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Anyone starting chemo August 2015?

carolec
Member

Re: Anyone starting chemo August 2015?

Glad your chemo went well yesterday Bravescholar - I'm just back from chemo no 5 so only 7 weeks to do before I finish and I'm counting down.  I found the cold cap a bit of a struggle today but once the 1mg lorazepam kicked in and the piriton made me drowsy I was off in dreamland!  So relieved one more chemo is out of the way and have come home craving anything chocolate I can get my hands on.  I have ordered the RM cook book though so will definitely try and change my eating habits, but after what we're being put through we deserve something nice!  They also gave me emend as for the first time since treatment started felt sick again and also had it a couple of days hope - hope the emend will do the trick.

good luck everyone who has chemo or other treatments this week xxx

Bibi44
Member

Re: Anyone starting chemo August 2015?

Ha ha Sarah. Last weekend I just lost the healthy eating plot. My husband had already been to the garage (5 miles away) for snacks & put the car away. I had said I didn't need anything, trying to be virtuous.  Then I got a bit fed up of it all & decided white wine & cheese mccoys were the only thing that would work. So off he went half an hour later swearing his head off . . He'd just got all comfy on the sofa.  I didn't really get my act together again on the healthy eating until yesterday.  I think it was all the rain over the weekend, a bit of a downer (any excuse). Glad your chemo was ok. x

bravescholar
Member

Re: Anyone starting chemo August 2015?

Made me laugh too, Sarah! Yes, indeed, treats are a must. I've gone off tea too, though. On the bright side, guess that means fewer choclate digestives! Seriously though, I did lose my appetite a bit after the first sessions and have lost two kilos. I think that's good and bad.

Blondeambition
Member

Re: Anyone starting chemo August 2015?

Hi Bravescholar
Glad you are fairing ok so far. Fingers crossed for you hair and very well done for persevering with the cold cap. xxx
That made me laugh Sarah! I can't resist crisps but my appetite has really suffered this last week. I just don't really fancy much at all and I've totally gone off hot drinks. It can be a miserable existence without tea and biscuits! xx
Sarahd-1
Member

Re: Anyone starting chemo August 2015?

Hi bravescholar glad you are ok:) over the last couple of days I became a one woman eating machine I was hungry all the time. It has subsided a bit now but healthy eating was a struggle when all I wanted was marmite and cheese spread on toast and crisps. I think having a bit of what you fancy is a must going through this 🙂 xxxxxxxxxx
bravescholar
Member

Re: Anyone starting chemo August 2015?

Hi ladies. Just catching up on posts after a few days off the forum. You're all putting me to shame with your healthy eating. We had a Chinese takeaway last night and I've just finished a slice of buttered toast and peanut butter!

 

2nd chemo cycle went well yesterday - thanks for the advance good wishes.- although I have to say I really struggled with the cool cap this time, having found it ok the first time.Still, I did perservere. No head hair loss yet (have been told with AC it usually starts after 1st or 2nd session so these next two weeks are critical).I'm feeling fine today, emotionally and physically, although mouth already feels a bit "thick". 

 

Good luck with whatever life throws at us all over the next few days/weeks! x

Blondeambition
Member

Re: Anyone starting chemo August 2015?

They're antioxidant, omega 3 and protein source xx
lisajane7878
Member

Re: Anyone starting chemo August 2015?

What do the chia seeds do? I have used them before but not sure what they do xx
Blondeambition
Member

Re: Anyone starting chemo August 2015?

Thanks BiBi...I'll try carrot tomorrow. xx
Bibi44
Member

Re: Anyone starting chemo August 2015?

Interesting! I do mean veg, broccoli and salad greens for mine.  I think spinach & watercress are supposed to be important. I did the carrots in my nutri ninja (chopped 'em up pretty small first) with water, ginger & lime juice. Just so you know you don't need a juicer too. This disease seems to have turned me into a 1950s housewife . , looking at the labels in the supermarket, cooking stuff from scratch & a cupboard full of new gadgets. x

Blondeambition
Member

Re: Anyone starting chemo August 2015?

