carolec & blondeambition sorry, got mixed up over dates. surely chemo brain can't have set in already?
Hi all. Still feeling ok after yesterday's chemo. Bit headachy. Preparing for the onslaught. Am being very compliant with the meds.
Cool cap was cold (surprise!), but I found it bearable. However, I'm going wig hunting soon with my two 20-something nieces - I'm not hopeful re keeping the hair but I wouldn't want to think I hadn't tried the cool cap. Will also order some "headwear" online today.
carolec & Blondeambition good luck tomorrow.
bib44 I'm on neoadjuvant chemo AC-T, 8 two-weekly cycles (4 of each). I'm to have a G-CSF injection 24 hours after the end of each session to help support my white blood cells. Today I have to go for hospital for this but they'll teach me how to do it myself so I can do it at home for the other sessions. The joys. I'm hoping to have the odd knock-up during chemo if I'm up to it. My op - in December or January if things go well - will be on the right side as well.
I don't know what the etiquette is on this, but does anyone think it would be nice if we all knew a bit about each other, perhaps at least which area of the country we live in? I don't mind going first. I live in South London. I'm 52, I'm originally from Glasgow and I've not lost the accent!, and I've been in London since 1987.
Bravescholar - how are you today? Also good luck Carol & Blondeambition for chemo/heart scan. If anyone is interested I just downloaded a healing app by Glenn Harrold. Sounds a bit hippyish I know, but I read it reduces recurrence so I thought I'd give it a go. It was very relaxing & I feel super calm now. Maybe worth a try if you are feeling stressy.
Bravescholar glad to see you on here after your first chemo and hope you take it easy over the next few days. I'm home from hospital thankfully and it's ok for me to have my chemo tomorrow so will probably go for it xxx
Hi Bravescholar I used to play 3x a week & stupidly thought I might be able to play about now. I think it's because I'm right handed & that's my op side. All the tennis ladies have been amazing & really rallied round, but I feel a bit of a sad case just turning up for the coffee afterwards! So you survived the volume cap. I'm going for it, but as it's the only bit of the treatment where I can say "I'm a wimp, get me outta here" there are no guarantees I'll stick it out. We can compare progress. What are you on? X
I think our treatment seems quite similar. I am having radioT for 15 consecutive days after chemo. Is that the same for you? My husband got me a book called 'bah to cancer' & the woman in it had our exact treatment. Quite interesting to hear her experience.x
Good luck, Lisalouw. We're all keeping our fingers crossed for you. I'm at home resting after 1st chemo and four hours (!) of cool capping. Feeling ok so far, just waiting for nausea and fatigue to set in.
Bibi44, no tennis for a year! I play tennis too, and, I know it's silly, but the thought of not being able to play tennis for a long time is one of the worse things about this whole thing. I play in the ladies 3rd team at the club and I really, really, really love it. My team mates been great since my diagnosis and all turned up for a "final" friendly last week!
You poor love, you have really been through the mill & sound exhausted. Get your feet up tonight & don't worry about the post. Good luck xx
So much has happened in the last couple of days whilst I've been running around like a headless chicken getting haircuts & wigs sorted. Carol, so sorry to hear about your experience. Sounds horrible for you & I hope you are better. Also toothache/bones scans not at all nice either. Good luck to all our (not so little) GCSE grafters . . I had a debate with ours about whether getting your results is worse than getting a wig & he thought it was!
I got 6x FEC-T (sounds like a prison sentence!) with a year of Herceptin & 1st one will be next Thursday. I found the oncologist very nice, but wish they didn't have to run through all the rare side effects . . . One she quoted was 1 in 2000! I need a muga scan. Has anyone had that?
i like the sound of you playing golf . . How long after surgery was that allowed? I have been told no swimming until March, no tennis for a year & no golf for the foreseeable. She suggested gentle starching instead, ha ha that should say stretching.
