Anyone in norfolk?

[Guest user]

Hi

Sue glad your feeling ok. Was relieved to read about the eyelashes and eyebrows thing, how daft that we can lose loads off our head but those few hairs (especially the eyebrows we pluck) are everything all of a sudden. Oh the joys of gaviscon again looking forward to that one, I used to down it by the bottle although they have made different flavours since I was pregnant!
Hope everyone else is ok - got bitten yesterday right on the scar from the node clearance- with all the other skin the mozzy could choose and I got bitten there - hand and arm are swollen today so called BCN but they seem to think its not a problem, seems to have gone down now - its all this typing!
Denise x

[Guest user]

How are the norfolk ladies doing?
I am ok apart from feeling about 6 weeks pregnant! Acid is a pain but i remember what to do from having my girls!!
Husband better, Evie off colour now. Babies turn then me probably!!

Have good evening ladies!

S

[Guest user]

Hello all, that metal taste is awful eh Sue - keep the liquids up - pienapple juice or chunks are good - think i've said that before!

I havent lost eyebrows or lashes either thank god - losing them can really change the look of your face I reckon. mind you false lashes are all the range and the brows can always be pencilled in - think thats covered on the pampering day which I have yet to get on LOL

love to all xdebbeix

[Guest user]

Oh Suz i am glad you have your eyelashes! I am more concerned about loosing them as i love my eyes! Sounds gay but true!
Metal mouth has started. Not that bad but irritating. Strawberries tasted of salt!

Stupid chemo!

X

[Guest user]

Hi - glad you're both feeling not too bad. I found the furry tongue/mouth is always worst the 2nd week, and my taste chnges a bit making plain water tast metalic, so i just add squash!
Still got my eyebrows and eyelashes and am hoping they stay put!! When i have my wig on no one knows that i've got this horrible thing, but think if i loose them it will make me look ill! Great that i no longer have to bother with shaving my legs or underarms - shame it will grow back there really!!
S xx

[Guest user]

Debbie i feel remarkably well. Felt sick tis morning till anti sickness tablets kicked in but fine now. Taste going a bit. My husband is poorly with a temp of 39 so i hope i dont catch it! Talk about timing!

Amazed you went to work altho to be fair i feel well enough to do most things just bt tired as up all night weeing I normally only dirnk a pint a day so my body is shocked!

Denise i agree chase you BCN
Suz glad you are out and about and feeling ok.

Suz and ~Debbie have you lost your eyelashes/eyebrows yet?

S

[Guest user]

Hi girls, hope all ok.

Sounds like you are coping ok Sue with your first - you are doing the right thing taking the anti sickness before the nausea kicks in - are you also on 3 days of steroids? If so dont take them too late as they keep you awake would you believe. I am feeling about the same as usual - went to work today but working from home Monday and Tuesday altho I have done it all tonight so will be chilling - going to Norwich with sister in law on Tues for a spot of shopping if I feel up to it!

Denise, Suz is right about asking BCN to chase chemo date - I had 2nd op at beg of March and started 30th April after chasing with the BCN - waiting for that date is really frustrating I totally agree. My chemo nurse was telling me they are so busy they are thinking of extending the hours they have the unit open to fit everyone in!

Well, gonna get some sleep now as I am knackered, enjoy the weekend girls, love xdebbiex

[Guest user]

Hi everyone.
Suz - Hope you had a good time in Blicking - I am in Aylsham and it was peeing down earlier - did you try the Bucks for lunch?
Sue hope your still feeling not too bad.
Had a bit of retail therapy today, so feeling bit better.
Debbie hope your ok too.
Off to get wet on the school run now. Oh how it takes me back!!!
Denise xxx

[Guest user]

Hi girles,
Oh bugger - i typed out a really long post then and it seems to have got lost!!
Denise - what fantastic news for you - am really pleased and happy for you.
Sue and Debbie - hope you both got on ok yesterday and not suffereing too much? Sorry to hear you might have had my nightmare nurse Sue, hope she didn't cause you any problems?
Denise - i had to wait forever for my chemo to start, but once it does the times wizz's by. If you don't have any joy with getting a start date i would contact your BCN as she sorted my date out i the end as was so frustrated with no hearing anything.
I'm ok and feel surprisingly normal which i never thought i would feel like whilst having chemo! Off to Blicking Hall today with my sis-in law for lunch and walk in the gardens - nice!
Suz xx

[Guest user]

Denise my op was 7th May then chemo started 2nd July. Quite long ait.

