittaker (Corrie) and Lynn Redgrave died yesterday. We seem to be swamped by BC!
I would be so up for lunch - I have never actually made a meet because of appoointments, and famously, chemo brain when I left the house, went on the bus without my purse!!! Was rescued by dear nephew who flew to my aid!
Wonder what we will be waking up to on Friday .... whatever, best be prepared for a period of austerity. The joys of living in interesting times ..
Take care girls
Thanks for your kind thoughts - yes its a bit of a double whammy dealing with the BC and the trauma of Dad's worsening health. Hospital have said Mum needs to make a decision in the near future re a nursing home or max homecare package - all a bit fraught
On a better note - i'd be up for meeting you all in the flesh so to speak and would love to come along - if that's ok. Can't absolutely say it would happen but would need to be chemo and Dad dependant for me. I'd make every possible effort - it would be great to fill in the gaps.
I'm still not too sure about the wig. I haven't died my hair for years and suddenly being blonde instead of silver/grey is taking a bit of getting used too.
Everybody that's seen me wearing the new wig says it takes years off me and my sister and I did have a laugh with Sharron.
Thanks for asking.
I have done really well with my first chemo. Not too good the first week with bladder irritation, tired and feeling the cold. Then last week I was great as if I had a burst of energy and have been good ever since. Next chemo on friday not looking forward to that as I have heard it gets worse as you go on, hope I am okay.
My hair started to fall out at the weekend going to get the rest shaved off this week. Been out for dinner and lunch with the wig on, and nobody has noticed a thing as it is so like my own hair. One of my friends didn't even know i had it on when she came for coffee last week.
How are things going with you.Glad you are starting at Maggies, never been there but I will get some day.
Love Anne xx
Hiya Anne and Lynn!
Anne, please take heart. I was up for Herceptrin today with 2 of my chemo buddies, one of whom is now a dear friend. She was neither up nor down with Tax and Y. who is now just about to finish rads, didn't have a bad time either. Herceptrin is totally tolerable - bit of (slight) joint ache and drippy nose. My experience was unusually bad. The odds are you will be absolutly OK. I so hope you will be!
We always seems to get bad luck in spades Lynn, dont you think. Keep your chin up. And keep well.
Hi everyone - wanted to say hi, had chemo no.3 last Tuesday, finding tougher as time goes but still think i'm doing not too bad. White blood count becoming a bit of a problem so might need to hibernate for a wee while - hard when my dad is v poorly in hospital and my mum is dependant on lifts. Not been an easy few weeks.
Keen to know how everyone else is doing.
Hi Annie, i got marker put in before i started my FEC treatment, i go on friday for my third (doesnt time fly when your having fun ) I am seeing the onc on wednesday, he mentioned the last time that they would prob change to tax and herceptin like you Annie so dont know how i will tolerate that as ive been ok on FEC.
I really cant feel any diff in the size of the lump, maybe as you say Annie bruising and swelling dont know will ask on wed.
Wig is terrific Fiona, got many compliments and folk say it doesnt look like a wig.. thats good your starting at Maggies you will enjoy that its a nice atmosphere in there, felt very comfortable.
Hope everyone else is ok
I got a marker inserted via ultrasound after my 2nd FEC, will they be putting in a marker for you? Anne, I didn't feel any change in the size of the tumour, but it had shrunk from 5cm to 16 mm! Remember that the bruising caused by the biopsy takes ages to go down. Have you had a bad time on FEC? There are lots of chemo combinations out there so they will surely find something tolerable. I'm bound to say that I sailed through FEC, TAX was my nemesis! Good luck and do keep us updated.
Likewise all of you brave girls going through chemo at the moment, you will prevail!! Keep us posted, and it makes you feel that you are in a battle with fellow travellers!
Great to hear from you Fee. I was at Maggies (finally) on Thursay to see Carol, who is wonderful. Left reassured and in the knowledge that I have been uncerpaid in benefits by £50! I called the DWP and they confirmed it, and it might even be backdated. What would we do without Maggie's. Now that I am mobile (for months, I was virtually unable to walk!) I will be going down for some of their great courses. I am waiting for appointments for physio and will work round about that and the never ending hospital appoinments!
