Hope you had a good weekend, or as good a weekend as you could post chemo! Our lounge gets loads of daytime sunshine too, I often feel like I'm a cat lying in the sun, it's great.
I had a lovely busy weekend, done so much walking around that my feet are sore! Probably walked more over these past three days than I have over the previous eleven. So pleased the nausea has gone and lovely to have my family around to keep me company. Terribly difficult decisions of which bandana to wear out each day!!! Didn't get to archery though as my PICC line arm is really sore, has been for a week now, but GP checked it out and couldn't see why. Went to the zoo instead 🙂
Take care xx
Thanks for your lovely supportive message, it was great to get out. It's been a beautiful day here and I completely tired myself out with an hour and a half walk up a hill! Think I overestimated my energy.
My BCN is lovely, she's very sympathetic to how I'm feeling but also makes me feel like I'm actually allowed to be feeling rubbish and that helps make me feel better! Whereas other people (my mum) end up making me feel bad that I've upset them by feeling bad! Was doing ok until the cardio nurse rang me, now really stressing at having to deal with heart problems as well as cancer treatment.
Next cycle (3) is Monday 16th, so I've got all next week to be me again, so I need to get a grip and not waste it wallowing in self pity! I have reflexology and meeting a friend for cake on Monday. Tuesday I'm going to Pilates. Wednesday hubby is working from home so he can take me to the hospital (for the heart scan) so we can have lunch out. Thursday either Pilates or Piloxing depending on how energetic I'm feeling. And no plans for Friday. Tomorrow we're going into Chester and Sunday we might go to archery (our family hobby)... see I have all these plans to get me back to being me just for a while!
I know these next few weeks will be rubbish for you, but then only one more to go and bye bye chemo. Like you say we will get through it. Thinking of you and those nasty se and hoping that maybe this time they won't be so bad for you.
Take care honey and let everyone look after you xx
My two love the Xbox as well, the older one is Forza mad (car racing) and the younger likes Skylanders. It's a good distraction for them, stops them worrying about me all the time!
Feeling completely fed up at the moment, like there's no end in sight... hoping a busy weekend with my family will help me out of this misery! Again it's such a lovely day outside... I will force myself to go out after this instead of moping about the house!
No, they don't routinely check heart but with 1st cycle I was at A&E twice with low bp, fainting and rapid heart rate, which is why they dropped the F of FEC. Still have palpitations with EC but nothing like how I was with FEC.
I know it's over a week until cycle 3 but I know what you mean about not being ready for it. And knowing that we'll feel more tired as it goes on really doesn't help. I really need to get a grip, was blubbing on the phone to BCN this morning while lying in bed listening to The Smiths, of all the depressing music in the world!
Ok, giving myself a kick up the backside now and going out for a walk before the boys get home... sorry for the misery! Hope you don't feel too bad today xx
Hope everything went well today and that you get some respite from the nasty se.
My nausea is lots better but feeling bored and lethargic today. I'm kid free until 5pm but have no drive to do anything, such a waste of a day!
I got a call from the cardio unit yesterday, they want to do an echocardiogram next week because my 48hr heart trace showed an episode of SVT (supra-ventricular tachycardia) in excess of 220bpm. I remember it happening at the time but didn't realize quite how fast my heart was beating! Think it was definitely a good thing that oncology changed me to EC.
Hope you're feeling ok xx
You must be sooo relieved to have finished the chemo .... whoop whoop! and well done for getting through it. Glad you've got nice things planned. Loving the idea of a charm bracelet. Hope you find something fabulous.
Ive just been for blood test in preparation for EC 5 tomorrow and been for a walk trying to shake off the fatigue. Now needed to sit down....lol.
Lovely sunny day here. Noticed snow drops in the garden. Heck amazing considering we had snow here on Monday xxx
You will love the Looking Good course I went after last treatment and it was great to meet other women in same situation. I picked up some nice make up tips and was given a couple of lovely freebies.
Im with you regarding the treats. We so need something to look forward to on our good days but especially when the chemo is over. I love the idea of your fire engine drive and the trip to London will be great for you and your family to look forward too......not to mention the cake x Im planning a pink party! (lots of cakes).
