Anyone in norfolk?

[Guest user]

Glad you are all ok - have been back to work part time and feel fine if knackered. no 4 next week so getting there - great news Debs - Glad that you are all growing hair - have abandoned the wig makes my head itch - cant wait till mine grows now although still have hair at the edges - I look a bit like a demented monk!! I've kept it so it pokes out of a hat but it does look odd!!
D x

[Guest user]

Am chuffed for you debs!! great news and i hope it stays like that fro a long time.
I had a CT scan as i was breathless and had pain in my chest after last chemo. It showed up a 4mm nodule in my lung which they say is nothing to fret about but need a re scan in 4mths! Am worried obviously but feel therenis little i can do about it either way.
Denise how are you getting on? Toilet cleaners still make nme think of chemo! god what a smell. The CT scan was an injection then put through a tube. hideous affair.
Suz all done with rads now?
I starttomorrow. what a pain 17 days of going back and forward ferrying my kids about. what a sod.

Anyway, its nearly bed time here so its a bit fraught as usual.

S
XXX

[Guest user]

Hi all, met the Onc today and really good news - the markers were fine and no trace of anything untoward showed up - had a few more x-rays but a precaution more than anything. He was happy with my progress and dont see him again until March. The relief is enormous - both me and the ex cried. I hope hope hope all of you get the same results as me. Thinking of each of you and wanted to say its great to have your support and hope I have helped in return. Will still be checking out the site so keep posting xxxx

[Guest user]

OK back in the land of the living!!!SAw the onc on Weds and he says that they are the percentages but they are just stats and the chemo and rads and tamox are improving them and was very positive so feeling more upbeat and going back to work parttime on tues. Also said he felt that I was coping so far with fec and didnt want to change to tax so ok with that as i wasnt looking forward to that its meant to be tougher. was your ct scan for rads Sue - I hated mine did you have to drink the wallpaper paste - even the thought of that makes me want to chuck!! Have that horrible chemo smell up my nose again, am going to have a lovely big glass of wine tonight as I have spent all afternoon carving pumpkins after the kids got bored and left me to it - note to self- 17year olds DO NOT carve pumpkins it is so uncool!! Enjoy your girlies while they are young Sue all too soon they are nicking your bloody make up and your tights oh and your shoes whether they fit or not! - Debs Suz hope you are both ok - Sue - waht onc did you see this time as i asked about havin ovaries removed as I had no further need and he said there was no evidence it would help. Very confused by conflicting information ????
D x

[Guest user]

hey ladies. been a lazy women on this forum lark lately as feel so well ive beenm scragging the house and socialising loike a mad women in case it doesnt last!
Suz well done! I start on 5th and not lookong forward to daily trek...dull dull dull. All getting ticked off tho so positive.
Denise- its a bloody slog isnt it? Are you totally sure that was your survival percenatages? I know you have lymph involvement but even so. I dont blame you not wanting to know.I did because i am a nosey old moo.
Debbie it was the injection. hideous. smelt like chemo and the hot flush was minging then i felt like i wet myself. it was all too similar to chemo and it upset me. big trouble cannulating too which has made my phelbitis vein puff up again...marvellous. Good luck with ONC. mine off long term sick!!

GODDDDDD! what we put up with?!?!

Anyway. chumps in bed so i am going surfin online

S
XXX

[Guest user]

Hi girls, hope everyone is ok??

Sue, saw your post on FB - hope the scan hasnt left you too traumatised - was it the injection while they are doing it - (I hated that)and was it a bone scan?? Hope you are feeling better today and the results are good xx

How are you Denise, I know you are still going through it and we are all further along (Sue starts her rads next week yipee).

I am seeing the Onc next week so will hear how things are going - will let you know on here, Hi Suz, hope all ok with you xx bye for now debbie

[belinda]

Hi Debs, please PM me if you'd like to know how I'm monitored for my bone mets. (I'm very happy with the way I've been looked after) Glad to hear you enjoyed your holiday..wasn't today a beautiful day. Whoo hoo those blue skies. :-)..xx

[Guest user]

Suz well done - definately a glass of sparkle time.