I feel almost normal.Woozy. I started taking my anti sickness every 6 hours whether i felt ill or not and i feel fine-so far!

Try to be patient it soon all starts like an unpleasant rollercoaster!

Debbie hope number 3 (or it is 4) is treating you ok.

X

[Guest user]

Hi
Such good news Debbie - what a relief it is.
Sue hope you are feeling not too bad this morning. My impatience is unbearable now, I have been in the garden in the lovely weather and surgery effects have healed. With nothing planned yet treatment wise my head is almost convincing me nothing is wrong, did you both seem to wait a long while for the chemo to start?
Denise x

[Guest user]

Think it was but she didnt cannulate me! Didnt like the look of my veins!! Ha!

will take drugs as soon as first sign of nausea starts!

Take care debbie

x

[Guest user]

Hello girls,

Sue, hope you didnt find it too traumatic - think u had the dodgy nurse Suz had ?? Dont wait for the SE's to kick in - take your domperidone regularly and that should stave off the nausea hopefully.

Well for those that dont know I had my CT results and they were ALL CLEAR!!!!! Cried my eyes out with relief this morning and just hugged and hugged Joe - he couldnt wait to go to school away from his mad mother - I can now deal with what I have got with renewed vigour - PHEW

Going to rest up now or maybe go on facebook for a while, byeeee
xdebbiex

[Guest user]

One down!

Lovely to see you under the circumstances Debbie! I hated being there at first and had a cry but soon settled. Not too bad i guess apart from struggling to cannulate me!

Denise- take what ever they offer!! It may really help.
Suz hope you surviving?!

S
X

[Guest user]

Hi everyone glad everyone seems ok - must be the sun! Bone scan ok had been out for lunch and was just considering a quick snooze when they said it was all over. Took more time to find to find my veins for the injection - apparently I have none! Felt very negative after the scan i felt she looked at me too sympathetically so clearly saw something - OMG I need some counselling - work for the NHS so have been offerred 6 sessions - me thinks it might take more!

Hope everything goes ok tomorrow will be thinking of you.
Denise x

[Guest user]

FINGERS really crossed for you Debbie. I do hope everything will be clear. I have become indifferent to tomorrow now and no longer terrified so feel thats a good move.
Suz i will beat any nurse called Di away from me!

Maybe see u tomorrow Debbie
Denise hope you ok too

S

[Guest user]

Hi girls,
Hope you both get on okay tomorrow for chemo. Just be warrey if you have Di - an oldish lady with white bobbed hair - as she was the one who mucked up my hand and put the chemo into the tissue and not the vein!! I'm sure you'll both be fine though.
I'm okay - been to the Norfolk Show today and had a great day there out in the sun with my factor 50 plus sun hat!!
No new s/e's for me and feeling good.
Speak soon Suz xx

[Guest user]

Hi everyone, hope we are all ok.

Hope you are not fretting too much about tomorrow Sue. It will be better once you have got it out of the way. I really hate going cos it means a few days of yuckiness but in the scheme of things its really ok. Hoping to get some results tomorrow as well so fingers crossed everyone for some good news for once!

Hope Denise and Suz both ok too, might see you tomorrow then Sue, bye for now xdebbiex

[Guest user]

hey denise, debbie and suz ( and anyone else popping by).
All ok in the Leach household. Eve decided to try potty training today as its too hot for nappies so thats great timing! she managed to pee twice in potty so lets wait and see!
Chemo unit rang today to make sure i was coming thursday! They must have read my mind! anyway, makes it more real and more gutting.
Going out tomorrow for girlie lunch as girls at mums.
Debbie- hope you hear back from scan soon. Surely cant take that long?
Denise- waiting is the worst worst part huh?
Suz- hope you have recovered from traumatic number 2 chemo?

