Hi, I live in West Sussex and had a mastectomy on my right breast in November. I was offered a skin sparing mastectomy but I explained to my surgeon on the morning of my op that I didn’t want reconstruction on my breast at that time or in the future and could I please have the best cosmetic results with no extra skin. He did mention that he had another lady that had requested the same and he had gone on to perform a mastectomy for symmetry at a later time, so it does sound as if it is something that they do down here.
Hi- this is why I have joined the form -I would like my other breast removed so that I can be symmetrical but do not wish to have reconstruction..
I would love to hear from anyone who has an understanding surgeon to perform the second mastectomy as my sugeon, and the one I was sent to in Leicester both said NO but were happy to do the much more invasive resconstructin surgery.
...Good luck with your requests - I'd love to hear how you get on,
I had mastectomy and immediate reconstruction but eight years later had capsular problems and was fitted with permanent recon three months ago. this is causing me great problems as it is so heavy and has destroyed my posture and given me constant backache and depression - feeling I can't go on like this. went for check up appt and said I wanted to have mastectomy as I can't cope. Said I wanted other breast removed and he said - not that simple - they would have to plead a special case to the board to remove a healthy breast. I have to wait three months for another appointment for "thinking" time- I just know I want double mastectomy to get my life back - would welcome any advice-please!
Hi, you might have met with your surgeon and made your final decision but thought I'd post. You might want to have a look at Flat Friends which is a site set up by a lady who couldn't find any support for people who had chosen not to have reconstruction. (I had recon, something I regret to a point as I've had lots of problems but not something I can do much about now, so just get on with it. ) A lovely friend I met through BCC forum has had a double mastectomy (one elective surgery) and she is really pleased with her choice. She has modelled at the BCC fashion show and sometimes chooses to be flat, sometimes wears her prothseses ( not sure if that's spelt right!) If you have a look at the Flat Friends site you'll see an article from Sally Anne on their home page, it's worth a read, she's a very inspirational lady. Do stick to your guns if that's what you want. Good luck with what ever you decide.
I require a right side mastectomy and lymph node clearance and have always said that I would like a double mastectomy. My surgeon was initially reluctant to remove a healthy breast and said that I would have to wait for at least one year to discuss it. On the advice of my oncologist (I had chemo first) I wrote her a letter in which I set out my reasons clearly and demonstrated that I had researched the topic, had met with people who'd had single and double mastectomies with and without reconstruction, had read forums like this one. After that we met and she has agreed in principle to do the double. However, post chemo I am not well enough for the double so she is doing the single mastectomy and axillary clear out on Monday 21st March (wish me luck) and has suggested that I have the second mastectomy 3 months after the end of radiotherapy. She says that a lot of women ask for a double and she feels that they have not considered all of the risks. By doing some research and writing the letter I demonstrated that I had considered all factors. Although I am not happy about having to wait until later in the year it is a no-brainer if I'm not strong enough for the whole surgery. Also I feel that this is an acceptable compromise. My letter is on their file now and I can refer back to it whenever I want. I hope that this helps.
I had a double mastectomy a week ago and have not had reconstruction due to other health issues. I decided to have my good breast taken off too because I couldn't cope with worrying about getting cancer again. I had cancer 5 years ago and had a lumpectomy so I have been using a prosthesis since . This just looked normal under my clothes so I am not worried about wearing two . My little boy who is now 9 named it Bobby the boob and unknown to me he drew a face using the nipple as its nose in red permanent marker which made us all laugh and broke the tension. I wish we all could learn from children and their acceptance of things. I am very sore but know I made the right decision for me !
I am sure users will be along soon to share their experiences on having a double mastectomy and show their support.
If you would like to talk, you can call our helpline at 0808 800 6000 who will be able to talk to you about your options and offer a friendly ear. The helpline opening times are below.
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