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Anyone starting chemo August 2015?

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Re: Anyone starting chemo August 2015?

Morning ladies. Hope you are all ok today? I think I have finished my list of what i need for everything. I have even seen a wig I quite like the look of and I never thought I would say that sentence. I dont think I am going to go for the cold cap.I think I am going to resign myself to losing my hair. \I hope I dont regret that decision. I had a cooking marathon yesterday and freezer getting very stocked. So now its just hair cut. I dont have a wig fitting until the 3rd of September. Like you Blondeambition I have long thick hair so It will be quite a change also as I have never had short hair in my life. Big hugs to you all xxxxxx
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Re: Anyone starting chemo August 2015?

Hi blondeambition - such a shame that there was a tiny bit of invasive that was her2+ otherwise like me you were on the no chemo route - but we are lucky to have the wonder drug herceptin.  Mine was just under 2cm invasive and dcis although not sure how much invasive.  Also ER+ pr+ so will be having hormone therapy and three weeks of rads after chemo.

Good luck to all the new chemo starters - will be thinking of you all xxx

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Re: Anyone starting chemo August 2015?

Hi Lovely Ladies
I've been to see the oncologist today and am having the same as you are Carolec - 12 weekly Paclitaxol followed by Herceptin. I also have a relatively small invasive element but it is Grade 3 and HER +. I was told that if you start the chemo and really cannot cope with it you can stop but still continue receiving the Herceptin. No research has been done on the use of chemo and Herceptin in small (less than 1cm tumours) so they don't really know if chemo is necessary but it's the way it prescribed on the NHS. It just makes you think how important cancer research is so others might not have to go through chemo if it's really not necessary.

It's strange but I feel so much more positive than I thought I would. I feel like I have a plan now and an end is in sight. I feel more in control, more like it is my decision to have the chemo and Herceptin. Almost like it is an investment or insurance policy for the future. Does that make sense?

I start on 28th August. Eek! Two weeks today. Two weeks to fret and stock up on nice tasting meals! And worry about my hair 😢

Bevster - I've just ordered some frozen mango cubes in my online shop. Thanks for that tip!

Have you decided about your hair yet Sarahd? The BCN said today that I should get my long, thick hair cut.

Best of luck to you all. Keep us updated on how your first sessions go. Thinking of you all xxxx
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Re: Anyone starting chemo August 2015?

I'm having12 weekly paclitaxol (taxol) - some ladies have this one after FEC-T, but I'm not having the FEC-T and this is because I didn't need chemo until they found my stage and grade 1 cancer was very unusually her2+ which was a real shock. I need herceptin but to have that you have to have chemo so they are giving me the weaker taxol only - although still has many side effects. Did you get the flushed face Nico - I usually have it for a day after chemo - looks like I've had a couple bottles of wine! Wishful thinking.
Jakeb hope you're ok xxx

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Re: Anyone starting chemo August 2015?

Still no word from jakeb? Xxxx
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Re: Anyone starting chemo August 2015?

I'm going to have FECT. I know it's the unknown and like you said it affects people in so many different ways it's hard. Are you having radiotherapy after? And always here for all you lovely ladies as you are giving me strength to get through this and I hope I can do the same for you xxxxxx
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Re: Anyone starting chemo August 2015?

Thanks for the birthday wishes Carole & Sarah.

 

I'm glad you feel ok so far after no.2 Carole. Are you having FEC only like me, or FECT?

 

Sarah it's impossible not to worry about chemo before you start in my opinion. It really does seem to be the case that everyone is different in the way it affects them. My first hasn't been bad but I'm now worrying about the 2nd one!

 

Nevermind, we'll get through it together:-)

 

Nico x

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Re: Anyone starting chemo August 2015?

I will have a look at the lush products they have some lovely things xxxxxx
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Re: Anyone starting chemo August 2015?

Hi ladies how are you all today? What treatment are you having I'm going to be having FECT are you on the same? I've tried not to read to much information as sometimes I panic but then I think so many ladies including yourselves have all come through it. Hope you are all ok today. Have a lovely birthday nick and hope your ok carolec xxxxxx
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Re: Anyone starting chemo August 2015?

Happy birthday for next Friday Nico - I had my birthday in June but my OH is also planning some treats along the way as it's good to have something to look forward to. I'm feeling good today after 2nd one - cold cap wasn't good this time for last hour and chemo nurse told me 99% of her patients take a light sedative which she has given me to take next week so will try that.
Bravescholar - I have a couple of friends who didn't use the cold cap and didn't lose their hair so hopefully you will ok xxx

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Re: Anyone starting chemo August 2015?

