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Anyone in Dorset/East Devon IBC?

8 REPLIES 8
Lucy_BCC
Member

Re: Anyone in Dorset/East Devon IBC?

Hi Tanzy09 and welcome to the BCC forums

Along with the support here our helpliners are on hand with practical and emotional support for you, the number to call is 0808 800 6000, our team can also talk to you about further support ideas and put you in contact with others who have had similar experiences to you. Lines are open 9-5 weekdays and 10-2 Saturdays.

Here's a link to the just diagnosed pages on this site where you can read about further support ideas and information about diagnosis which I hope you will find helpful:

https://www.breastcancercare.org.uk/diagnosis

Take care
Lucy BCC

Tanzy09
Member

Re: Anyone in Dorset/East Devon IBC?

Hi

I have very rececntly been diagnosed with Stage 1 Breast Cancer. I have had a lumpectomy and biopsy of 3 lymph nodes. As this has happen this week I have not received a full diagnosis. I live near Stalbridge I am very interested in joying your group. I notice the date of your message and I hope you are still operating the group or can put me in touch with the new leaders of the group.

Many thanks

Tanzy09

CassieB
Member

Re: Anyone in Dorset/East Devon IBC?

There is a West Dorset Breast Cancer Support Group which meets, I think, in Bridport Hospital. The contact number is Sian Barnes on 01305 834030 (answerphone available) or sianb10@hotmail.com

miniminx
Member

Re: Anyone in Dorset/East Devon IBC?

Hi I live in Stalbridge, Dorset on the edge of Somerset.  I had IDC Triple Negative Cancer in March 2011, lumpectomy, 6 rounds of chemo, 5 weeks of rads.  I was also tested by Genetics at Southampton and found to be BRCA 2 positive so in January 2012 I underwent a total hysterectomy and then in October 2012 I underwent a double mastectomy and immediate DIEP flap reconstruction.  This was an 11 hour operation and was traumatic to say the least. 

 

As a result of my treatment I have become immuno deficient and am serceptible to infection and that allowed Rheuamtoid Arthritis to take hold of my whole body and also Fibromyalgia.  I have found since moving to Stalbridge (I was in Blandford Forum when I had my treatment at Poole Hospital) that there is little to no support or groups available so decided I would set up my own group.  SCARS (Stalbridge Cancer and Recovery Support) officially started a little over 3 months ago and is growing in numbers.  Although based in Stalbridge the group is open to anyone who has is going through treatment, a survivor, family or friends from any of the surrounding areas.  It is a safe, confidential environment to talk amongst fellow survivors and sufferers and to help each other on the road back to some normality.  You are so closeted when going through treatment and once it is all over you are left to flounder in what I feel is a very isolated and lonely place and the support of others is vital to you and your experience is vital to others.

 

SCARS has a FB page that is a closed group that cannot be seen by anyone but members and if anyone would be interested let me know and we can sort that so you can be added to the group and then you are free to talk to members of SCARS and perhaps even consider joining us sometime.

 

Cancer is a long and hard road but we are not alone and someone is always there to offer a hand to hold when those dark moments come over or when you just need to get something off of your chest.

 

Good luck one and all xxxx 🙂

clairejh
Member

Re: Anyone in Dorset/East Devon IBC?

Thanks for your replies. I live in Bridport and was only diagnosed with IBC three weeks ago. Treatment has now started and am just beginning to come to terms with it all.
Are there any meet-ups or groups that anyone goes to? Just feeling a bit isolated sometimes!
foxyferret
Member

Re: Anyone in Dorset/East Devon IBC?

Hi Claire, I am in East Devon. Dx February Had WLE x 2 and SNB.Then radiotherapy and now on Tamoxifen for five years.
Guest user
Not applicable

Re: Anyone in Dorset/East Devon IBC?

Hi Claire, I am in Poole. Diagnosed with DCIS in June and had a bilat mx.

Viv xxx
Guest user
Not applicable

Re: Anyone in Dorset/East Devon IBC?

Not sure about Dorset. I'm in North Devon, and there are quite a few ladies in the Bristol area.
clairejh
Member

Anyone in Dorset/East Devon IBC?

I have just been dx with IBC and wondered if there is anyone local to me also going through this...