I do half spinach topped up with pineapple, blueberries, orange and pear with water and a tablespoon of wheatgrass powder and a tablespoon of chia seeds. I prefer mine with more fruit. The more leafy greens the better I think though and I've also heard carrot juice is supposed to be excellent but I haven't got a juicer. xxx
Sarahd-1
Member

Re: Anyone starting chemo August 2015?

They all sound really nice apart from the fennel. I'm going to a farm shop tomorrow after wig fitting. It would be amazing if it works 🙂 xxxxxxx
lisajane7878
Member

Re: Anyone starting chemo August 2015?

I use organic spinach kale celery Apple ginger lemon and manuka honey. Oh and teaspoon wheatgrass powder xxx
Bibi44
Member

Re: Anyone starting chemo August 2015?

Hi Sarah

i think we might all give you a different answer to the green stuff formula.  Mine is just as many leafy green veg as we have in the fridge, lots of herbs plus cherry tomatoes, cucumber & avocado in a bit of water.  I've also seen one which is bramley apple & fennel which is supposed to be good for hair, as is carrot juice.  I would be interested in what others are doing too. Enjoy your stir fry. xxx

 

Sarahd-1
Member

Re: Anyone starting chemo August 2015?

Also can you let me know what to buy for the green sludge drink? Willing to try anything as I'm not doing cold cap. Xxxxx
Sarahd-1
Member

Re: Anyone starting chemo August 2015?

I hope you got on ok today bravescholar? My husband is cooking a healthy stir fry tonight. He better cook a lot I haven't stopped eating today! Have any of you had the same? Xxxxxx
Bibi44
Member

Re: Anyone starting chemo August 2015?

Hi BlondeAmbition  I have read that one & the Sevan-Schreiber Anti Cancer diet.  Both very helpful diet wise. Their diets are similar i.e. Just super healthy eating.  What Dr S-S has to say In addition is that stress is a big thing for BC & suggests meditation which has been proven to reduce recurrence.  He also allows chocolate as long as high cocoa content & red wine.  x

Blondeambition
Member

Re: Anyone starting chemo August 2015?

Sorry to go on about books ladies but this book is the one which said the green juices and healthy diet helped prevent hair loss. It is a really interesting read (albeit a bit technical at times):

Jane Plant CBE
Your Life In Your Hands: Understand, Prevent and Overcome Breast Cancer and Ovarian Cancer

I have found it a huge comfort and it has made me feel a lot more positive about things. It basically says everyone should be taking steps to prevent breast cancer not just those who have had the disease so it made me feel like less of a weirdo doing all of these things and more like someone who is ahead of the game - make sense?!

Hope you're ok LisaLouW.

xxx
Bibi44
Member

Re: Anyone starting chemo August 2015?

Lisalouw Are you OK? You seem to have gone very quiet & I hope you are not still feeling bad after your chemo. Let us know with a quick post when you feel like it & all the best to you in the meanwhile xxxx

Sarahd-1
Member

Re: Anyone starting chemo August 2015?

I've ordered it too 🙂 xxx
lisajane7878
Member

Re: Anyone starting chemo August 2015?

Oh ps book ordered from Amazon. It's on route xxx
lisajane7878
Member

Re: Anyone starting chemo August 2015?

Ah blonde ambition your not far from me in Leeds. What are lipocils?? I feel a bit more sad about the eye lashes and brows as I can usually spot someone without them. I have an appointment Friday morning to try some wigs. Thought I would prepare myself a bit in case the cold cap doesn't work. I have become slightly obsessed with spotting people's wigs. But then being a hairdressers I think I always was!! I'm having gel nails on my fingers and toes tomorrow that always makes me feel better xxx
Blondeambition
Member

Re: Anyone starting chemo August 2015?

Thanks for the tip about lipocils. I hadn't heard of those. I'll be off on Amazon in a second! Anything that might work I'll try.
I've got some counselling sessions and some Shiatsu sessions booked through a support centre called the Haven in Leeds. They are all free too. It's amazing what's on offer and totally right that we should have anything that makes us feel vaguely better. Chocolate is still one of those things for me! xxx
Bibi44
Member

Re: Anyone starting chemo August 2015?

