I am wondering how long you have to wait if you want a reduction on
your non cancer breast, to match the size of your other breast which
has got a lot smaller due to operation ?
Lulu thanks for your advice, I think I have a lot to think about considering fertility etc. Yes it is my lymphoedema nurse who was doing the massage, my BCN said that doing this massage has had great results for all her ladies with breast oedema so its definately worth a try. Wont be able to manage your wee catch up with the girls this time as I'm a bit strapped for cash due to my sisters wedding in July but I would like to hopefully manage the next one if thats ok.
sharon great news raising so much... looks like you all had a great time.... hope your tummy settles hun xx
maybe see you and maggie for lunch at the weekend if you can make it.... ali you are welcome too... but guess edinburgh is a bit of a trek from dundee.
glad to hear your feeling a wee bit better emotionally ali.... think theres quite a folks who were diagnosed last year who are feeling like that at the mo.... your oncs attitude wont be helping either.... you can still ask to be referred to the fertility centre even if you decide not to do anything just yet but its maybe helpful to get information from them too as they do see lots of women in similar situations and it will maybe give you a fairer view to have both your onc and fertility docs input.... but ultimately its your choice and not your oncs.... he should be giving you facts and leaving the choice to you not dictating what you can and cannot do.... fertility is a massive part of a womans identity and for some women the risks of being childless outweigh the risks of getting cancer... but only you can decide that not some doctor sitting in an office somewhere.
the breast lymphoedema wont be helping either i have that too and my boob seems to just keep on growing and growing.... was expecting the rads to make it shrink not get bigger.... who is doing the massage for you? is it the lymphoedema nurse? i may contact mine and see if she can help.
carol hope your doing ok after your fall and you havent done any serious damage.
Sharon and Hazel you are both such great girls with so much spirit its just great. Sharon sorry to have missed your night but well done on raising so much money, lets hope it helps your fight. Hope your tummy starts to feel less uncomfy and sore soon. I did the race for life on Sunday and got a bit sun burnt even though I had sun cream on, have managed to raise around £250. All you guys were in my thoughts on the way round - finishing time of 33mins for the 5K!! Carol hope you are ok after your fall.
As some of you know my mood has been a bit low lately but I am slowly gettin back to my smiley self. Have been getting massage treatment for my breast lympoedema and am glad to report a massive difference, what a relief, the pain and swelling is much improved. Not such good news on getting some eggs frozen for possible fertility issues in the future, my oncologist doesnt seem to think it should be something I should be worrying about but then he is an old fuddy duddy plus the procedure of getting eggs from me introduces oestrogen into my body so he's putting a block on my going down that road which has upset me a bit as the possibility of not being able to have kids in the future will always be there in the back of my mind.
Hope everyone else is doing well
Sharon, so pleased you had a good night on Saturday and raised so much money, so wish I could have been there, if I was I wouldnt have ended up in casualty yesterday after a fall on Saturday night, no drink involved!!!
hope the Doctor can give you something to help with your tummy, take care
love n gentle hugs
Hi all...Just popped in to say what a great time I had at Sharon's party. I loved your wee dress you looked fab honey..Im glad they are getting you sorted out...good luck with doctor this afternoon. Hope everyone else is doing well many girlie hugs xxxx
I'm not looking forward to the sore feet, had bought 2 tubs of Udderly smooth cream back in Jan when I was supposed to be on Xeloda so have plenty, Oh I'll need to invest in cotton gloves me thinks. So far I've had a bit diarrohea, have had loss appetite past few months that's nothing to do with chemo.
Sat night went great, loads generous people gave in some great raffle prizes and some were auctioned, Fiona got the signed celtic ball which was fab. Total at end was £1300.50, they don't know where the 50p came from as raffle tickets were £1 LOL.
Thanks again to the girls that came, it was a really good night and you all looked FAB, gorgeous xxx
Got Dr coming this afternoon as my tum area quite uncomfortable and sore, Distric nurse was out and said my tum is very distended.
Hope everyone had good weekend, it was great weather.
Lots love Sharon xxx
Hi girls - just catching up after having been away on holiday last week. Went to Dumfries and Galloway where we were last year. Weather was amazing. Off to London on Wednesday to meet up with friend who is over from California.