Thanks Carole. It's my birthday next Friday & I'm looking forward to a lovely day & a yummy meal in the evening, before the 2nd cycle the next day. Hoping the SEs won't be worse this time around.

 

How are you finding it?

 

Nico xx

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Re: Anyone starting chemo August 2015?

Hope it went ok.

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Re: Anyone starting chemo August 2015?

Thank you so much for this reply.
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Re: Anyone starting chemo August 2015?

I'm going to get my shoulder length hair cut before I have my first chemo session next Wednesday. I don't know whether to get it cut tomorrow or to wait until the last minute. Also, while the oncologist recommends I try the cool cap, the chemo nurse says not to bother as with the combination of drugs I'll be getting, I'll most likely lose all my hair anyway.

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Re: Anyone starting chemo August 2015?

Hi Sarah, another tip I read on here is buy a silk pillowcase as apparently it helps the hair during the night and doesn't pull on it.  There are various shampoos that ladies recommend on here.  I found a shampoo bar in Lush who have all natural products and there is also one that stimulates the hair folicles naturally.  I would recommend giving the cold cap a go as you can always take it off if you don't like it, but it is a personal decision and the downside is it prolongs your stay by just over 2 hours.  Jakeb hope your chemo was ok today and you have been resting and Nico good luck for your next chemo xxx

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Re: Anyone starting chemo August 2015?

Hi ladies thank you bevstar I think we need all the tips we can get. Really grateful for all tips! Xxxxxxxx I'm doing the same as you blonde ambition I have bought a box and filling it with every eventuality. I also grew my hair long and I'm going to get it cut next week. And try and get a wig fitting I'm still so undecided about cold cap. I've also got a list as long as my arm to ask oncologist. Also jakeb I know you haven't been on here since you started this thread but you said that your first chemo was today just wanted to say I've been thinking of you and I hope it went ok big hugs xxxxxxx
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Re: Anyone starting chemo August 2015?

Thanks for the tips and empathy ladies. It makes me feel a little less scared. I've started gathering all the things I might need together in a box which is a good distraction.
I'm going for a haircut on Monday at Tony and Guy. They were very nice on the phone. It's taken me ages to grow my long hair but I want to let me little boy get used to mummy with shorter hair gradually so I'm going to go for a bob I think.
Hope you can all try and enjoy your weekends and don't think about cancer for at least a few hours 😊 xxx
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Re: Anyone starting chemo August 2015?

Hi ladies.

 

Popping in again from my August 14 thread & have just been reading through your posts. Undoubtedly lots of concerns & questions...just exactly the same as myself & the lovely ladies I journeyed with a year ago.

 

Re cold capping - I had long hair & took the difficult decision to choose a short cut in preparation for the cold cap. It wasn't the nicest of feelings. I found the first 30-40 minutes & the last 20 minutes the hardest. It does mean that you're in for an age longer than your chemo but I really thought it was worth it. My hair did shed after my 2nd chemo but it only thinned in patches (luckily I had plenty of thick hair which covered the patches in the main). 

Here's a tip....take some boiled sweets to suck whilst ' brain freeze' kicks in. Keep occupied.....if you have a chemo buddy with you take things to look at/do together. There'll be some times when you yourself don't want to speak but tell them to keep talking you through it.

 

Keep some flavoured ice cubes in the freezer at home. My mum bought me frozen pineapple & mango cubes...they were just nice to have to freshen my mouth if I felt a bit yuk after chemo. Ice lollies another handy thing to have in stock too.

 

Make sure you take your anti-sickness drugs even if you don't feel sick! & drink plenty of water.

 

Hope this helps you along for now & good luck to those of you starting treatment over the next few days!!.

 

I'll pop in again soon to see how you're getting on.

 

Sending hugz.

Bevster xxx

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Re: Anyone starting chemo August 2015?

Hi all

 

I thought some of you in this thread may find the BCC 'Breast cancer and hairloss' support and information  helpful so here's the link::

 

https://www.breastcancercare.org.uk/information-support/facing-breast-cancer/going-through-treatment...

 

For further support from BCC during this difficult time including our 'Someone like me' service please follow this link:

 

https://www.breastcancercare.org.uk/information-support/support-you

 

Take care

Lucy BCC

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Re: Anyone starting chemo August 2015?

