I had my first cycle of FEC 4 weeks ago but as my side effects were so bad my cycle last week was postponed while I had some heart monitoring tests.
I had cycle 2 yesterday and the consultant has changed my treatment to just EC. He explained that there is no evidence to show that EC is less effective than FEC and that some hospitals use one and some the other. But I can't help but wonder why they would add the 'F' if it didn't improve treatment.
It's too early to know whether I'll feel better this cycle but with the FEC I was down and out for 9-10 days with two A&E visits.
Look forward to hearing from any fellow EC-ers!
Im happy to hear you've finally finished with chemotherapy Carmen. Ive shed an an awful lot of tears since chemo finished and for me it has been about catching up with what has happened over the last few months as like most women, everything happened very quickly for me.
It's 8 weeks since my last EC and things feel better/clearer now so hang in there hun.
The cumulative tiredness does seem to have caught up with us all. I think we just have to give in and rest as it's the body's way of telling us to s l o w down. Like you, Im very impatient to get back on with life but we need to heal first. I spoke to my BCN yesterday and she reminded me, yet again, to think about the onslaught of surgery/toxic drugs not to mention the emotional stress and that our bodies are still adjusting and mending.
Hopalong, you sound very busy and well done for going swimming. Ive not managed to go just yet. Planning to tag along with hubby and our boys next week but will make sure the old prossy secure. You made me laugh when I read about your saga. I can imagine mine floating away....... and if it does I will ignore it!! ha ha.....
How are are you getting on with the hormone tabs? .... Im on my 2nd pack and have had a bit of joint pain and mild hot flushes but fine otherwise.
Im hoping when I get back to an exercise routine i will see off any aches and pains. Its not gunna beat me!
Ive decided it's time for me to go back to work so Im going in next week to discuss a phased return.
Yikes Ive been off almost 8 months. Its gunna feel very strange but yeah it's time and that feels good.
Have a fun weekend xxx
Hi Hopalong, I'm glad you got signed off work for another two months, it'll give you a good amount of time to really start to recover and I'm sure the GP will extend that if needed.
Kids are on half term next week and this is the first holiday since diagnosis that I'll have to look after them solo. Hubby was off work for all the others. Pretty sure I'll be falling asleep on the sofa at the end of each day!
Had a quiet morning as older boy was on a Scouting overnight activity last night so he went back to bed when he got home and we went into Chester in the afternoon.
Have a lovely relaxing rest of the weekend everyone... still hoping for BBQ weather on Monday!
Managed to get in touch with a GP and have another sick note for 2 months, GP was happy to give me a longer one.
Have spent the day resting after my exertions yesterday, No plans for my bank holiday will play it by ear. I know I have a bit of garden maintenence to do and M&S has donated my weekend meals.
Hope we all manage a good weekend x
I don't envy you both the decision of when to go back to work. I think it's important not to rush back, especially if you have stressful jobs. Prior to diagnosis I was half heartedly looking for a job having been a stay at home mum for many years now but I think that any desire I had to rejoin the world of work has left me now!
I went to the cinema with my Mum last week and had a lot of mini sleeps throughout the film. Although, for me, that was quite normal prior to "all this"!
I've had a busy day today, I went for a two hour walk, then met up with a new friend that I met on the Younger Women facebook site and chatted for three hours, then this evening went to the forest to try out my new bow on the archery range. Hubby bought me a new bow as a post chemo present (which he let me have early). Tomorrow I'm meeting with another friend whose daughter has just changed schools and is in the same class as my older boy.
My face is still bright red and my hands quite sore, I'm seeing the oncologist next Thursday and BCN thinks he'll reduce the dose of my final(!!!) chemo... feels good to say that 😉
Have a lovely bank holiday weekend, let's hope for BBQ weather!
As predicted I fell asleep but just managed micro ones, only 1 point I had to lean over and ask what was happening, went to see the Spooks film.
Had a nice coffee with my chemo buddy.
No lie in for me tomorrow as have to get up early to try and get into GP this will be the fith day of trying, at 8.15am i was number35 in the telephone queue to eventually get through and find no appointments.
Carmen hope your hands are better get in touch when you can
Take care xx
just put the washing out, lots and lots of it as the sun a out and it's lovely out there. Then PING!!!! the washing line snapped....oh noooooooo ...... aghhhhhhh!!!!
Hopalong, think the tiredness is quite normal. It comes over me like a blanket suddenly and I NEED to sit down for a while but it does pass quickly.
I agree with you both about the support available for us in terms of alternative treatments. Yes really helps.
Although, Ive nothing planned for this week, must get something booked for next week.
