Hi all, pp sorry you were in hospital - this tax really plays havoc, doesn't it. My lung condition has started playing up so I'm on a 14 day course of heavy-duty antibiotics - what fun! Jo, I hope tomorrow goes well for you after the first two. I'll be thinking of you. At least we're nearly done. Seeing onc tomorrow and if bloods ok, last one Thursday. My taste is back to normal and aches almost gone so I'll make the most of the next few days. Take care everyone, love P x
Sorry to hear that PP. I had similer after 1st Tax and now after my allergic reation mid way thru 2nd Tax, they're talking about giving me something else for the last one tomorrow but i don't know what yet!we'll have to wait and see!
Just had an all inclusive 2 night break - at the hospital!! My temp was up to 38.3 so they admitted me checked my blood and found i was neutropenic my neutrophils were zero!!! Despite having had 3 injections by then to boost my white blood count! I now have to see the onc before next chemo is due in case he decides to alter my treatment.
Hope everyone is doing okay
Hi pp, it's day 14 for me and my taste is virtually back to normal and I have to say the sludge gob didn't seem to last as long this time, strange but good. Pineapple is good, apart from that I found the more highly flavoured foods like spicy curry etc the more I could taste. Things like meat and potatoes and pasta all just tasted the same. It's a rotten SE, I watch food programmes and adverts and it drives me mad when I can't taste, I get cravings for things. Apart from that, it's really just been the aches and pains and bloated feeling, not too bad really. Hope everyone else is going along okay. love P x
Well day 8 of 2nd TAX and the worst thing is the sludge gob - has anyone found anything to eat that still tastes reasonable? Glad your taste is coming back Pat.
love to all
Hi all, how's everyone doing? I'm on day 13 of Tax 2 and it's not been too bad. Still very achey - me and my daughter walked up 6 flights of stairs to a derm appt for her at the hospital, and it nearly killed me! Mouth still bit sludgy but taste seems to be coming back a bit quicker than last time. Can't believe it's last one next Thurs, time waits for no man and all that!!!!!! Much colder today but still nice and bright out, bit windy as was a bit nervous re: the wig but it stayed on! Check in later ladies, love and hugs Pat x
Sorry to hear Jo that you have reacted so badly to the TAX hope you are feeling a bit better now.
Well I am pleased to report that my hair has started growing again - I thought you lost it with TAX like you do with FEC? Only very fine covering at the moment like baby fluff unfortunately it is coming through all white!!
Day 4 for me today and have started feeling achey - sludge gob not started yet!!
Hi all, hope everyone is ok and enjoying sunshine. Poor thing Jo, blooming tax is like torture for you, isn't it? Hope you're feeling a bit brighter today. I'm on day 10, nasal congestion and bloody nose still there, throat better, aches and pains better so I really can't complain too much. Worse thing is the sludgy mouth and taste thing. Oh well, got new wig today and it's perfect, well as perfect as it could be without being my real hair! Lovely and light little bob so am happy that I have something for when I go into office, and it's been a bit hot for the old hats of late. Take care all and hang on in there - not too far to go now. love and big hugs, Pat x
Well, me and this TAX aren't getting on at all well. I'm on day 11 of my 2nd TAX and I woke up this morning absolutely covered from head to toe in the most appauling rash. Not 1 bit of my body is unaffected.It looks like chicken pox! So now, I'm not only fat and bald, but fat,bald and spotty! and very very itchy, it's driving my crackers! This evening knuckles, knees and ankles swollen to and very painful! I'm feeling really sorry myself! I'm back on the wretched steroids and antibiotics and antihisthamine, and now pai killers. Probably won't be able to have the last one and i'm one of the 5% of people who react this way!
Take care Ladies, hope you have better luck than me!
Hi Pat, my WBC was 3.2 and it has to be a minimum of 3 so only just got there! Still feeling okay today - waiting for sludge gob to start!!
pp, that's great news, it is a bit nerve-wracking, but great when it goes well. My bloods were at 6 which was fine, don't really know what the norm is though. Take care, x
Had my 2nd TAX today and pleased to say no reaction. I was surprised that my WBC was only just okay despite having the injections to boost it - I expected it to be way up!! Two more TAX to go now!