Well three down - had a very mixed day yesterday, had to go early for extra tablet to help with water infection i have mananged to pick up and doctor checked lump under arm again and he also said it was nothing to do with the cancer or a lymphnode. Then i glanced at the screen and saw my 5 year survival stats which I had said I didnt want to know. Anyway I'm thinking 50% is not great - presumably because of the lymph involvement but all along they have told me I fall in a moderate group. So very upset and sat in reception letting tears roll down my face. Would probably feel more sh** today but taking so many drugs ...
S/e ok today ...usually kicks in tomorrow but did feel absolutely poo last night.
Sorry used the poo word - hope the potty training is going ok and you are starting to feel better Sue.
Debs - you sound like you had a great holiday - got some lovely sun on your head should make the hair grow quicker!
D x

[Guest user]

Hi all & welcolme home Debbie!!
Hope you had a fantastic holiday - you certianly deserved it. & good for you for going wigless & scarfless!! Glad to hear its growing back - what about the eyelashes & brows?
Denise - hope you got on okay with chemo - must be half way now which is excellent - hope the s/e are not too bad.?
Sue - how did you get on with the radiotherapy meeting & tattoos? Don't they hurt? When do you start rads?

Well i'm a happy bunny today as had my last radiotherapy & thats another thing ticked off this list!! Yipee!! The next thing to tick off is Herceptin in July & then Tamoxifen in 5 years!!!

Off to have a glass of posh sparkly wine to celerbrate!! Have a good weekened everyone.

Suzanne xx

[Guest user]

Hello all, just catching up on the posts. We had a really lovely holiday and I really chilled out. After a day or two I ditched the wig and scarves and it was so very liberating. Didnt even put the wig back on when we landed back in the uk (tho it may have kept my head warmer) but did wear it to work today as I am not quite ready to reveal all to the world. It is really growing fast now but is such a mix of grey black and white (yes pure white around the ears)that I will probably wait a few more weeks until I can put a colour on. Denise, hope the chemo went ok, you are marching on now and catching us up! Suz, I too have really down days but they do pass as you know and I'm sure you are on the way up again!! And as for you Sue, the potty training is keeping me well amused, you are coping admirably. See my onc in a couple of weeks - feel aprehensive but will go armed with a full set of questions again - I want to know if they have contained the spread to my bones and got rid of the breast cancer completely - how do they know and how much of a check they will keep on me. - feel slightly adrift at the mo. Anyway off to do yet another load of washing.... keep well everyone, xdebbiex

[Guest user]

Good luck Denise for thursday. I feel for you!

Fatigue still complicating everything i do and it is peeing me off! Am too busy to be this tired and rubbish!

Got tattoo business on friday for radiotherapy and oncologist meeting today. I hope she is ok with me as it wasnt her that cancelled last chemo and if you remember she orignally wanted me to have 8!! Cant imagine she will be impressed with 5 cycles but i dont think my heart could take any more!

Anyway
Suz hope radio going ok ish
Debbie hope holiday was a a fab as facebook saiys!

S

[Guest user]

hi girls hope you are both feeling better and having a good weekend - Debs sounds like she is having a good time - good for her!!
Sue - will definately find some balls if she heads my way on thurs.
have had really bad few days about hair loss and I feel such a wus (is that how you spell wus!) now just want this s**t over so it will grow again. Then felt guilty coz if I was that worried about hair then s/es cant be that bad - anyway have cheered myself up with the thought that what Jenson Button really wants is a girlfriend with a combover - so i'm in!!!

i havent stopped experimenting with wine - although i only have a bout a four day window before chemo other wise it just burns like hell!i wont give up trying though!!
have you finished radio now Suz ?