Maybe a Nordic Walk. Think that could be quite funny with lots of people with in the centre of Leeds?
Carmen sorry to hear your suffering again, it sounds just horrible. I hope your starting to feel better and have been able to get out and about with your friends.
Seeing friends is soooo important. Mine have been just amazing throughout....
Not managed a swim yet this week as decided to decorate my sons bedroom instead as he away on holiday.
Probably taken on too much .... but Ive got till Saturday to finish.
Just having a much needed tea and cake break ......phew!
Ive roped in a friend for my first swim session as Im feeling very self conscious just now.
Not like me at all but guess under the circumstances no surprise.
Hopalong have you got plans to return to work yet. Im thinking of going back mid June on a phased return.
Everyone tells me it's too soon but I think it's time for me. Im just little worried about the tiredness but that could go on for months.....
Caroline you've got Nordic Walking it's supposed to be kind to the joints. Mine are still protesting.
I popped in to work today stopped about 15mins to say hello and to put some money into peoples collections.
Still feeling tired and am starting to bore myself now with moaning.
No bakery products for me over the weekend, went out on Saturday but all teashops full and spent Sunday recovering from Saturday and as weather not good stayed in and watched TV.
Hope everyone has a good week I've just got 1 appointment so far in my diary but just had a phonecall from Physio about my NHS acupuncture and need to see GP this week for a sicknote extension.
Take care x
Is Nordic walking the one where you have a pole in each hand ..... bit like skiing but without the skis? Am sure my local Haven do some sessions maybe I will join .....
I exchanged the swimsuit at the Sarah Jane shop and Ive got a really nice one. So now will have to summon up the courage to take my new body for a swim next week. eeek where did my confidence go .......
Hopalong, I will have a look at the Asda swimwear but Im tall and probably wont be long enough but sounds like a great price. The one I got today was £40 but I must admit Ive spent more on bikinis in the past.
You did right to have a food treat today but hope you can get the nausea checked out as sounds like your suffering with it.
Dropped my son and his girlfriend off at the airport this afternoon. Its his first time abroad without mum and dad ........ yikes ....... but they full of confidence and have arrived safely. phew!
Carmen ...... hang in there. Your almost done.
Hope are the side effects are being kind and you coping & getting some sleep. Bet you can't wait to get the picc line out. Just one more then it will be gone. You will be thrashing up and down the pool before you know it!
The swimsuit I ordered has arrived but its going back as not great fit Im just not sure what size I am any more lol..... Think I need to have a trip to Nicola Jane tomorrow to choose a different one.
Thanks for telling me about the blog. I will have a look. My surgeon told me that I can make an appointment to discuss recon further and have a look at some pics before I make my mind up. So this is what I plan to do.
Went for a 2 hour walk yesterday in the sunshine.... I Iove the sound of your trekking pole.....but its rubbish you feel so wobbly. I felt very unsteady on EC but it's passed. Still fancy a pole though.
I've guess ive taken the views around where I live for granted until yesterday. Think BC has made me appreciate things much more of late.
Also got my sense of smell back & just little things like the smell of clean sheets or when hubby or the boys come inside the house bringing that smell of fresh air. Everything smells just lovely.....
Omg feel like I've been numb for so long.
Think I probably walked bit too far as been tired today but still went to Haven for aromatherapy massage which was sheer bliss ...... I floated home.
Hoping everyone else out ther is doing ok.
lots of Love xxxxxx
Well that's number 5 under your belt. Really hope you ok this time, think you deserve a break!
I got the results of my bloods test yesterday and everything is fine apart from vitamin D which is a tiny bit low but think most folks is till the summer kicks in. A supplement will top me up and of course some sun sunshine would be a better way to boost the levels.
My iron stores are high so carn't blame them for the tiredness so suppose it is the cumulative effect of the chemo that has caught up with me. Anyway, I've got another month to shake it off. Fingers crossed.
Oh & Ive just ordered a mx tankini (and swim prosthsis) as need to restart exercising. Also found a daytime pilates class. Exercise has always been a big part of my life and pre BC always made me feel energised and its about time I got back to it. Hoping it will help me to gain some strength.... either that or I'll sleep for days ha ha....
Had my follow up appointment with the surgeon today and we discussed reconstruction. Back in Oct when I had my mastectomy I couldn't even consider it as needed to get the chemo etc out of the way as quickly as possible. For me back then a recon would have meant 6 months healing before I would have been able to start chemotherapy.