Hope everyone is feeling ok. Best wishes to all x
Good luck today Bravescholar - I had my first one 6 August and found once that was over I was in a much better frame of mind as knew what I was dealing with xxx
Oh my goodness, we seem to be having a hard time of it, don't we? I'm all set for my first chemo tomorrow (I think I'm the only one of the group who's having chemo first. Is that right?). Am not feeling confident at all. I keep having to remind myself that this is the first step to getting better. Was up and working at 4,30 this morning. Just couldn't sleep. Managed to have a nice day today, though. Had a knock-about with older son on tennis courts and managed not to cry singing happy birthday to my younger son. Good luck everyone.
Sarah hope you are relaxing now and try not to do too much - good luck for your liver scan tomorrow and the Hickman line on Thursday. I'm on another 20 hour drip so still in hospital and soooo bored! To top it all my eye infection is traveling down my face so I look hideous and on two lots of antibiotics.
Lisalouw - good luck with your first chemo on Friday - the first one is the scariest cos its unknown so sure you'll be in a better frame of mind when that's out of the way. Blondeambition I remember waking up in the night as well, again once you start hopefully you'll be able to get your head round it - hark at me I've only had two! Not sure if I can have mine on Thursday yet and I'm kind of hoping they leave it for a week if I still have this infection.
i too am trying to keep track with what ladies are doing and have to keep going back while writing this to see who's having what but wish everyone good luck with tests and chemo this week - Nico think you'll be having your second soon so good luck with that xxx
Thanks Sarah - now I'm being made to relax but bit bored - hopefully will be out of here tonight. Taking paracetemol but might ask for something stronger and antibiotics for a sty that has become badly infected - I never usually suffer from anything really and feeling a bit sorry for myself.
Lisalou you poor thing being separated from your young son but hopefully they will have good results soon on your bone scan I'm not having TAC but I'm sure there will be other ladies on here who are or one of the other ladies who have been through chemo sometimes pop over and give some very really valuable tips.
good luck to all those starting first chemo this week xxx
Thank you now hoping the GCSEs are ok - sarah I had a bit of a cough and cold and they let me start but suppose depends how bad it is. I've had a bit of a set back. Chemo Thursday and running around Friday and Saturday - shouldn't have overdone it - Sunday arm looked a grey colour and painful lump under arm near armpit so went to GP yesterday and referred to Hospital and spent most of the day waiting for tests. All ok but final scan revealed blood clot at port so admitted and now having a drip for 20 hours to disperse it and then have to inject myself with blood thinners are 3 months - hate needles! Boring just lying here doing nothing. Have been told this is unusual and not the same as a dangerous dvt in the leg otherwise would have had more drastic treatment - just such a pain but have been told it shouldn't delay chemo so role on Thursday xxx
I was diagnosed from a routine screening with grade 2 lobular BC in the R breast on 15/6 - shock! Horror! The surgeon would have done a lumpectomy but I requested a bilateral mastectomy - family history, future difficulties possibly in detecting any further cancer and the fact that lobular is more likely to occur in the other breast - my surgery was 6/7 and I recovered very quickly. I have no regrets about my decision. In fact as time goes on I am more convinced it was so right for me . I am a very fit 66 with no other health issues. The pathology after surgery showed no cancer in the other breast, 2cm grade 2 non aggressive hormone receptive tumour in the affected breast, and 1/9 lymph node involvement. I have just started on 6/8 6 cycles FEC-T. The anticipation is worse than the actual experience. Some one on this forum said that it is like a very bad hangover for a number of days - everybody is slightly different. Follow the instruction re the sickness medication, be prepared for a few days out of action and keep focused on the end result - you will triumph over this beast! Tips - biotene moisturising mouthwash for the lack of saliva, take the constipation medication before you think you have a problem and keep taking it until you feel your body is back to normal, fresh soft fruit and yoghurt which is easy to get down when you have little appetite. I found the good old standby of toast was hard to eat as I couldn't chew and swallow easily with my dry mouth. When you start to pick up try to get some exercise and fresh air - makes a big difference to your well being. My next cycle is 27/8 so enjoying this time now when I feel "normal" before the next time - I think it is good to take each phase of this journey a bit at a time - deal with it in chunks and don't frighten yourself by extrapolating too far forward. This day last week I was feeling uck and today I am going out to play a few holes of golf - so there is life to be enjoyed! I hope this helps and do get in touch if you want any other information. Good luck for your first cycle
Busy week Lisalouw! A few people have said the worst bit is the worry before you start. I know I am in panic/stress warp 10 at the moment. I wake up in the middle of the night with chemo drug names swirling round my brain & I don't think that's quite what they mean by 'chemo brain'! I was so pleased to get out of surgery ground hog day (2 ops in 2 weeks), but then suddenly remembered what comes next.. . .
