Glad your chemo went well yesterday Bravescholar - I'm just back from chemo no 5 so only 7 weeks to do before I finish and I'm counting down. I found the cold cap a bit of a struggle today but once the 1mg lorazepam kicked in and the piriton made me drowsy I was off in dreamland! So relieved one more chemo is out of the way and have come home craving anything chocolate I can get my hands on. I have ordered the RM cook book though so will definitely try and change my eating habits, but after what we're being put through we deserve something nice! They also gave me emend as for the first time since treatment started felt sick again and also had it a couple of days hope - hope the emend will do the trick.
good luck everyone who has chemo or other treatments this week xxx
Ha ha Sarah. Last weekend I just lost the healthy eating plot. My husband had already been to the garage (5 miles away) for snacks & put the car away. I had said I didn't need anything, trying to be virtuous. Then I got a bit fed up of it all & decided white wine & cheese mccoys were the only thing that would work. So off he went half an hour later swearing his head off . . He'd just got all comfy on the sofa. I didn't really get my act together again on the healthy eating until yesterday. I think it was all the rain over the weekend, a bit of a downer (any excuse). Glad your chemo was ok. x
Made me laugh too, Sarah! Yes, indeed, treats are a must. I've gone off tea too, though. On the bright side, guess that means fewer choclate digestives! Seriously though, I did lose my appetite a bit after the first sessions and have lost two kilos. I think that's good and bad.
Hi ladies. Just catching up on posts after a few days off the forum. You're all putting me to shame with your healthy eating. We had a Chinese takeaway last night and I've just finished a slice of buttered toast and peanut butter!
2nd chemo cycle went well yesterday - thanks for the advance good wishes.- although I have to say I really struggled with the cool cap this time, having found it ok the first time.Still, I did perservere. No head hair loss yet (have been told with AC it usually starts after 1st or 2nd session so these next two weeks are critical).I'm feeling fine today, emotionally and physically, although mouth already feels a bit "thick".
Good luck with whatever life throws at us all over the next few days/weeks! x
Interesting! I do mean veg, broccoli and salad greens for mine. I think spinach & watercress are supposed to be important. I did the carrots in my nutri ninja (chopped 'em up pretty small first) with water, ginger & lime juice. Just so you know you don't need a juicer too. This disease seems to have turned me into a 1950s housewife . , looking at the labels in the supermarket, cooking stuff from scratch & a cupboard full of new gadgets. x
i think we might all give you a different answer to the green stuff formula. Mine is just as many leafy green veg as we have in the fridge, lots of herbs plus cherry tomatoes, cucumber & avocado in a bit of water. I've also seen one which is bramley apple & fennel which is supposed to be good for hair, as is carrot juice. I would be interested in what others are doing too. Enjoy your stir fry. xxx
Hi BlondeAmbition I have read that one & the Sevan-Schreiber Anti Cancer diet. Both very helpful diet wise. Their diets are similar i.e. Just super healthy eating. What Dr S-S has to say In addition is that stress is a big thing for BC & suggests meditation which has been proven to reduce recurrence. He also allows chocolate as long as high cocoa content & red wine. x
Lisalouw Are you OK? You seem to have gone very quiet & I hope you are not still feeling bad after your chemo. Let us know with a quick post when you feel like it & all the best to you in the meanwhile xxxx
Blondeambition your post made me laugh because I am just totally wishing away the next 6 months of my life, which is kind of ironic under the circumstances. Glad to hear your hair is holding on so far. I am doing the green sludge drinking too & weirdly I quite like the taste, despite the fact I hate things like kale usually. I was talking to my chemo nurse specialist yesterday about the black nail varnish idea (obviously she had nothing better to do with her time!) & she recommended horse's hoof & onico life to stop your nails ridging/falling off and lipocils for eyelashes/eyebrows. I also found a cancer help centre under our local Tesco which does free counselling, massage, reflexology etc. Who'd have guessed. I must have walked past that door a hundred times & not noticed it. Xx
Hi All, glad that everyone is ok and that you are feeling better Sarah - the complementary therapies sound good. For some reason I woke up this morning at 4am and felt really sick and have had a metallic taste in my mouth all day - anyone else have this? I have also just read that these are side effects for herceptin and I had my second injection last Thursday so maybe down to that!
The green juice sounds good - I'll have to get some wheat grass - I have a nutribullet but don't use it enough and if it helps to keep your hair I'm definitely going to try some juicing and will look at that book.
Good luck all those having chemo this week and the new starters on the 7th. It's a shame your chemo was delayed but as the other ladies have said hopefully you'lol be able to relax and be pampered at Christmas xxx
Hope you all had a good weekend & weren't feeling too awful. I spent 3 days last week at the hospital for various things & was told my first chemo has been moved to 7/9 now. I was hoping to get going this week & now my last chemo will be 21/12, which doesn't bode well for a fun filled Christmas! LisaJane I think you said you are also a September starter, so you will be in the same position I think. Which regime have they put you on? Sarah glad you got through round 1 of FEC. How do you feel now? Carol so pleased it was just a dream! I am dreading doing the cold cap & losing my hair anyway. i've had a few people telling me to pain my nails black . . Has anyone else discussed nails with their chemo nurses?