Hay Hopalong, Sorry your feeling grim today......hang on in there. I think it's best just to give in and sleep when your feeling rubbish. The nausea is just horrible. crystallized ginger has helped for me but cut into slithers as big chunks for me have the opposite effect.
Is that you done with EC? If it is Fantastic!
Iv noticed fatigue been much worse this cycle and has gone on for longer. Im due number 5 on Thursday all being well but Im sill feeling much more tired than usual. Presume it the cumulative effect?
Hope your feeling better soon and return to good health quickly.
Love Caroline xx
Carmen, you will enjoy your look good. I did mine just after cycle 3 and felt it was the perfect time as really needed a pick me up by that point.
I'm now day 16 from my final EC. Feeling abit sorry for myself today, have been struggling with fatigue since sunday but trying to battle on when really should just give in. Vomited last night, thankfully still have not removed my plastic bowls from lounge and bedroom, couldn't make it from bedroom to bathroom. Still in dressing gown. Am going to write today off.
I loose between 2 & 4kg in week 1 of each cycle due to nausea, and not being able to eat normal size portions. (think that was the problem last night) Just about manage to put it back on by the time the next cycle started, by loading up on empty calories. I started with thrush on cycle 3 and it has continued. My main problem though is dry mouth and it is that, that is causing me the most distress. My oncologist has given me biotene which does help, but hope it doesn't hang around too long now chemo is over.
Hope everyone else has a good day.
I was so down during cycle 1 when I was so fatigued that I could hardly get out of bed but I think I was very lucky to only have that. I feel for you having two weeks of what you've been suffering. Definitely make up for the lack of eating this week... as much cake as you like and then have more just in case!
I made a healthy start this morning and had porridge with banana and blueberries in the hope that it would keep me feeling fuller for longer than toast... I'm sure that'll be wishful thinking!
We didn't get any snow yesterday and today looks like a nice day. It feels good to be in March, psychologically it's a lot nearer to my end point in May!
Have a great day xx
Ha 57 cycles, that would be horrendous... bad enough to have 6!
Definitely make the most of this week, I am trying to do stuff already (week 2!).
The nausea is better but I still feel horribly sick when I'm hungry which unfortunately seems to be a lot of the time. I am eating like I'm pregnant with a whole football team! Today in addition to three decent sized meals I've had two lots of sandwiches, tortilla chips, minstrels, Welsh cakes (homemade yesterday for St David's Day) and more biscuits than I care to mention and there's still time to eat more before bed!!! No wonder I put on 3kg between cycles 1 and 2... I'm very conscious that I'm eating so much but I'm really genuinely so hungry!
But apart from eating, I had reflexology at the hospice today and the district nurses came to do their stuff with my PICC line. Tomorrow I'm meeting a friend at our village tea rooms - more eating required. Overall, EC is way better for me than FEC, the nausea is much worse, but I am actually able to get out and do things, even if it's only for an hour or so. Went to Subway for lunch yesterday and it wiped me out.
Enjoy your energetic days before your next cycle and hope you don't suffer too much from the se!
Oh no hubby 's just brought me some cheese puffs... he's not helping you know!
Not had any problems with dye but then was told not to let foob come into contact with oils and lotions.
I only use johnsons baby lotion on my scar and give everything a good rub/massage from clavical to about an inch below scar and all the way around back side to shoulder blade at night. Had surgery in September and scar already becoming more silver.
My friends were surprised at my decision not to have recon, being a busty bird who always showed cleavage, but its not something I am desperate for at the moment and definitley not immediatley. If I do have recon I will need a back/tummy muscle one as because of where my tumours were I had to have a radical mastectomy and no skin could be saved. I am completley flat.
Another prosthetic option I have is a stick on but am happy with the one I have now.
Hope the nausea passes quickly for you. It has become the norm for me Im afraid even tho I take Emend, and three others tabs that I carnt rmbr the name of. I was so very sick after my first EC and it went on for 8 hours solid. I went back to hospital the following morning and was given iv anti sickness drugs and eventually got sorted out. Im very scared of that happening again.
