Hoping you all feeling as well as can be expected.
Hopalong .. Had a trip to Lush and couldn't smell very much but did buy a shampoo bar. I so hope my sense of smell returns fully when Im done with EC.
Sounds like your taking full advantage of the Haven. Raiki lovely and glad its working for you but dont know anything about shaitsu. Acupuncture helped me to deal with hot flushes which were a problem during radiotherapy hope works for you too.
I went to The Haven on Tuesday and the women I saw was very supportive and completely understood how Im feeling just now. She gave me lots of good advice and Ive got a treatment plan so will keep you posted.
Carmen ... Hope you feel ok and resting after number 3.
Nightmare you being there so long though. My hospital is just the same, it's horrible enough without having to be here so long. The poor nurses are just lovely but they are run off their feet. I also get the sinus pain .. yuk!
Anyway, thats number 3 ticked off...
Oh and good luck with the job application!
Ros ... welcome to our little group of EC warriors. I started chemo 2 weeks after I signed on the dotted line. I dont think all hospitals are the same though but lots of luck.
Janice ... Sorry to hear steroids kept you awake Friday. I try not to take mine after 5pm for the same reason.
As far as I am aware the steriods are to help with the sickness and also to give our bodies some umph to cope with the chemo drugs. My nurse told me that they aim to keep the body calm for the first three days following treatment. Not a very scientific explanation I know but hope it helps....
As for me .... I was due my 6th and final chemo tomorrow but saw Oncologist today and it's been delayed a week and I cannot tell you what a relief it is beacuse Im soooo warn down and need a break. She also told me (as did the women I saw at Haven on Tuesday) not to expect to ping back to normal when chemo finished as may take a quite a while to recovery.
Good advice I think as many folk around me are expecting just that.
Anyway Im looking forward to my extra recovery week and hoping to get out and about as much as possible ,
My youngest delighted mum wont be in bed for at least one week of the Easter break. Me too!
Take Care everyone.
Lots of Love xx
Anyone had problems with the steroids we have to take for 3 days, had my chemo Thursday, awake all night Friday,had terrible weekend. Why do we have to take them? Going to ask.
Well I'm going to be joining the "EC gang". I see my oncologist next Tuesday to sign consent forms and set dates etc ... how long after agreeing to this have you had to wait before the first session? Is it the standard 10+ days ...
It's is tiring to be there so long and to be honest it's one of the reasons I didn't continue with cold cap, I just wanted to streamline my treatment.
Glad you enjoyed the reiki, my friend is trained as an holistic therapist and I was her case study for reiki, very nice indeed. Love your laminated card idea, I hope it gets you lots of free samples and special treatment!
I'm so glad I spent so long on my job application the night before chemo, I'd planned to read it through today and print it out but I just haven't had the energy. Will have to do it tomorrow, however bad I'm feeling... seemed like such a good idea at the weekend and now I feel like I can't be bothered! I know it's the chemo talking, I will send it off - no matter what!
Take care xx
Glad things went ok Carmen, I had my chemo in a busy unit and that combined with using the cold cap made chemo days very tiring indeed. I would be booked in for 10.30 but not get my chemo started until 1 sometimes, and I'm sure this didn't help with the fatigue on the next day.
I've been to the hospice today and had a reiki session, it really does relax me. I then put the finishing touches to a plan I had hatched yesterday but needed a laminator, and help from the art therapist.
My friend during our trip out at the weekend mentioned that she had used my situation as an excuse to absent herself from something, this is the 2nd time she has done this and also with regards to getting freebies/samples etc for myself. I made my own cancer card. One side says Breast cancer messed with the wrong girl and a pink ribbon. The other side says I'm a chemo survivor. I made it slightly larger than supermarket keyfob size, laminated it and then punched a hole in it and attached it to my keys.
Waiting hope things went ok today at the Haven, and you have a plan in place to help you emotionaly. I'm there again on Thursday for shiatsu and will soon be trying a couple of sessions of acupuncture for my hot flushes.