Incidentally, to all the new girls, I took a rare and extreme reaction to Tax, but it was the best regime for my very agressive cancer. Most people toterate it very well, including my chemo buddy who was getting her TAX and Herceptrin with me. SHe was neither up nor down with it, so please don't be alarmed if it is thought to be the best chemo for you. It is really effective for breast cancer so I gritted my teeth and persevered! Glad I did!
Girls, if you want tomething to uplift the soul, you might go to see "Romeo and Juliet" at the Thetre Royal. It the Scottish Ballet and quite, quite beautiful. Cost less than a fiver for the matinee too.
Great news about Sharon, what a fighter, and what an attitude.
Carol. Helen. Yvonne and everyone else - hope you are all continuing to get better. How's the hair growth going? Mie's is about 1/2" and thank gog, my nails have grown somewhat. That was bloody painful, having no nails! We are on the road to recover my dears.
Take care, enjoy the rest of the weekend and hope to see you all soon.
Yes, the babies are wonderful, I feel like crying when I see them, it's been 10 years since my brother's yongest Fern was born, so we were due some newbies. The 2 came with hours of each other!
I am hoping to go down to Blackpool next week, got hosp appoints (2 next week) then free of them (I think) till next Herceprin in 3 weeks. Had the barium enema last week (ug) Thank god that's over!
Godbless and take care
Hope you are all doing well?
Congrats Annie on becoming an Auntie again...they sound beautiful babies...
Sheila, sorry to hear you ended up in hospital again. It will be good to have a break for a few weeks. You certainly have had a lot of problems to deal with recently... Good to hear baby Murray is doing well.
Anne, Good to hear you're still doing ok with the chemo.. How has the wig been? have you got used to it? will they give you an ultrasound before changing your chemo? Bet Thomas is getting big now..
Helen, Did you get results yet? how is work doing?
Sharon is back down to London today, Treatment is going fine for her at the moment...
Lynn, How is your chemo going? Has your mouth settled down?
Tiny, How is the wig? Sharron was telling me you'd been in to see her..
Wee Annie, How are you coping with treatment..has chemo been ok?
well been pretty busy this week, so tired out today...am off till Tuesday so I'll need to recharge the old batteries for then. I'm starting in Maggies with Sharron doing the scarf tying sessions, so I'm really looking forward to it...I'll probably be covering holidays and Day's off so it'll mean Maggies will always have someone there on a Monday..
Big Hugs to everyone and keep well
Hi Annie great news about the new babies in the family and you are right about the smell off them, our wee Thomas is just so cute you just want to smother them wi love.. Sorry to hear about your cat, such a shame but im sure he will adapt like they always do, pretty clever animals arent they! Ive got three cats (all house cats) running about, one is mine and two belong to my son and his girlfriend they are so cute..and they dont seem phased about the new baby being in the house, thought they would be jealous but not at all..Im feeling ok third fec next friday so gearing up for that then ive to see the oncologist about changing the plan to diff regime. Dont know what the lump is doing but i dont feel as if its reducing in size, think the only way they will know for sure if they do an ultrasound..
Hope everyone is well and enjoying the weekend
love to all
You have been through the mill. Yet you still sound so hopeful and cheery. Fancy a meet soon, as I am nw more mobile.
I have musculat myopathy because of the bif hit of Dex. Glad it's got a name! Nothing they can do except physio and hydrotherapy, just means the thigh muscles are very weak physiologically walking uphill is really hard. Flat surfaces are ok, as is downhill. Just another challenge girls.
Our new arrivals are georgeous, but wee Amy has a badly deformed ear (she doesn't really have an ear) but is the prettiest baby imaginable with TONS of jet black hair. I havent been weel enough to go down to see wee Lily in Blackpool, but tons of piccies and she is shell like, so delicate! They really are the best things, babies! i love the smell of them!