D x

[Guest user]

Denise being admitted wasnt so bad once in a side room as they leave you alone apart from 3 hrly observatuions all night!! torch in the eys time..like prison i imagine! i liked being fed three times a day in bed!! its creepy the sights you see tho and i certainly wont tell you about it as its not nice.
Suz i em experimenting with wine too. I do feel guilty for wantinf a baby when i have 2 but we wre trying when i was diagnosed ad its hard to change your mind set. I havr two siblinga 13yrs older than me so i was determined to have a bigger family with them closetogetther..i do regret it at bed times sometimes tho. Phew!!
Debbie is having a ball bt the sounds of it oni facebook! Jealous!!

anyway. tea been cooked by my lovelty hisband. girls in bed so hope they sleep! both snifflty again..jeez

Denise, Diane the 71 yr old nurse is nice enough but doddery and she messed me up twice so may be worht asking for someone else if you have the balls to.

S

[Guest user]

Hey Sue/Denise - wish i was where Debbie was - least it would be warmer than here!!
Feel lot happier today - just think some days you feel so low that nothing can make you feel better, then a goodish night sleep plus a cry does the trick!
I know exactly how you feel Sue about the children, i wasn't lucky enough to have any before this happened & doubt that will ever happen now - i know i have to amazing step-sons but not quite the same as having your own. Still really hard to accept.
Have also been worrying about it coming back & killing me - probably due to nearly end of treatment - well apart from Herceptin & Tamoxifen - once i've got that thought in my head, so hard to get it out again and those thoughts then seem to take over the whole day.Do you feel like this too?

Denise - So sorry to hear about your father in law - hope he's now on the mend - Papworth is certainly a great hospital so he's in good hands. & as for your poor husband hope he's coping.

Good luck for Thursday - hope you never come into contact with the old nurse Diane - she was the one who messed my hand up with the canular & i can't beleive she butchered you too Sue! If she heads your way Denise run!!

Wine time now, least it tastes better so think that must be coming back slowly!

Sx

[Guest user]

Hi girls.
Hate the wiggy so wear hats most of the time and feel like some eccentric pensioner with thinning hair and a hat fetish. am horrible old crab this week. Sometimes I wear the wig under the hat and then get very hot and go red in the face its all soooo attractive!!
And if a pensioner with a needle heads towards me on Thurs i am outta there! definately too too old.
Sue really feel for you about the children - hate the fact that this bloody disease dictates and takes away so much. I have listened to people who say they have learnt so much about themselves - at the moment I have learnt that I am a crabby old cow who misses having lots of hair. My father-in law has been in critical care in Papworth and was in coma for nearly two weeks after huge heart op so poor hubby being stretched to the limit. Next one on Thurs will be halfway - will try and raise a smile before then. Have to say my one fear is having to be admitted - don't want to be on those wards for anything..
Hope you all feel better over the weekend.

[Guest user]

Suz anf girls

I am ok. Well ok ish!

Last chemo cancelled as i am breathless with heart palpitations and i dont think they were brave enough to pollute me! Dr said no point delaying then giving it as i would simply end up in hospital as neutrophil count went so low last time! I didnt argue and scarpered after an xray and ecg.

Suz i dont feel relieved its over as i feel its just the beginning now. I am mourning not being able to have any more kids and i worry slighty abiut it cioming back and killing me! Sure everyone dwells on that one but i havent until now. This it was being on the ward..jeez isnt that s ight.

Suz that nurse diane was it is 71!!!! she does bank work on weybourne and totally cocked my cannulation up then blew my vein in my arm! Too old too old!!!

Debbie is sunning herself which is well deserved and sounds lovely!!!

Denise how are you? Hows the hair?