Take care everyone x
OMG I've just been on the Lush website and I need to raid my savings to buy everything as it all sounds so gorgeous! It's not a shop I ever go in because it smells too much even walking past! (Very sensitive sense of smell)!
I've had such a wonderful weekend, we've done loads of lovely stuff as a family and its just been great to feel so fab and have such beautiful sunshine and the best thing is that I haven't had any racing heart episodes since starting the medication yesterday morning! My PICC arm has been gradually improving all week, I've been gently stretching it and using ibuprofen gel as well, it's only a tiny bit sore now and it was great to get to the forest again for archery 🙂
I had a great natter with my friend this morning, she finished chemo in August and she has so much hair!!! And she's had it cut twice... mine looks like fluffy new born hair, although not quite bad enough for me to shave it off yet! But she's feeling positive and getting on with her life 🙂
So, Caroline, will you have a bonus good week (as I like to refer to them) next week? I totally understand you wanting to feel good for part of the Easter hols, my no 4 is likely to be in the middle of the hols 😞 Hope the oncologist agrees with you.
Booked to go to Whinfell... Just wanted/needed something to look forward to that wasn't going to need huge planning or be stressful, Center Parcs fitted the bill!
Yikes, chemo tomorrow, but I'm ready for it, so bring it on!!!
Speak soon guys xx 🙂
Enjoying the sunshine and the first signs of Spring. Think a little gardening on the cards & a bit of air the the head may encourage re growth..... here's hoping!
Jan..... am sorry to hear your story. It sound like youve truly been through the mill. I agree stress is a contributing factor for some of us and it really doesnt help in recovery either.
This is my second episode of BC and I have to say both diagnosis followed a particularly stressful periods in my life. I am hoping that the EC treatment helps you in way that the other chemos hasn't Jan. Good Luck x
Hopalong ... I will be having a trip to Lush on Tuesday to buy get a shampoo bar. Anything to encourage the re growth. Hope you had a nice evening with friends and managed a couple of wines.
Im really missing a glass of good red wine but wont be long now .....
Carmen ... Its surprises me just how many women are effected by BC. Worriers each and every one!!
. Its good to know that an extra week has energised you so much .... im impressed that you managed archery with your PICC arm being sore last week. What a difference a week makes eh.... Ive decided to definitely delay a week as neeed a break and hoping will give me the umph I so need to get to the finishing post Oh & will feel ok for at least one of the two weeks of the Easter holidays as Ive been in bed for every school holiday since October. So will be lovely to get out and about with my family.
Great youve booked a Centre Parcs break. Something to look forward to. We love Centre Parcs too and been lots over the years. Which one are you going to?
Enjoy your Sunday everyone and hope tomorrow goes ok Carmen.
Lots of Love xxxx
I was actually first diagnosed in 1986 and after lumpectamy and rads it didn't rear its ugly head again for 20 years. Then after a stressfull year with my daughter having hogkins lymphoma it came back in 2005,my treatment then was mastectomy with immediate reconstruction followed by hormone therapy, still no chemo.
It was in 2009 after I had cause to be concerned about a lump under my arm, took months and months to be taken seriously even with my track record that eventually a couple of swollen lymph nodes were removed and proved to be cancerous.
Its from there that I was told it couldn't be cured and hence so many chemos.
I am having 6 cycles or that's the plan,but we all know they don't always work,I will let you know about the cold cap if I carry on with it.
Had my first cycle of ec yesterday so not feeling great. I am trying the cold cap called paxman but have been told to expect hair loss, I will see how much then decide whether to carry on with it,takes so long,30 minutes before treatment,one hour for treatment then has to stay on for 2 hours after.
My cancer cannot be cured just controlled and have been having oral chemos over the past 4 years, one of which was capitabine which has the f element of FEC in it so that's why I'm on ec.
Hope youve had a good day.
It's been glorious here today, spring is definitely in the air. This time of year always lifts me and hope does the same for you.