Blondeambition your post made me laugh because I am just totally wishing away the next 6 months of my life, which is kind of ironic under the circumstances.  Glad to hear your hair is holding on so far. I am doing the green sludge drinking too & weirdly I quite like the taste, despite the fact I hate things like kale usually. I was talking to my chemo nurse specialist yesterday about the black nail varnish idea (obviously she had nothing better to do with her time!) & she recommended horse's hoof & onico life to stop your nails ridging/falling off and lipocils for eyelashes/eyebrows. I also found a cancer help centre under our local Tesco which does free counselling, massage, reflexology etc. Who'd have guessed.  I must have walked past that door a hundred times & not noticed it.  Xx

Sarahd-1
Member

Re: Anyone starting chemo August 2015?

Lisa grab all the help with open arms 🙂 xxxx
lisajane7878
Member

Re: Anyone starting chemo August 2015?

Ooh good I might buy that book. Love the idea of the complimentary therapies. One of my school mum friends used to work in a centre next to Cambridge hospital doing all this and has offered to help xxx
carolec
Member

Re: Anyone starting chemo August 2015?

Hi All, glad that everyone is ok and that you are feeling better Sarah -  the complementary therapies sound good.   For some reason I woke up this morning at 4am and felt really sick and have had a metallic taste in my mouth all day - anyone else have this?  I have also just read that these are side effects for herceptin and I had my second injection last Thursday so maybe down to that!

The green juice sounds good - I'll have to get some wheat grass - I have a nutribullet but don't use it enough and if it helps to keep your hair I'm definitely going to try some juicing and will look at that book.  

Good luck all those having chemo this week and the new starters on the 7th.  It's a shame your chemo was delayed but as the other ladies have said hopefully you'lol be able to relax and be pampered at Christmas xxx

Sarahd-1
Member

Re: Anyone starting chemo August 2015?

Hi ladies. I hope you are doing ok. You all seem to be doing so well and I think we should be proud of how we are handling it all. I feel more human today and I have had some of the complimentary treatments that you are offered and it was lovely I had reflexology I would take them up on anything that is on offer if it helps you get through. I saw that book today at the Penny Brohn Centre where I was am very nearly bought it. I have become more obssessed about what I eat but I think sometimes with the chemo it can be a bit difficult to stick to it at all times. Thank you bibi. Im so sorry you are having a delayed start. You will be able to see the new year in style instead and like blondeambition said let everyone run round you and the same for lisa. Hope you had a nice time in London Carol. Good luck Bravescholar for Wednesday xxxxxx
Blondeambition
Member

Re: Anyone starting chemo August 2015?

Hi Lisa
That list of juice ingredients is what this book listed so you are right on track. I've also got a Nutribullet and have been doing the Toxin Cleansing one and Immune Booster with Chia seeds and Wheatgrass powder. Fingers crossed!
I bought a cookbook as well called the Cancer Cookbook (not a great title!) from the Royal Marsden Hospital. It's on Amazon. It gives you healthy recipes to have during and after chemotherapy and gives tips on which ones help with which side effects ie. sore mouth, nausea. I've also got really into the nutrition stuff. It's something I can focus on that is in my control. xxx
lisajane7878
Member

Re: Anyone starting chemo August 2015?

Hi everyone yes mine is starting 9th sept so with my calculations my last one is dec 23rd!! Talk about timing. Certainly a Xmas I won't forget. Can you fill us in about the green juice. I have turned a bit obsessed with food since my diagnosis. If nothing else it's given me something to focus on. I have a juice from my nutribullet every day. I add various bits to it. Wheatgrass, flax, chia seeds etc. I'm really happy to try anything to help get me through the chemo and would do anything to preserve some of my hair. Xxx
Blondeambition
Member

Re: Anyone starting chemo August 2015?