Lots love

S
X

[Guest user]

Hi all,
Hope you've been getting on alright this week?
Denise - hope the s/e not been too bad - how are you getting on with your wig? Have you worn it much yet?
Sue - hope you;re feeling better now - its horrible being neutropenic - were you advised to follow a special diet for the rest of your chemo? The nurses just gave me a leaflet & told me to b extra careful with what i ate and drank & to wash everything really carefully & to aviod the types of food like if you were pregnant.
Debbie - hope the hot flushes are not too bad and hope you have a fab holiday in Cyprus - you deserve it.

I've had a strange old week - felt really down, upset & worrying about what the future holds. Went to the big c centre today & burst into tears on one of the lovely ladies in there! Felt so silly but much better after a good cry - they are so helpful in there.
Tried talking to husband last night about it, but hes as much use as a choclate teapot at times specially about feelings - think all men are rubbish at that!! Think i might see about seeing a councller as that might help.

I'm off now as rabbeling on too much! Hope you all have a good weekend. Sx

[Guest user]

Hi all.
Glad you are home Sue and Debbie of course you will see off that car and the next one!
I'm ok s/e so far not too bad - thinking I might even go back to work next week - feel better when I am busy and all mine are at school and college - I have cleaned every drawer and filled every charity bag that comes through the door. Had to go and see the wiggy lady as I still have some hair but it is very patchy. Decided to go for my old style but completely different colour so now a brunette for a change!! But it is sitting on the desk at the moment and I am strangely reminded of your guinea pig Sue!
Suz glad you are feeling better - a bit of blood always does the trick - look at Robert Pattison - like a saddo i am counting down the days!til the next twilight film!!
Have a good weekend girls
D x

[Guest user]

hey girls!
am home thank god! funny old thing being neutropenic with a temp- felt reasonably well to be fair! dizzy and sick mainly.
girls now ill which is hard! number 6 on thyrsday and never again!
debs of course you will still be here! poor toe again tho huh??
suz- anaemia sucks. glad you are feeling better tho. i start rads 5th nov. good to hear manageable so far.
denise- how was number 2?

s
XX

[Guest user]

Hello all, well we are a bit of a mixed bunch having our ups and downs. I am glad you are home from hospital Sue, I went really low on no.4 (not quite as low as you tho) but was fine for no.5 - I did eat lots of spinach and pate - dont know if you like either but I was told its good for the blood! Glad you are ok Suz, getting thru those rads now which is good. Denise, you have been quiet - not suffering too much I hope - have you succumbed to shaving hair off yet - once its done you feel better and move on. I am on another load of anti biotics for toe(s) - see how that goes. Starting to get hot flushes now with the tamoxifen but they are not bothering me too much - off to Cyprus for a week next week - think I have enough hair to discard the wig while I am there with people I will never see again LOL - I'm brave NOT. Traded my car yesterday and pick new one up on Tuesday - a little run around but quite nice. Ex said that it should do me for next five years - I just hope I am still here! Funny thoughts go thru my head all the time - keep going girls x debbie xx

[Guest user]

Hi ladies,
Hope you're all okay & looking forward to the weekend?
Think the blood transfusion must have done the trick as feeling loads better and not so brealess now which is good. Wish the water tablets would work a miracle & make me loose all the weight i've put on, rather than just excess fluid in my legs - oh well will just hae to join slimming world after all!
Till then will pig out tonight as hubbie bday and going out for a meal!
2 weeks left of rads and its going okay.
Suz x

[Guest user]

HI girls,
Started Rads on monday and was all fine - nothing to worry about there. Skin still same as last week and no signs of burning yet.
Had to had blood transfution today as am anemic - great! When you think you're getting there something else comes along. Hopefully now i'll stop feeling out of breath all the time!
Hope all okay with you all.
Suz xx

[Guest user]

Hope all ok - glad the smell has gone Sue but you may well have passed it me now. Yuk Yuk Yuk.!
Not been too bad waiting for the crash tomorrow but phased off the steroids gradually and apart from a really bad case of the munchies
- black pepper crisps - I'll pay for that next week when the ulcers kick in! off on Fri for the wig fitting more scalp than hair but ok with hats really at least its cold so more people are wearing them. Hope your sores are not quite so minging..and debs and Suz toes not too painful. Am trying to persuade OH to get me another dog - havent had one for a couple of years and think i may have overplayed the sympathy card....he always said I could have one if we had a washroom - well guess what I have a washroom!! bring on the puppy!!
I said it would encourage me to walk in the fresh air etc etc guess what I have tonight.....a running machine and a tv in the garage. Not what I had in mind!!