Think I may have overdone the walking yesterday as feeling completely shattered today and content to be at home planning a bit of re decorating. So been surfing for soft furnishing and it took my mind off feeling rubbish for a bit.
Carmen hope your appointment goes well tomorrow. I will be thinking of you.
Lots of Love xx
Another control freak here... I can't stand things not going to plan... and this treatment is certainly not going to plan!
Hopalong - Hope the massage helps with your pain, I've read about cording and it sounds nasty. Yes, I've seen the GP programme, the people on that make me seem normal too! Your charm bracelet sounds fab, I love the idea of engraving the dates on it. Can't wait til I've finished chemo... very jealous of you 😉
Caroline - I'm sure talking at the Haven will help you immensely, at the Maggie's Centre, next to the cancer hospital, there is a psychologist (amongst other things) and I'm considering booking in to talk to him/her next time I'm there. Glad you had a good day out, it's great to talk to friends 🙂
I went into Chester with my Mum and although we didn't have cake we did have lunch out which was great.
Enjoy the sunshine while it lasts!!!
ps we are most definitely having cake tomorrow 😉
I know what you mean about feeling out of control. We have to totally trust those caring for us and I find that very hard sometimes. I cope by asking loads of questions but like you I like to be in control.
Hope the massage helped with your pain today and its good to hear that you are feeling emotionally stronger. Ive got my first appointment with The Haven (Leeds) next Tuesday and Im looking forward to talking this over with the women Im booked in with.
Im loving the idea of your charm bracelet. Wear it with pride hopalong you deserve a standing ovation for getting through chemotherapy.
How are you getting on with the tamoxifen?
Not seen the GP programmes on channel 4 but will look out for it.
Ive been out walking today in the sunshine with an old friend. Im feeling like Ive had a counselling session, carnt beat a good old natter with old close friends......
We also stopped off for tea and of course compulsory recovery cake. Im allowing myself a little more than usual as I eat so little following chemo sessions. Telling myself I deserve the treat especially as my taste/smell is on its way back.
Carmen hope youve had a nice day with your mum xx
Lots of Love xx
Hopalong - not easy being a patient patient though is it?! 😉
Enjoy your time at the haven, I hope you find it helpful.
Yes Caroline, I agree BCNs are angels. I can't imagine doing their job and having to deal with distraught, stressed, anxious etc people all day long... although sometimes I actually behave like a normal human being when speaking to mine instead of a gibbering wreck, not often though!
Glad your tooth has been patched up and I'm sure you'll have a lovely time with your friend tomorrow. I'm trying to think where I should take my Mum, but you can guarantee it will involve cake!
Sorry your both struggling it is a hard slog, I'm sure a week breathing space will help. and try not to be too disappointed with your cardio delay, its at times like this when we realise why we are called patients.
I'm off to the Haven on Thursday so that will be nice. Take care all xx
Heck... what I ment to say was hope you feeling better and my mum visits on my good dayS not day as I do of course have more than one. haha ....... chemo brain not contacted to dyslexic fingers.
Oh dear....... sorry youve had such an upsetting day.This is such an emotion ride. I am certain that everyone you met today will totally, totally empathise with you hunny. It takes such courage to drag ourselves for our treatment every 3 weeks knowing that we likely to be floored for weeks. I can only imagine how upset you are Carmen but I hope that your feeling a little now that youve got a cardio appointment on Friday.
I hope you get some clarity.
Your team have definitely made the right decision about not giving any more chemo until they are absolutely sure about the cardio situation. It's just a pity they didnt contact you sooner but hay...........
It's nice that youve got your mum to lean on this week. Im sure she will be happy to see you on a good week and as you say have some flipping fun ...... you deserve it! .....
(mmmm.....my mum gets very upset on my bad days so she visits on my good day only .... that works for me)
As for me..... well Ive had a little melt down today but my BCN sorted me out yet again. She arranged appointment with my Onc for next Wednesday to discuss delaying my final EC.