Hi BiBi
Sorry your chemo has been delayed a bit. Christmas is a big milestone for us all and at least you will hopefully be finished by then. You will have the best excuse ever to sit back and let everyone else run around like nutters whilst you cosy up on the sofa with a blanket and watch Christmas movies 😊 I know it's hard but try not to think too far ahead. Each week is one ticked off of the crappiest calendar ever.
I've just washed my hair for the first time after first session. It's hard to tell if there's more than normal coming out. I also had a dream about it all falling out Carolec! I am so anxious about it. I need to relax a bit otherwise it'll fall out due to stress!
Husband has a day off today and we are going to a health food restaurant. A book I read swears by green juice every day to prevent hair loss during chemo. I've been doing it for the last two weeks.
Hope you all had nice weekends. xxx
Bibi44
Member

Re: Anyone starting chemo August 2015?

Hi everyone

Hope you all had a good weekend & weren't feeling too awful. I spent 3 days last week at the hospital for various things & was told my first chemo has been moved to 7/9 now.  I was hoping to get going this week & now my last chemo will be 21/12, which doesn't bode well for a fun filled Christmas! LisaJane I think you said you are also a September starter, so you will be in the same position I think. Which regime have they put you on?  Sarah glad you got through round 1 of FEC. How do you feel now? Carol so pleased it was just a dream! I am dreading doing the cold cap & losing my hair anyway. i've had a few people telling me to pain my nails black . . Has anyone else discussed nails with their chemo nurses?

 

Good luck to BraveScholar, Carol, BlondeAmbition & anyone else having more treatment this week. XxxxX

carolec
Member

Re: Anyone starting chemo August 2015?

Hi Bravescholar sorry to hear you have had a bad time of it - I've seen a suggestion on here of keeping a diary - my symptoms do seem to follow the same pattern after chemo.  I've woken up today feeling like I've been through the washing machine a few times - also dreamt last night that I had big patches of hair loss all over and woke up thinking it was true! That may come in time but still trying to think in a "glass half full" kind of way.  Was going to the seaside today but now decided on a shorter trip to visit family in London and maybe go out to lunch, although the taste buds were playing up yesterday.

Lisajane there's a few of us on here using the cold cap and seems to be successful so far - good luck with your chemo on the 9th.

Hope everyone is feeling better today xxxx

bravescholar
Member

Re: Anyone starting chemo August 2015?

Glad things seems to have settled down for most folk.

 

My 2nd chemo session is on Wednesday. Got off lightly with the first cycle other than this past Friday, which was a horror of a day with severe headache and forehead sweats all day and thankfully just one episode of vomiting. It actually all felt like food poisoning but without the runs. In fact, I guess it could have been, as Friday was nine days after the chemo session.

 

Re cold cap at first session, I was given two paracetamol beforehand.

 

Re anti-nausea meds, pre-chemo I was given iv dexamethasone (a steroid), and in tablet form Aloxi (palonosetron) and Emend (aprepitant). Then post-chemo I was given dexamethasone tablets, to be taken at breakfast and lunch for three days; Emend (aprepitant), to be taken once a day at breakfast for two days and domperidone, to be taken three times a day for three days and then as required. I was very compliant and took everything as directed. I didn't feel any nausea at all - but no bloody wonder with so many anti-nausea drugs! 

 

I believe the type of anti-nausea meds you're given is determined by which chemo drugs you're on.

 

Good luck to anyone else who has chemo this week.

lisajane7878
Member

Re: Anyone starting chemo August 2015?

Will you keep me updated with regards to cold cap? I fancy giving it a go. My chemo starts 9th September now xx
Blondeambition
Member

Re: Anyone starting chemo August 2015?

Thanks...I had the same meds through my cannula and so far I don't feel sick so I'm not going to take the others unless I do. I will definitely ask about the sedative next time. I felt a bit claustrophobic with the cap for the first 15 mins until I tried a bit of mediation/mind over matter thoughts and then I managed to relax a bit. xx
Sarahd-1
Member

Re: Anyone starting chemo August 2015?

hi ladies so glad to hear you are both ok. I hope bibi got on ok with her chemo info part too. Hope you have a fantastic weekend ladies. Lots of hugs to you all and thank you so much july ladies for your tips they really do help and big hugs to all of you too xxxxxx
carolec
Member

Re: Anyone starting chemo August 2015?