Hope everyone is okay
Hi all, hope all are okay. PP I can't take ibrufen coz of asthma so it's either paracetamol or Tramado - which is really heavyweight. Onc has given me some and I'm only gonna take it when pain is unbearable as it really knowcks you out, apparently. I think the SE's on Tax may be cummuliative so will wait and see what happens on Tax 3 - last Tax!!!! Heat pad sounds good idea, I sometimes use hot water bottle but have found that my temp goes up very easily in 1st week of tax so just trying to use paracetamols to keep it at bay. Jo, hope you're okay and hope everyone is enjoying the fantastic weather - the sun always puts a smile on my face (well usually, nothing would have done that on Sunday:( although I'm over that now...). Have a good day, love and hugs, Pat x
I had a bit of a temperature last time too around day 8 just .1 below the 38C when they tell you to call the hospital! Hope you are feeling better soon. I found Ibuprofen worked better than the paracetamol. I also bought a heat pad from Argos which helped with the aches and pains.
Hi all, hope everyone's ok. pp you'll be fine on Wednesday I'm sure. I'm feeling like I've been hit by a truck - had a bit of a temp since yesterday but this happened last time - does anyone else notice this? Gonna try warm bath and paracetamols and hope for the best. Spent weekend in bed which was soooooooo boring and depressing so feel I need to get out in the sunshine. love and big hugs, Pat x
got back yesterday from my 'mini' break 3 nights in a 5* hotel - bliss!!
Jo sorry to hear you did get a reaction to your second lot of TAX hope you are feeling a bit better today.
Pat glad to hear that your 2nd TAX was okay, I've got my 2nd lot next Weds so am feeling a bit apprehensive!
take care everyone
Hi All, had 2nd Tax and it went fine. Have to get inj sorted myself tomorrow as nurse didn't sort it. Sorry you're feeling rought Jo, hopefully it'll pass quickly, I have that to look fwd to. Feel quite ypbat at the mo, prob steroids! but also looking fwd to just one more chemo, god willing. Best wishes to everyone else, take care love and hugs, Pat x
Pat, hope TAX 2 ok for you today and no nasty re action for you.I'm day 4 now and feel terrible, think it's coz I had GSCF injection as well as 2nd TAX so culmination of both, spet all day in bed with aches and pains and hot flushes!
Oh Jo, you poor thing! I'm worried now as I have tax #2 Thurs. Oh well, I'm sure they'll have the piriton at the ready! I wonder how common it is, this allergic reaction? Glad you managed some cake anyhow. Hope everyone is well and coping. love and hugs Pat x
had my 2nd tax yesterday and as predicted spent the whole of my birthday day hanging around at hopital as I did get the allergic reaction with this dose. Eventually under contral and then a bit later decided to challenge me again and this time with piriton etc in my system it seemed to go in ok. bit scary though! Got sort of a funny prickling sensation creeping up my throat and into my tongue which then started to go very itchy and tongue got a bit fatter. They stopped it immedeatly and put in piriton and i think something else but not sure, maybe that was some sort of flush through, can't quite remember as I was in a bit of a panic. Then I got this horrible cough which came from nowhere and lasted about half an hour. Then when it all settled down that's when they started it again and this time it was OK. Next time need to have piriton before they start!
Managed to get home for cake though so that was nice!
Best of Luck everyone!
PP, I'll let you know tomorrow if and wot allergic reaction is like but have to say, that some girl I was talking to was hospitalised with her 2nd tax reaction, and this really is not an option for me as it's my birthday tomorrow and my mum and 3 little uns are putting on a party for me tomorrow evening, so I'd hate disppoint, them and me!!!
Hope everyones okay and had a nice weekend. jo, good luck for tomorrow, I'm sure you'll be fine, I'll be interested to see how we go with no. 2 but just think, we're nearly done! PP 5* hotel sounds fab and just the ticket! Hope bc nurse agrees about jacuzzi coz that'll be fun. eyelashes almost all gone now so eyes really sore and itchy - will get drops. All the best to everyone, love and hugs Pat x
Jo I have to say that I preferred the FEC to TAX I am on day 10 now of my first TAX and had the aches days 4-8. It's the sludgy mouth I can't stand. My fingers are sensitive to the touch and I have a few mouth ulcers. You have me worried now what is the common allergic reaction to the second dose of TAX?
Having said I prefer FEC I still find the TAX 'doable'.