Hi Blondeambition. Im 46 and I have had a mastectomy on the 7th of July. I am due to start chemo on the 24th. Im the same I am terrified but so glad this website is available as I think I would be going insane. I have long hair and I am going to get it cut next week but maybe into a bob as the lady that does wigs in our area said that it would be ok to do a wig fitting with hair that length so hopefully it will be ok. I dont know whether to have the cold cap although I would love to keep my hair but want to know if the length then stays and you are thin on top which would be fine with winter approaching as we can wear hats. Also ladies have you got any tips as to what to take before you go to chemo and whats best to take with you to keep yourself occupied and also what is the best thing to do when you get home. Sorry for all the questions. It must be so tough going through this with such a young baby and hope we can all support you through this. Hope all you lovely ladies are ok today.Big hugs and love to you xxxxxxxx
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Re: Anyone starting chemo August 2015?

Hi bravescholar - I think we all go through a guilt trip on this worrying about everyone else but I've found that children cope far better than we think they can.  I was diagnosed just as my daughters were taking their GCSEs and A levels and op 5 days after my youngest daughter's 16th.  We had booked for my nieces wedding in Italy and thought I wouldn't be able to go but I did and it was the best holiday,  My 2nd taxol is on the day of my youngest's GCSE results and my 3rd on the day of my oldest daughter's A level results, (having weekly chemo) but they are good distractions. The icing on my cake is that my sons partner is expecting my first grandchild in September - my son is a quite a bit older than my girls and they have been trying for so long.  I know it will be your first chemo and you will be worried - I was, but I hope the distraction of your son's birthday will allow you to enjoy the day before chemo.  We will all be thinking of you and sending virtual big hugs xxx

hi Blondeambition - I'm also on Herceptin and had first one last Thursday and have felt fine with it so far but early days.  I bought my wig from a shop in west London and I think they give a list on this site. Tony and Guy also advertise a service but when I rang a couple of the designated shops they were a bit vague and didn't know about the service - think it' s a new thing maybe xxx

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Re: Anyone starting chemo August 2015?

Thanks, sarahhd=1, and yes, the support on this forum is great. Keen (if that's the right word) to get on with it now, despite the nerves.

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Re: Anyone starting chemo August 2015?

Hi All
I am so glad I found this thread as I feel slightly less alone and scared. I am 33 and was diagnosed with invasive DCIS on 26 th June. I have had a mastectomy and reconstruction already and am due to start chemotherapy and Herceptin in a couple of weeks. To be honest....I'm terrified! It's all happened so quick and I just can't believe that I'm having to face this but what choice have we got ladies? We can't just sit here and roll over. I've got an amazing husband and a beautiful 20 month old boy who I need to fight for and be brave. Thanks for your tips on coping with the chemo. I'm trying the cold cap. I have shoulder length thick blonde hair and was thinking about a cut before hand to maybe make the cap more effective. I read on Macmillan that Toni and Guy have specially trained stylists in their salons who assist people going through chemo.
How did you ladies go about getting your wig sorted? Did you just find a local provider or did you go through the hospital? I really desperately don't want to loose my hair and so am trying to plan every possible alternative.
Whilst this is a horrible unfair awful situation that we are all in I am looking forward to having some lovely ladies to share this experience with and hopefully we can make light of some of the rubbish and help each other through the tougher bits.
Much love and support to you all xxx
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Re: Anyone starting chemo August 2015?

Hi bravescholar. So sorry you are going through this with so much going on. I know exactly how you feel. I've had a few big events this year and I was so looking forward to them and each one ended up being the week before I was getting a different set of results and couldn't enjoy those moments. I kept a brave face on for my family. Could they delay it for a couple of days as a couple of ladies had their treatment delayed due to other commitments might be worth asking. Your treatment sounds very similar to mine but round a different way but your right about it being a long haul. So grateful for this forum it helps so much instead of waiting to talk to a nurse or doctor to get back to you or until your next appointment. Big hugs ladies. JakeB hope you are ok for when you start chemo on Thursday will be thinking of you xxxxxxxxxxx
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Re: Anyone starting chemo August 2015?

Hi Sarah hd,

 

Yes I am using a soft toothbrush. I didn't take paracetamol before cold cap but I know some do. Glad I could help x x

 

Sandra 

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Re: Anyone starting chemo August 2015?