[Guest user]

Damn guinea pig! She is waiting for me every time i enter the kitchen! ~I should kick her back outside as she is better but i am a sucker..kitchen is wee wee ville now..nice touch.
Smell up nose has gone denise! Only lasts a week but boy i hate it! what hideous SE. hows number 2? i found 1,2,3 fine then my body fell apart!
Corsodyl doing its stuff for my tongue but it is totally rank stuff.

debbie and suz with toegate..i feel for you! my sores are minging and keep popping..sorry but they do!!

Role on 15th Oct so i can stop being poisoned!!!

YEAYY!!

have good weekend where poss ladies

S

[Guest user]

Sue have just read you post on another thread - have to say I wondered for a bit why the doctor was shivering in the kitchen!!!
Plus your grey pubic hair growth - it is something I am dreading I worship the person who invented GHDs on a daily basis until of course the bugger started falling out. I now have a parting that looks like the river Bure on a map with the odd broad shaped bald patch thrown in - its gonna have to go !!! Mind you as somebody well meaning told me today at least if I keep a little bit I wont look such an idiot Thanks I thought thanks alot!!
Suz you can buy false toenails in boots if you are desperate - i lost my big toenail last year and it took ages to grow but beware sometimes they land up in the most unexpected place!!!
Debs hope your have a good evening in Cromer.lets hope he doesnt say the last year has been really good for you - you might just kill him!!!!
Denisex

[Guest user]

Hiya girls, glad u have next chemo done n dusted Denise - I remember reaching half way - its amazing how it passes. What is wrong with our extremeties ? - Toe gate is back so another round of anti biotics for me - but I can drink on these ones so yey! Think both my big toe nails wont last too much longer. Hair is returning everywhere with a vengence - just wish I could dye it before we go to Cyprus but I think I may have enough to go without the wig while we are away - hell who is gonna know me?? Saw GP last night who was very pleased with me - silly cow thought my hair had grown back already - I take it that the wig looks okayish then! Hope tongues toes and SE's all improve asap, enjoy the weekend - going to see a medium called Tony Stockwell on Cromer pier tomorrow night - i sit there going "pick me pick me" and go all hot if I get a message ! Love to you all, debbie xx

[Guest user]

Ewwwww Suz sounds manky! Chemo has a lot to answer for.
Ive got my radiotherapy appt through now and start 5th november so not long after last chemo! 3 weeks after i think! phew! All over by 27th November. Diagnosis 24th april-finish treatment 27th november. Not bad me thinks in the scale of things!

Anyway i have two cranky babies in bed refusing to sleep so have turned their monitors off and turned tv up! Kids! I will not be beaten.

S

[Guest user]

Hi,
Glad chemo went okay Denise - hope you're not suffereing too much with the s/e? only 4 more left and they will wiz by.
Sue - i had thrush on my tongue and it was disgusting - hosp gave me some liquid anitbotics that you have to swish round in your mouht but that helped me - might be worth asking them for some for your last 1 just in case? I used Difflam too & found that quite good.