Hi All, Jo I agree with you about the Tax as opposed to Fec. I've had the usual sludgy mouth and no taste, aches and pains and a sinus infection which prob messed my temperature around a bit, but all in all, not too bad. I guess the effects may build up, and I'm a bit apprehensive about the allergic reaction thing but I figure, we're gonna be in a hospital, nurses on hand in case of reaction which is easily dealt with so I'm not gonna stress - she says hopefully! Yes, the rads thing seems a long time - I was told I'd start rads within a couple of weeks or so of finishing chemo so, unless there's surgery or a wound of some sort, it seems a long time to wait. Pheebster, yes it might be a bit cold but I must say I found it fine. Hope everyone's okay, love and hugs, Pat x
Pat - I didn't use the ice mits as I was using cold cap and thought it would be a bit too chilly...also had trouble with my veins so had to stay as warm as possible.
Hope you are all coping with your SE's....
Have 2nd TAX on Monday then last one 28th Mar, then have CT planning scan for rads on 20th April and start rads 27th April so to have to wait 2 months seems quite a long time?! Obviously varies from trust to trust?
Pat and PP how you feeling on this TAX then? I had big set back last week with a night in hospital but gotta say yesterday I turned the corner AND feel great today and although I hated the fluey pain thing on day 4, 5 and 6 generally think I prefer it to FEC. I was dreading TAX and am relieved that we've all lived to tell the tale after our first blast!!!!! Not looking forward to Monday though, as am quite worried about common allergic reation to 2nd blast, but will let you know what happens!
Take care Ladies!
Pat I had all my treatment at the Rivers in Herts and will be having the Radio at Addenbrookes.
PP, when I saw the onc originally they booked me in for Rads 16th March which is 3 weeks after my last chemo but at the planning session today they said the appointments would be sent out but would probably be after that due to the amount of people currently being treated. I asked for an early date as I want to get it all done and dusted asap,Im also keen to be evened up and have been told I need to wait at least 6 months after rads.
Pat the jacuzzi I am thinking of is in a 5* hotel so perhaps that would be okay! Think I might call my BC nurse and see what she says. My two sisters and I are staying 3 nights in a lovely hotel next week which will be day 13 for me so I hope taste improves my then! I am really looking forward to it.
Gingery how long after chemo are you having rads? My onc said they usually wait 2 months.
Hi all, gingery I'm under Guys Hospital in london, where I work as well. I can imagine the last chemo could be an anti-climax. I am looking fwd to it but also worried in case anything has gone elsewhere and I end up having to have more. I know it's not the way to think but I can't help it at the mo. Planning appt sounds ok, I think I have to have that appt at St. Thomas but hopefuly the treatments will be at Guys as hoping to be able to work part of the time. Where are you bing treated?Pheebster, I didn't realise the nails could still come off that long after finishing. Did you use the cool mits on hands and feet? I used them the first time sand it wasn't uncomfortable so I'll continue. The watery eyes drives you mad, doesn't it? I haven't put on too much weight at all but I do still have 2 to go and my appetite seems to be huge at the mo! Well, hope all are doing well, love and hugs, Pat x
Hi there girls and hello Gingery.
I had my last TAX 5 wks ag today and my eyes have only stopped watering this week...it's really unpleasant isn't it. My nose used to run as well without any warning...literally pour!!! My nails are now falling off - thought I had got away with that one, but once I took the dark polish off it wasn;t a nice sight!
I have a few hairs in my nose again (!) some fine ones on my legs and some eyebrows. My hair is getting thicker (I used cold cap and kept most of my hair but it did thin on top)
My legs still ache a bit but not sure if that is due to chemo of the 2stone I have gained and am struggling to shift...I swear that dexa is still doing its' work on my body!
what hospital will you be having your rads at?
It said on the appointment letter to allow 1-2 hours but I was straight in and the whole thing took under 20 mins. You just lay in the CT scanner while they line up the lazers then 3 tiny pricks and your done.
Yes the taste thing is one of the worst I think, can't even eat for comfort.
Hope your last Tax is ok, it was a real anticlimax, they just unhooked me and I walked out........not banners or balloons 🙂
Hi gingery, welcome. I'm having last but one tax next Thurs and then having rads so be interested to know about the planning appt. I've been told about the tattoos. Does the whole appt take long? Are you just having rads to breast or arm as well? The taste thing is weird, I love my cuppa tea but can't bear it at the mo. Hopefully soon you'll be SE - free. Take care, Pat x
Just fancied adding my pennies worth.
Had last Tax (3 FEC/3TAX) 24/2 so just over a week ago and still got sludge mouth, food tastes awful and makes me gag - how I'd love roast beef or a curry and enjoy it, never mind not too much longer.
On the wine front - I ususally only drink red and have found I can't touch it and white tastes much better - bizarre.