Im struggling to recover from number 5 and feel I need a break. It would be so nice to feel well over Easter hols instead of mum in bed yet again..
Chin up Carmen and have a lovely few days with your family.
Lots of love xxxx
They did have a letter from cardio dept, which requested/advised the cardio referral. And yes, I was upset. Cried at everyone... the registrar and two nurses when they told me, then had to go back to the bay to get my line dressed so cried on two more nurses and a fellow BC patient who was on her first FEC - prob scared her to death with fears of heart complications! Then popped in to Maggie's Centre and cried on them too!
Feel bad for my Mum as she's come to stay this week to help with kids, cooking etc... 4hr drive from Somerset. We can have a fun week instead!
I know it's the best thing... they don't want to kill me off with chemo induced heart failure! But just want to get on with it as I'm doing ok, and coped pretty well with the last cycle.
Anyway, cardio dept phoned earlier and booked me in with consultant on Friday morning so should know then whether I can go ahead with chemo, or not... which would be totally unfair considering I've pretty much lost my hair now!!!
Thanks for your lovely words, I hope you're feeling loads better now and can start enjoying yourself again. Did you talk with the onc about postponing your last cycle?
Oh nooooo.....and what were we saying about the NHS the other day....what happened to the report?
You must have been really upset as we build ourselves upto the chemo for days dont we.........hoping you feeling a bit better now.
it is great that they making absolutely sure your 100% before they zap you again Carmen. I know you felt ready and of course want all the treatment out of the way as soon as possible but enjoy your bonus week of feeling well before the next.
Get yourself booked onto pilates and a massage or three.
Happy Mother's Day 🙂
Everyone has been much happier today, and we've had a good day!
Went out for all you can eat breakfast, then to church for a special Mother's Day service, watched the F1 (to keep no. 1 son happy), went for a walk and then my Mum arrived for a week long visit.
Although I can't help but think that's it for a week or so until I feel a bit recovered from the next onslaught of drugs!!! I'm disappointed that I didn't get to Pilates, but very impressed with myself going on 5 long walks during week 3... probably more energetic than Pilates anyway!
Ready for all tomorrow can throw at me... bring it on!
Hopalong.... I found Haven to a a great to support back in 2010. Glad youve found them too..
Carmen thanks for your support .
It sounds like your getting well looked after. Isn't our NHS amazing after watching the TV last night it made me realise how lucky we are I carn't imagine living in a very poor county with BC ..... doesn't bear thinking about....
Im starting to feel a little better now but think Im going to ask my Ong to delay number 6 by a week as think I need more time to recovery this time.
Hope Monday goes ok and have a lovely day tomorrow.
Lots of Love xx
Good to hear from you Caroline. This whole situation is so hard, especially when the chemo makes you feel so rubbish, melt downs are allowed and pretty normal. I'm lucky(ish) in that I don't work so I don't have to think about that side of things. Well done for making that appointment, sometimes that's the hardest thing to do. I'm sure you'll get some good support there. I rely heavily on my BCN, poor love is probably fed up of me!
The cardio guys are taking good care of me, they said they'd send the report out yesterday so hoping the oncologist has it on Monday. I just have to keep a note of any episodes of rapid heart rate and ring them if I'm concerned. Trouble is I'm paranoid now and imagining my heart's doing weird things!
My arm is a lot better today, still a bit sore but at least I can straighten it now, thanks for the hot water bottle tip Hazel, I'll try that too. Will still mention it to nurses on Monday.
It's good we've got mother's day to look forward to and hope you feel good enough to enjoy a meal out.
Herewego a charm for each chemo session could work out very pricey for you!!! I got the idea from a friend who has had chemo and she treated herself to something after each session, she bought a pair of shoes, had a day learning how to make cup cakes, etc.
Carmen I would mention your pain as unless its new it shouldn't hurt and not to frighten you but you can get a blood clot in your PICC arm.
I found number 4 to be my worst fatigue wise, keep going xx