How is everyone? And has anyone heard about Sharon? I kinda getting the hang of facebook but dont have any of your details!!
My big cat is WONDERFUL, really got to grips with the loss of his leg and is up to as much mischief as a big, lazy 3 legged cat can get up to.
Take care lassies, and pop in to let me know how you are all thriving!
Hi girls - good to catch up with everyone again.
Been in hospital since Saturday. Had pain in left arm and very swollen. Connected to previous blood clot and probably a touch of phlebitis. On Heprin infusion for 3 days. They then decided portacath was not helping clot problem so they removed that yesterday. OK just now as I am on oral chemo, but when I go back on IV they will have to re insert another line.
I have a break of 6 weeks from Xeloda which is not as long as i thought I would get, but better than nothing.
Feel I need it as I have had a lot of problems over last few months.
Baby Murray doing well. He is putting on weight and feeding well.
Helen - would love to sponsor you - how do I go about it.
How is Sharon doing.
hi Helen, we must have been posting at the same time, glad to hear your mammo wasnt as bad as you thought, mine should be May/June time
I will sponsor you, please pm me the link, cheers
Hi Annie, congratulations on your new wee members of the family, glad to hear your cat is doing ok now too
Fiona, two teenage boys in the one house, its actually ok, just makes me feel old!!!! hope he has a lovely birthday
hi to all the new girls and hope you are all doing good
Sharon, how are you doing, hope your new treatment is going well for you
hello to all the girlies
Congratulations to Kez on the same arrival of Lily Rose - was it a planned home birth? I hope they're both doing well.
Hi to everyone that has joined us recently, I'm sure you'll find everyone here a huge support, I know I have.
I had my 1st year mamogram today; really relieved that it didn't actually hurt too much but I'm now abit apprehensive about the results; fingers crossed it'll be OK.
I hope everyone is enjoying the sun, what a difference it makes.
I've just registered to do the race for life and would really appreciate any sponsors, however small. I don't think I'm allowed to post the URL, but if you search for Helen you'll see a picture of me and Seren, or I can pm you the link - Thanks.
Take care all.
Hi - update
Kez had Lily Rose at home with mum in attendance a couple of hours ago! They are at hosp now. wow, 2 new babies into the family in hours. You wait for ages and 2 come at once ......
Annie (happy) xxxx
Aye, big cat seems to have adapted well, after a very iffy start. We still cannie imagine what could have happened, but vet thinks he caught in a fence and broke one bone and dislocated the joint too. But he's the same big sappy, ill footed mog he was before.
Still on the long road to recovery. BUT ... I became a great auntie this morning! Amy Ellen, 7lb 13oz. My darling wee Kerry (niece, just turned 20) is due any day now too. 2 wee new members of the family in this month. What fun.
Hope you are keeping well - not overworking - and that we can have a lunch soon. You seem to be the fulcrum of organisation of that!
Love and lollipops to you all!
Haven't been on in quite a while, I'm finding now the rigours of getting back to normal are keeping me busy and I don't get onto the site as often as I used to...
Welcome Tiny, you really have had an awful time with this and I hope that the medication they have you on now continues to improve your mets. I was diagnosed last Feb and finished herceptin in Nov..I am back working now, although still not up to speed but I'm improving every month..I went to Sharron (masthairpiece)for my second wig last Sept and because I am a hairdresser, Sharron offered me a job working with her in Paisley..(I'm in the shop on a Thursday)I have found having gone through all this process and experiencing hairloss and wigs a major reason for wanting to help provide a better wig service..Sharron has had 6 years working as a hairdresser in the Accord hospice and does the scarf tying sessions at the Maggies centre on a Monday afternoon..She and I both feel very passionate about the work we do, feeling good about ourselves when getting treatment really helps us to cope better.... We also provide after treatment cutting, colouring and scalp and hair advice..Sharron also does a drop in service at the New Victoria hospital on a Thursday 10am-3pm, so you do not need an appointment... There are hundreds of wigs so don't worry about getting it in Grey/silver, even if you like a certain style, we can order it in your colour...Hope this helps and look forward to meeting you if you decide to visit us...