Still very achey, stiff neck and shoulders, knees and hips, very runny eyes, people think I'm crying all the time, numb finger tips and toe tips, constipated, irritated bladder, infact I feel like i'm ninety when last summer I was a bubbly lively 46 year old. Well think I've moaned enough for one day.
Oh had rads planning today as well, that was a breeze and tattoos didn't hurt one bit and the sun is shining today so not all bad.
Hi pp, the sludge gob generally lasts for about 10 days to 2 weeks in my case. I'm on day 15 and my taste is almost back to normal so you get a few days grace before next chemo. Isn't it just the pits, I love my food and am becoming obsessed because of the taste thing. As for the jacuzzi, I googled it and it's public ones, same for swimming pools, that should be avoided to avoid risk of infection. Add it to you list for after chemo - my list is gonna be a mile long, although I'm also having couple months of radio so will still not be able to swim etc coz of poss complications with skin. There should be loads to look fwd to, but it's now when we could do with the boost. I'm really looking fwd to my massage at hosp immediately before my next tax on Thursday. Pamper yourself as much as you can, I love long baths with a nice face treatment on, lovely candle burning and some music - all stuff which, before the bc I really thought I didn't have time for. Hope all are ok, check in later love and hugs, Pat x
Can anyone tell me how long the 'sludge gob' mode lasts? Will my taste improve before my next lot of TAX or do you have it for the duration?
On a different note does anyone know if it is okay to use a jacuzzi while on chemo? I am sure I read somewhere that it is not advised due to risk of infection but don't know where!
Hi Jayne, congrats on finishing chemo, it must be a great feeling. Yeh, the aches and pains do seem to be manageable although I've only had 1 tax - next one next thurs. GReat news about no rads - did they say why? I was tld I'd have a couple of mths worth and I don't spose that'll change. Thanx for your positive comments, it's great to hear. Hope everyone else ok? love and hugs Pat x
I have just finished my last tax after fec now dont worry about nails mine are long and have stayed that way all along the only thing most people suffer with is joint aches just like the flu symptoms but strong pain killers and rest makes life ok !!!!!!!!! my hair has thinned but still hanging in there eyebrows shaped themselves . just had good news rads not needed thank god it is a good feeling at the end of chemo so chin up everyone . best wishes to all of you and yes red wine does taste nicer than white whilst having tax xxxxx
love to all
For those of you who drink wine, I found red was much nicer tasting than white while in 'sludge gob' mode.
Also those of you taking ibuprofen, try taking paracetemol with it as well; it is more effective. You can take the maximum dose of both medications(according to the packs) at different intervals...but clear it with your dr's first.
All your comments are very familiar. I also had gcsf jabs for 8 days during each of my chemo cycles. The person that is having just one jab is very lucky! Unfortunately my hospital doesn't have a licence for it, and I know it is very costly too!
Hi pp, glad ibrufen is helping, my aches haven't been too bad, maybe it's cummulative. Saw gp and got antibiotics for infection, apart from that, and the aches it hasn't been too bad. Having a lager and lime is lovely, but don't think I can now i'm on tablets, will check. Hope everyone is is fine. Yes, I just have the one inj - neulasta I rhink it is. Jo, hope you're okay? Check in later, love Pat x
Hi Pat, Yes my first injection was on day 5 of chemo I have to have 5 injections from day 5 -9. Did you only have to have one injection? Feel really achey today still. I saw the onc this morning and he said I can take Ibuprofen - taken one lot and it does seem to have eased a bit. I find even my jaw aches when I eat!! The taste thing is horrible too and with my having a temporary false front tooth even worse with the plastic plate in my mouth!! Did you see your gp today? I don't like lager - shame!!!! I did let myself have a glass of wine on my birthday though!!
Hi all, pp I got the backache and stomache aches too, my onc said I would feel like I had flu and very achey, she said it could be quite uncomfortable/painful but that it wasn't dangerous. Interesting that you're having your injection today, I had to have mine on day after chemo, is this your first inj and do you have to have more before next chemo? My inj def worked as when I landed up in a&e on Mon night with high temp, they said my bloods were perfect! I'm now on day 10 after first tax and, apart from (I think) a sinus infection - see gp tomorrow) the aches have started to ease. I found the stomach ache and bloating horrible but it's starting to ease now. Just waiting for my taste buds to start recovering as I find that difficult too as nothing seems appetising when it all tastes the same. Someone suggested a cold lager and I have to agree, it cuts straight across yucky mouth and hits the spot nicely! We have to take our pleasures where we can find them! Jo, I hope you're feeling a bit better today. Everyone enjoy their sunday, check in later, love and hugs, Pat x
Sorry you have felt so bad. I am now on day 5 of my first cycle of TAX and my joints all started aching yesterday on my birthday of all days!! and now I have several mouth ulcers - feeling a bit sorry for myself today. Seem to be getting some stomach pains and backache and wondering if this is all usual on TAX. I see my onc tomorrow so I will be able to ask him. Got nurse coming out today also for first injection to boost white blood cells.