Hi Blondeambition I had my fourth paclitaxol yesterday and they also gave me my second herceptin.  I never have sickness meds to take home - they give me them through the drip along with a combination of other things including piriton, steroids etc but never anything to take home.  To be honest touch wood I haven't felt sick enough to take any meds but maybe that's something that will come later.  I usually find it all kicks in after a couple of days and I do feel very achey for a few days and then I'm better again.  I have had the cold cap each time and the second week I couldn't wait to get it off.  They told me that most people have a mild sedative and since then they have given me 1mg lorazepam which does the trick and I usually have a nice sleep.  I have just been to the hairdressers for a trim as my fringe was getting too long so my hair must be growing bit -  hope I'm not speaking too soon and it all falls out next week!  Hope everyone has a nice relaxing weekend

Blondeambition
Member

Re: Anyone starting chemo August 2015?

Hi Ladies
Well done to all who have endured treatments this week. I hope you're all feeling alright and any sickness and sore mouths have eased.
I had my first Herceptin yesterday and my first Paclitaxel today. I felt quite achey and tired last night. I went to bed early and woke up shivering. After some more water and Paracetamol I managed to get back to sleep and felt better this morning.
I didn't find the cold cap as bad as I had expected. It was very uncomfortable as the strap is so tight under your chin that I could hardly talk and I couldn't hear much which was probably good as it was so busy on the ward. I just tried to lie back and close my eyes and imagine I was somewhere else. This worked until the guy next to me accidentally pulled his cannula out and his chemo leaked all over the floor causing the nurses to go into action mode with an emergency clean up operation! It made the time go a bit quicker at least!
The coldness didn't bother me as much as I thought it would though. I just looked like a fat cheeked hamster with strap pushing up my chubby cheeks. Husband wanted to take a photo but I refused! I really want to persevere with it if it works but it's going to be hard. I was counting the minutes until I could take it off!
I feel alright so far...bit tired. I'm waiting for the side effects to start kicking in in the next few days. When did others experience side effects on Pacliataxel? Do you take your anti sickness mess regardless of whether you feel sick or not?
Little one is home from nursery now so I have a few episodes of Peppa Pig to catch up on.
Best of luck for the bank holiday ladies. Hugs and strength to you all. It is so hard but we are doing it now and we are on the conveyor to this being over now. Think positive thoughts and create good energy xxx
Sarahd-1
Member

Re: Anyone starting chemo August 2015?

Hi Kobeobe7. I have got emend and it wirked for a bit but not for the whole day so I needed more to make me get through the first couple of days but the best thing for the nausea has been ginger ale all the way xxxx
Kobeobe7
Member

Re: Anyone starting chemo August 2015?

I'm  the July thread and saw your post about anti sickness meds. I was given Emend as I asked for it because I had awful morning sickness (you are more likely to suffer with nausea if you had bad morning sickness) and so far I've not really felt nauseous. You still don't feel great but at least not nauseous!  I believe it is expensive so it is not given routinely. Lots of other ladies have also recommended it on these forums so it works. X

Sarahd-1
Member

Re: Anyone starting chemo August 2015?

Hi Sandra what tablets are you on got sickness ? I'm no expert but my first chemo yesterday and I was given 3 different ones one for the morning some to take in the day and then I had some different ones to take as a one off which I think you only get on chemo days. But the nausea is not good! Ginger ale has been a god send for me. Hope this helps big hugs xxxx
SARN66
Member

Re: Anyone starting chemo August 2015?

Thank you Gaynor,

 

Will definitely speak to oncology nurse about white furry tongue etc and get some meds sorted for next time. I'm still feeling nauseous, any suggestions? What anti sick meds have worked best? Thanks Ladies

 

Sandra x x

Sarahd-1
Member

Re: Anyone starting chemo August 2015?

