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Anyone know where I can buy a prosethetic

13 REPLIES 13
bettymoo
Member

Re: Anyone know where I can buy a prosethetic

I had my mastectomy in August and it took me til november to get mine - I ended up speaking to the BCN and telling them I had only got the "softie" which I was given the day of my op, so they got me booked in to see the prosthetic dept. at the cancer unit - would be worth telling them.

Kess
Member

Re: Anyone know where I can buy a prosethetic

if you dont get on with your BCN, try your GP. I got mine to sort out my referral to the clinic at the hospital and it got sorted very fast.
Annie62
Member

Re: Anyone know where I can buy a prosethetic

You are entitled to a prosthesis on the NHS when you've had a mastectomy.  You should definitely contact your breast cancer nurse again.  I had my operation at the end of May but my appointment with the supplier (Amoena) wasn't until the middle of August and then there was a six week wait for delivery!

somerset
Member

Re: Anyone know where I can buy a prosethetic

Glad they found you something - this sounds like the lightweight ones I have and they are comfortable! 

SusieQ2
Member

Re: Anyone know where I can buy a prosethetic

Hi Somerset,

 

Thanks. I went to the London shop this morning and they were very helpful, so I now have a soft prosthetic which is very comfortable. I really appreciate your help, I feel so much better now.

Sunflower57
Member

Re: Anyone know where I can buy a prosethetic

Hi SuzieQ2 You are welcome Hope you are sorted & more comfortable soon Sorry for shortness of post earlier Hubby was chasing me up to get ready to go out xxx
applestreet
Member

Re: Anyone know where I can buy a prosethetic

Hi I had tge same problem contact your BCN she should get you sorted out I also have a knitted knocker its brill and free

somerset
Member

Re: Anyone know where I can buy a prosethetic

Hi Susie

Sorry you are not getting much help from your hospital. I did not get a hospital appointment for a prosthesis either so I ended up doing it myself. I wanted advice and to try on different things so I went to Nicola Jane because they have several shops including ones in London and Chichester. I have been to both of these and the staff are very helpful. It was actually Chichester who sorted out my prostheses but I imagine London would be similar (and has a good range of mastectomy bras too). If you decide to go I recommend calling and booking an appointment (numbers/shop locations are on their website under the customer service tab) - you don't have to book but I found it was worth it for first visit as I then had plenty of time with an adviser. As MM said silicone ones are expensive so I am really pleased I tried a few before buying. I have Trulife silicone ones and some lightweight foam ones (Nicola Jane's own) which are great in summer or if you get fed up with the weight! I also tried Been A Boob which did not work for me but lots of people seem to like. I found it really helpful being able to try on the mastectomy bras too as Nicola Jane stock quite a range - again there are lots of different types so worth trying a few. If there is something you particularly like the look of on their website it is worth checking before you go to see if they have your size.

Hope this helps - and also hope that things improve with your hospital (you can do without extra hassle!). Good Luck.....

SusieQ2
Member

Re: Anyone know where I can buy a prosethetic

Brilliant! Thanks so much Sunflower, that's exactly what I was looking for. Really appreciate your help.

Sunflower57
Member

Re: Anyone know where I can buy a prosethetic

Take a look at the KnittedKnockersuk.com website They provide knitted prosthetics, free of charge.
SusieQ2
Member

Re: Anyone know where I can buy a prosethetic

Thanks for the links, but these just reiterate what the breast cancer nurse told me would happen after surgery. Unfortunately I wasn't given a cumfie and have not been given an appointment for a prosthesis although I had my mastectomy 11 weeks ago. I don't want to ring them because at best they make me feel like I am bothering them and at worst make me feel like it's my fault that what they promised would happen  hasn't happened. I just want to bypass them and buy a prosthesis, so any advice on where I can do this would be appreciated.

Lucy_BCC
Member

Re: Anyone know where I can buy a prosethetic

Hi SusieQ2

Welcome to the BCC forums, along with the support here please feel free to call our helpliners to talk any concerns or queries over on 0808 800 6000, lines open 9-5 during the week and 10-2 Saturdays (re opens tomorrow after BH)

I am posting information from our site regarding getting hold of a prosthesis and we also have a booklet 'Breast prosthesis, bras and clothes after breast surgery' which I hope you will find helpful:



https://www.breastcancercare.org.uk/breast-cancer-information/impact-breast-cancer/breast%C2%A0prost...

http://www2.breastcancercare.org.uk/publications/treatment-side-effects/confident-choice-breast-pros...

Take care
Lucy BCC

MysteryMouse
Member

Re: Anyone know where I can buy a prosethetic

Hi SusieQ2

 

I had a mastectomy in August and I had my appt to receive my prosthesis in October.  This was a very quick appointment at the hospial prosthesis clinic with a lady who got me try on a couple of different sizes and both of us decided which looked best.  It was very helpful having her advice.

 

I would advise that you contact your breast care nurse and ask about the appointment as the prosthesis are not cheap and without trying you make pick the wrong size and type as there are several.

 

I was given an amoena natura light prosthesis which for me, works very well.  They do have their own website.

 

I hope this was helpful and please don't worry about what people think I am sure you look just fine! 🙂

 

MM

xx

SusieQ2
Member

Anyone know where I can buy a prosethetic

Hi,

 

I had a mastectomy in January and was told that I would be given a prosthesis, however this hasn't happened. I saw a surgeon about 2 weeks after the op and thought that it would be sorted out then, but he didn't mention it. It was the first time I had seen a male doctor which rather threw me, and I didn't like to mention it. I have had subsequent appointments with the oncologist and radiotherapy doctor, but I know that it's not their remit so again I didn't say anything. I am rather relieved that I now don't have a hospital appointment till June (aside from the herceptin injections) and am therefore unwilling to contact the hospital to ask about it - not least because in the past when what they have promised has not transpired they appear to blame me for it e.g. my surgery was delayed because they were supposed to organise an MRI scan which they failed to do, but then subsequently claimed that I had missed the appointment. I hadn't, but I live alone and the extreme fatigue caused by the chemo meant that I didn't chase it up. I live in London so was wondering if anyone knew of a shop where I could go to be fitted with a prosthesis. In general, because I am small breasted I don't mind, but I am going to see my family and am worried that they will notice.