S
x

[Guest user]

Hi all, hope everyone ok??

No news on CT scan, had a rotten day yesterday, kept thinking horrible thoughts about results! Feel loads better today tho. Cant get thru to anyone at N&N to tell them about the bad arm - hopefully someone will ring back!

bye 4 now xdebbiex

[Guest user]

Glad you had a good break Sue, trying to fit one in but dont have dates for any treatment yet so bit difficult - might just bugger off!
Want to get on as almost doesnt feel real now as nothing is happening still sure that will change soon enough, Hope Thursday goes well for you both I am there on Weds for bone scan. Surgeon now on hols so think will start anything till nearly the end of July. Have you heard anything abour your CT scan Debbie ?
Denise x

[Guest user]

FABBBBB break. Love love love butlins. the girls go wild and we eat loads of trash and drink beer. Its great. Hate being home as seem to be in limbo waiting for thursday to come. Really getting to me now and have had two blood tests recently and neither phlebotomist could get it easily so dreading cannulation.
Mmmm, not a cheerful girl!

Would like to meet up. Am free most wednesdays as girls go to my mums.

XX

[Guest user]

Hi Girls,
Hope you both get on okay on Thursday with your chemo, keeping fingers crossed that you don't have any traumas like i did! Chemo 3 is 2 weeks today for me, and then will be half way. Yippee.

Would be lovely to meet up at some point in Norwich for a coffee, let me know of some dates when you're all free.

Suz xx

[Guest user]

Morning, Denise, maybe it isnt cording then but the vein in the crook of my arm is raised and the whole forearm down to the hand is really painful. Will ring BC nurse today and also tell nurse at surgery as I am off to have blood taken re pre chemo for thursday in a minute.

Sue hope you had a lovely break, hope I see you on Thursday before we go in - parents coming with me this time - is your husband going to be with you??

Suz, hope you are doing ok - you also have a blast coming up shortly I think, lots of luck with that,

Speak soon, xdebbiex

[Guest user]

Hi
if it helps i think that cording is on the side you have clearance or sampling of the nodes, I has all mine out and 4/23 were positive which is why the scans came before the chemo, but I have read that some people get it across the chest as well. It makes the veins in the crook of my arm stand up, apparently it,s fibrous tissue and it hurts right down to the back of my hand. And it hurts like hell too sometimes i cant straighten my arm. Mornings are usually better but i try to raise it slightly on a pillow overnight. Did you have the CT injection on the side of your BC as they did mine on the opposite side? They haven't given me too much in the way of details but it was a Grade 2 lump 37mm x 30mm and so with the nodes it will be chemo, followed by radio and Tamoxifen as er+ they haven't said whether it is HER+. I'm fine with information that is written down but when I see my consultant I just say OK a great deal. I just want the surgery done so I can get started on everything else. I am learning to accept that they know far more about this than I do. On the subject of cording though apparently they can do physio to help.

The sun is meant to shine tomorrow so enjoy!
Denise x

[Guest user]

Hi Denise, they too thought my lymphs would be clear but whilst under they did they sentinal node biopsy thing and 3 were cancereous. I am oestrogen positive but not herceptin positive. I have to start tamoxifen at end of August after I have last (no6) chemo. Unless the CT changes anything of course. Other people on this site seem so much more knowledgeable about the disease and their own situations. I worry I dont ask enough questions etc when I meet the oncologist but ultimately we are in their hands I guess. The vein in the crook of my elbow where the CT injection went is now raised and very tight - think thats called cording but not sure what it means - will ring my BC nurse on Monday to check. My younger sis did a massage on it for me today - it was really painful ! Will keep massaging it til Thursday as I dont want anything to delay chemo.
Do you know yet if you are to have any chemo or radiotherapy?? Enjoy rest of weekend, love xdebbiex

[Guest user]

Debbie
I have to say I spent ages on the computer and eventually my BCN and surgeon told me not to google stuff as it would sent me nuts and didnt necessarily apply to me. ( And to be fair they were right, but its a bit like an addiction really!!)

