69.3K members
1.2M posts
cancel
Showing results for 
Search instead for 
Did you mean: 

Anyone on E CMF?

9 REPLIES 9
maisiecake
Member

Re: Anyone on E CMF?

Hi all

 thanks for all your posts. I'm only just reading the last couple- lost track a bit.

Tamsin- yes that was me , went to devon , got admitted to Taunton, transferred after 7 days to home, another week in hospital- bit of a nightmare but ok now. I've started CMF now, done 1 cycle. Seem to have had everything side effect wise, but none of them as incapacitating as Epirubicin. Still seems quite rare- dr in Taunton said it was old fashioned, which was a bit worrying. Also very long compared to FEC-8 months or so.

benedictus
Member

Re: Anyone on E CMF?

Hi Maisiecake I'm due to start on this at some stage - keeps getting delayed because they can't get clear margins, so I'm due my third op next week. I had FEC-T 5 years ago and have been put on this because you can't have the same chemo twice. I've looked on the archive forums but there is very little around about it, but a friend of mine had it 5 years ago and tolerated it pretty well. Seems to be the same general message from here - the CMF seems to be more tolerable than the E. But as we all know, everyone has different SEs. Are you starting the CMF soon? I was trawling through the montly sites recently and I read about you getting stuck in hospital in Devon? If that was you I reallly hope that was all sorted and you are home safe and sound again
Tamsin x

Lily200
Member

Re: Anyone on E CMF?

Hi,
cmf was much better for me, milder effects but they lasted longer. No days I couldn't be out at all and had first hair cuts and it dyed while on it. The worst bit is that you have to go twice for each cmf dose, so on day one and then back in on day 8, so watch your timing as your neuts, etc get counted for both parts and need to be ok. Mine had gone up on day 8 each time. Good luck and hope you get to have a lovely and well deserved holiday. Better check out if any of the cmf need extra care in the sun if going somewhere very hot. I had e/cmf in 2008 on a research trial and they were very excited about it. Good luck to everyone reading.
Lily x

Guest user
Not applicable

Re: Anyone on E CMF?

Hi Hun,
you're right it is unusual. I had epi/cmf from August last yr to march this year. The cmf was deffo easier for me, especially the day 8 bit. My hair begin to grow back on cmf too.....bonus.
wondering where you live as it seems not many areas use epi/cmf really.
i live in stoke on Trent and know of a few local ladies who have had this regime
good luck
mandy xxx
maisiecake
Member

Re: Anyone on E CMF?

Thanks Jill and Julie, that's helpful. So far on Epirubicin I have felt very nauseous and tired but nothing else. Oh except the hair loss, but apparently that's not such a problem with CMF so perhaps it will start to grow back?
Mel x
JulieD
Community Champion

Re: Anyone on E CMF?

I had Doxorubicin and CMF years ago and found tiredeness and feeling sick the worst part.I thought it would put me off eating but I actually found that keeping topped-up helped me feel less sick. I lost my hair but that was more down to Dox and I did get some ulcers but I think it wasn't as bad as I'd anticipated.
Hope all goes smoothly for you and you get minimal SE's
Tolliebelle
Member

Re: Anyone on E CMF?

Oops What happened there onlt pressed button once!!!!
Tolliebelle
Member

Re: Anyone on E CMF?

Hi Maisiecake
I had E CMF 4 of each 2 years ago. I found the Epi not too bad felt a bit yuk for a couple of days after but worked for the 2 weeks in between. The CMF part was harder for me but I think I was the exception as everyone else I knew who was on the same found it easier. I started off with the tablet form of the C part but was very unwell with them and switched to having it by drip. I found that I felt yuk for longer and suffered with really bad mouth ulcers for the whole of the time I was on CMF. I hope someone else comes along because as I said most people found the CMF bit easier.
Best Wishes
Jillx
Tolliebelle
Member

Re: Anyone on E CMF?

Hi Maisiecake
I had E CMF 4 of each 2 years ago. I found the Epi not too bad felt a bit yuk for a couple of days after but worked for the 2 weeks in between. The CMF part was harder for me but I think I was the exception as everyone else I knew who was on the same found it easier. I started off with the tablet form of the C part but was very unwell with them and switched to having it by drip. I found that I felt yuk for longer and suffered with really bad mouth ulcers for the whole of the time I was on CMF. I hope someone else comes along because as I said most people found the CMF bit easier.
Best Wishes
Jillx
maisiecake
Member

Anyone on E CMF?

Hi all
just wondering if there's anyone out there on E CMF as it doesn't seem so popular! I've done one round of Epirubicin and am wondering what side effects the CMF part might have in store , as I'm planning to book a holiday after 1st CMF, and don't know what to expect. any tips welcome x