I'm making the most of being off chemo, though probably will start again in week or two.
Sharon - I think about you often - you are so brave. I have been on Xeloda on and off over the last few years. I am usually OK on them, maybe nausea after morning tablets and a bit of tiredness. Hope you get some relief with these. If you feel up to a coffee some day, please let me know.
Would love to meet up with everyone again. Let's try and get something organised.
Love to everyone
Best of luck with the Xeloda!
The only SE I've had during my first cycle is lack of appetite &
fatigue towards the end of week 2.
I'm sure they'll build up over the next few cycles tho, so I've got my wee cotton gloves & udderly smooth cream on standby!
Have a fab night tonight!
Started tablets last night, no side effects so far. Took them no porbs at all, feel better now I know something is in my system.
Looking forward to tonight, got a lovely dress but I'm so bloated don't know if I can wear it!!
Will be a great night with great raffle prizes and an Auction.
Looking forward to seeing all that are coming and getting a catch up, I'll have to spread myself thinly, so many people to catch up with.
Lets arrange a lunch for sometime soon then again holidays maybe kicking in for some
Hope the girlies still on treatment are doing good, it's a long hard slog but will get there girls, keep that positive spirit xxx
Hugs and best wishes to all Sharon xx
Hi girls. Congrats to all of you nearing the end of chemo, you are heros. Herceptrin is a breeze, believe me .. I have 3 (think?) to go. You might get a drippy nose and a bit of joint ache, but please don't fear it. Sharon, I am so glad they have you on treatment and pray that it will work. You will be sick of being told you are an inspiriration, but you soooo are. Will try to make Sat. Be great to meet you all. Take great care all, ands hope to see you soon
Yay!!! at last chemo!! bout bloody time! hope you gave em what for?..looking forward to seeing you Saturday...xxxxx
Thanks girls, well that's me start chemo tablets tomorrow afternoon at 2pm. Thank god now something is gettin done and bonus don't need liver op Yeeha !!!!
Lots love Sharon xx
Sharon - me too, i'm thinking of you and sending you love . I'd love to meet up with you and the girls, i can't make Saturday we're staying away at friends. i hope you have a wonderful time and raise loads of dosh.
I hope you get answers today and can move forward again - i love your strength, you inspire everyone.
Sharon, thinking of you today, you are something else, fingers and toes crossed
love n hugs
by the way cancer is a bxxxxxx
hope all goes well in the morning and they get you started on something soon.
thinking of you hunny xxxx
See ONC tomorrow get some answers to see what's happening next.
Hazel - I know what you mean about the waiting we can actually see the cancer growing all the time, my skin rash is also covered on blisters and oozing crap, although I have lost weight thro not being able to eat much, I look pregnant the way it's growing in my stomach and liver, having trouble breathing sometimes as organs feel like pushing against each other.
Your having a hellish time with the Lymphodema also girl!!
We need to kick cancer ass.
Girls- we need to arrange meet up soon, if I feel up to it
If anyone is interested about Sat, my fundraiser is St.Columkilles church hall, Kirkwood Street, Rutherglen. I know some of you are coming so I will see you there.
Can't wait for answers tomorrow, at last!!!
Hugs to all and keep yourselves strong.
love Sharon xxxx
Hi Sharron, just to say that although i dont post a lot i have been keeping up with your news. cant make saturday unfortunately because im working but would love to meet up with you and the other girls sometime. I wish you well, and will be thinking about you
Hope they get things moving soon for you Sharon.
I had to wait 10 weeks for my chemo to start (with my onc wanting to give it all time to settle after rads!!)...in that time the nodes in my neck have been popping up like popcorn! I only had maybe 2 on one side & 1 on the other to start with..now I have 2 solid strings of infected nodes on both sides & a barrell load of transferred pain!
It's scary when you just want to push on with things, but you can't..I'm just desperate to see some results from Xeloda....Please let it work for us!!!
I think of you a lot.....keep us updated!
Thank you Carol, at the moment I'm not feeeling my usual self. I will get there when I see things starting to happen, when your not on treatment it's the worst because you know what's happening inside your body.