I am in Aylsham, but know NW well I went to school there ( a while ago now!) my husbands family has a business there too.

Must admit I am very nervous about the bone scan and cant believe the timescale difference I have been told to the time you waited for your results.. but in terms of the CT scan that was NHS so results should be available within a similar timescale. It used to be the thought of chemo that scared the life out of me now its the scan results leading up to it and the wait until after second surgery to actually get it done.

Am having a bit of a wobble today - have had really stiff neck since I had clearance and its come back everything is sinister to me at the moment. Will probably be googling furiously by about 3 o clock. Were you node positive? as that is what shocked the hell out of me as they thought it was caught earlyish and nodes looked clear. BC - It never fails to surprise us does it, but that is what has led to the scans now - but you seem to be well into your chemo already. No sun here either looks like it might rain too! Joy
Denise x

[Guest user]

Hi Denise, thanks for that info - i will check to see if results are in when I go for chemo no4 on Thursday. I too worry about everything. Have been sitting on computer this morning checking out more on secondaries and now feel less positive. Have to remember what gp and onc said about them and get back on track. Cant find any info on 'hard' or collapsed veins due to the chemo - going to massage arm for next few days - worried that they wont be able to get it in me next week.

I am in N Walsham Denise, what about you - as you were in Cromer are you close by??? Enjoy the misty weekend - well thats what its like here this morning! Byeeee xdebbiex

[Guest user]

Hi Debbie
I had my ct scan on Sunday and my BCN phoned me with the result on Thursday afternoon. I think that may be due to the fact that my surgeon is going on holiday for two weeks and they suspect I may well be a basket case she did say that he had given permission for her do so. I was told I would have to wait six weeks for a bone scan and I just couldnt wait so I have booked a private scan at the N&N they did say that the results would take between 3&4 days. I also have a sore spot at the base of my ribs which only started after my op. I have asked for another one of the consultants to give me the results while he is away and they have agreed. I am convinced though that I could conjure up any symptom I wished and truly believe it, but I dont ignore anything now. Just got back from Cromer where it is truly freezing!!!
Denise x

[Guest user]

Hi girls,

Sue - enjoy your hols guessing its only a couple of days cos of chemo next week - should be fun, relax and push all bad thoughts away.

Denise - how long did the CT results take - I cant stop worrying about mine - the bone scan results took a month !!!

Suz, glad to hear from ya and that you are recovering well - what date is the july pampering session?? I havent been contacted so I guess I aint on that list LOL - if I do get a call I will let you know cos it would be nice to meet up - Sue suggested a get together anyway- once school breaks up it would be easier for me - how does everyone feel about that - we could make it somewhere in Norwich I guess. Denise that includes you too xx

Lets all report back here and only if you feel like it xdebbiex

[Guest user]

Hi Debbie/Sue
Hope you'e both okay and looking forward to weekend - Enjoy Butlins Sue - i's sure you'll have a fab time.
Am feeling loads better now even though my hand looks like its been attacked by a vampire!! But am so relieved it didn't go black.
No different side effects this time so far which is good. Have been taking daily injections to stop blook count disapearing and hubbie has been doing them rather than the district nurse coming in. Antiobics next week then the week b4 chemo 3 no drugs whatsoever!!
Had my nails done today and going to Loch Fyne for dinner tonight so am looking forward to that.
Debbie - when will you find out the results of the CT scan do you know? And hope you both get on okay on Thursday.
Are either of you going to the next Feel Good Look Better session at the Big C centre in July as i'm booked in on that one?
Enjoy the weekend.
Suz xx

[Guest user]

Sorry hope I didnt offend you? Would cheerfully eat my way through a box if it would make me happier! Just one of those irritating people that doesnt like chocolate. Enjoy your weekend it looks like the weather is going to oblige!!
x