Toegate saga continues for me !! Disaster yesterday - big toenail came off!! Not painful but certianly not pretty and the worse bit is i've got a wedding next sat & was wearing strappy shoes but think will look well silly with 4 toes pained and big toe with nothing on it - bloody chemo!!

sx

[Guest user]

Glad its done denise..every one is step closer altho i cant say i am that positive about it all the time!! damn chemo!
Tongue has a split down it now..using corsodyl and that helped. cant eat toast or anyting scratchy..most upsetting! Feet coveredin sores still but not worse not better. manky tho!!
Debbie how is tamoxifen? Soon i will be on it. Gettng flushes at night i thnk as wake covered in sweat! sweating bald head..yuck! any hair yet? i have a fluffy down like a kiwi.
Suz will chase my radiot i think as still no word and i should have been having 8 cycles so dont eant a cock up!

been to 1st birthday party today..nearly killed me!

S

[Guest user]

No2 done -bring on the s/es.
Had cold cap again but little point I feel, and bloody cold with not much hair!!

Hope you are all ok!

Dx

[Guest user]

It must be autumn we are having casseroles again!!!
I had Difflam mouthwash Sue dont know if that would help - it numbs your mouth a bit - but also numbs your tongue and it feels like it will just flop out!!!
Am cheering myself up with the thought that after tomorrow it will one third of the way and next one is half way there.
How are the feet?
D
x

[Guest user]

Try not to be paranoid Denise. I am sure its nothing serious.
Sore tongue getting me down a bit- wonder if it is thrush? never had it befpre but it looks manky!
My leg hairs and still growing after 5 cycles..go figure

S

[Guest user]

Ahh Suz if you cant get the wine open thats bad news!!!
I want to know - how come the hair on your head falls out but the little buggers on your legs not only stay in place but actually continuing growing! Spose its that thing called sods law.
Well full steam ahead for tomorrow although have to go and see the onc doctor about the lump first - am just waiting for the bad news to start again. They keep reassuring me its fine - but then they told me that last time too 😞
Paranoia again..
Off to turn on the heating its chilly!
D x

[Guest user]

Hi ladies,
Denise - hope you get on ok on Thursday - another one over with which is all good stuff.
Debbie - hope work going okay and getting on okay with Tamoxifen?
Sue - The mouth does get better but its so horrible - think that was one of the worst bits for me - hope you get on okasy with numnber 6.

My fingers have all gone numb which is horrible - really struggle to do up buttons on clothes and can't open my bottle of wine anymore which is a nightmare!!
Sxx

[Guest user]

Hey ladies. Am recovering ok now. Sore tongue man! Its ruining my snacking!!! maybe my waist line will thank me!bah.
Denise good luck this week..keep racking them up! As long as there is more on your head than the floor keep it!!!
Suz will call unti at end of week if ive not heard about radio as want this sucker over with well before xmas! Glad you startig to feel more normal i have no high hopes for number 6..just to survive it!
Debbie hope wrk treating you ok and toegate had cleared.

lots lvoe
X

[Guest user]

Suz glad you had a lovely time at Morston - went a couple of years ago it is indeed lush!
Apart from the ulcers which have successfully stopped me nagging apparently, not feeling too bad, Another thing I cant do properly any more!
Zap number 2 on thurs - bring it on - Moulting like a moulting dog - but still have hair today - but cant see how it can hold on much longer really. Bugger!
Debs, Sue hope you are ok
Dx

[Guest user]

Hi all, sorry haven't been on here for a while as its been my 1st wedding anniversary and we went to Morston Hall for the night and also a lush 4 course meal which i could actually taste!!

Sorry Sue and Denise having horrible s/e - its really rubbish - even my last 1 i felt rubbish and only now do i feel normal-ish. They say the last one isn't meant to be so bad but totally disagree with that as i felt rubbish - yukkie mouth and my face turned all red and blotchy which was the 1st time that happened - its still blotchy 2 & half weeks later - feels really tight like when you get wind burn. My fingers have all gone numb on the ends too and find it difficult to do up buttons.

I suppose the only plus side is that i know i can only get and feel better now that chemo's finished and i know that i'll never have the horrible mouth again - yioppee!

I start rads on monday so will let you all know how that goes - i didn't get the appoinment till after i'd had the 5th chemo so you should get a call soon Sue and they will plan with you your appoinements for a time that suits you best - so i went for mid morning each day to not disrupt the day too much.