Sorry I missed your call I was at hospital for bloods.
We'll need to arrange a date everyone for lunch/dinner, you guys always cheer me up when we get together. As soon as I know what's happening I can make arrangements
Hugs to all
Sharon, I would have loved to come on Saturday but our Lanzarote friends are coming over for the weekend, if anything changes, I will defo be there
Lets hope and pray that you get the stent for your liver and helps you with the pain, I cant even imagine how you are feeling just now.
you are one of the first people that I met on this forum and have always been such an inspiration to me and others.
we are all here for you hun
love n hugs
Still a waiting game at my end, no news on treatment, cancer getiing worse as if I din't know that myself, the quicker the better I get started for me.
My friends are having a funraiser for me in Rutherglen (st Columkilles Church hall, Kirkwood Street) on Sat night, if you can make it just pay on door, tickets are £5.
I may need to pay for my own treatment the way things are going.
Or buy a new liver LOL!!
hope your all well as it's been a bit quiet recently, I'm sorry I haven't been on more just not been to great recently
Lots love Sharon xxx
So sorry to hear about your Dad, thinking of you in this difficult time....
Some of us are meeting up next Saturday eve for Sharon's fundraiser..it's on at St Columkille's hall in Rutherglen..7.30pm, tickets available on the night..would be great if you could come along...
Sorry you're having such a hard time with SE's, but hey you've almost finished.
Fee - thinking of you - lots of hugs.
Sorry to hear about your dad.
I can't believe you've finished your chemo already, it just seems to have flown by. I've been on tamoxifan since Oct and have had hardly any se's from it - not even a hot flush!! but it seems to have iritated my gallstones, I've been in agony for the last week 😞
I'm def going to Sharon's evening, so hope to see a few there.
Haven't posted here for a while, i do follow everyone's news but don't do the facebook stuff so sometimes there's a bit of a disconnect.
I'm 3 weeks today since last chemo - now i'm in this strange "cut loose" no-mans land. No rads to come so only the tamoxifen to look forward to. i'm not starting with that until we've had our week's holiday at the end of the month. My dad died a month back so its been a very sad time - on top of all the emotions that go with BC.
Sharon - i hope all is getting better for you- i don't know you well from the forums but i do know since i signed on in Jan, everyone is so full of regard for you and commends your strength and your spirit - sending you a big hug.
Everyone else - hope all is well - as i've said before i'd be up for a meet up if that was on the cards.
Sorry to hear the Tax has been hard..it's tough to keep the se's under control, and there can be many of them!!...herceptin should be ok, just a long day for the first one while they monitor you..Tax really helps the herceptin to do it's job..so as nasty as it is, it's doing good...and then only one to go!! nearly there honey...how's that handsome grandson of your's coming on?...think it's time for some pics on facebook..!!
Hi all, sorry ive not posted on here for ages but keeping up with everyones news.. Sorry to here about the diverticulitis Annie, and Fiona with your hiatus hernia, just more side effects from this b===dy chemo!! Fiona sorry to hear youve to go for a bone scan, after all the treatment youve been through thats the last thing you need, thinking of you and sending you cyber hugs xx
Im starting herceptin on friday with the second tax, so not looking forward to that..Side effects have been horrendous, joint pains, sore mouth, swollen feet and ankles, the list goes on..
Whats keeping me going is after friday i will look forward to the last chemo on 2nd July..
Hope everyone else is ok and not feeling too bad
Best wishes to all
Hope everyone is well...Annie, sorry to hear about your diverticulitis...I have a couple of clients that have that and it's not too nice...hope it isn't giving you too much trouble...I have a hiatus hernia thanks to chemo, but I'm managing it ok....I have to have a bone scan now as Onc not happy with spine Xray..so I'm feeling fed up today..I just seem to have had loads of tests recently and it's a drag!! Annie, Sharon's been on facebook and started herceptin yesterday..she's not been feeling too well lately..there's a get together evening organised by her friends on the 19th June...It would be great if everyone could go...I know Maggie is going..and Helen I think..If anyone needs details send me a PM and I'll pass on the info...