Thanks for telling me about your reconstruction. It sounds lovely and I do think your brave. Its great that they can lift the other one in line too. Heck! a women I work with has recently paid to have hers lifted up a bit...lol
I think might have considered it if they could have just inserted an implant instead of the breast tissue but the surgeon told me that because Ive had radiotherapy in the past, the blood vessels under the skin in the affected breast were likely to be damaged. Therefore, would have to reconstruct taking skin and muscle from my tummy/back etc and I wasnt up for that well, not yet anyway.
My boy home from now and he okay.
Thanks for the advice. Im alo close to Nicola Jane shop but think like you will wait till treatments finishes before I buy the bean bag one.
Im not totally happy with the NHS prosthetic as moves across. So Ive asked to go back for a refit and will ask to try lots of different ones.
Have you had an problems with dark coloured bras bleeding dye onto your prosthetic? as I have a black bra from Amoena with which this has happened. I spoke to Amoena and they told me that oil (i use bio oil) causes a reaction in the between the fabric and the prosthetic which causes the dye to bleed.
Should come with a warning me thinks as bra £34.
Sorry your not feeling so great today. Think you and I on same meds for sickness. (looking at your previous post) nausea is horrible and I sympathise. crystallised ginger helps for me. I cut it into slithers tho as big chunks seem have the opposite effect.
Orrr your boy sounds a love, bless him. My boys very affectionate just now and keep coming for a cuddle... we talk a lot about whats going on as I dont want them second guessing.
My youngest came home yesterday with a bruised and swollen finger after playing basket ball in PE at school. He insisted on going football training last night but this morning the finger much more swollen so took him to A&E and it they think it may be fractured. So he is strapped up....and going back next week to check it again.
Carnt keep away from the flipping hospital ...lol
Dont think all loose lashes and brows and I hope that you are one on the lucky ones.
Its good to know Zumba is doable as a uniboober and that lady sounds like a right warrior... amazing.
There's hope for us!
Think you are very brave having an immediate reconstruction and I think you are doing amazing well.
When did you have it done? Are you happy with it?
I just couldnt face it but may change my mind later on as finding bras and prosthesis that feel exactly right proving to be harder than I expected. Also having daily 'what to wear' issues as pre surgery clothing just doesnt seen to look right anymore. Maybe a bit of retail therapy is needed....
Had lunch with a couple of old friend today and that was lovely.
Hope your feeling a bit better. Look after you. xxx
Ha ha your making me laugh about answering the door. I had a knock on my door first first thing but ignored it & postie dropped parcel with neighbour.Felt bad but I really didnt want to give him a fright...lol.
It takes me ages to get myself presentable at the moment as no hair, eyebrows or lashes now but hay I get there in the end. Ive ordered some stick on eyebrows ....... should be interesting...and hoping quicker than the stencil and powder compact Im experimenting with at the moment. I put it on then take it off,,,,then put it on again.......
I love Zumba and pilates but oooo not thought about a support bra for when I get back to exercise although I have looked at light a weight prosthetic
for swimming. Nicola Jane have one thats a shaped but light weight beanbag and looks perfect. It kind of droops like a real boob.
Looks like you will need to draft in some help over Easter or maybe they will put it back a few days as Bank Holiday? Great you will be more than half way tho...
My last one is due 26th March (yeh!!!!) so hoping to be on the mend by Easter which will make a change for us as last two school hols have fallen just a week after chemo.
Ive got lovely energetic boys too, mine are 13 and 18 and I hate them having to experience this but I have to say that they both coping just fine.
Ive got everything crossed that you dont have to have radiotherapy.
Love Caroline xx
Totally agree about he scare stories. My heart goes out to that poor women tho how awful. I feel confident that our oncologists are doing the very best that they can for us all. Dont think they are unable to plan for our treatment 100% till after surgery. My tumour also turned out to be grade 3 and not 2 as originally thought but HER2 negative which will be why herceptin not on my list wont it..
I hope your plan doesnt change again but at least they making sure that your getting what is absolutely right for you and that has got to be a good thing. Radiotherapy is nothing like as bad as chemotherapy. It makes you very feel tired and travelling to hospital every day can be hard work but the treatment itself takes couple of minutes at the most and you dont feel a thing so please dont worry.