Hi Jo, I'm so sorry you've had such a bad time! As for the periods thing, i haven't had one since mid-December, and as I'm 49 I guess it's a combo of age and chemo stopping periods, so I can't help with that one. I too have felt pretty ropey since thetax last week but my bloods were fine on Mon/Tues and dr said that would mean that they'd almost certainly remain fine for the rest of this cycle. Did you phone your on-call oncologist? I was told ANY problem I had, i should phone chemo unit when open, and on-call at all other times. It's not doing you any good stressing and worrying about what's happening, someone should at least be able to reassure you that it's nothing to worry about. Do take care, make the call and try and get some rest. love Pat x
Well, I have tried to post several times, and they've been really long winded messages, and I keep losing them, which is so blooming fustrating. Then I've felt too poorly to start again. Now i know why! Ended up in hospital thursday, with a white blood count of .2 Apparently that's dangerously low. Have had yet another chest infection so they admitted me straight away as were concerned I might have pneumonia!!!! Eeek, i thought, that's curtains then, that's why i've been feeling so crap really since a few days after the TAX.But no, chest x ray was clear! Had iv antibiotics anyway and drip and injections to boost white count then turfed me last night as they said more risk of infection in hospital than at home, that's reassuring i thought. Was upset though coz no beds as usual at the Marsden so had to go to a general hospital and didn't really feel very re assured the whole time i was there as they didn't really know wot to do with me and kept phoning Marsden for advice! Oh well at least they did that I suppose!
Can i ask if anyone else has had any problems with periods whilst on chemo, particularly Taxotere .That was main reason for going into hospital in the first place, I was so terrified as I was loosing so much blood and massive clots that the Marsden wanted me to have a blood test to make sure i didn't need a transfusion! Then they found this other problem with the neutropenia that they weren't bothered about my period at all. Consequently I've come home in the same state i went in and it's not getting any better! They said I should mention it to the Marsden on Monday as now have an outpatients app to follow up this episode in hospital. Has anyone else experienced this because I'm thinking all sorts, especially with Poor Jade on TV everytime you switch on!
Re bio youghurts: I did a different chemo regime (EC then Tax), but was specifically told to avoid bio yoghurts, so I would endorse what Pat says and check with your oncologist. Julie x
Hi all, great to read all the stories, gives us hope, and we'll all get thru this treatment and come out the other side. I feel better today, still yucky mouth but pain has eased a bit. Julia, I mentioned on the other thread as well about bio yoghurts, I think you have to be careful as products that haven't been pasteurised are risky. I've just advised that people should just check with their nurse or dr, it's only that it was mentioned to me and I've seen a few pamphlets with dietary advice which mentions it too. Having said that, it's great when you find something that helps you feel better. Well, sun is shining so I'm off out to enjoy it. Will check in later, hope you all have a fab day, love Pat x
Hi All,I had 4xfec,4xtax in '04 and worked more or less throughout as an electricians mate.Must admit that just one more taxol and I'd have been floored,as by the end I was getting really tired.But I soon picked up and found the 6wks radio a breeze after chemo! The only bad time I had was after the first taxol when I felt as if I had the mother of all hangovers.I could hardly make it from my bed to the bathroom that night,but I awoke next morning feeling not too bad at all! My stomach bloated ,I'd a taste like poo in my mouth and I ended up with periperal neuropathy in my toes but all very doable symptoms and a small price to pay for kick assing those cells!
Good luck, Josie x
Just found this thread.I finished treatment in 2007 4xfec and 4xtax and just want to say that though I had every known side effect in cumulative spades it DOES get better.Just be kind to yourselves.I wish I had had something like this thread when I started chemo but it wasnt routine to give tax for primary bc then and it was rarely mentioned.For me the worst effects were the fatigue,the breathlessness and the diarrhoea.The pains were only really bad with tax one and I had no sickness.I was in a wheelchair by the end but if I tell you I broke my leg 4 weeks ago jumping on a trampoline you will see that even though I am temporarily using a wheelchair again life in general is pretty good.Love and luck to all of you.