Anne, how's the Tax going? have you been managing still to go to work...It's a tough chemo, hope you are doing ok?
Big Hugs to everyone and keep well
Any news on Sharaon? I am at Hairmyres on Monday for herceptrin, keep hoping I'll bump into her.
One wee bit of bad news, I have developed diverticulitis, souvenier of TAX. No need for surgery yet, but it is a "friend for life" and will be monitered closely. I have bleed clinic next Wednesday. Anyone else had this complocation?
Hope you are all really well and enjoying this fine weather, and if anyone is in touch with Sharon, PLEASE pass on my regards, also info on the benefit for her etc.
Love to all
How did your appointment go with your ONC?
Big Hi to everyone else, I hope you're all doing OK. I've been spending more time on FB recently, but it's good to be back and know there's support here.
Hope you all have a good weekend.
Don't know what to say. The Hairmyres consultant - Dr D? - is great and will BATTLE for you. Crap doesn't decribe it. Too bloody unfair.
Like Hazel I replied on FB too....thinking about you everyday and I hope you're ok? If you need anything just let me know. Big hugs sent to you as always.
Sharon - I am so upset for you. You have been through so much and been so brave and positive. It puts our moans and groans to shame. I know it's not easy but stay positive - your doctor sounds as though she will do all she can for you.
I will pray that you are given the strength to keep going.
Lots of love
I've replied to your PM on fb but I wanted to leave you a hug on here too!
Thinking about you & praying that Xeloda works for both of us!
oh sharon im totally gutted for you hunny... thats just so crap.
im gonna be keeping everything crossed that cap and her keep the tumours at bay.
sending massive big hugs your way.
I got bad news when I was in London, Trial not working!!
Turmours in chest wall, abdomen and liver have gotten alot bigger, that's why I;ve been so ill past 4 weeks.
I'm waiting on liver getting back down to normalish, then starting Capcitabine and Herceptin even tho Herceptin doesn't work. My OOC said she'll get pulled through the coals for it but she doesn't care.
She said if this doesn't work she hasn't got a clue what to do.
Please don't put anything on my wall yet as haven't had chance to tell everyone, if you do want to get in touch through facebook send me a mail.
thanks Sharon xx
I think I met a few of you at the young womens forum in Cumbernauld in March. I am Jill, married with 2 kids was diagnosed in Nov last year with grade 2 IDC with vascular invasion which worries me, Had lumpectomy now 3/4 way through Epi-CMF chemo, getting another blast of CMF tommorrow dreading it as finding it rough going been admitted to hospital one cycle and nearly admitted last time also, then due radiation treatment in july with tamoxifen also seems never ending just now.
Hope you are all keeping well
Sorry...Fiona's Birthday on Friday...silly me xxx
Good luck Carol with the mammo...hope it's nothing xxx
Sharon - what a time you are having. You are so brave and doing the 5K too. Would love to sponsor you - please could some PM the details to me.
Fiona - good for you doing the scarf tying at Maggies. Nice to be able to help others. Have a brilliant day tomorrow - sounds as though you will be celebrating all weekend.
Carol - hope all goes well with Mamogram - it's such an ordeal waiting to go then waiting for results.
Just been in hospital again for few days. Arm was very swollen and hot again. Worried in case clot. Got CT scan and all OK but I have developed Lymphoedema. What a bummer. Just hate all of this. It never goes away. They will refer me to Lymphoedema clinic. Hope I don't have to wear horrible sleeve all the time.
Would love to meet up again before summer holiday time comes.
Take care everyone.
hey shaz you never told us you were famous btw.... dot and i were speaking to a couple of the volunteers at the breast care nurse forum in perth when we looked down at the table and went OMG thats sharon!!!!
think its great hunny!
ill sponsor you too
If anyone would like to sponor me could you please Mail me, my link got taken off as it contains personal details, funny it was on last year, oh well not to worry.
Carol - I'm sure it will be fine, you'll be upto high do as it's your first 1 since Lumpectomy, hang on in there girl.
Mags - yes would love to do something for her but she seems to have something on all the time LOL
Hope everyone ok
Hugs Sharon xx