Im dead impressed you managed to get to 2 pilates classes last week. Im really missing the gym and the classes as usually do 3 or 4 most weeks. ive suspended my membership for the time being as just dont have the energy for it. Can just about manage a daily walk in third week.....lol
Fantastic half term fell on a good week for you. It was the opposite for me and I felt so guilty being laid up but my bhusband took some time off to sort everyone out.
Hope reflexology relaxing on Monday and I agree its lovely to chat......this site is a god send.
Lots of Love, Caroline xxx
I guess you were just doubly unlucky! I don't really want to put scare stories on here as its not helpful for any one, but just this once to emphasise how random this seems. The lady sat next to me at chemo on Monday had a lumpectomy and radiotherapy last summer. She was told clear margins etc. 9 weeks later she had concerns over an area of her scar and she'd had a recurrence so had a mastectomy on the same day as me and is now having chemo... she started on FEC but ended up hospitalised due to horrific side effects, so is now on something completely different, 1cycle every week for 12 weeks.
There are a lot of different chemo treatments that seem to be used, so I guess we all have to trust in the oncologists. For now though I'm quite happy to not be on FEC anymore!
The original plan suggested for me at diagnosis was just surgery and tamoxifen. But then after surgery my tumour was upgraded to grade 3 from 2, and because I'm only 42 they suggested chemo as well. Then when I went for first chemo, the oncologist told me that my HER2 was actually positive not negative, so herceptin got added. On Monday, I saw my new oncologist who wants to review my pathology to confirm whether I need radiotherapy or not... I feel like a medical experiment, it's like everything changes every time I have a conversation with them! So yes, I have a long way to go but as long as the side effects aren't too bad, I'm pretty sure I'll get through it! But really hoping no radiotherapy.
The good days are great, on week three last time I went to 2 Pilates classes and a higher energy piloxing class (which I did at half power!), and met a friend for cake. And I was fit and well for half term last week having been postponed, although playing badminton was a mistake!
Enjoy your aromatherapy, I have reflexology on Monday morning, and good luck for next Thursday 🙂
It's really nice talking to people on here, helps to feel we're not alone!
Take care, love Carmen xx
Im hoping and praying that this is indeed the end of it! I had genetic testing done back in 2010 as BC is in my family but was told I dont have the dodgy gene and my consultant said he couldnt see any reason why BC should return............mmmmmm.
Really glad that your no feeling as bad as your did with the FEC. Long may it continue eh.....
It sounds like youve a way to go Carmen but you can do it and times passes ever so quickly.
Ive no idea which drugs are planned for me after chemo other then hormone treatment.
Kinda got my head in the sand as need to get thro the chemo first.
I think its fantastic that we are all treated individually rather than a one treatment fits all approach.
Reading various threads on here there seems to be lots of different treatments to tackle BC.
Re the FEC/EC thing....Ive spoken to may women at the chemo unit I attend and they all having EC rather that FEC. Im going to ask the nurses when Im due number 5 (next Thursday) to tell me about the F part just for clarification.
Anyway on a positive note. Im making the most my good days and meeting friends and getting out and about but slowly. Im noticing the fatigue is raking up with each cycle .... the cumulative effect I suppose and got an aromatherapy session booked on Monday.
Been out for a walk today as the sun is out and returned to the most beautiful flower delivery. Awww......cheered me up no end.
Hope you continue to feel well. Feet up and look after yourself.
Lots of Love Caroline cccc
I have just had my final 6th EC only (day 9 today). Again I was told when I asked it was due to my no node involvement, my chemo was a belt and braces exercise.
Side effect wise I feel I haven't done too bad, my main problem was nausea but after several drug changes we found something I could cope with. My cocktail was Emmend, 8mg ondansetron and cyclizine as and when. Beware the constipation ladies movicol and glycerin suppositries help!!! I had a PICC inserted as found the infusion too painful for my shoddy veins, but other than that no real problems.
I cold capped all the way and my hair has thinned dramatically but has had 2 haircuts and parting changes to hide my crown bald patch approx 4x5cm, and a wide elasticated fabric hair band hides it well.
I basicaly write off week 1 and then can function reasonably well week 2 and am back to normal week 3. It is doable and before you know it your at the end.
Hope my info has helped, keep going and good luck xx