Annie, Good to hear you're getting out in the garden. I was lucky to have my Dad and Son take care of the necessaries last year but oh dear it is needing work done badly...How's your cat doing? is he fully recovered now?
Sheila, the sun has been good...nice to get out in the fresh air, I've started riding a bike...here's hoping it shifts some of my chemo weight!!! will you be getting a wee break from chemo soon?
Lynn, hope treatment is going ok for you? hope you managed to get a wig on Friday...
I hope everyone else is doing well...I've had a couple of days off work seeing as the kids are off and my baby becomes a teenager on Thursday....so god knows what I'll be waking up to!!!! if his brother is anything to go by...
Take care and keep well
Hi there girls
Annie here. Tiny, you poor wee scone, what a bloody time you have had!
I finished rads in jan after a year of treatment (still Herceptrin though as I am HER2 +)
Hello to all you new guys! Sorry you had to join but I'm certain sure you will ride this storm. Like Shiela says, it's not easy (but lots of it is, surprisingly - surgery was a piece of cake) but you will find the strenght to prevail. The staff of the NHS will do everything possible to make this experience bearable, believe me.
Hope everyone is thriving and glowing in this lovely spring weather. I'm trying to patch up my devastated garden after the cruel winter (lost all my plants). Still knackered but enjoying the change in weather.
Do take care all.
My journey has been a long and winding one. First diagnosed with mucoid breast cancer in 2001, I got the all-clear early 2006 after a lumpectomy and radiotherapy but was diagnosed with DCIS breast cancer at the end of the same year.
I had a mastectomy and reconstruction but unfortunately they didn't manage to clear all the cancer cells and by late 2007 I was back in the system again. A CT scan showed that I had "shadows" in my lungs. I had 6 cycles of chemotherapy (3 FEC and 3 Taxotere) followed by a double mastectomy (3 diagnosis of breast cancer was more than enough as far as I was concerned). CT scans throughout the chemo showed no apparent difference in the shadows in the lungs so it was decided that they must just be scarring from a previous chest infection.
Unfortunately a routine CT scan at Christmas 2009 showed changes in the shadows in the lungs and also tumours in my liver and bones. I'm now on Xeloda (capiecitabine?) & 3 weekly doses of Herceptin for as long as they appear to be working. I've had 3 cycles of Herceptin/Xeloda so far but as yet no scans to see if they have made a difference.
I'm in Airdrie, which as far as I'm aware is in Lanarkshire, but nowhere near Galston.
I still haven't decided where to go for my wig. Opinion on here seems to be that Masthairpiece is the best. I'm normally grey/silver and don't really want to look obviously different so that might make choice a bit more limited.
Thanks for your reply. It is good to know that I am not alone in this rollercoaster ride which started 8 weeks ago.
I am doing okay so far with chemo but know it is early days, I wonder what is going to happen tomorrow when the different pills I have had to take for the last three days stop, although I have got another kind for nausea if I need them.
Spent a lovely day having lunch with two of my friends from work, it was great to talk about other issues and not just BC which as you know has tended to be all I have been able to talk about since diagnosed. I am very lucky I have wonderful family and friends to support me and also the ladies on the forum
Hope to speak to you soon
Hi to all the new girls.
You are just starting the chemo road, but I'm sure you will be OK.
Can't pretend it's easy, but you will get through it.
Anne - the injection definitely helps with the bloods but can give you a bit of joint pain for a couple of days
Anne - think you're right about keeping a note book for pills etc. I also used to keep a note of SE's so that I was ready for them next time.
Weather has been great, and it is so good to be able to sit in sunshine (with lots of sunscreen).
Hope everyone else is OK
Hi Lynvee and Tiny
Hi Lynn did you get your wig. I saw about mine in my own town of Galston East Ayrshire. There is a marvellous salon caled Francis where Amanda the ownwer is just wonderful. She is recommended by the local hospital and has dealt with loads of ladies in the surrounding area.
