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Anyone having or had Paclitaxel?

18 REPLIES 18

Re: Anyone having or had Paclitaxel?

I just finished my 6th out of 12 weekly Taxol/Herceptin infusions and have not lost any hair at all anywhere. I haven't had many side effects at all, just an acne-form rash the second week which responded well to Clindamycin ointment. 

Re: Anyone having or had Paclitaxel?

Hi all

Hope everyone is okay. 

I am due to have my second pacitaxel tomorrow - hoping my bloods and calcium levels are good enough to go ahead  I feel well today, after being more wiped out than I thought I would be, but obviously the liver function being poor isn't helping. 

Just wondered if anyone knows more about how pacitaxel will work on the tumour. I was hoping this was a medicine that would reduce the tumours, but the bcc leaflet says it controls. Has anyone had experience of it reducing the size of their mets? F x

Re: Anyone having or had Paclitaxel?

Morning all,

Just wanted to let you know that my bloods were extremely low this week. I suspected as much as my energy levels hit rock bottom last Sunday. They did let me have my weekly dose on Thursday but I had to give mysel the GCSF injection yesterday in order to boost my bloods and reassure tham I felt well enough. I am still feeling quite low in energy and will continue to do very little for the following week. Just beware as up until last Sunday I felt amazingly well and had probably overdone things and probably learnt the hard way. Yes do what you can when you can but also pace yourself , remember it is a lighter dose but it is chemo. I spoke to my ONC about this and she said that with weekly dose your resistance generally remains steady but lower than normal, unlike with any of the  3 weekly doses,  were your resistance goes up and down. Take care ladies.

Re: Anyone having or had Paclitaxel?

I was very tempted to stop cold capping during paclitax as I had 3 x 3 weekly FEC then 12 x week pac, but my BCN did some research and was very keen for me to continue as hair loss is a common side effect. My hair (the 50% I'd lost) started growing back by the time I started pax. 

Re: Anyone having or had Paclitaxel?

Hi Tess, Yes I'm weekly from Friday. There's a slight chance I'll be put on a new drug called Cabazitaxel, but at the moment assuming Pac.  Glad the SEs are manageable.

Fi 

Re: Anyone having or had Paclitaxel?

LollyMum - I am doing weekly Pax and side effects are manageable! Are you weekly?

Re: Anyone having or had Paclitaxel?

Hi, 

I'm due to start Paclitaxel this Friday.  I'm encouraged to read the side effects are not too bad.   Hated FEC when I was treated in 2014.

Fi x

Re: Anyone having or had Paclitaxel?

Munchkinrn1. Did you lose your hair and when? I'm nervous every day waiting for the shoe to drop. I'm on day 10 of weekly Paclitaxel.

Re: Anyone having or had Paclitaxel?

I started Paclitaxel on Feb 10 so today is day 10. I'll have it weekly for 12 wks then radiation. I'm HER+ so I also get Herceptin every 3rd week for a yr. ( I had 1 bout of diarrhea from the Herceptin)
So far I'm nauseated every day but the anti nausea meds usually prevent throwing up. ( Not a fan of barfing). Today is the first day I've felt like a truck hit me. Very achy and sore.
Still have hair....

Re: Anyone having or had Paclitaxel?

Morning Munchkinrn1,
How did you get on with the AC?
Hoping you are doing well. X

Re: Anyone having or had Paclitaxel?

Morning riversidedawn, I only did the cold cap the first session of my E&C, I started to shed hair before my 2nd cycle so didn't continue with it. I found the cold cap excruciating and t

as the whole process is so difficult decided not to bother. I had the mits ang gloves again yesterday and although tough better than last week until the last 20mis. Will go for it again but if I find them too difficult I will stop as we all have enough to put up with. So far I have been good on Paclitaxol, didn't come down with the awful side effects from steroids & Gcsf...had slight effect Saturday but it didn't develop. Hoping it will not happen or be less noticeable as I have had half steroids in the drip this time and next week non at all. 

Hope you are keeping well & thanks for your response. X

Re: Anyone having or had Paclitaxel?

I tried icing hands and feet but found it too unbearable on top of cold cap. I had no problems with neuropathy and all nails stayed intact.

Re: Anyone having or had Paclitaxel?

Thanks Riversidedawn, so far it has been fine, much better than E&C and nit had the allergic reaction I hoped to avoid. Not looking forward to the weekly cold feet & hands, they are not nice at all. I am back Thursday for round 2 then only 7 to go. 

Re: Anyone having or had Paclitaxel?

Weekly paclitaxol is much kinder than FEC. You shouldn't find you spike with highs and lows. My bloods stayed pretty constant. Some people get a bad reaction within minutes of the first infusion, but nurses will have antidote at the ready. Good luck

Re: Anyone having or had Paclitaxel?

Hope the AC went better than you had anticipated Munchkinrn 1.
Thanks for the info' about taxol.
ALl the best with your treatment. X

Re: Anyone having or had Paclitaxel?

WMJ, I went through weekly taxol treament x12, no vomiting at all, little nausea, just some tiredness.  It dropped my blood counts pretty good, so I had to have boosters, and blood twice.  Everyone is different.  I start AC tomorrow, and I am scared, have to admit it....

Re: Anyone having or had Paclitaxel?

Thanks for that Primmy it is reassuring. I have just finished 3 lots of EC too. It has been suggested I do weekly P to avoid the side effects I am having from either the steroids or GCSF.

Re: Anyone having or had Paclitaxel?

Hi, I had EC X 3 (once every 3 weeks) then weekly paclitaxel. I've had 8 so far and have my 9th and final one this week. I can honestly say that you really don't feel like you're having chemotherapy at all. With EC, although I didn't have any side effects I realise in hindsight that I didn't feel quite right although I couldn't really put my finger on it. However, with paclitaxel I feel completely normal. I have my chemo on a Thursday and this week when we got back I cooked dinner, Friday I did a full day's work and yesterday we met some friends for a drink and then dinner after. I do feel a bit more tired than normal but, apart from that, feel fine. My oncologist also told me to take omega 3 supplements to help with the peripheral neuropathy side effects which I have been doing and have not suffered with that either. I don't know if I'm particularly lucky but my onc nurse said that paclitaxel is generally very well tolerated.

Anyone having or had Paclitaxel?

I may have to change my treatment due to some side effects of steriods/GCSF.

If I do I will have to have Paclitaxel on a weekly basis. Wanting to know if anyone has been on this on a weekly basis and what the side effects were. My main concern is that I won't have any good days as no time to recover before the next dose. 

Grateful for anyone's experiences.

Thanks.