[Guest user]

Denise i was doing slimming world till diagnosis and has lost 16 pounds. Ive only put 3 back on and i can still cheat and be happier given the shite i am going through at the moment!

xx

[Guest user]

Have a lovely time - am hoping in that case that the sun has gone North for you!!!! Have considered taking up chocolate but I dont really like it that much ...now a lovely glass of Pimms if the sun comes out who knows!
Denise

[Guest user]

Just eaten a lovely wispa bar and thought id post before i finish my very good book!
Denise some good news is all it takes to brighten up your day! My lymph nodes were all clear which was great then they told me i still needed 8 cycles of FEC! Not so great!
Debbie see you thursday i guess?!!
Suz hope you surving the SE.

I am packig and off to Butlins at 5pm! Wish me luck!

S

[Guest user]

Hi to you both - have just had news that ct scan was clear so at last feel that I have had some positive feedback. Hope that yours is the same Debbie. Wasnt expecting to be presented with a jug of wallpaper paste to drink first either though!! Mind you to be fair none of ever expected to have deal with any of this I guess. I have a friend who has just finished her chemo and she is very encouraging and although part of me wants to get it started the thought of it makes me feel just like you Sue. So have taken the plunge and had lots of hair cut off - but for me its back for the surgery first.
And wheres the sun gone !!!
Denise

[Guest user]

debbie glad scan over! Good job you read letter!
Chemo at 1030- will be in at same time. Ill be the sobbing mess crying that i dont want it-i really really dont-so try not to stare!
Not been on site too much as getting heebie jeebies.

Suz- hope you are ok and your arm isnt too sore.

[Guest user]

Hi Denise, we are quite a little group, so sorry you have to be part of it but you are very welcome - its good to speak to others - we all have the same fears. And you will find out just how strong you are believe me - basically we have no choice but to fight as we all have youngsters etc and it is VERY treatable so dont lose hope xx

Had CT scan tonight. Was about to have a quick shower before leaving to get there for 6pm, looked at letter and noticed you have to arrive an hour earlier to drink liquid etc - so mad dash up to N&N - traffic horrendous but was only 5 mins late - phew. it was ok apart from being told veins in chemo arm are going hard - YUK - hope they can get the chemo into me next Thursday . Sue what time is your appt - sounds like we are same day - I am there at 11am. It comes round soooo fast but that aint a bad thing.

Hope you are doing ok Suz, keep us informed.

Oh Sue, a lady called Mumzy on the link "anyone starting chemo in may" was asking where you were and if you were ok - told her you were ok and would let you know she was worried about you xx

xdebbiex

[Guest user]

Oh denise you are more than welcome on here.

Sounds like you are going through a hideous time surgery wise. I am so glad mine was straight forward.I start chemo a week today. Feel totally distressed about everything cancer related at the mo. Struggling to remain positive all the time whilst chemo looms but I just ate a huge chocolate icecream and feel slightly happier!

Sucks huh?

X

[Guest user]

Would you girls mind if I joined your thread. i am from Norfolk and have 3 children and and a very undersanding husband, i was dx in early may have already had therapeutic mammoplasty and was scheduled for rads. During the op they tested my sentinel node which was positive and had axilliary node clearance which was 4/23 positive. Also found out that lump was twice the size they originally thought. Have had CT scan and awaiting bone scan - every twinge and ache is of course something hideous now. Always thought i was quite strong - am finding out I am no where near as resilient as I thought. In addition to this now have to have further surgery to remove all tissue on one side and replacement with implant - being treated at the NN and live quite close to most of you. I have only just found the courage to post and still have huge difficulty dealing with all this, now expecting chemo too as node positive. Sorry bit of an essay to start with!!
Denise

[Guest user]

Good luck with scan today debbie. Try and quiz them when they do it!!

Ive had blood tests as getting terrible achey hip pain. Sure its nothing but hey nothing would surprise me now!!!

Suz hope you are bearing up too.

