Great attitude, & it's great you're taking it in your stride, there's no reason not to do so.
Hi jencat, it went ok,I had a reaction but apparently this is not uncommon. They delt with it swiftly so now I am nervously awaiting the onset of side effects.😬 thanks for asking x
Hi, I would just like to reiterate what Nikki said - most of us don't really post unless there are problems! So, although I was terrified when diagnosed with grade 3 TNBC in 2013, I am 4 years on with clear mammos and enjoying my life. It's true that we don't have the reassurance of taking Herceptin or Tamoxifen afterwards but I decided to provide my own kind of reassurance and have been taking low dose aspirin daily for a couple of years now (as there are trials going on at the moment to see if aspirin is effective) and I have also started taking turmeric tablets, as well as trying to be reasonably fit and watch my weight as this could help.
All the best for your chemo/surgery/radio everyone.
Nikki49 - thanks for your reply, very helpful and so nice to hear a positive story. Great you've just had all clear from 4th mammogram.
Nik NiC - thank you, all went well with chemo, having hair cut today and the littles are coming to see the ponytails cut off (for charity) and then my mum is taking them home to wait for me. I'm trying to involve them in the positive things, I'm sure you are the same.
Honestly it seems to take ages, but when they have all the info there, they move so fast, so be reassured by that.
so it's the cancer making your side/armpit hurt then if you've not already had surgery?
hoe old is your little one?
Mine is an invasive ducal bc, which is TN. The basal-like is to do with the cancer cells I believe and that they look more like a basal cell which tends to be skin cancer, though obv it's not skin cancer. (I believe that's what my sister said, my brain is a bit muddled today too. Sister is a scientist so has been having a dig to find info)
TNBC is a bit of a hotbed of research at the moment too. So lots of trials going on.
funny you say you felt positive about being TN initially, I did too as I was told it's a great responder to chemo. I think as we go through our journey we understand a bit more and we also have a lot of waiting to do, so lots of time for the mind to take us places that aren't necessarily correct and will make us worry.
ive been called for my chemo to start tomorrow, it's terrified me how fast things have moved from my surgeon appointment when my MRI result came back. I was feeling really negative about it and took it to mean it must be the worst most aggressive cancer in the world if they want it out that quickly, but sister said it's a good thing and lots of friends have said the same, so this has eased my fears a little. X
Thank you for your reply Ali, it feels quite isolating when you feel your the only one, though I know that's not the case! I think the fact you don't get so many people posting about it, as it is rarer, by its nature means you don't get to hear as much good along with the bad. And you are totally right that most people post when they need support, especially on the relative boards. (I think that's why I quite like this one as it's more general and lots of people around to boost moral when you are feeling low.) X
Hello, I'm struggling to find out much about having a basal-like tnbc. I believe its very aggressive,which really scares me. I'm finding the lack of positivity surrounding TNBC esp basal-like is leading my brain off to make up its own stories. There is a TNBC board on here, but even that is scary!!! Can't help wishing I could take tablets at the end of chemo and rads. Feeling so unkucky