Hi Nico, Sarah and everyone.  Thanks Codisue for those good tips - didn't realise you could get Aveeno on prescription and have been buying it from Costco which was a lot cheaper 3 tubes for under £6 but will ask my GP.  Sarah I have the Dr organic nail oil from Holland and Barrett but think any nail oil will do.  It's a pain having to wait but you'll be fine as soon as you get going and if they've said it'll be bank holiday should think they will keep to it.  Nico glad your first one was ok - I joined you in the July thread but delayed mine as had holiday booked.  I was thinking of cutting my shoulder length hair short but bcns said to leave it as if I lose it from the top I can do a sweep over!  I must admit I did get my wig and she's sitting on the head stand at the ready.  Feeling ok today and getting myself psyched up for chemo no 2 on Thursday.  Been to work this week part time but not sure how much longer I'll be able to go in, just taking it week by week.  Big hugs to you all xxx

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Re: Anyone starting chemo August 2015?

Hi. This is my first post. I'm starting neoadjuvant chemotherapy (AC-T) on 19th August, the day after my younger son's birthday and the day before my older son gets his GCSE results. I have invasive lobular cancer in my right breast and it's also in the axillary lymph nodes. The plan is to follow chemo (eight two-week cycles) with a mastectomy (right breast) and full lymph node clearance, then radiotherapy and hormone treatment. So it looks like we're in for the long haul. Don't have much to say other than I'm as apprehensive as everyone else seems to be and am keenly seeking tips that might alleviate any problems/complications that might arise. Good luck my fellow August travellers. We can try to be brave together!

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Re: Anyone starting chemo August 2015?

Hi nick so glad to hear your so positive. I'm the same as you but going through nearly the whole of August dreading it. I'm having FECT but been to afraid to read through the details of it yet and just taking tips from the lovely brave ladies like yourself on here. Glad you got through your first one ok it gives us all some hope. Big hugs to you and hope you can enjoy your time feeling good me and my family are trying to make sure that on good weeks we are going to try and do something nice so we have something to look forward to as I've been told that helps. Hope we can a help each other through this xxxxxxxxx
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Re: Anyone starting chemo August 2015?

Hello Carole & August Starters

 

I started the July 2015 thread because I expected to start then but actually had my first chemo on 1/8. So I'm one of you really! I'm having FEC 75, to be followed by RTX & then 10 years of tamoxifen. I agree it feels  like a very long haul but needs must I guess.

 

I was dreading chemo, especially as I had the whole of July to anticipate it. However, so far the worst I have experienced is about 5 days of feeling totally drained, light headed & foggy. By day 8 I was ok again. I have developed a very spotty chin, which I gather may be a side effect of the steroids, so hope it won't get worse with each cycle. 

 

My hair is getting lifeless but not falling out yet. It's short but I may get it cut even shorter to make it easier to deal with. No idea when it will start to leave me!

 

Best wishes to you all on the journey no one wants to be on.

 

Nick xx

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Re: Anyone starting chemo August 2015?

Hi sue thank you for all your tips everyone is so helpful on here. I've now bought the box and it's gradually filling up with all the advice I've been given I'm hoping I will have everything for whatever occurs. I'm thinking if getting my hair cut as it is very long. I'm a very undecided on the cold cap so many different stories on here for that which part of the treatment does your hair fall out and when should I cut my hair and go for a wig fitting? Should I just go for it before treatment starts or go in between. Thanks ladies for all the tips. Xxxxxxxxxx
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Re: Anyone starting chemo August 2015?

Morning August newbies, I am from the November starters and i too had FEC T. Not sure if you are aware but you are entitled to free prescriptions now and Aveeno is available on prescription...there have got to be some perks to this awful disease. Also for hands and feet I was advised by past BC lady to use Udder cream which yes, was originally for cows udders but it was excellent. You can get it on Amazon ......Udderly smooth cream with urea was the one I used about £8 big pot.My hand and foot probs only appeared with T and this really helped. Also some may lose their brows and lashes, as soon as I had a bit of stubble back I used Grande Lash MD also on amazon but about £42 but well worth it and within 6weeks had nice long lashes...better than before. Good luck on your journey ......not a nice one but worth it and you can do it, most of all stay positive! This site has been a godsend during active treatment and still is now and lots of ladies on the threads have arranged to meet after treatment as we have. Love to all Sue xx

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Re: Anyone starting chemo August 2015?