I also had a visit of the radiotherapy unit before hand which is an organised event the Big C do so that people can see what its like and ask any questions - i found this quite good as i was a bit scared of what the machines were like and what to expect, but they talked you through it and answered all the questions. Might be worht looking into Sue.

Start Tamoxifen monday too and have Herceptin, so going for a thriple wammy on Monday!!!

Keep smiling girls. xx

[Guest user]

Denise ive had a sore mouth for the first time..not nice. toungue rough and sore! not msking my obsession with crisps easy!
Debbie hope pains are hormonal. Not sure what else they could be really as very very unlikley to be any sinister.
anyway, i am finally feeling back to normal ish after stinkng fe3w days. roll on umber 6 and get this crud over with!

Suz hows radio?

take care ladies

[Guest user]

Hi girls, sorry to hear you are both going through it. Good job u r getting lump checked out Denise - I think we worry about everything now - I keep getting little sharp pains in both breasts - seeing GP on thursday as its a month since started tamoxifen so will mention it then - perhaps its to do with the drug as its all to do with hormones, hope so anyway. Keep going girls - u will get there ! Suz hope the rads are going ok ???

[Guest user]

Well on liquid diet as ulcers have taken hold so made soup yesterday it was leek and potato and hair!! I am shedding loads of hair so where the 85% success rate for the cold cap comes from I dont know!
Hope the s/e s are starting to subside a bit Sue. Off to the doctors as I have a lump under the arm on the affected side so rang chemo unit and theytold me to go to Gp as could be an infection with the ulcers and my glands could be up - interesting as I thought they had taken the bloody things out so now worrying in case they have left suspect one behind. S**T!!
That smell up your nose is like Rhone Polenc in the days before global warming isnt it!!
D x

[Guest user]

I am glad somene else has the bloody smell up their nose! i find toilet or kitchen cleaners make me feel ill as they are so chemical they remind me of chemo!!!
your head gtets sore as they hair starts to drop off. a deep ache is how id describe it so sorry it maybe on the way out.. you do get used to it but boy does it still p**s me off every day i look n the mirror!! i hate having to think about covering my head upo everyday and am now experimenting with hats..i look a total goon..!! husband said best not to go out in latest beanie hat!!

try to have a subdued if not a little bit fab weekend!
S

[Guest user]

Just think its all taking the p*** a bit really. Taste buds have been off since chemo so ate but couldnt taste anything - taste buds back now with avengance but cant eat anything as I have a mouthfull of ulcers. My bloody head is so sore so can only assume hair is coming out at some stage sooner probably rather than later I'm sure the cold cap just prolongs the agony.
Sue I had the horrible chemo smell up my nose for ages!! Just one more and you're done - 'just' huh!!
Think I could be a grumpy old cow this weekend...but hope you all have a good one and the s/e's go quickly...
Oh and I just have to whip up a tudor costume over the weekend for a school trip on Monday! Wahoo good times!!
D x

[Guest user]

Chemo 5 has been a pile of sh**te. Hated hated hated yesterday but today seems normal chemo rubbish so i can function but just dont feel right. My wee smells of chemo and its grossing me out!!
In fact everything smells of chemo and i just cant wait to finish.
Suz when did you get told about radio? I havent heard anything yet and dont know if thats normal...
Debbie hope work not tiring you out too much and your toe is hanging on. I had to have a foot review as mine are coverd i sores...most attractive!! ~ONC said i could delay chemo or carry on..ERRRRRR let me think for a second! God delays would kill me!
Denise shame about your hair..it may hang on ab it longer but mine was shaved off on day 19 after first as couldnt take it any longer!!!

take care ladies

S

[Guest user]

Hope chemo goes ok tomorrow Sue s/e's not too bad this time - they think my banging headache could have been come down from all the drugs - now I know why I drink wine - which incidentally I did tonight and it tastes like wine- yay!!! Have a great big glasss toni
ght debbie!!

hope evies thumb is better (saw your f/b post) would you believe also have Molly with a similar injury and she keeps on abut it too!!
It must be manky digit month - I have a peeling nose if that counts!!Bloody cold!!
D x

[Guest user]

Ah debbie glad toegate almost over. Ive got chemo tomorrow. Got to see dr first as got sores on my foot and the chemo nurse reackoned this was a condition and should be treated! I thought it was atheletes foot!!! Ha!
Denise hope you faring ok.
Suz do tell all about rads!