Lots love
sue
xx

[Guest user]

So sorry to hear that Suz. Sounds a bloody nightmare. Read about that on the internet but didnt think it happened very often..
Debbie glad you and new wig are bonding!

S

[Guest user]

Dear Suz, you poor thing - I asked them why they syringe the FEC into you whilst other patience are on a drip and the nurse said its cos its so toxic it can cause burns etc if it leaks. Was it something they did wrong ? what have you been told ?? It sounds very distressing for you. Glad its been sorted, take it easy and rest - at least they will be EXTRA EXTRA careful with you next time. Lots of love to you, xDebbiex

[Guest user]

hi girls
i type this 1 handed so apologise for spelling, as chemo number 2 was a complete disaster and i had 2 stay in h9osp last night!!
Some of the red chemo leaked into my hand and t5he plastic surgen had 2 comev and flush my hand out vwhich wasd v nasty. the skin on my haqnd could hyave turned bloack and died an d would have needed a skin graft but luckily that didn't happen. Just got it strapped up and in ab sling.
Heresv hoping chemo 3 goes ok as 1 and 2 have not been good with number 1 making me netropenic!!
Going 2 rest so speka soon. Hope u r both ok.
Suz xx

[Guest user]

Hi girls, hope you all had a good day. Bit knackered today but I am getting up a bit earlier to take the bone tablet cos you cant eat or drink anything for half hour and have to be upright. I was hanging washing out at 6.15am this morning ! Loads of people liked the new shorter wig and I felt more confident in it - its a tighter fit so I dont think this will blow off in the wind LOL.Think I might have an early night, speak soon, love xdebbiex

[Guest user]

Suz i hope the shave has liberated you! I bought clippers off ebay and they have arrived so i am prepared. I had some lovely rose wine too...and a stack of profiterols! Mmmmm

Debbie- yeah its shorter at the back. Called Tori Razberry ice- sounds delicious! Its been a big hit with my mates but not so with evie. Shes better today with it but doewsnt like touching it! bless.

Nearly baby bedtime here so its all grumpy tantrums...count down till 7pm when it will be our time with a M and S £10 meal deal! Yeay.

Take care ladies. We may have to meet up do you think? Maybe nice for a cuppa.

Lots love
S

[Guest user]

hi girls - now I can see us both in pictures Sue, I think mine is a little longer - does yours go up slightly at the back??

Suz, you will feel better now its all gone, I am sure. I am at the stage of whipping the wig off to show my bald head off (only to a selected few) and not worrying too much - did scare my 11yr old niece tho, thought she was gonna cry bless her.

Had a busy weekend with friends but all quiet again now - think the wine is coming out...........................

[Guest user]

Hi!
Happy girl again - hair now all shaved off!! So much happier as its now all gone - so much for the cold cap - think it didn't work as my hair was so thick and probably couldn't get through. At least now my chemo sessions will be quicker!

Have large glass or Rose in my hand, a lovely scarf on my head and lookin forward to a lovely chilli for my tea!

Enjoy rest of weekend girls and speak after next chemo session and then only 4 more to go.

lol
Suz xx

[Guest user]

AHHH Suz thats so sad. Shave it off then you can start afresh with scarves and wigs. We will all be there. Debbie has already gone through it and has two fab wigs.
Cant say much more can I?

Have a nice drinkies tonight. I plan to.

Sue
xxxx

[Guest user]

Hi Sue & Debbie,
Snap!!! Think my wig is the same too so we're all going to look fantastic!!
Oh i've had an awful morning and am quite upset. I know my hair had been coming out and was handeling it, but washed it this morning and it has ended up in a big matted mess!! OMG! Hubbie was out at the time so got myself into a bit of a state as didn't know what to do. I rang my hairdresser and shes coming round to my house after she finishes work today to shave it all off - i don't even think she can cut it as it seems so matted. God knows how that happened, but i was so upset. At least it won't be able to fall out anymore i suppose and can then wear my wig and scarves, but don't know if i'll venture out of the house today.
Fed up and miserable 😞

x