Good luck to BraveScholar, Carol, BlondeAmbition & anyone else having more treatment this week. XxxxX
Hi Bravescholar sorry to hear you have had a bad time of it - I've seen a suggestion on here of keeping a diary - my symptoms do seem to follow the same pattern after chemo. I've woken up today feeling like I've been through the washing machine a few times - also dreamt last night that I had big patches of hair loss all over and woke up thinking it was true! That may come in time but still trying to think in a "glass half full" kind of way. Was going to the seaside today but now decided on a shorter trip to visit family in London and maybe go out to lunch, although the taste buds were playing up yesterday.
Lisajane there's a few of us on here using the cold cap and seems to be successful so far - good luck with your chemo on the 9th.
Hope everyone is feeling better today xxxx
Glad things seems to have settled down for most folk.
My 2nd chemo session is on Wednesday. Got off lightly with the first cycle other than this past Friday, which was a horror of a day with severe headache and forehead sweats all day and thankfully just one episode of vomiting. It actually all felt like food poisoning but without the runs. In fact, I guess it could have been, as Friday was nine days after the chemo session.
Re cold cap at first session, I was given two paracetamol beforehand.
Re anti-nausea meds, pre-chemo I was given iv dexamethasone (a steroid), and in tablet form Aloxi (palonosetron) and Emend (aprepitant). Then post-chemo I was given dexamethasone tablets, to be taken at breakfast and lunch for three days; Emend (aprepitant), to be taken once a day at breakfast for two days and domperidone, to be taken three times a day for three days and then as required. I was very compliant and took everything as directed. I didn't feel any nausea at all - but no bloody wonder with so many anti-nausea drugs!
I believe the type of anti-nausea meds you're given is determined by which chemo drugs you're on.
Good luck to anyone else who has chemo this week.
Hi Blondeambition I had my fourth paclitaxol yesterday and they also gave me my second herceptin. I never have sickness meds to take home - they give me them through the drip along with a combination of other things including piriton, steroids etc but never anything to take home. To be honest touch wood I haven't felt sick enough to take any meds but maybe that's something that will come later. I usually find it all kicks in after a couple of days and I do feel very achey for a few days and then I'm better again. I have had the cold cap each time and the second week I couldn't wait to get it off. They told me that most people have a mild sedative and since then they have given me 1mg lorazepam which does the trick and I usually have a nice sleep. I have just been to the hairdressers for a trim as my fringe was getting too long so my hair must be growing bit - hope I'm not speaking too soon and it all falls out next week! Hope everyone has a nice relaxing weekend
I'm the July thread and saw your post about anti sickness meds. I was given Emend as I asked for it because I had awful morning sickness (you are more likely to suffer with nausea if you had bad morning sickness) and so far I've not really felt nauseous. You still don't feel great but at least not nauseous! I believe it is expensive so it is not given routinely. Lots of other ladies have also recommended it on these forums so it works. X
Thank you Gaynor,
Will definitely speak to oncology nurse about white furry tongue etc and get some meds sorted for next time. I'm still feeling nauseous, any suggestions? What anti sick meds have worked best? Thanks Ladies
Sandra x x
Bravescholar don't worry about having a moan - that's what we're all here for to support each other and we all deserve a moan for what we're going through. I have suffered with the mouth ulcers and bought some Corsodyl, like Sandra and it seems to keep them down and also gargled with salt water yuck! Glad you're feeling better Sandra. Sarah that's a good tip for sicknes - will get some ginger ale and have tried ginger biscuits xxx
Day 6 today, 2nd Taxotere last Thurs. Starting to feel bit brighter mentally but physically still very lethargic and achey. Just learning to go with the flow and rest when I need to. Worse symptom so far was constipation, spoke to Oncology Nurse and recommended some otc meds to take. Finally worked, such a relief. Woke up this morning with very white furry tongue so using lots of Corsodyl to rinse and gargle. Still trying to find foods that taste okay, bit hit and miss. Toast and Honey seem to be the best at the mo. Still drinking gallons of water but Im sure Im still dehydrated!!
Picc line is okay but I do get fed up with the tubi-grip falling off, not very nice to see the wire and connections coming from my arm. Also having to go to the 1 hour round trip to the hospital every week to get it flushed is a bit of a pain, my local practice nurses dont want to get involved with it. Nevermind, at least I get to speak to the Nursing team once a week if I have any queries.
I can see there has been a few queries regarding having a picc line fitted. Just wanted to let you know that it didnt hurt at all, i think the thought of it is worse than getting it done. It makes chemo a lot easier because they can just conncect you up and get on with it. They dont have to spend time trying to find a vein and fit a cannula everytime you have chemo. I have been using a cold cap so the Nurse said it would be better to have a picc line fitted because your veins shrink when you are cold. If i can help with any other queries let me know.
Hope everyone is having a reasonable day to today. Hang in there, together we can do it!!!
Sandra x x