Good luck to all you lovely ladies having treatment today big hugs to you xxxxxx
Sarahd-1
Member

Re: Anyone starting chemo August 2015?

Thank you gaynor that's really useful. I had heard that before but had forgotten the name of the tablet. Xxxxxxxx
Gaynor1
Member

Re: Anyone starting chemo August 2015?

Hi
Hope you don't mind but just jumping in your thread from July 2015 thread. I was just reading about your mouth sites from the T.
I'm having TC and just about to have session 3 tomorrow.
I had terrible taste/ white covering on tongue and moth sites the first time and my onc gave me nystin to take 4 x per day and to start day 1 and to use continuously to prevent for session 2. It's worked! No thrush and only s couple of little mouth sores this week which were the ones from last time but not sore. He also prescribed cordysl mouth wash.
If you are having T one of the main symptoms of aches/ pains . I have used clarityn anti- histermine 1 per day starting day before chemo until about day 8-9 . This has really reduced the aches/ pains to vitally none just taken a ibuprofen a couple of times in the evening .
Hope this helps some of you, good luck to all of you x
carolec
Member

Re: Anyone starting chemo August 2015?

Bravescholar don't worry about having a moan - that's what we're all here for to support each other and we all deserve a moan for what we're going through.  I have suffered with the mouth ulcers and bought some Corsodyl, like Sandra and it seems to keep them down and also gargled with salt water yuck!  Glad you're feeling better Sandra.  Sarah that's a good tip for sicknes - will get some ginger ale and have tried ginger biscuits xxx

Sarahd-1
Member

Re: Anyone starting chemo August 2015?

Hi all sounds like we have all been through it a bit recently. I was ok till about 4pm then I got a banging headache and feeling sick. I called g.p and he have me stronger painkillers and some different anti sickness tablets but do you know what worked in the end was ginger ale and 4mg of diazipam. Hope you are all ok today xxxxxx
bravescholar
Member

Re: Anyone starting chemo August 2015?

Hi all. Funny how every hospital seems to be different. My oncologist insisted we try veins first rather than insert a picc even though i'm doing the cool cap. They give me something like a hot water bottle to rest my chemo arm on during treatment to keep the veins open. I thought it was just to keep me warm in general cos i was having the cool cap - i had it resting nicely on my tummy! - until one of the nurses put me right!
Day 8 after Cycle 1... not feeling great, for first time really. Painful mouth ulcers, whole mouth feels "thick" and I generally am feeling quite low. Sorry to moan.
SARN66
Member

Re: Anyone starting chemo August 2015?

Hi everyone,

 

Day 6 today, 2nd Taxotere last Thurs.   Starting to feel bit brighter mentally but physically still very lethargic and achey.  Just learning to go with the flow and rest when I need to.   Worse symptom so far was constipation, spoke to Oncology Nurse and recommended some otc meds to take.  Finally worked, such a relief.  Woke up this morning with very white furry tongue so using lots of Corsodyl to rinse and gargle.  Still trying to find foods that taste okay, bit hit and miss.  Toast and Honey seem to be the best at the mo.  Still drinking gallons of water but Im sure Im still dehydrated!! 

 

Picc line is okay but I do get fed up with the tubi-grip falling off, not very nice to see the wire and connections coming from my arm.  Also having to go to the 1 hour round trip to the hospital every week to get it flushed is a bit of a pain, my local practice nurses dont want to get involved with it.  Nevermind, at least I get to speak to the Nursing team once a week if I have any queries.

 

I can see there has been a few queries regarding having a picc line fitted.  Just wanted to let you know that it didnt hurt at all, i think the thought of it is worse than getting it done.  It makes chemo a lot easier because they can just conncect you up and get on with it.  They dont have to spend time trying to find a vein and fit a cannula everytime you have chemo.  I have been using a cold cap so the Nurse said it would be better to have a picc line fitted because your veins shrink when you are cold.  If i can help with any other queries let me know.

 

Hope everyone is having a reasonable day to today.  Hang in there, together we can do it!!!

 

Best wishes

 

Sandra x x