Lots love

S

[Guest user]

Hello girls, hope you are all ok. Last day of antibiotics today for the toe - seems to have done the trick - and can have a glass of wine from tomorrow so all good! Booked a week in Cyprus in October with Joe and my ex and soooooo looking forward to it - it feels like a long time since I had a holiday (last one was to Centre parcs in Feb with my sister and the kids just 2 weeks after my initial op and boy do i look rough in the pics!) - Sue you must have another chemo coming up?? Hope it goes ok - and Denise same for you with the next one which cant be too far off. Suz, all the best for the rads - I hear they can be very tiring so take it easy XX

[Guest user]

Decided to blow away the chemo head so went for a walk on Sheringham Beach yesterday - when I came off the beach everyone was dressed in forties gear - I thought I'd lost my marbles finally but apparently they really were dressed like that!! Have stinking cold that came on over the weekend - guess that at this point you pick up everything going but I'm thinking with the next one it is one third of the way and then no 3 is halfway. Hope you are all ok - toes and feet and everything else!!!
Denise x

[Guest user]

Ahh suz last chemo! Hoorah!!! Me soon me soon Number 5 thursday..urgghh. hope its not as bad ad number 4..been poo.
Denise i snacked like no tomorrow and always crashed the monday after i came off steroids. no i dont take them and find i feel much the same everyday! not great byut not that bad. couldnt stand the crash with the girls as mad me totally useless!
Debbie hows toegate going? The soles of my feet keep splitting and hurt like mad!

Tattoo sounds grim..not lookiong forward to rads at all. I totally hate being mauled about!
Been to butlins again this weekend as a treat from my mother in law and had a ball but boy am i tired!

Hope everyone keeping their pecker up~!

S

[Guest user]

Hi girls,
Last time the horrible s/e's kick in - thank god. Feel really rubbish now, really tired and yukkie mouth. Have made Lasagne for tea, but now don't fancy it and certainly won't taste like i remember it should. But hey few days time will hopefully feel okay again.
Great news Sue for you about only 6 chemo's and also that you had a start date for Rad's - i had my planning meeting at hosp yest and now support 3 tattooed black dots on my bodys so they can line me up for the radiotherapy - God knows how anyone can have a tattoo as just those 3 dots hurt me like hell!! Sorry Sue as you'll probably have to have this done too, so am warning you!!
Glad you're feeling a bit better Denise and hope you got on well with the eyelashes - i found them so helpful in Mac and was nice that they put them on for me as found them quite fiddeley!
Sorry Debbie that you're still having problems with the toe - hope it gets better soon - my nail is still hanging on but think the infection has healed, but i also needed antibiotics to clear it up. Hope you're still getting on okay with Tamoxifen?
Have a good weekend ladies.
S x

[Guest user]

Feeling much better today - felt ok Sun & Mon and then poo on Tues & Weds. Think it was coming off the drugs had such a bad headache. Drinking coke like a teenager though urggh normally only drink it when i have a hangover! deb glad they are taking your toe seriously now. Sue glad only 6 - thought of you the other night when I killed a saucepan - apparently you need water to steam stuff!!! still counting the hairs falling out of my head at the moment think it might be a little early but I cant say its looking promising, going to Mac for some false eyelashes and an eyebrow pencil. Hope your ok Suz.
Off to find food!!!!
Denise x