She holds a Pink Ball and Fashion Show for ladies once a year to raise money for BC and uses the ladies from the salon to model all the clothes, she says it gives them back their confidence. This year she raised £3600.
Just thought you would like to know as Galston is not really far from you both, and also there is a great coffee shop at The Balmoral Mill Shop
Personally yes i would, i thought the customer service ie Sharon was great. Didn't know there was another Lanarkshire person - good to know, let me know where you're at in your treatment and we can compare notes
Hi Just popping in to say hi, hope your all keepin well!
We still have a few vacancies left for the holiday in Spain, if any of you ladies are interested, please feel free to mail me...
Love Teresa xxx
I'm just about to look for a second wig and I also stay in Lanarkshire. Would you recommend the Paisley shop over say, Judy Plum?
Really surprised you're getting the injection as a matter of course Anne straight after first chemo - was your white count low to start with? Good luck with it and glad yesterday was ok fo you.
Hi to everyone else - sun shining in Lanarkshire, off to Paisley this afternoon to check out a second wig. Hope all well with everyone.
Hope you keep alright today. Didnt get much sleep last night but I had no nausea or sicknes thank goodness. Have taken my 8am tablet think I will have to get a notebook for to write down the times I have to take the pills for the next three days.
On my way back to the hospital this morning for my injection for immune system so hope i am allright with that to.
The sun is shining here hopefully the same where you are.
have anice day.
Hi Anne, glad to hear your first chemo went ok for you I didnt have any probs with first either. I had my second one yesterday but it totally wiped me out, felt so tired last night and had a bit of nausea but that past, today i feel not too bad so hopefully will remain so for the rest of the day.
Regards Anne x
Well that is the first on over, not as bad as I expected but it took a long time for the chemo to go in. The nurse thought it was because it went in through a small vein, but i was fine all the way through and had no ill effects.
I have to go back to hospital tomorrow for an injection for my immune system and white blood cells which is given 24 hours after chemo. I am feeling well just now but lets see what tomorrow brings
Hi Anne - i was there for about 3 and a half hrs in total. Most of that time was taken up by the cold cap - not that its done much good! Cap on for 15mins, then chemo- about 25mins, then the remainder changing caps ever 40mins or so.
I hope it goes well for you, be sure to post as soon as you can and let us know how you go.
Glad you have got to day 9 without to many bad side effects, I hope that means you wont get mouth ulcers, thrush as bad this time.
I start my first FEC tomorrow, it's a strange feeling knowing I feel so well but that after tomorrow will probably be feeling the side effects quite soon. I am not scared just want to get the next part of the journey on the road.
How long were you at the hospital for your chemo.
Love Anne x
Been busy over last week helping look after Cameron, baby's big brother. Went with my sister and her 8 year old to see How to Train a Dragon. Cameron was terrified. He didn't like the 3D. Thought he would be traumitised for life. Soon forgot after he got McDonalds on way home.
Baby Murray doing well - he's so tiny and still has jaundice. Midwife says it will take a while to go.
Been reading through posts for last week - talk about chemo brain. There are names I don't recognise and just couldn't get my head round everything. Will read everything again.
Everyone seems quite upbeat - hope everyone OK. How is Sharon doing. Is she getting treatment just now.
Love to you all
Cheers Maggie - i didn't know that. Would be good to meet you all in person at some point. Hi to all - day 9 of second cycle, ok but definitely more "wabbit" than last time. it was day 10 last time that the horrible ulcers and thrush started - here's hoping not this time. Love to all.
Morning ladies....not been on for a wee while..tend to be using facebook more..don't know if anyone has mentioned to the new girls, but a lot of us tend to chat in there on a daily basis..my profile name is Mags Mackay..and In my profile picture Im wearing a curly wig and a fur stole (Im in 1940's fancy dress ha ha) click and make me a friend and I will add my BC friends to your list.
Hope the treatments aren't too gruelling...just take it easy girls It's hard but you get there in the end.
Best of luck to wee Fee who is having her endoscopy today...I had one last week and didn't find it too bad at all.
Love to all Maggie xxxx