But, now Im wondering if I might just have it done. Maybe next year as will need a bit of planning. I will have to have the one where there take tissue from the tummy area and relocate it upwards. Sounds like I'll get a tummy tuck into the bargain. Ha ha ........ but seriously I am considering it as struggling with prosthesis and bras and what to wear/do I look even/has the prosthesis slipped etc etc.....
Im 10 days into taking hormone tabs and noticing slight hot flushes and a little joint plain. With this I can cope.
Hopalong, how are you getting along with hormone tabs?
Hope everyone else doing ok.
Lots of Love xxx
Carmen the acupuncture has helped with the flushes but am still struggling with night sweats. Joints still achey but trying to push through.
Good luck with Number 5 tomorrow, hoping it will be easier for you.
On a positive I went out yesterday with my friends and after lunch 5 cocktails & 2 vodkas I didn't feel drunk and have no hangover today so perhaps chemo increases your alcohol sensitivities, and here I was thinking I'd be a lightweight after not drinking for 8 months.
I also feel that yesterday helped me to draw a line through my cancer and although I know it will always be with me as this is my 2nd brush I feel I can now say I had cancer. I'm still stuggling physicaly and emotionaly but now have more good days than bad days.
For all you ladies reading it does get easier, keep going xx
Hi, Carmen glad the drugs are working for you, Waiting it is good to talk. I know it helps me. I've found my hospice sessions more useful than the Haven sessions but still glad I have had the opportunity to go. My free sessions have now come to an end. I may go to some of the group sessions but am now trying to get a new "normal" routine. My next oncology appointment isn't untill June so want to make the most of my time before I go back to work and the hopefuly better weather by doing nice things.
I watched the C word with pleanty of wine and tissues but didn't cry as much as I thought I would. I needed to watch it in order again to move on. I found it cathartic. I thougth it was very acurrate and certainly made me feel more normal when experiencing certain aspects of the bull**bleep** treatment. My mum watched and when I saw her the day after she said I enjoyed it but I think they could have put more detail in.
Getting between 10 & 15 sweats/flushes during the day and waking aprox twice a night with the heat/damp but am falling asleep again quickly. The fatigue is still an issue but am now ok untill about 5pm and then it hits rather than 1pm.
I'm waiting for a contact prosthesis it was ordered 3 weeks ago so should be hear soon.
Am out on Saturday for an afternoon drinking session with my friends the first time we have all got together since my pre chemo meal. So am looking forward to that.
Take care all x
Glad my eldest is only 13 and is never going out drinking until the early hours... at least not for a few years anyway!
Yes, I agree the programme will have done a lot to raise awareness and hopefully raised loads of money to research a cure for this. I know a lot of people with BC watched it, it just doesn't take a lot to get my mind focused on the negative and thankfully my mum didn't watch as she worries enough as it is.
Weird about the flashbacks, but it's a pretty traumatic time, so I guess not that surprising. I do feel that I'm approaching the finishing line especially as I've started herceptin now so less than a year to go until treatment finishes! Well, apart from tamoxifen of course.
Have a good week xx
The end of chemo is in sight for you at last. Just two to go.........I will keep everything crossed that things remain on track for you.
Weirdly I keep getting flash backs of the taste and smell of the drugs and the strange sensation in the sinuses when the drugs given. Yuck.
I dont blame you for not watching the programme I must admit that I was in two minds. It's been on my mind a lot today in fact, I woke up thinking about her. With hindsight, I probably wouldn't have watched it. Although, I do think it's a good idea to raise awareness about BC.
Good to hear your sleeping a little better. Getting through the treatment is hard enough and not sleeping can make it harder to cope.
I was laying awake for a different reason last night as my oldest boy was out bank holiday drinking with his friends. Omg he didn't come in till 4am and I couldn't settle till he tucked up in bed.
He up this am fresh as a daisy ....... oh the joy of youth!
Got another session booked at Haven on Thursday and we have a new baby in the family so looking forward to shopping for him and visiting on Wednesday.
Hope you all have a good week. Lots of Love xxx
Morning all, busy start to the week for me with the ball and birthday celebrations. Had a lovely time with friends and family. I had seafood pasta for my birthday meal which came with a huge prawn on top, and it was gorgeous. I even managed a pudding and wine.
It was a day spent at the hospice the day after my birthday and took a big cake in and painted a picture. The rest of the week I've tried to rest did a walk with a walking group on Thursday just an hour but went too far. Still getting joint pains 2 packs of tamoxifen on. Will give it another 1 then see about changing brands.
Hope everyone else is ok the thread seems to have gone quiet, Take care all x
Glad you are not so nauseous, hope any other side effects are kind. Still strugguling with tiredness dont know whether I could say its fatigue just an overwelming need for sleep every afternoon xx