Hi carolec. How are you feeling today? Thank you for sharing I'm writing down all these tips I'm getting a box together with all the things I might need. What oils are you putting on your nails? I hope we can all help each other through this. I've just found out the date they have given me is the bank holiday Monday do you think they will delay or do they do chemo on bank holidays? Xxxxxx
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Re: Anyone starting chemo August 2015?

Hi there - I had my first chemo on 6 August and am having 12 weekly Taxol and Herceptin and that will be followed by letrozole.  It was a bit of a long day as also had port fitted.  I am trying the cold cap and it was ok - haven't had any hair loss yet but expecting to lose some after second/third chemo.  I will be having my second when you start yours JakeB so good luck.  There are some really good tips from ladies on this site and I have bought some Aveeno cream for hands and feet and some oil for nails.  I have also ordered some wide hairbands and scarfs.  Like Sarn66 said just rest when you need to and I've also been drinking lots of water to flush out the toxins xxx

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Re: Anyone starting chemo August 2015?

Hi bevster thank you so much for sharing this it really helps to have a goal to look forward to. I'm having the same treatment as you. Feel like such a long road ahead! Hope you had a lovely time with the ladies big hugs xxxxxxxxxx
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Re: Anyone starting chemo August 2015?

 Hi ladies.

 

Just thought I'd pop into your thread to wish you all luck.

I formed the 'treatment starting August 2014' thread so am a year on from where you are now.

 

I am Cancer free but still have ongoing treatment. Had chemotherapy & radiotherapy. Now having herceptin every 3 weeks & am on tamoxifen for 5 years. Yes.....they threw the whole lot at me but I figured the more treatment you have hopefully the better chance of keeping the bloomin disease away!

 

I also cold capped & although my hair did shed, I managed to retain most of it (in a short style). 

 

Just to give you something to aim for.......a few of us from our August 2014 thread met up just this Saturday gone....we had champagne afternoon tea at The Ritz which we had promised ourselves when we felt rubbish. It felt great to be a year on & actually doing it!!!! 

 

You'll go through so much together on here....I know I've made some very special friends for life on this forum.

 

So I wish you all well & will pop in to read how you're getting along.

Stay strong ladies..... You can do this!!!

 

Sending love. 

Bevster xxx

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Re: Anyone starting chemo August 2015?

Hi Sandra
Thank you for your reply. There is some really helpful tips there. Someone told me to a soft bristle toothbrush helps with mouth sores if thats any help for you. Did you take any paracetemol or anything before the cold cap? Thanks again Sandra.xxxx
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Re: Anyone starting chemo August 2015?

Hi there,

 

I had my first chemo on 30th July, so nearly Aug.  Chemo was fine and also used cold cap which wasnt too bad either.  I felt fine until the following day when I felt a bit light headed, tired and breathless.  Also felt like I had a hangover for a few days.  By day 5/6 the fog began to lift and I was much calmer.  I have had a few mild side effects but nothing I couldnt handle.  A sore mouth and throat was easily sorted by some gel that the Oncology Nurse gave me and I am also using corsodyl mouth wash everytime I clean my teeth.  I had a few aches and pains so took some paracetamol and ibuprofen together which helped.  Slight dry skin rash on back of my hands but unperfumed moisteriser kept that at bay and now it has gone. For constipation I had some prunes and prune juice.  I had 1 day of diarrhoea but used tesco own brand anti-diarrhoea tabs which worked immediately.  Most importantly drink LOADS OF WATER, they recommend 2 litres a day.  It helps to wash the chemo through your system and makes you feel better to be properly hydrated.  Dont beat yourself up if you just feel like staying in bed for first few days, do what your body tells you to do.  You will gradually feel brighter I promise and dont be afraid to call the Oncology Nurse about anything that worries you, it doesnt have to be urgent.

 

Hope all goes well for you, if I can answer any other questions pls feel free to message me.

 

Best wishes

 

Sandra x

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Re: Anyone starting chemo August 2015?

HI JakeB I am starting on the same on the 24th. I am too very nervous but I am trying to read all the positive advice. I am stocking up on all the things that are good.
How many treatments have you got to have? Did you have a mastectomy. Hope you are ok? xxxx
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Anyone starting chemo August 2015?

Hi, I'm starting my first chemo (FEC T) on thursday (13 August); I would llove to know if there are any other newbies out there. Feeling a bit nervous at this end!