all the the best with everything xx
Good luck for weds Bibi44 - my understanding is the 6 sessions are usually fec-t or another combination which a lot of ladies have every 3 weeks and some of us have 12 weekly paclitaxol instead, which I was told is a weaker chemo but unfortunately every week and can be given to lower stage/grade ladies. I've never tried hypnotherapy, but it certainly sounds worth a go.
bravescholar - it's hard isn't it having to tell your kids - I found that the worse too - and also hard to have to tell parents. I think we all try and be strong for them when inside we're falling apart and that's what's good about this forum as we can all relate to each other's problems. Your eldest must be getting his GCSE results next week same as my youngest daughter - my eldest daughter did well with her A level results last week and has a place at her chosen uni so thats good.
good luck for next week everyone xxx
Hi all in the August group
Sadly I will be joining you all for this lovely journey via the Marsden, Surrey if anyone else is based here. I had a stage 1, HER2/ER +ve BC & like a few others this month was told I only need the chemo to get the Herceptin working. After my op, I was upgraded from a grade 2 to a grade 3, which was totally gutting & like being diagnosed all over again. They said I would probably now have been advised to have chemo anyway, although no nodes involved. So off to the Marsden on Weds to hear what I'm in for at the end of the month. Slightly disturbed to hear the other HER+ ladies are having 12 treatments . . . I was told 6 by my surgeon, but may well be joining you for the marathon. That's quite a lot of freezer time for the cold caps!
Good luck every one. My thoughts are with you all.
ps someone advised me to get hypnotherapy to help with the ice caps . . Has anyone tried that? I gave up smoking via hypnotherapy years ago & I think if it can help you break a really bad habit like that, maybe it could work??
Hi Bravescholar (love the name, by the way!)
It is tough telling elderly parents. I think they feel the proper order of things has been breached & it's upsetting for them to be unable to take this trouble from you onto themselves. In my case, it's just my mum, as dad died last September & actually I'm glad he never had to know about this. I hope you are able to spend a pleasant weekend & that you enjoy your cooked breakfast!:-)
Good luck with your first chemo on Wednesday.
Poniente - I didn't find the PICC line insertion too uncomfortable. They always offer to top up the local anaesthetic. I'm not bothered by needles though. It did feel a bit weird at one point when I got palpitations but the nurse said it was a good sign of the line being in the right place. She withdrew it a bit & the palpitations stopped. You have a chest xray to check the position & it was right first time for me. It was a bit sore that evening but fine by the next day when I started chemo. It didn't take that long to insert the line but I was in the unit for a few of hours I think, waiting for the nurse & also having a talk about the whole chemo process. The pharmacist also came to see me while I was there, which meant a bit of a wait. I had a bed to relax on & could help myself to drinks & biscuits, so it was fine. I was offered lunch too.
Sarah - I will be having rtx in the new year (time off for good behaviour?).
Carole - yes, I did have a bit of a glow for the first few days from the epirubicin. I quite liked it, as it made me look healthy!
Should I have been offered a wig fitting? It hasn't been mentioned so far. Not sure I want a wig but it would be nice to be offered the chance or given info.
All the best to new starters.
I start mine on 28 August in Calderdale anyone else in this area. I am having my PICC fitted a few days before. It's been a whirlwind but we all have to keep our chins up. Dreading the PICC line being fitted I am a complete wush and needles well my legs just buckle. Has anyone had one fitted how long does it take and does it hurt. I had my mastectomy lymph node clearance 16 July. The operation went well and I am healing well. I am having EC 3x3 then taxol finish 4 December if all goes to plan
I asked to try cold cap but because I have COPD oncologist said I would not stand the cold so I have been on line ordering headgear etc. roll on Christmas!!